P-CNS Conference Questionnaire Analysis of Results
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1 P-CNS Conference Questionnaire Analysis of Results Participants Professional Background Total number of respondents = 1 GPs = large majority. Including GPwSI in neurology, headache or epilepsy. Therapists including speech, occupational and rehabilitation specialists. involved in policy PCT, charity, health group nurses - practice and specialist Professional background GP/GPwSI 1 Therapist Policy Nurse Reasons for attending Overall Reasons for Attending 4 Special interest in neurology General update on neurology Other 1 GP Reasons for Attending 2 Special interest in neurology General update on neurology Other Overall the main reason was a special interest in neurology, but slightly more GPs attended for a general update on neurology. Other Reasons Given: Childhood epilepsy and update on indications for VNS Headache management I am interested in commissioning neurology services in primary care on behalf of a PCT I have an interest in epilepsy Interest in neuropsychology as well as needing update Involved in clinical pathway development Specific work in MS also to network with other allied health professionals To talk about the information resource we are launching in March (Brain & Spine Foundation) P-CNS Page 1 2/01/200
2 Please indicate your level of interest in learning more about the following topics (see Figures overleaf) Topics of greatest interest (measured in brackets as Very interested minus Not very interested scores): All participants: 1. Common problems around diagnosis and management of PD (40) 2. New diagnostic approaches, investigations, imaging (). Diagnosis and modern management of stroke/tia (4) 4. CBT Lite: adapting cognitive behavioural therapy to a minute consultation (). Management of neuropathic pain (). Colloborative working with neurologists (). : a review of modern classification of seizures and treatments (0) GPs ONLY: 1. : a review of modern classification of seizures and treatments () 2. Diagnosis and modern management of stroke/tia (). Common problems around diagnosis and management () 4. Management of ongoing epilepsy seizures (0). Management of neuropathic pain (2). Analgesic dependent chronic headaches (2). New diagnostic approaches, investigations, imaging (2) Topics of least interest: All participants: Establishing a headache clinic (-1), Management of continence problems in MS (-), Interventions (-) GPs only: Establishing a headache clinic (-), Interventions (-), Management of continence problems in MS (0) Please indicate below any other areas that you would like to see as a topic for the conference: Topics GPs would like to see in conferences: advances in migraine management brain tumours-types and management diagnosis and management of minor head injuries immediate stroke treatment Palliative Care concepts in dementia and other terminal neurological disease "health literacy and neurology" - see National Consumer Council Website Publications 2004 "Health Literacy" by Saranjit SIhota. Intervention talk. WOULD NOT be useful for primary care. More relevant to secondary care peripheral nerve (?) Topics non-gps would like to see in conferences: acquired brain injury/head injury management of MND in Primary Care Multidisciplinary working with therapists Neurological Rehabilitation, Cognitive Problems after Stroke/Head Injury neurorehabilitation, progressive disorders other than MS Pharmacological Management of Parkinson's primary/secondary care integrated pathways of care for CDM eg parkinsons, stroke Progressive Supranuclear Palsy and Cortico Basal Degeneration Providing information to patients with neuro conditions Stem cell advances P-CNS Page 2 2/01/200
3 All participants' interest in the following topics (out of ) PCT commissioning & commissioning of Neurology Services Colloborative w orking w ith neurologists New diagnostic approaches, investigations, imaging Interventions Diagnosis and modern management of stroke/tia Management of neuropathic pain Multiple Sclerosis Diagnosis and management of an MS Relapse Management of continence problems in MS Management of ongoing epilepsy seizures : a review of modern classification of seizures and treatments Not very interested Headaches Analgesic dependent chronic headaches Establishing a headache clinic Interested - Very Interested Anti-dementia drug treatment: their role in dementia management : Long term management issues Implementing the NICE/SCIE guidelines on dementia Parkinson's disease Common problems around diagnosis and management Should GPs be responsible for regular follow up of people w ith PD? 4 Physical symptoms unexplained by neurological disease What can be done to help heartsink patients CBT Lite: adapting cognitive behavioural therapy to a minute consultation Co-prescribing issues in neurology Using triptans and antidepressants Antidepressants and stroke management Level of interest P-CNS Page 2/01/200
4 GP Interest in the following topics (out of 1) PCT commissioning & commissioning of Neurology Services Colloborative w orking w ith neurologists New diagnostic approaches, investigations, imaging Interventions Diagnosis and modern management of stroke/tia Management of neuropathic pain Multiple Sclerosis Diagnosis and management of an MS Relapse Management of continence problems in MS 2 2 Management of ongoing epilepsy seizures : a review of modern classification of seizures and treatments Headaches Analgesic dependent chronic headaches Establishing a headache clinic Not very interested 2 - Interested Anti-dementia drug treatment: their role in dementia management : Long term management issues Implementing the NICE/SCIE guidelines on dementia Very Interested Parkinson's disease Common problems around diagnosis and management Should GPs be responsible for regular follow up of people w ith PD? Physical symptoms unexplained by neurological disease What can be done to help heartsink patients CBT Lite: adapting cognitive behavioural therapy to a minute consultation 1 20 Co-prescribing issues in neurology Using triptans and antidepressants Antidepressants and stroke management Level of interest P-CNS Page 4 2/01/200
5 Non-GPs' interest in the following topics (out of 2) PCT commissioning & commissioning of Neurology Services Colloborative working with neurologists New diagnostic approaches, investigations, imaging Interventions Diagnosis and modern management of stroke/tia Management of neuropathic pain Multiple Sclerosis Diagnosis and management of an MS Relapse Management of continence problems in MS Management of ongoing epilepsy seizures : a review of modern classification of seizures and treatments Headaches Analgesic dependent chronic headaches Establishing a headache clinic Anti-dementia drug treatment: their role in dementia management : Long term management issues Implementing the NICE/SCIE guidelines on dementia Not very interested 2 - Interested - Very Interested Parkinson's disease Common problems around diagnosis and management Should GPs be responsible for regular follow up of people with PD? Physical symptoms unexplained by neurological disease What can be done to help heartsink patients CBT Lite: adapting cognitive behavioural therapy to a minute consultation 1 Co-prescribing issues in neurology Using triptans and antidepressants Antidepressants and stroke management 1 Level of interest 4 P-CNS Page 2/01/200
6 On average how many people do you see each week with the following symptoms? GPs only (out of 1) 2 % Headache Dizziness/imbalance Parasthesia/numbness Unexplained loss of consciousness Pain, neuropathic or neuralgia Seizures/fits Tremor 0 to a month 0 to a week to a week + a week Non-GPs only (out of 2) 2 % 0 to a month 0 to a week to a week + a week Headache Dizziness/imbalance Parasthesia/numbness Unexplained loss of consciousness Pain, neuropathic or neuralgia Seizures/fits Tremor Most frequently seen symptoms for all respondents, i.e. + times a week, were: Headache (4), Pain (41) and Dizziness (2). P-CNS Page 2/01/200
7 On average how many people do you see each month that are receiving treatment for the following conditions? GPs only (out of 1) Percentage of respondents 2 % No answer 0 to to to 1 1+ Depression* Migraine MS Parkinson s Disease Pain** Stroke Non-GPs only (out of 2) 2 % No answer 0 to to to 1 1+ Depression* Migraine MS Parkinson s Disease Pain** Stroke * Depression in people with a neurological condition ** Pain - neuropathic (non diabetes related) or neuralgia Main differences between GP and non-gp figures: Only 1% of GPs saw MS-sufferers + times a month, compared to % of non-gps Only 1% of GPs saw Parkinson s sufferers + times a month, compared to % of non- GPs A lot more No answers from non-gps P-CNS Page 2/01/200
8 Please indicate how many people with the following less common neurological conditions you have managed during your career in general practice: GPS only (out of 1) 2 % No answer to to Motoneurone Disease Progressive Supranuclear Palsy Myasthenia Gravis Dystonia Tuberous Sclerosis Non-GPs only (out of 2) 2 % No answer to to Motoneurone Disease Progressive Supranuclear Palsy Myasthenia Gravis Dystonia Tuberous Sclerosis Over all, the most frequently treated conditions are Motoneurone Disease and Dystonia A greater proportion of GPs have never treated people with PSP compared with non-gps P-CNS Page 2/01/200
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