Register of declarations of Interest

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1 Register of declarations of Interest The effective management of conflicts of interests is an essential element in the development of the guidance and advice that NICE publishes. This document records declarations made at any stage in the guideline development process, from recruitment to the final Committee meeting. Please refer to the NICE website for the Policy on Conflicts of Interest. Name Tessa Lewis (Chair) Sophie Wilne (Vice Chair) Job title, organisation Practitioner and Medical Advisor, Blaenavon Medical Practice Oncologist, Nottingham Children s Hospital Declarations of Interest, date declared (recruitment / committee meeting) Standing Committee members None Declared 11/11/17 Recipient of NHS Innovation Challenge Award for clinical awareness campaign to reduce delays in diagnosis of brain tumours in children & young adults. Award will be used to develop the campaign. Type of interest Decision taken Sophie Wilne Sophie Wilne Oncologist, Nottingham Children s Hospital Oncologist, Nottingham Children s Hospital Declared 18/04/17 Co-investigator for RFPB grant to undertake systematic reviews in childhood brain tumours. Declared 18/04/17 Co-investigator for grant awards from charity to evaluate impact of brain tumour awareness campaign. Sophie Wilne Oncologist, Nottingham Children s Hospital Declared 18/04/17 Funding from Jazz pharmaceuticals to attend SIOP (Congress of the International Society of Oncology) Conference registration, accommodation and transport paid for. Declared - 18/04/17 Sophie Vice-Chair of NICE

2 Wilne John Cape Oncologist, Nottingham Children s Hospital Director of Psychological Therapies Programme, University College London Standing Committee A for rapid guideline updates. Receive an honorarium for meetings I chair and pre-meeting work when chairing. Receive travel and subsistence expenses and accommodation to attend all meetings. Declared - 18/04/17 ee of the Anna Freud Centre, a child and family mental health charity which applies for and receives grants from the Department of Health and the National Institute for Health Research. John Cape Director of Psychological Therapies Programme, University College London Declared 04/08/2017 Member of British Psychological Society & British Association for Behaviour & Cognitive Psychotherapists who seek to influence policy towards psychology & psychological therapies. John Cape Director of Psychological Therapies Programme, University College London Declared - 04/08/2017 Clinical Services Lead half-day a week to Big Health, a digital health company that has one commercial product; an online CBT self-help programme for insomnia with online support Alison Eastwood Professor, Centre for Reviews and Dissemination, University of York Declared - 04/08/17 Member of an independent academic team at the Centre for Reviews and Dissemination, University of York commissioned by NICE through the National Institute for Health Research to undertake technology assessment reviews. Non-personal Declared 10/07/13 Organises workshops for physiotherapists treating pelvic girdle pain. Paid for this work by the delegates; physiotherapists,

3 osteopaths and chiropractors. Payment and expenses from the Nursing and Midwifery Council as a lay panellist of the Fitness to Practise Investigating Committee. Lay reviewer for the National Institute for Health Research; has reviewed a number of research proposals being considered for funding. Paid for carrying out these reviews. Chair of the Pelvic Partnership, a support group for women with pregnancy-related pelvic girdle pain (voluntary position). Trained as a chartered physiotherapist and qualified in 1988 but have not been in clinical practice since Remains a non-practicing member of the Chartered Society of Physiotherapy. Appointed by Mott MacDonald to carry out reviews as a lay reviewer on behalf to the Nursing and Midwifery Council of Local Supervising Authorities and Universities providing courses for nurses and midwives. This is paid work. Appointed to the NICE Fellowship Quality Lead for NHS England (South)

4 Specialist Advisor for CQC for maternity inspections NICE Diagnostic Services Committee Core Member Declared 05/07/16 RCGP Representative: Antimicrobial Resistance/ Stewardship Declared 05/07/16 GP Consultant; Practice Pharmacist Training Pathway (GPPTP) Centre for Pharmacy Postgraduate Education. Paid a fee and travel and accommodation were paid for Declared 05/07/16 Professional and Linguistic Assessments Board (PLAB) Part 1 Panel Member Medical Council (GMC) Member of the NICE Guideline Committee for Primary Hyperparathyroidism Associate Professor, Office of Medical Education, International University of Health and Welfare (IUHW) School of Medicine, Japan,,,,,, Visiting Research Fellow, Faculty of Health and Medical Science, University of Surrey Professional and Linguistic Assessments Board (PLAB) Part 2 Examiner (GMC), Non-,,,

5 RCGP Representative; Antimicrobial Resistance (AMR); College of Practitioner Clinical Adviser, NHS England South (South East) Research and Ethics Committee (REC) Member Health Research Authority, London (Break in service May 2017 Nov 2017),,,,, Non-, Catriona McDaid Catriona McDaid Senior Research Fellow, Department of Health Sciences, University of York Senior Research Fellow, Department of Health Sciences, University of York I own investment share trusts. These s may include health and pharmaceutical sector. Declared 22/02/16 Membership of NIHR HTA/EME Editorial board Declared 02/11/17 Advisory Editor Clinical Radiology Chair East of England British Institute of Radiology Director Cambridge Clinical Imaging LTD British Thoracic Society Bronchiectasis Guidelines Group Member of the Faculty Board for the

6 College of Radiologists Declared 16/06/15 Member of the Editorial Board of Pulmonary Circulation Senior Editor (Chest) for British Journal of Radiologist Vice President (Publications) for British Institute of Radiologists Councillor for European Society of Thoracic Imaging Jury Committee Member for European Society of Thoracic Imaging Programme Committee member for European Congress of Radiology 2018 Topic Expert Members Gillian Baird Consultant Neuro-disability Member of both DSM5 and ICD11 neurodevelopmental work groups considering autism amongst other conditions DSM published 2013, ICD11 in 2018 Specific Gillian Baird Consultant Neuro-disability Declared 12/06/17 Co-applicant in two research projects: 1.Wellcome Coapplicant for Specific language impairment and comorbidity: development over the first three years of schooling. PI Courtenay Norbury 2. NIHR Co-App PI Emily Simonoff Program Grant AIMS. Non-personal

7 Behaviour outcomes, co-existing conditions and intervention in children with autism Gillian Baird Consultant Neuro-disability Declared 12/06/17 Recent publications: Chandler S, Howlin P, Simonoff E, Kennedy J, Baird G. Comparison of parental estimate of developmental age with measured IQ in children with neurodevelopmental disorders. Child Care Health Dev Chandler S, Howlin P, Simonoff E, O Sullivan T, Tseng E, Kennedy J, et al. Emotional and behavioural problems in young children with autism spectrum disorder. Dev Med Child Neurol. 2016;58(2): Charman T, Baird G, Simonoff E, Chandler S, Davison Jenkins A, Sharma A, et al. Testing two screening instruments for autism spectrum disorder in UK community child health services. Dev Med Child Neurol. 2016;58(4): Horridge KA, Harvey C, McGarry K, Williams J, Whitlingum G, Busk M, et al. Quantifying multifaceted needs captured at the point of care. Development of a Disabilities Terminology Set and Disabilities Complexity Scale. Dev Med Child Neurol. 2016;58(6): Loucas T, Baird G, Simonoff E, Slonims V. Phonological processing in children with specific language impairment with and without reading difficulties. Int J Lang Commun Disord.,,

8 2016. Milosavljevic B, Carter Leno V, Simonoff E, Baird G, Pickles A, Jones CR, et al. Alexithymia in Adolescents with Autism Spectrum Disorder: Its Relationship to Internalising Difficulties, Sensory Modulation and Social Cognition. J Autism Dev Disord. 2016;46(4): Norbury CF, Gooch D, Wray C, Baird G, Charman T, Simonoff E, et al. The impact of nonverbal ability on prevalence and clinical presentation of language disorder: evidence from a population study. J Child Psychol Psychiatry Riches NG, Loucas T, Baird G, Charman T, Simonoff E. Elephants in Pyjamas: Testing the Weak Central Coherence Account of Autism Spectrum Disorders Using a Syntactic Disambiguation Task. J Autism Dev Disord. 2016;46(1): Baird G, Norbury CF. Social (pragmatic) communication disorders and autism spectrum disorder. Arch Dis Child 2016;101: Green D, Chandler S, Charman T, Simonoff E, Baird G. Brief Report: DSM 5 Sensory Behaviours in Children With and Without an Autism Spectrum Disorder. J Autism Dev Disord 2016;46: Norbury CF, Gooch D, Wray C, et al. The impact of nonverbal ability on prevalence and clinical presentation of language

9 disorder: evidence from a population study. J Child Psychol Psychiatry 2016;57: Gupta AR, Westphal A, Yang DYJ, et al. Neurogenetic analysis of childhood disintegrative disorder. Mol Autism 2017;8:19 David Spitzer Tony Charman Tony Charman Hana Whitty GP, North London Chair in Clinical Child Psychology, Institute of Psychiatry, Psychology & Neuroscience, King s College London Chair in Clinical Child Psychology, Institute of Psychiatry, Psychology & Neuroscience, King s College London Specialist Speech & Language Therapist Declared 12/06/17 None Declared 02/11/17 I receive and have previously received research grant income related to autism. Declared 15/06/17 Have published papers relevant to the topic of the NICE update Declared 15/06/17 None Declared 01/11/17 Member of committee for Somewhere over the Spectrum girls autism support group (voluntary position) Non-personal,,,, Specific Vice-treasurer for the SWAP Network (group of the SWAP network of autism professionals in the Midlands area) Steering group (voluntary position) Independent Supporter for SEND volunteering for SENDIASS in Birmingham (voluntary position)

10 Academy Councillor (school governor) for Oasis Academy Short Heath (voluntary position) Member of the Liberal Democrat political party and the Liberal Democrats Disability Association Speaker at the National Autistic Society professional conference. Speaking about personal experience of living with epilepsy and autism. Speaker fee of 150 from INVOLVE guidelines will be donated to SOTS girls autism support group financial nonspecific Speaker for Autistica (voluntary position) Declared 06/11/17 Trainer for Autism West Midlands on education health care plans at their parent support groups (voluntary position) Declared 06/11/17 Jenny Drew None Clare Jenkins Sharon Richman Specialist Health Visitorchildren with Special Needs Consultant ian Declared 16/06/17 None Declared 07/11/17 None Declared 01/11/17 Date last reviewed: 20/11/2017

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