Head and Neck Pathway Board Meeting

Transcription

1 Head and Neck Pathway Board Meeting Date: Tuesday 10 th September 2013, 14:30-16:30 Venue: The Guild Room, St Bartholomew s Hospital Chair: Mr Simon Whitley ACTION LOG Action Owner Date Agreed Status To contact about the transfer of work from BCF Simon Whitley 10/09/ /09/2013 Clinical Guidelines 1. To assess NE guidelines and confirm still accurate and up to date 2. To cross reference with NL guidelines (to consider information that needs to be merged) 3. To decide on content for one guideline Claire to send guidelines to all Kim Pathology Simon Whitley Clinical Claire & Jane Dental Bella AHP Simon to ask Polly or Tim to check imaging 10/09/ /09/2013 Head & Neck Constitution document names to be checked for BCF Confirm figures of new diagnoses in Case for Change & scorecard. Establish if more data is available on surgery. Tim Beale and/or Simon Morley to be asked to join the pathway board to represent imaging Martin Forster to be asked to join the Pathway Board Wayne Halfpenny to be asked to chair the Thyroid sub-group Ian Hutchinson to be asked if he wishes to remain on the Board and if he wishes to remain chair of the Early Awareness & Detection Subgroup Early Detection & Subgroup to meet in regards to plan an event/s in November Research sub group to meet in regards to a research half day Patient information survey results for all Trusts to be presented at the next Board Simon Whitley 10/09/ /09/2013 Claire Levermore 10/09/ /09/2013 Simon Whitley 10/09/ /09/2013 Claire Levermore 10/09/ /09/2013 Leads for Patient information to be contacted at each Trust to understand current position Visit other units across the country to understand MDT working Claire Levermore & Lynda Farmer Simon Whitley & Claire Levermore 10/09/ /09/ /09/ /10/2013 1

2 Information AHPs and local support teams for each Trust London Cancer Claire Levermore Bella T 10/09/2013 4/10/2013 Organise a meeting regarding psychological Mary Burgess 10/09/ /10/2013 support for patients Feedback from group answer around patients who travel between Trusts for treatment and how they should be entered onto DAHNO Understand from each Trust their ability to input into DAHNO and plans to improve Simon Whitley 10/09/ /10/ Apologies and minutes of last meeting SW welcomed the Pathway Board members and apologies were heard. SW introduced Claire Levermore as the new Pathway Manager for Head and Neck. SW confirmed the agenda items would be discussed in a different order. 2. Case for Change and London Cancer Board updates CL updated the group around the Case for Change. It was noted that there was a Go or No Go meeting being help by NHS England today. If the option was Go there would be a pre-full public consultation phase followed by a full public consultation phase and the process would take around 4-5 months The case for change for head and neck cancer was discussed and it was noted that discussion of IMRT, centralising surgery to improve surgical expertise and an enhanced recovery programme has been highlighted as key wins in the document. The group were informed of the huge process and Simon requested support to talk and support the Head and Neck case. CL informed the group that media training was available and being arranged by London Cancer. SW informed the Board he had presented to the London Cancer Board the previous Wednesday on the progress of the Board and 2 queries had been raised, firstly the number of MDTs and secondly the location of the neck lump clinics The transfer of BCF to was discussed as the critical care facilities at BCF are closing in November 2013 and so the move of some patients to will precede the Case for Change decision on clinical safety grounds. ACTION: SW agreed to speak to management at as there was noted concern that preparations for this transfer was not at an advanced stage 3. Clinical Guidelines The need for up to date and agreed guidelines across London Cancer was discussed and it was agreed to complete this task in time for the peer review deadline of the end of the month. 2

3 ACTION: Pathway board members checking and confirming sections and all to be agreed by the end of September 4. Peer Review Gaps in the constitution were discussed. It was agreed that any clinic that assessed neck lumps would be referred to as a rapid diagnostic clinic. The named surgeons, local support teams and the location of the rapid diagnostic clinics was confirmed. ACTION: SW to clarify information for BCF 5. Scorecard SW and the board agreed how useful it was to receive information & data across all the Trusts. Areas of note and concern were a) The number of trials (later discussion noted under work plan) b) Staging % especially at Barts Health c) below the required threshold to fit in 2 week-wait patients It was noted that the number of patients treated did not make sense against the number diagnosed for the whole year across London Cancer. ACTION: CL to check figures for diagnosed and treated patients and inform the Pathway Board. Claire to ask for further surgical procedure rates to be included on future scorecards. 6. Membership of the Board The membership of the board was discussed. SW stressed how vital that not only did all board members attended the board meetings but that they were willing to participate actively in the ongoing work required between board meetings. It is hoped that they were happy to be part of subgroups to achieve the objectives. Polly Richards has stepped down requiring a new board member to represent imaging Tim Beale or Simon Morley to be asked from CM & JP were happy to continue to support on dental AS agreed to continue to support research / trials KP and MB agreed to help on research BT happy to continue to lead on local support team model Martin Forster will be asked to join the board to support research objectives ACTION: Simon Whitley to contact Tim Beale, Simon Morley and Martin Forster regarding recruitment to the board and to other current members who have a poor attendance record to discuss their continued involvement /2014 Work plan for the Pathway Board It was noted that 6 months of 2012/2103 had been taken up with the service reconfiguration objective and it was vital to move forward on all the other objectives all objectives will remain with new timeframes. Thyroid subgroup Membership of the subgroup was discussed. The suggested Chair for this is WH and other members to include Steph Jenkins from PAH, Kaldeep Meer, Karen Guner & Mirinal Sarahray from RUT, it was noted that a rep from nuclear medicine and endocrinology would be asked also. 3

4 ACTION: Simon Whitley to confirm chair of the group Awareness and Detection SW to clarify if IH wishes to remain chair of this subgroup It was agreed it is key to have events happening during November alongside National publicity. The main ideas which were highlighted are; to have stalls in the atrium of each Trust and pop up shops. It was agreed that publicising this should happen through the London Cancer core team, CL agreed to lead on this. The board discussed membership of this subgroup, the members to be asked are; SD, MB, NS, MB, Hannah, CM and JP. ACTION: Claire to organise a meeting for the awareness and detection subgroup as soon as possible Research and Trials The board discussed a Research Day with London Cancer as a host. SW and members of the subgroup will decide on the agenda and invitees. CL will organise a date. There was discussion around trial recruitment and were all patients considered for trials and offered trials as well as a discussion around the level of support at each Trust that would support trial recruitment. Patient experience and Patient information There are several work streams across the Trusts who are looking into the quality and provision of patient information and the board noted it was important that work not be duplicated across Trusts where possible. It was noted the importance in understanding what is available and when it is given at each Trust. SW suggested members of the board visit other units across the country (Liverpool, Birmingham, Guys and Glasgow) to learn how other MDTs function ACTION: Lynda Farmer to send names of the patient information leads at each Trust (where known) to Claire Levermore ACTION: CL and LF to gather information available for patients across each Trust ACTION: LF to invite Hannah Nichols to the next board ACTION: CL to present the patient experience survey at the next Board meeting Local Support team It was agreed BT would lead on this. BT informed the board that the professions had met up as groups and mapped what was provided in and for their own organisation. It was agreed that a model of support teams needed to be presented to the board and it was vital that Trusts met the specification of the level of unit that was provided at their Trust. MB highlighted the importance of the Holistic Needs Assessment (HNA) and PCI and the need to agree a process for support following the documentation that this was required. A psychological and emotional care referral pathway needs to be agreed and adopted across London Cancer wide (in place at ). Guidelines for pre-surgical psychological work up need to be written and agreed. ACTION: MB to arrange a meeting with CNS s across London Cancer and Hannah Elliot (Macmillan patient experience post holder) DAHNO Discussion around DAHNO led to the board agreeing that it was important to improve the data collection. SW informed that board that the named surgeon for Head and Neck would be published 4

5 on Friday 13 th. It was anticipated that the release of this information would prompt better data collection within each Trust. SW to continue to lead the sub group for DAHNO and data collection. SW will meet with Trust leads and MDT co-ordinators to agree how this data will be collected and who will enter the data into DAHNO. The next meeting of the pathway board is scheduled for Tuesday 22 October at a venue TBC. Attendees Name Trust/Organisation Simon Whitley - Amen Sibtain Bella Talwar Claire Levermore London Cancer Claire Morgan Francis Vaz Jane Pegrum NELFT Kim Piper Lynda Farmer Margaret Brown NMUH Martin Birchall UCL Mary Burgess Mike Wyndham NHS Barnet Neil Shah RUT Rachel Burrows London Cancer Sian Davies NMUH Apologies Name Trust/Organisation Polly Richards Tony Smith - 5