Head and Neck Pathway Board 10 th March 2016 Minutes of Meeting

Transcription

1 Head and Neck Pathway Board 10 th March 2016 Minutes of Meeting Peter Mount Meeting Room, Peter Mount Building, CMFT Time: 2-4pm Attendance Miss Susi Penney David Makin Mark Price Lucie Francis Hannah Kelly Yatin Jain Suzie Bonnington Rachel Hall Laxmi Ramamurthy Kate Hindley Philip Bryce Chetan Katre Maria Round Debbie Elliott Frances Ascott Katie Hindley Apologies Helen Doran David Thomson Catherine Cameron Kerenza Graves Jonathan Hobson Kate Garcez Helen Rust Karen McEwan Mazhar Iqbal Mr Manu Patel Mr V Pothula Representation Consultant ENT Surgeon, Tameside FT, Pathway Director Patient representative Patient representative Macmillan User Involvement Manager, Manchester Cancer Dietician, CMFT Consultant, Christie FT Consultant Radiologist, Christie FT Pathologist, Pennine Consultant ENT Surgeon, Stockport FT CNS, SRFT CNS, CMFT Consultant, PAT Macmillan Head & Neck CNS, PAT CNS, Christie FT SLT, CMFT CNS, SRFT Consultant Thyroid Surgeon, Salford FT Oncologist, Research representative, Christie Head and Neck CNS, WWL CNS, Bolton FT ENT Consultant, UHSM Oncologist, Christie FT SLT, Christie FT Macmillan GP, Stockport Maxillo Facial Surgeon, UHSM Consultant Oral Maxillo Facial Surgeon, UHSM Consultant Head and Neck Surgeon, WWL In Attendance: Nicola Remmington, Pathway Manager, Manchester Cancer

2 Agenda Item 1. Apologies Apologies were noted. Reduction in attendance was attributed to the Junior Doctors Strike occurring today and the requirement for Consultants to remain on site as cover. Action 2. Welcome and introductions SP welcomed Nicola Remmington to the Board who is today covering the Head & Neck Board meeting as Hodan Noor has left her role within Manchester Cancer. NR stated that a replacement Pathway Manager, Claire O Rourke, has been appointed to the Head & Neck Board and is due to start on 1 st April NR apologised for any gaps in support during this interim period. SP welcomed Lucie Francis, Macmillan User Involvement Manager to the Board [T: , Lucie.Francis@nhs.net]. SP highlighted that this is her last meeting prior to starting maternity leave and meetings will reconvene in the summer. 3. Minutes from the last meeting The minutes of the meeting held on 13 th accurate record of the meeting. January 2016 were accepted as an 4. Matters Arising All outstanding items completed. 5. Objective 2- Improve Patient Experience a) Manchester Cancer User Involvement Team LF summarised the Manchester Cancer User Involvement Q2 Report. Further developments have been reaching their objective to recruit 100 people affected by Cancer by March 2016 which has now been achieved. Further objective was to have a person affected by cancer on each Pathway Board which has also now been achieved. LF stated that they are also working to establish a small community of people affected by H&N cancer (minimum 6 people) to feed into the H&N Pathway Board (via DM and MP) in order to ensure a broad range of representation, including aspects of treatment involving Surgery, Chemotherapy, Radiotherapy etc. LF asked the Board to be aware of the resource now available and that their input into future projects can be very meaningful due to their wealth of knowledge. LF also highlighted that it was imperative to keep those recruited engaged by allocating them to such projects. DM & MP requested for the establishment of said small community to be a.s.a.p. and LF stated the aim was to have this established prior to the next Pathway Board in June PB highlighted that Central FT are due to have their next Health & Wellbeing Event on 8 th April 2016 and invited LF to attend in order to potentially recruit to the small community of people affected by H&N cancer LF confirmed. Patient Support Groups group discussed requirement for a comprehensive list of all patient support groups across Greater Manchester. LF to collate. b) Late Effects Survey (LW&BC) - In the coming year The Living with and Beyond Pathway (LW&BC) Board are undertaking a mapping exercise of current resources ACTION: LF to establish small community of people affected by H&N cancer by next PB meeting (16/06/16). LF to attend H&W Event at CMFT on 08/04/16. ACTION: LF to collate definitive list of all H&N Patient Support 2

3 to support both the general and specific consequences of treatments. As part of this a survey had been shared for completion to all boards which then the LW&BC board will use to draft a proposal for a Manchester Cancer survey of life after cancer. SP had identified a small sub group to draft the initial survey response which was presented to the Board as this is required to be ratified by the full Pathway Board before being forwarded to the LW&BC Pathway Board. Further identified issues to be added to the survey response: Further highlight dentistry issue for patients who have had Radiotherapy and suggest completing audit of all dentists willing to provide treatment Possibly organise CPD type event for Dentists Develop on-line education for Dentists Establish requirement for an Oral Health Practitioner to be present at each MDT Further highlight issue with inequitable Lymphoedema Service Treatment Summaries should include Late Effects section to highlight to patients as to what to expect at end of treatment Highlight development of a Maggie s Centre at Oldham Trust within the year Palliative Care issue with Hospice capacity SP stated that the final draft will be forwarded to the LW&BC Board next week and therefore should any further additions/amendments be identified by Board members then to forward them to SP within the next week. Final document will be shared with the Board prior to sending. Groups across GM. forward further comments to SP within 1 week for inclusion in final draft. ACTION: SP to share final completed survey with Board prior to sending to LW&BC Pathway Board. 6. Objective 3- Research and Clinical Innovation Deferred to next meeting. 7. Objective 4- Improving and standardising high quality care across the whole service a) Developing New Quality Standards for Head and Neck Cancer Care SP highlighted that at the last PB meeting all members had been requested to contribute to the development of the quality standards based on their discipline. SP stated that she has received some replies but further responses are still required. SP stated that within the Greater Manchester Cancer Vanguard there are a number of cross-cutting groups (with representation from each Pathway Board and Trust) that have been developed as it has been recognised that there are areas that have either issues or standards that will apply across all tumour groups. (Refer to document for further info): Vanguard_clinical_tra nsformation_overview RH stated she will volunteer to be the H&N rep on the Pathology Board. ACTION: RH to 3

4 SP stated that the Cancer Vanguard Team have highlighted that the only way to ensure standardisation and improvement of Cancer pathways is through the development of robust quality standards that all service providers must adhere to (through monitoring by commissioners). SP stated that there are a number of areas within the draft Quality Standards document that are as yet to be covered and primarily this is due to various categories not currently being present on the template such as Prevention for which the requirement for HPV vaccinations for boys will be included. Ideal Diagnostic Pathway - SP requested for all to forward their ideal Diagnostic pathway, including one-stop clinics etc. Self-Referral/Direct Access - SP discussed the possibility of self-referral and stated that she has suggested to the Cancer Vanguard Diagnostic Group [GP Lead: Matthias Hohmann] to start with H&N and to pilot self-referral to Neck Lump clinics due to the fact that if you are >40yrs and have a neck lump then the probability that this is cancer is very high. SP requested for all to be receptive to CCGs should they contact them requesting assistance with the delivery of this pilot. CNS Resource group discussed the need for additional CNS resource as many Trusts currently only have 1 x CNS and therefore annual leave/sickness is not able to be covered. Also, CNSs need appropriate level of admin support. To be included in next draft of standards. Establishment of Specific Tracheostomy Pathway Clinical Audit no responses received as yet. Clinical Research no responses as yet. Education needs to be large part of Quality Standards. Follow-up The group agreed that remote follow-up would not be viable for H&N patients as a physical examination and observation would always be required for this patient group. Palliative Care & Hospice Access Access is inequitable across GM. Best practice will need to be made explicit. LW&BC pathway will develop this but also need to state within the Quality Standards for H&N. Audiology Access is inequitable across GM. Transport Issues significant inequity in transport provision across GM. All standards to be ed to SP so the second draft can be shared for the June meeting for further discussion and deliberation. SP also highlighted the need for best available evidence to support the establishment of the Quality Standards (SP will send targeted s for this). contact Brian Benatar requesting membership to the Cancer Vanguard Pathology Board. ACTION: Each Trust to forward their ideal Diagnostic Pathway to SP to contribute to the development of the Quality Standards. assist in the delivery of the Self-referral pilot should they be contacted by the CCGs. forward further additions/ recommendations for the Quality Standards to SP. b) New 2WW Referral Form SP attended the GP meeting (with all CCGs represented) last week and recommended that the current draft of 2WW referral form based on the NICE guidance needs amending. The GPs were receptive to this and a new form will be issued in the near future. This will be a Pan Manchester form accepted by all CCGs and will be based upon the old Manchester Cancer referral form. GP Sarah Taylor is leading on this and will be forwarding a draft form to SP in the next few weeks. The form will have a generic ACTION: SP to share 2WW referral form draft document with PB once received from Sarah Taylor. 4

5 front page (demographics etc.) for all tumour groups and the second page will be tumour group specific. SP will share the draft referral form with the Board once received. 8. Annual plan 15/16 Action log Deferred to the next meeting. 9. A.O.B. SP stated that her last day prior to taking Maternity Leave is Wednesday 23 rd March 2016 but plans to access s during her leave. 10. Date of the next meeting 16 th June - 2-4pm Peter Mount Room, CMFT 21 st September 2-4pm meeting room 6, Christie Trust HQ 23 rd November 2-4pm meeting room 6, Christie Trust HQ 5