TOGETHER AGAINST GENODERMATOSES TRAINING & NETWORKING SESSION

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1 TOGETHER AGAINST GENODERMATOSES TRAINING & NETWORKING SESSION Smallville Hotel, Beirut, Lebanon 6-7 November 2014

2 WELCOME MESSAGE Dear Friends and Colleagues, It is our great pleasure to invite you to attend the 9th International Meeting of the Genodermatoses Network to be held in Beirut, Lebanon, 6-7 November This high-level scientific meeting will include plenary lectures (diagnosis and management of main genodermatoses in neonates, updates in skin mosaicism, long term practical management) as well as interactive clinical cases and networking between experts. Two networking meetings will allow the partners of the Genodermatoses Network to discuss collaborative projects to improve health care and social support for patients. Moreover, Ordre de Malte delegates and Lebanon specialists will discuss the current situation of patients with rare skin diseases in Lebanon and the ways to provide them with the most appropriate health care. We are looking forward to welcoming you in Beirut in November 2014 to the first international scientific meeting on genetic skin diseases in Lebanon! With best regards, Prof. André Mégarbané Ass. Prof. Hala Abi-Rached

3 Thursday, November 6, OPENING SPEECH MAIN GENODERMATOSES IN NEONATES Diagnosis and management in neonatal period and perspectives in Collodion baby, Juliette Mazereeuw-Hautier 9.45 Scaling erythroderma, Christine Bodemer Bullous disease, Arti Nanda Ectodermal dysplasia, Smail Hadj-Rabia 11:15 XP, a pre-genetic classification based on pigmentary changes, Meriem Jones Coffee Break What is your diagnosis? Round Table Lunch Break UPDATES IN SKIN MOSAICISM Update on epidermal nevi, Antonio Torrelo The PIK/RAS pathway, Pierre Vabres Vascular Mosaic Disorders, Rudolf Happle Giant Congenital Nevus, Pierre Vabres Questions & Answers Coffee Break ORDRE DE MALTE MEETING Management of patients with genodermatoses in Lebanon: current situation and possible projects, Hala Abi-Rached, Mazen Kurban, André Mégarbané Round table, Charles-Henri d Aragon, Jean-Marie Decazes, Patrick Guyon, Marwan Sehnaoui, Ordre de Malte Delegates, Lebanese specialists

4 Friday, November 7, LONG TERM PRACTICAL MANAGEMENT 9.00 Epidermolysis Bullosa management: a practical approach, Maya El-Hachem 9.30 Ichthyosis management, Hala Abi-Rached 10:00 Palmoplantar keratoderma management, Mazen Kurban Neurofibromatosis 1, Smail Hadj-Rabia Round Table Coffee Break INTERACTIVE CLINICAL CASES Illustrations of subtle skin disorders which can lead to the discovery of a genodermatosis Lunch Break INTERACTIVE CLINICAL CASES Interactive clinical cases illustrating interesting therapeutic experiences GENODERMATOSES NETWORK Towards an international network of excellence for rare skin diseases The Genodermatoses Network, Christine Bodemer Cooperation in the field of rare diseases, Nicolas Levy Implementing projects, Round table

Objectives Bring together clinicians and scientists from Europe, North Africa and the wider Middle East area Increase skills on rare skin diseases management Develop collaborative projects to improve

Hala Abi-Rached Mégarbané, Department of Dermatology, Saint George Hospital University Medical Centre, University of Balamand, Beirut, Lebanon Prof.

5 Objectives Bring together clinicians and scientists from Europe, North Africa and the wider Middle East area Increase skills on rare skin diseases management Develop collaborative projects to improve health care and social support for patients and families in each country with a special focus on the Lebanon's situation Scientific Committee Ass. Prof. Hala Abi-Rached Mégarbané, Department of Dermatology, Saint George Hospital University Medical Centre, University of Balamand, Beirut, Lebanon Prof. Christine Bodemer, Department of Dermatology, Hôpital Necker-Enfants Malades, Institut Imagine, APHP, France Prof. André Mégarbané, Medical Genetics Unit, Université Saint Joseph, Beirut, Lebanon Prof. Pierre Vabres, Department of Dermatology, Université de Bourgogne, Hôpital du Bocage, Dijon, France Registration The registration is free. If you wish to register, please send an to Prof. André Mégarbané: megarbane@usj.edu.lb Venue

6 WITH THE SUPPORT OF European Academy of Dermatology and Venereology UNDER THE PATRONAGE OF

MAGEC-GNTS 2014 GENODERMATOSES NETWORK TRAINING SESSION

MAGEC-GNTS 2014 GENODERMATOSES NETWORK TRAINING SESSION Highlight on cutis laxa, ectodermal and keratodermal disorders Focus on common problems in genodermatoses Imagine Institute, Paris 30-31 October