National Inventory of Hospice Palliative Care Resources and Tools for Aboriginal Peoples

Transcription

1 National Inventory of Hospice Palliative Care Resources and Tools for Aboriginal Peoples Prepared for: First Nations and Inuit Health, First Nations and Inuit Home and Community Care Program Health Canada HER MAJESTY THE QUEEN IN RIGHT OF CANADA (2007) Updated: May 4, 2007

2 No.: 1 Resource Title: 99 Common Questions (and more) about Hospice Palliative Care: A Nurses Handbook [3rd Edition] Author: Capital Health Authority (Calgary) Canadian Hospice Palliative Care Association No.: 2 Resource Title: A Caregivers Guide: A Handbook About End-of-Life Care Author: The Military and Hospitaller Order of Saint Lazarus of Jerusalem and the Canadian Hospice Palliative Care Association 2004, 2006 French Inuktitut [syllabics] and Innuinaqtun Canadian Hospice Palliative Care Association No.: 3 Resource Title: A Child's View of Grief Author: Alan D. Wolfelt, PH.D Companion Press No.: 4 Resource Title: A Friend in Hand Author: Hospice & Palliative Care Manitoba 1998 Hospice & Palliative Care Manitoba No.: 5 Resource Title: A Generative Response to Palliative Service Capacity in Canada Author: Michael Aherne & Jose Pereira, Leadership in Health Services 2005 Yes art00001 Leadership in Health Services Vol. 18 No. 1 No.: 6 Resource Title: A Guide for Caregivers Author: The GlaxoSmithKline Foundation and the Canadian Hospice Palliative Care Association 2002 PDF French Canadian Hospice Palliative Care Association

3 No.: 7 Resource Title: A Provincial Framework for End-of-Life Care Author: British Columbia Ministry of Health Life_Care-06.pdf No.: 8 Resource Title: Aboriginal Cancer Care Needs Assessment: "It's Our Responsibility" Author: Aboriginal Cancer Care Unit - Cancer Care Ontario 2001 PDF Cancer Care Ontario No.: 9 Resource Title: Aboriginal Clients and Families: Providing Quality Care by Respectfully Engaging Diversity Author: Gaye Hanson 2005 PowerPoint Presentation No.: 10 Resource Title: Aboriginal End-of-Life and Palliative Care Author: Hanson G. et al 2003 PDF The Pallium Project df No.: 11 Resource Title: Aboriginal Families: Completing the Circle Author: Lakehead University 2007 Ojibway Centre for Education and Research on Aging & Health (807) or lpisco@lakeheadu.ca No.: 12 Resource Title: Advance Care Planning: The Glossary Project: Final Report Author: Secretariat on Palliaitve and End-of-Life Care - Health Canada Yes

4 No.: 13 Resource Title: An Alzheimer's Surprise Party: New Sentient Communication Skills and Insights for Understanding and Relating to People with Dementia Author: Interactive Media Coma Communications No.: 14 Resource Title: An Assessment of Community Palliative Care Needs: The Case of Niagara Author: Allison Williams, Journal of Palliative Care 1999 Yes Journal of Palliative Care 15:2/1999, No.: 15 Resource Title: Assessing Status, Challenges and Needs of Delivery of Palliative Care in Alberta: Key Infomant Survey Based on the Canadian Hospcie Palliative Care Association (CHPCA) Model Author: Marie-Josée Paquin, Alberta Cancer Board 2004 No.: 16 Resource Title: Attending the Dying Author: Megory Anderson 2005 ISBN: No.: 17 Resource Title: Bioethics for Clinicians: 18. Aboriginal Cultures Author: Jonathan Ellerby, John McKenzie, Stanley McKay, Gilbert Gariépy and Joseph Kaufert, Canadian Medical Association Journal 2000 Yes No.: 18 Resource Title: Building Community Capacity: A Retrospective of Bereavement Servcies in Regina, Canada Author: Shawna Melvin, Mary Hampton & Michael McLean, The University of Regina and The Pallium Project Yes

5 No.: 19 Resource Title: Canadian Strategy on Palliative and End-of-Life Care - Progress Report of the Coordinating Committee Author: Health Canada 2004 Yes French strateg-palliat/index_e.html No.: 20 Resource Title: Canadian Virtual Hospice Author: French No.: 21 Resource Title: Caring for Aboriginal patients: The Culturally Competent Physician Author: Nadine Caron, Royal College Outlook Royal College Outlook, Volume 3, Issue 2, Fall 2006 No.: 22 Resource Title: Caring for Aboriginal Patients: The Culturally Competent Physician Author: Ian Maddocks and Robert Rayner, The Medical Journal of Australia 2003 Yes No.: 23 Resource Title: Caring for Loved Ones at Home Author: Harry van Bommel 1999, 2002 St. Elizabeth Health Care Foundation No.: 24 Resource Title: Caring for the Terminally Ill: Honouring the Choices of the People, 2nd edition Author: Barb Linkewich, Josephine Potson, Veronica Forbister, Wilma Sletmoen PDF

6 No.: 25 Resource Title: Clinical Communication in Hospice Palliative Care Author: The Pallium Project Yes Canadian Hospice Palliative Care Association No.: 26 Resource Title: Coma and Remote State Directive Author: Interactive Media No.: 27 Resource Title: Coma Work and Palliative Care: An Introductory Communication Skills Manual for Supporting People Living in Coma or Near Death Author: Coma Communications 1991 Polish, Slovak, to be translated into Japanese Coma Communications No.: 28 Resource Title: Completing the Circle: Healing Words Spoken to Aboriginal Families about End of Life Author: Hampton M. et al Yes No.: 29 Resource Title: Conversations on Caring - Volume 1 Author: The Pallium Project Yes Canadian Hospice Palliative Care Association No.: 30 Resource Title: Core Competencies/Learning Outcomes in Palliative and End-of-Life Care Author: EFPPEC Project Yes French

7 No.: 31 Resource Title: Course Planning Manual & Courseware: Responsive Hospice Palliative Care with Aboriginal Clients in Rural and Remote Settings Author: Gaye Hanson in collaboration with Michael Aherne, The Pallium Project 2004 Contact Mr. Michael Aherne, The Pallium Project No.: 33 Resource Title: Developing Spiritual Care Capacity for Hospice Palliative Care: A Canadian Curricular Resource Author: The Pallium Project Canadian Hospice Palliative Care Association No.: 32 Resource Title: Death. Dying, Grieving, and End of Life Care: Understanding Personal Meanings of Aboriginal Friends Author: Baydala A. et al. PDF No.: 34 Resource Title: Discussion Paper on End of Life / Palliative Care for Aboriginal Peoples Author: National Aboriginal Health Organization 2002 PDF National Aboriginal Health Organization No.: 35 Resource Title: Easing the Hurt: A Handbook of Comfort for Families and Friends of people Who are Seriously Ill Author: Elizabeth Latimer Language : ISBN: X No.: 36 Resource Title: Edmonton Symptom Assessment System (ESAS) Author: Eduardo Bruera, MD Regional Palliative Care Program in Edmonton, Alberta

8 No.: 37 Resource Title: Educating Future Physicians in Palliative and End-of-Life Care - Annual Report Author: EFPPEC Project Yes French No.: 38 Resource Title: End of Life Care with Aboriginal Families: Completing the Circle Author: (Hampton M. et al) 2005 Yes No.: 39 Resource Title: ESAS (Edmonton Self Assessment System) translated to Ojibway Author: Thunder Bay Regional Health Sciences Centre 2007 Ojibway TBRHSC, Regional Cancer Centre, Sue Berry, (807) No.: 40 Resource Title: ESAS (Edmonton Self Assessment System) translated to OjiCree Author: Thunder Bay Regional Health Sciences Centre 2007 OjiCree TBRHSC, Regional Cancer Centre, Sue Berry, (807) No.: 41 Resource Title: Family Hospice Care: Pre-Planning and Care Guide Author: Harry van Bommel 1999 St. Elizabeth Health Care Foundation No.: 42 Resource Title: Final Gifts: Understanding the Special Awareness Needs and Communications of the Dying Author: Maggie Callanan and Patricia Kelley 1992 ISBN:

9 No.: 43 Resource Title: Finding the Right Words: Offering Care and Comfort When You Do Not Know What to Say Author: Wilfred Bockelman 1990 ISBN: No.: 44 Resource Title: Framework for a $20 Million Long-Term, Sustainable, National Funded Strategy for Palliative and End-of-Life Care Author: The Quality End-of-Life Care Coalition of Canada 2005 Yes French No.: 45 Resource Title: Frequently Asked Questions About Educating Future Physicians in Palliative and End-of-Life Care Author: EFPPEC Project Yes French No.: 46 Resource Title: Growing Through Loss: A Handbook for Grief Support Group Author: Jean Mondourquette 1994 Novalis St Paul University ISBN: No.: 47 Resource Title: Guidelines for Palliativce Care Services in the Indian Health System Author: Indian Health Service, Department of Health and Human Services, USA No.: 48 Resource Title: Healing Grief at Work Author: Alan D. Wolfelt, PH.D Companion Press

10 No.: 49 Resource Title: Healing Your Grieving Heart Author: Alan D. Wolfelt, PH.D Companion Press No.: 50 Resource Title: HIV/AIDS Palliative Care Needs in the Prairie Region Author: Canadian Hospice Palliative Care Association 2000 PDF Canadian Hospice Palliative Care Association No.: 51 Resource Title: Honouring Ourselves: A Cultural Exploration in Grieving Author: Hospice Yukon Society Hospice Yukon Society No.: 52 Resource Title: Hospice Palliative Care - Public Awareness Raising Framework Author: Acart Communications Inc. / The Marketing Den for the Secretariat on Palliaitve and End-of-Life Care - Health Canada Yes French No.: 53 Resource Title: I Don t Know What to Say Author: Robert Buckman 1996 ISBN Hard cover: No.: 54 Resource Title: Ian Anderson Continuing Education Program in End-of-Life Care - Palliative Care Modules Author: Ian Anderson Continuing Education Program in End-of-Life Care Ian Anderson Continuing Education Program in End-of- Life Care

11 No.: 55 Resource Title: In Our Own Voices: Aboriginal Perspectives in Hospice Palliative Care Author: The Pallium Project Yes Canadian Hospice Palliative Care Association No.: 57 Resource Title: Issues in palliative care for Indigenous communities Author: Maddocks I. et al 2003 PDF The Medical Journal of Australia No.: 56 Resource Title: Indigenous Perspectives on Death and Dying Author: Ian Anderson Continuing Education Program in End-of-Life Care PDF Ian Anderson Continuing Education Program in End-of- Life Care df No.: 58 Resource Title: Knowledge Translation for Indigenous Communities - Policy Making Toolkit Author: Hanson G. et al PDF Indigenous Peoples' Health Research Centre No.: 59 Resource Title: Learning Essential Approaches to Palliative and End-of-Life Care (LEAP) Author: The Pallium Project Revised 2006 Yes French Canadian Hospice Palliative Care Association No.: 60 Resource Title: Miles to Go : A Handbook of Comfort and support for people who are seriously ill Author: Elizabeth Latimer Language : ISBN: X

12 No.: 61 Resource Title: Nashine Ginwenimazawin - Constant Care Author: Shelly Vanderhoef, 2 Spirited People of the First Nations 1999 Canadian HIV/AIDS Information Centre No.: 63 Resource Title: Palliative Care in First Nations Communities: The Perspectives and Experiences of Aboriginal Elders and the Educational Needs of Their Community Caregivers Author: Mary Lou Kelley, Holly Prince PDF Centre for Education and Research on Aging & Health, Lakehead University Contact (807) or lpisco@lakeheadu.ca No.: 62 Resource Title: National Indigenous Palliative Care Needs Study Author: Australian Government - Department of Health and Aging 2003 PDF Australian Government - Department of Health and Aging -pubs-indig-needs.htm No.: 64 Resource Title: Palliative Care: Caring for the Dying Author: Rosella Kinoshameg Sponsored by the UCCM Mnaamodzawin Health Services Long Term Care Program 1998 Canadian Hospice Palliative Care Association No.: 65 Resource Title: Palliative Performance Scale version 2 Author: Victoria Hospice Society 2001 PDF Victoria Hospice Society No.: 66 Resource Title: Preparing for an Expected Death at Home Author: Home Care Nova Scotia Language :

13 No.: 67 Resource Title: Providing Culturally Appropriate Palliative Care to Indigenous Australians: Resource Kit Author: Australian Government - Department of Health and Aging 2004 Australian Government - Department of Health and Aging No.: 68 Resource Title: Quality End-of-Life Care: The Right of Every Canadian Author: The Senate of Canada: Standing Committee on Social Affairs, Sciences and Technology: Subcommittee to update "Of Life and Death" 2000 Yes French No.: 69 Resource Title: Report on the Findings of the "Integrating Culture into Practice" Workshop Author: Victoria Syme, Inter Tribal Health Authority Report funded by BC Ministry of Health - Nursing Directorate, and Vancouver Island Health Authority Administered by School of Nursing - University of Victoria No.: 71 Resource Title: The American Book of Dying: Lessons in healing Spiritual Pain Author: Richard F Groves and Henriette Anne Klauser 2005 Celestial Arts ISBN: No.: 70 Resource Title: Select Bereavement Programming in Western Canada and a Discussion of Current Scholarship Author: Nutini J. et al The Pallium Project No.: 72 Resource Title: The American College of Physicians Home Care Guide for Advanced Cancer Author: American College of Physicians 1997 PDF

14 No.: 73 Resource Title: The Bedside Journal Author: Signature QuatroFex French P.O.Box 79075, Gatineau-Hull Quebec, J8Y 6V2 No.: 74 Resource Title: The Caregiver Survival Series: Preventing Caregiver Burnout Author: James R. Sherman 1994 Amazon.com ISBN: X No.: 75 Resource Title: The Pan-Canadian Gold Standard for Palliative Home Care: Toward Equitable Access to High Quality Hospice Palliative and End-of-Life Care at Home Author: Canadian Hospice Palliative Care Association Yes French No.: 77 Resource Title: The Transformative Change Accord: First Nations Health Plan - Supporting the Health and Wellness of First Nations in British Columbia Author: PDF No.: 76 Resource Title: The Senate Report on End-of-Life Care: The Ball is in Our Court Author: Harvey Max Chochinov, Canadian Medical Association Journal 2001 Yes No.: 78 Resource Title: Training Manual for Home Support Workers Author: Canadian Hospice Palliative Care Association Yes French Canadian Hospice Palliative Care Association

15 No.: 79 Resource Title: Understanding Death And Dying In Select First Nations Communities In Northern Manitoba: Issues Of Culture And Remote Service Delivery In Palliative Care Author: Hotson K. et al 2004 PDF International Journal of Circumpolar Health No.: 80 Resource Title: US Department of Health And Human Services - Indian Health Services - Publications Author: US Department of Health And Human Services - Indian Health Services No.: 81 Resource Title: Walking with People Through a Loss Author: Doug Manning 1992 Amazon.com