European Brain Council: Structure and activities. Jes Olesen President European Brain Council (EBC)

Transcription

1 European Brain Council: Structure and activities Jes Olesen President European Brain Council (EBC)

2 European Brain Council (EBC) membership EFNS European Federation of Neurological Societies FENS Federation of European Neuroscience Societies EFNA European Federation of Neurological Associations ECNP European College of Neuropsychopharmacology GAMIAN Europe:Global Alliance of Mental Illness Associations Networks EANS European Association of Neurosurgical Societies

3 The aims of the EBC are, in Europe,, to: Promote brain research Promote prevention, diagnosis, treatment and rehabilitation brain disorders Promote teaching in all aspects of the brain Establish a dialogue between brain scientists and society

4 Burden of brain diseases in % of all diseases in Europe YLL DALY YLD Olesen J, Leonardi M. Eur J Neurol 2003;10:

5 The cost study Analyzes 12 major brain disorders but not the rest More than 100 epidemiologists and economists worked together for 2 years More costly than cancer and diabetes together

6 Definitions Anxiety disorders Addictive disorders Affective disorders Psychotic disorders Multiple Sclerosis Dementia Parkinson s disease Migraine and other headaches Stroke Epilepsy Brain trauma Brain tumour EU member countries (EU-25) and Iceland, Norway and Switzerland

7 Prevalence by disorder Number of cases (million) 5 - Anxiety disorders Migraine Affective disorders Addiction Dementia Psychotic disorders Epilepsy Parkinson's disease Stroke Trauma Multiple Sclerosis Brain tumour Source: Figure 3 in Andlin-Sobocki et al (2005) Cost of Disorders of the Brain in Europe. Eur J Neurol 12 (Suppl 1): 1-27.

8 Total cost of brain disorders Total cost of brain disorders amounts to 386 billion Euro in 2004 The largest cost component is indirect costs totalling 179 billion Euro (47%)

9 Distribution of cost by resource item Premature Early death retirement 7% 7% Hospitaliza tion 20% Drugs 3% Sick leave 33% Outpatient care 12% Other direct costs 2% Informal care 3% Social services 13% Source: Figure 7 in Andlin-Sobocki et al (2005) Cost of Disorders of the Brain in Europe. Eur J Neurol 12 (Suppl 1): 1-27.

10 Prospective epidemiology and cost project To fill geographical white spots To cover more diseases To aquire prospective econimic data A standard European protocol executed in each country

11 Consencus document on brain research in Europe From man to molecule in order to make it understandable for citizens and decision makers Coordinating basic, translational and clinical research Spanning many disciplines and applications including neuropsychology, teaching, robotics EU call for a specific support action

12 Examples out of approximately 50 preliminary research themes From depression and normal mood to animal models, signalling mechanisms and genetics. From normal ageing to basic mechanisms of longevity. From brain recovery to neural plasticity, growth factors and other basic mechanisms of brain repair.

13 European brain conferences One conference a years in Bruxelles- or changing place? Hot topic Truely multidisciplinary including important role for patients Participation of decision makers and public representatives Publication Comission and WHO sponsorship

14 Parliamentary partners for the brain Primarily a patient initiative Must be built within 6 months EBC can help with data and experts And with administrative support

15 This paper was produced for a meeting organized by Health & Consumer Protection DG and represents the views of its author on the subject. These views have not been adopted or in any way approved by the Commission and should not be relied upon as a statement of the Commission's or Health & Consumer Protection DG's views. The European Commission does not guarantee the accuracy of the data included in this paper, nor does it accept responsibility for any use made thereof.