Membership of Parkinson s disease guideline Committee

Transcription

1 Membership of Parkinson s disease guideline Committee The Committee will operate as an advisory Committee to NICE s Board, developing clinical guideline on Parkinson s disease The terms of reference and standing orders for the Committee can be found in appendix D of Developing NICE guidelines: the manual. The Committee has 18 members, to include 10 core members and 8 topic expert members. The Committee will operate as an advisory Committee to NICE s Board, developing clinical guideline on Parkinson s disease

2 Membership list Name Job Title, Organisation Chair Paul Cooper Core members Janine Barnes Ivan Bennett Angela Birleson (resigned June 2015) Alistair Church Debbie Davies Richard Adam Grunewald Graham Lennox Fiona Lindop Jane Little Consultant Neurologist, Greater Manchester Neuroscience Centre and Honorary Senior Lecturer in Medicine, University of Manchester Neurology Pharmacist, Dudley Clinical Commissioning Group Clinical Director of Central Manchester Clinical Commissioning Group & General Practitioner with a specialist in Cardiology Principal Clinician Occupational Therapist, South Tees Hospitals NHS Foundation Trust General Practitioner Underwood Health Centre. Associate in Neurology with an in Movement Disorder Parkinson s disease specialist nurse, Aneurin Bevan Health Board, Newport Consultant Physician and Parkinson s, Royal United Hospital Bath Consultant Neurologist, Honorary Clinical Senior Lecturer and Clinical Director for Neurosciences, Central Sheffield University Hospitals Trust Consultant Neurologist, Great Western Hospital, Swindon, and honorary consultant neurologist, Oxford University Hospitals Physiotherapist, Assessment and Rehabilitation Centre, Derby Teaching Hospitals NHS Foundation Trust Patient/ carer member

3 Lynne Osbourne Paul Shotbolt Matthew Sullivan Co-opted members Julian Evans Clare Johnson Nicholas Miller Beverley Sheaf Amanda Wardle Topic expert members Adrian Williams Parkinson's disease nurse consultant, Peninsula Community Health, Cornwall Consultant Neuropsychiatrist, Department of Psychological Medicine, King s College Hospital Patient/ carer member Consultant Physician and Honorary Professor of Ageing and International Health, North Tyneside General Hospital (NTGH)/Institute of Health and Society, Newcastle University Consultant Neurosurgeon, Salford Royal NHS Foundation Trust Occupational Therapist, Derby Teaching Hospitals NHS Foundation Trust Speech and language therapist, Institute of Health and Society Speech and Language Sciences, Newcastle University Dietician, Royal Liverpool and Broadgreen University Hospitals NHS Trust Occupational Therapist, Bolton NHS Foundation Trust Date last reviewed: 05/08/2016

4 Declaration of Interests The effective management of conflicts of s is an essential element in the development of the guidance and advice that NICE publishes. Please refer to the NICE website for the Policy on Conflicts of Interest. Name Job title, organisation Declarations of Interest, date declared Type of Decision taken Adrian Williams (expert witness) During PD SURG up to publication did not accept anything from any DBS company (or Apo or Duodopa) i.e year period. as expert witness not involved in discussions about evidence or recommendations Last year: Abbvie training course on Doudopa Conference expenses x1 St Jude Fiona Lindop (Physiotherapist) Fiona Lindop (Physiotherapist) Physiotherapist, Assessment and Rehabilitation Centre, London Road Community Hospital, Derby Medtronic costeffectiveness (2015) meeting and honorarium I cancelled this arrangement this Jan/Feb when I heard you wanted us to come. Attendance at UCB sponsored meeting. No expenses will be received. A lecture to the Association of Physiotherapists Personal, specific,

5 with an Interest in neurology (ACPIN) in Norwich in November entitled European Guidelines and Physiotherapy Management in Parkinson s. I was paid a fee of 250 for this. (noncommercial sector) Fiona Lindop (Physiotherapist) 01/01/2016 I am on the Parkinson s UK Excellence Network National Oversight Board (representing therapy) and am also a member of the Service Development Group for this Network. Fiona Lindop (Physiotherapist) 01/01/2016 Developed a Physiotherapyspecific outcome measure for Parkinson s (Lindop Parkinson s Assessment Scale) It is freely available and Derby Hospitals NHS Foundation Trust owns the copyright Personal, specific, Fiona Lindop (Physiotherapist) Fiona Lindop (Physiotherapist) 09/09/2014 Attending the Movement disorder congress in June 2015 and been given a grant by UCB to cover registration. 11/02/2015 Spoke about the Parkinson s disease service offered in (expenses in line with NICE s expenses and subsistence policy) non-

6 Fiona Lindop (Physiotherapist) Derby at an event in Chesterfield. UCB offered money to cover travel expenses 11/02/2015 Delivering a talk to physiotherapists with assistance from Britannia who produce apomorphine about treatment with ultrasound for the nodules that can form from the apomorphine needles. No reimbursement is being received (in line with NICE s expenses and subsistence policy) Graham Lennox (Consultant Neurologist) Graham Lennox (Consultant Neurologist) Consultant Neurologist, Great Western Hospital, Swindon, and honorary consultant neurologist, Oxford University Hospitals 08/05/2015 Spouse benefits from a family trust fund which I believe has pharmaceutical shareholdings; she does not have any influence in relation to their choice of investments 15/10/2014 Travelled to India for the international office of the Royal College of Physicians to give lectures on neurological topics. No honoraria was received. personal Graham Lennox (Consultant Neurologist) 01/12/2014 Gave a talk on functional movement disorders at a meeting of the Association of British Neurologists

7 movement disorders special group. No reimbursement was received. Graham Lennox (Consultant Neurologist) 19/02/2015 At a regional Parkinson s disease forum hosted by UCB, delivered a talk on the mental health aspects of Parkinson s disease Janine Barnes (Neurology Pharmacist) Neurology Pharmacist, Dudley Clinical Commissioning Group 19/12/2015 Member of 2 Parkinson s UK Excellence committees: Evidence based practice and development of a medicines management standard to be a statement of good practice. nonpersonal Janine Barnes (Neurology Pharmacist) Janine Barnes (Neurology Pharmacist) 01/01/2016 Attendance at advisory board meeting arranged by Verto health consulting ltd. Regarding a new MAOB inhibitor Safinamide. 05/02/2016 Attendance at advisory board meeting organised by Simon Kucher & Partners regarding a new clinical Apomorphine formulation. (within NICE expense limit) (within NICE expense limit) (to be excluded from future meetings on MAOB inhibitors) (to be excluded from future meetings on Apomorphine) Janine Barnes (Neurology 02/03/2016 Waived a fee for UCB pharma work personal

8 Pharmacist) for the last 12 months (educational evening for community pharmacists on medicines review) and has been advised not to undertake further work with payment. Janine Barnes (Neurology Pharmacist) 01/10/2014 Undertook some market research for Synergy healthcare research about setting up multiple sclerosis clinics. The honorarium for this was given directly to a chosen charity Nonspecific Janine Barnes (Neurology Pharmacist) 17/02/2015 Attended an advisory board on 14/4/15 reviewing an epilepsy drug named Midazolam. The advisory board was held by InTeg Health and honorarium was paid directly from the company to a charity. Janine Barnes (Neurology Pharmacist) Janine Barnes (Neurology 14/04/2015 Quality assured a learning module on the management of Parkinson s for the Centre for Pharmacy Postgraduate Education through the University of Manchester. A small fee was received. 08/07/2015 Took part in an unpaid market research exercise Was judged by the guideline chair not to be conflict. Remove conflict from list when putting into the guideline non-

9 Pharmacist) looking at new therapies for Parkinson s disease and Alzheimer s disease psychosis Julian Evans (Consultant Neurosurgeon co-opted expert) Julian Evans (Consultant Neurosurgeon co-opted expert) Lynne Osbourne (Parkinson s disease nurse specialist) Lynne Osbourne (Parkinson s disease nurse specialist) Lynne Osbourne (Parkinson s disease nurse specialist) Consultant Neurosurgeon, Salford Royal NHS Foundation Trust Parkinson's Disease nurse consultant, Peninsula Community Health, Cornwall 10/08/2015 Attending the movement disorder society conference in 2015 with travel and accommodation funded by Medtronic 01/04/2015 Joining a European Advisory panel regarding a phase III trial for glial cell linederived neuroprotective factor (GDNF) for Parkinson s disease patients. The panel will be run by Pfizer in collaboration with Medgenesis 01/04/2015 Pharmaceutical meeting on 29 & 30 April called PINK and is sponsored by Britannia Pharma. Facilitating a SW Parkinson s Nurse meeting on 18 May. Meeting is sponsored by a selection of pharma companies. Chaired and facilitated at the PDNS meeting in November which was sponsored by a number of pharmaceutical companies. No honorarium was non - but within NICE policy limits, s Participate on a co-opted expert basis at meetings where required Participate on a co-opted expert basis at meetings where required. Must not be present at meeting on impulse control disorders Did not attend June 2015 where RQ 8&9 were discussed

10 received Lynne Osbourne (Parkinson s disease nurse specialist) 09/01/2015 Attending a Parkinson s disease conference funded by Teva/ Lundbeck in Feb Included 1 night accommodation but no additional gain except reasonable expenses. within reasonable limits Lynne Osbourne (Parkinson s disease nurse specialist) 09/01/2015 Work department is piloting a Parkinson s Kineti- Graph to monitor Parkinson s disease symptoms. The project is in conjunction with Parkinson s disease UK and Global Kinetics non Lynne Osbourne (Parkinson s disease nurse specialist) 09/01/2015 Attending the Movement Disorder Society conference for Parkinson s disease in June supported by Britannia Pharmaceuticals. Personal,, but within the NICE travel and subsistence policy Matthew Sullivan Matthew Sullivan Patient/ carer member 21/04/2015 Member of the Parkinson s UK Research Support Development Team. 01/01/2016 Member of Parkinson s UK Excellence Network preparation of training materials for non (honoraria in line with NICE lay member payments) (honoraria

11 Nicholas Miller (Speech and language therapist coopted expert) Speech and language therapist, Institute of Health and Society Speech and Language Sciences, Newcastle University lay members. 01/01/2016 Received honoraria from Glaxo Smith Kline and Movement Disorder Society for presentations on aspects of communication and swallowing in Parkinson s. Received research funding from Parkinson s UK. paid in line with NICE lay members payments) s on a co-opted expert basis (not involved in recommendations) Paul Cooper (Guideline Chair) Paul Cooper (Guideline Chair) Paul Cooper (Guideline Chair) Consultant Neurologist, Greater Manchester Neuroscience Centre and Honorary Senior Lecturer in Medicine, University of Manchester 06/09/2014 Association of British Neurologists, committee member of specialist advisory group 01/01/2016 Member of the American Epilepsy Society guideline committee. 01/01/2016 European Academy of Neurology Scientific Panel Brain Injury committee Paul Cooper (Guideline Chair) 01/01/2016 UCB sponsored attendance at European Narcolepsy masterclass (within NICE expense limit)

12 Paul Cooper (Guideline Chair) Paul Cooper (Guideline Chair) Paul Cooper (Guideline Chair) Presenting at American Epilepsy Society meeting. Medtronic providing statistical support for data analysis but no incentive ISA Fund which includes modest holdings in healthcare companies, amounting to less than 10% of the total value of my portfolio. The portfolio is not managed directly. 26/04/2014 Spouse has modest holdings in healthcare companies, also held within an ISA Fund, and also amounting to less than 10% of the total value of her portfolio. The portfolio is not managed directly. nonpersonal Paul Cooper (Guideline Chair) 26/04/2014 Jointly supervise a doctoral research fellow working on a collaborative project on transient loss of consciousness which is funded by Medtronic. The funds are managed by another NHS Trust, on behalf of my collaborator at Manchester Heart Centre. I have no role in managing these funds. non Richard Adam Grunewald Consultant 26/04/2014 Presentation of UCB funded lecture on

13 (Consultant Neurologist) Richard Adam Grunewald (Consultant Neurologist) Neurologist, Honorary Clinical Senior Lecturer and Clinical Director for Neurosciences, Central Sheffield University Hospitals Trust clozapine at the Yorkshire Movement disorder group (honorarium donated to Parkinsons UK) 01/01/2016 Undertaking a lecture as part of the UCB Northern Masterclass on Epilepsy. The lecture is on psychogenic nonepileptic seizures and 19/02/15 their relationship to functional neurological disorders. Honoraria will be received Richard Adam Grunewald (Consultant Neurologist) 18/04/2014 Presentation of UCB funded lecture on clozapine for East Midlands Parkinsons Excellence network (honorarium donated to Parkinsons UK) Participate Consultant Physician and Honorary Professor of Ageing and International Health, North Tyneside General Hospital (NTGH)/Institute of Health and Society, Newcastle University 19/10/2015 Speaker at British Geriatric Bladder and Bowel Society in November No expenses will be received..

14 Parkinson s UK Excellence network lead on care homes and ethnic minority groups Brittania sponsored attendance at Movement Disorders Conference in Berlin in June Advisory board work for AbbVie finished on 24 Sept around communication and motivational interviewing skills amongst doctors and nurses (within in NICE expense limit) 28/04/2014 Spoken at a meeting for Teva in March 2014 Positive Steps conference Involved in a debate on vascular Parkinsonism personal partici[ate 01/03/2014 Spoke at a meeting on palliative care and complex interventions such as duodopa, apomorphine and DBS for Lundbeck in June Specific personal Considered not conflicted (nonspecific) for the meeting on palliative care in Feb 2015 around information needs Spoken at the British Geriatrics Society meeting about Levodopa in April 2014 Didn t attend palliative care meeting conflict over 12 months

15 Will speak at 2 conferences in London in May and July 2015 about current issues in palliative care for MA healthcare ltd. The fee for this will be waived Principal investigator for a UCB study conducted at his place of work looking at ritigotine patch treatment for people with wearing off. nonpersonal 29/07/2015 Principle investigator for Northumbria Healthcare NHS Foundation Trust site for the NEUPART-PD0013 study of Rotigotine patch as an add-on treatment for levodopa. Ongoing since 2014, no personal payment received (study fees used to fund the time of research staff involved in study). nonpersonal 01/08/2015 Lead for Parkinson s research within Northumbria Healthcare NHS Foundation Trust, recently registered in participating in two further studies. One relates to research into Masitinib and the other is the Zambon Everest study into Safinamide. At the nonpersonal

16 time of declaration, both studies are in set-up phase and not confirmed. Consultant Physician and Parkinson s, Royal United Hospital Bath 01/08/2015 Spoke at a meeting in April 2014 for the British Geriatric Society. One symposium was on non-motor symptoms in PD. The second symposium was sponsored by Teva/ Lundbeck and was on Levodopa in 2014 withdraw if required 06/10/2014 Spoke at the PDNSA conference on palliative care in Parkinson s disease on 3/10/14. No Fee was received. 06/10/2014 Speaking at Positive Steps in Parkinson s Disease conference in February 2015 which is being sponsored by Teva/Lundbeck. Challenging nonmotor cases of Parkinson s disease. The fee for this work will be waived. 14/08/2014 Speaking at the 4th Annual Parkinson s Disease Forum in Bristol which is sponsored by UCB. The fee for this work will be waived Specific personal 14/08/2014

17 Regular speaker on the Faculty of Parkinson s Disease Academy masterclasses. All fees to undertake this work will be waived. 14/08/2014 Speaking at Positive Steps conference on 28/02/2015 sponsored by UCB on challenging nonmotor cases of Parkinson s disease. No honoraria will be received. personal 19/02/2015 Been asked to Chair part of a meeting in October 2015(?). Speaking at the same meeting (called Rising Stars in Parkinson s disease ). The talk will be on non-motor or palliative aspects of PD. No honoraria will be received 19/02/2015 Travel & accommodation expenses for San Diego Movement Disorder Society conference met by Britannia (in line with NICE expenses policy) 20/10/2015 Chair of Future Leaders in Movement Disorders (Dec15) no honoraria claimed 20/10/2015 non

18 Speaker at Positive Steps (Feb 16) sponsored by Britannia no honoraria claimed? 20/10/2015 Speaker at UCB sponsored talk on Pain in Parkinson s Disease no honoraria claimed 20/10/2015 Speaker at the Birmingham Movement Disorders course (March 16) expenses will be met (in line with NICE expenses policy) 20/10/2015 Faculty member of Parkinson s Academy (Parkinson s UK) and speaker at a range of masterclasses. Sponsored by a range of donors including Parkinson s UK (but no editorial rights). Honoraria and expenses received. 20/10/2015 Delivering a teaching course in India, organised through the Parkinson s Academy (May 16). Honoraria and expenses received. (noncommercial) (noncommercial) 20/10/2015 BIAL sponsored attendance at Movement Disorders

19 Conference in Berlin in June (within in NICE expense limit) Date last reviewed: 19/07/2016