The Icing On The Cake. How Volunteers Enhance the Integrated Palliative Care Team

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1 The Icing On The Cake How Volunteers Enhance the Integrated Palliative Care Team

2 Disclosures I have no affiliation with the pharmaceutical industry. I am an ardent supporter of the Integrated Palliative Approach.

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4 Patricia Jackson, Chairperson Hospice Palliative Care Society of Cape Breton County Dale Orychock, Treasurer Hospice Palliative Care Society of Cape Breton County

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9 Family Social Emotional Patient Financial Physical Quality Patient Care Spiritual

10 White Birthday Cake Basic old-fashioned birthday cake Preheat oven to 350 Grease and flour 8 round pan INGREDIENTS ¼ cup Butter ¾ cup White Sugar 1 Egg ¾ cup Sour Cream 1 cup Flour ½ tsp Baking Soda ½ tsp Baking Powder ¼ cup Water ½ tsp Vanilla Extract ½ tsp Lemon Zest DIRECTIONS 1. Cream butter and sugar 2. Add egg, vanilla and lemon zest 3. In separate bowl sift together flour, baking soda and baking powder 4. Alternately add dry ingredients, sour cream and water to wet mixture (sugar, butter, etc.) Mix until all ingredients are incorporated 5. Pour mixture into pan and bake until toothpick inserted into the center of the cake comes out clean

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13 ICING Definition of icing. 1: a sweet flavored usually creamy mixture used to coat baked goods (such as cupcakes) called also frosting. 2 : something that adds to the interest, value, or appeal of an item or event often used in the phrase icing on the cake. "Icing." Merriam-Webster.com. Merriam- Webster, n.d. Web. 1 Sept

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15 The Hospice Palliative Care Team and the Role of the Volunteer The interdisciplinary Hospice Palliative Care team should include the client and family, nurses, physicians, other health professionals, para-professionals and volunteers. Volunteers are respected and important members of this team. In addition to extensive hospice palliative care training, their range of life experiences contribute rich and diverse perspectives. Their gifts of time and compassion are essential to the team s holistic approach. - A Guide to Hospice Volunteer Training in British Columbia 2008 British Columbia Hospice Palliative Care Association

16 Direct Patient Contact Hospital/Hospice Visitors Minimal Patient Contact No Patient Contact Bakers/Cooks Office Volunteers and Greeters Home/LTC Visitors Flower Volunteers Hospice Society Vigil Volunteers Gardeners Yard Work Pet Therapists Drivers Dog Walkers Bereavement Volunteers Hairdressers Knitters/Sewers Comfort Choir Entertainers Shoppers/Errands Art and Music Therapists Special Events Special Events Complementary Therapists Special Events

17 Volunteers Pat Lee & Martha Ramey delivering treats to a patient

18 Volunteer Michelle McNeil & Pet Therapy Dog Hershey

19 Cape Breton Comfort Choir

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21 Volunteer Baker Dena Pruski

22 Volunteers Elaine Cuff & Frank Sinclair

23 Alec s Old Fashioned Buns

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25 Aurelle Landry Executive Director Hospice Palliative Care Society of Cape Breton

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28 Scarves painted by elementary school children Volunteers Joan, Elaine and Dorothy delivering hand-painted scarves and hats to a patient

29 Dr. Anne Frances D Intino Palliative Care Physician Cape Breton

30 Why Volunteer for Palliative Care? Not quite sure, they just want to help Had experience with Palliative Care and want to give back Know someone who had a good experience Saw it in an ad and decided to check it out Resume builder or looking for a job and want to get their foot in the door

31 Volunteer Baker Brenda LeBlanc When my brother was terminally ill twentyfour years ago, I can still vividly see the palliative care volunteers coming into his hospital room and sitting with us, bringing tea and just being there to listen.... That memory was always in the back of my mind and when the opportunity came available, I decided to become a palliative care volunteer.... A way of paying back the kindness shown to my brother and our family. Families appreciate the little things and when they realize that we have been in their same shoes at one time or another, they often let their guard down and relax more and confide more. Providing a smile, a soft touch of the hand or even a hug (which we give freely) means so much to the receiver.

32 Volunteer Bakers Elaine Cuff & Frank Sinclair

33 How do we make the icing?

34 How do they become palliative volunteers? Application Specific questions re PC Interview Selection process (two people interview) Certain questions to get to know them Find out what their interests are Pick up on non-verbal cues Match personality with volunteer opportunities Beliefs and judgment Criminal Record Check/Child Abuse Registry/Health Assessment

35 The Heart of a Palliative Care Volunteer

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38 Current Volunteer Training in Nova Scotia

39 McGill Palliative Care Training Program 2009 & 2012 Hospice Palliative Care Ontario (Online Training program) 2016 Edmonton Zone Palliative Care Training Program British Columbia Hospice Palliative Care Association

40 Palliative Care Building Capacity and Program Change Working Group MANDATE: to address the requirements for standardized education and capacity building of health providers and volunteers. COMPETENCIES: Health professionals caring for patients with life limiting illnesses and their families Health professionals specializing in Palliative Care Palliative Care volunteers

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44 VOLUNTEER EDUCATION A new task group has now been established to: Review current education/training programs being utilized in Nova Scotia Research potential programs available nationally and internationally Map out which ones meet the competency framework Make recommendations to the Nova Scotia Health Authority

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47 ONLINE LEARNING PROS Less time in classroom Greater accessibility for those who work Can be offered more than once or twice a year Less staff required to facilitate modules Broader range of topics offered CONS Minimal face-to-face discussion Less time for volunteer questions Minimal opportunity for connection between volunteers and staff Lose the personal aspect, stories, sharing feelings, etc. Logistics for rural volunteers

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51 What s more important? The cake or the icing?

52 Mae & Ricky Smith

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54 What does this all mean for you? What does this mean for you? Volunteers are an integral part of the Palliative Care Team Volunteers are well screened and well trained Volunteers bring their own unique gifts, talents and time with them Volunteers can often do the things you wish you could do for patients and families Take some time and get to know your volunteers, learn their names, ask questions Thank your volunteers!

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