Scientific programme at the 42 nd Nordic Paediatric Cardiology Meeting September, Gothenburg, Sweden
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1 Scientific programme at the 42 nd Nordic Paediatric Cardiology Meeting September, Gothenburg, Sweden Friday, September 21 st Welcome Jan Sunnegårdh Fetal Cardiology Moderator: Mats Mellander Has sonographer training improved prenatal detection of duct-dependent lesions presenting to Royal Brompton Hospital ? Helena Gardiner, London, UK Fetal screening for cardiac defects in Finland , with special emphasis on ductdependent lesions. Olli Pitkänen, Helsinki, Finland Outcome after prenatal diagnosis of single ventricle in Lund-Malmö and Göteborg during 10 years. Katarina Hanséus, Lund, Sweden Results of treatment for fetal tachycardia during ten years in Göteborg and Stockholm. Britt-Marie Ekman Joelsson, Göteborg, Sweden Fetal echocardiographic surveillance of anti-ro52 antibody exposed fetuses at risk of atrioventricular heart block. Sven Erik Sonesson, Stockholm, Sweden Coffee/Tea Cardiomyopathy Moderator: Juha-Matti Happonen The genetic causes of childhood cardiomyopathy, and the contribution of molecular genetics to risk assessment in paediatric hypertrophic cardiomyopathy. Juan Kaski, London, UK Indications for primary prohylaxis with ICD-implantation in childhood. Carina Blomström Lundqvist, Uppsala Sweden
2 Risc factors for sudden death in hypertrophic cardiomyopathy. Ingegerd Östman-Smith, Gothenburg, Sweden Left ventricular noncompaction; an update Piers Daubeney, London UK Long-Term Outcomes of Dilated Cardiomyopathy Presenting During Childhood: Results from a National Population-Based Study of Childhood Cardiomyopathy. Piers Daubeney, London, UK Round table discussion: How can we minimise morbidity after ICD-implantation in childhood? Juan Kaski, Carina Blomström Lundqvist, Ingegerd Östman-Smith Lunch Surgery including national registries in pediatric cardiology and pediatric cardiac surgery Moderator: Håkan Berggren Pediatric lung transplantation. Martin Elliott, London, UK Outcomes of listing for paediatric heart transplantation in Sweden-A complete 21 year national follow-up. Håkan Wåhlander, Gothenburg, Sweden The Central Cardiac Audit Database in the United Kingdom results and implications. Rodney Franklin, London, UK Swedcon - a national registry for heart diseases in children in Sweden; results so far. Gudrun Björkhem, Lund, Sweden Swedcon a national registry for pediatric cardiac surgery; mortality and morbidity in the Gothenburg material. Mats Synnergren, Gothenburg, Sweden Results after univentricular heart surgery; the Helsinki experience. Heikki Sairanen, Helsinki, Finland
3 Long-term survival after univentricular heart surgery ; the Gothenburg experience. Jan Sunnegårdh, Gothenburg, Sweden Coffee/Tea Moderator: Jan Sunnegårdh Sponsor lecture by Abbott RSV and risk factors. Kim Kristensen, Copenhagen, Denmark Interventional catheterisation Moderator: Henrik Holmström Interventional cardiac catheterisation during the first year of life. Michael Rigby, London, UK Balloon dilatation of valvular aortic stenosis. Alan Magee, London, UK Balloon dilatation of valvular aortic stenosis as primary treatment; the need for reintervention.the Helsinki experience. Jaana Pihkala, Helsinki, Finland Surgery as primary treatment of valvular aortic stenosis, the need for re-intervention. The Gothenburg experience. Björn Söderberg, Gothenburg, Sweden Dinner at Universeum 19.30
4 Session for allied professions Friday Welcome Ewa-Lena Bratt and Sofi Andersson-Stavridis Moderators: Ewa-Lena Bratt and Sofie Andersson-Stavridis Transition The development of a congenital heart disease transition service in the UK. Lynda Shaughnessy, London, UK Transition the Bergen way-kiss Asle Hirth, Bergen, Norway Coffee/Tea Transition continued Future challenges in transition. Catriona King, Copenhagen, Denmark Summary transition session Sofi Andersson-Stravridis and Ewa-Lena Bratt Nordic Update The new model for elective patients' pre op day in Helsinki Children's Clinic Cardiac Unit. Mia Lähdetkorpi, Helsinki, Finland Health Related Quality Of Life in children with CHD - The reliability of the PedsQL 3.0 Cardiac Module. Peter Sand and Mirizela Kljacic, Gothenburg, Sweden Lunch Nordic Update continued Children with heart diseases and their families; psychosocial aspects. Anna-Lena Birkeland, Umeå, Sweden
5 Individual written information to parents of newborn infants with congenital heart disease. Elin Hjorth-Johansen, Oslo, Norway Free abstracts Parent s experiences of information obtained in connection with their child s heart surgery. Johanna Larsson, Gothenburg, Sweden Supporting your child during hospital stay. A pilot study of the experience of parents whose child has congenital heart defect. Sofi Andersson-Stavridis, Gothenburg, Sweden Parent s experiences of staying with their child at hospital during night. Kristina Nordgren and Gunilla Kjellman, Gothenburg, Sweden Development and evaluation of a computer-based education programme for children and adolescents with congenital heart disease. Ewa-Lena Bratt, Gothenburg, Sweden Dinner at Universeum 19.30
6 Saturday, September 22 nd Pacemaker treatment in children Moderator: Jan Janousek The impact of ventricular pacing site on left ventricular function. Jan Janousek, Prague, Czeck Republic Routines for pacemaker implantation in children in the Nordic countries. Regitze Videbaek, Copenhagen, Denmark, Juha-Matti Happonen, Helsinki, Finland, Hans Henrik Odland, Oslo, Norway, Anders Nygren, Gothenburg, Sweden Successful treatment of therapy resistant left ventricular outflow obstruction in childhood hypertrophy using short AV-delay pacing and a left ventricular epicardial electrode. Ulla Lundström, Gothenburg, Sweden Resyncronization therapy in children approaches and pitfalls. Hans Henrik Odland, Oslo, Norway Atrial pacing in patients with Jervell and Lange-Nielsens syndrome? Andreas Früh, Oslo, Norway Coffee/Tea Free papers Moderator: Håkan Wåhlander The use of RSV prophylaxis in children with congenital heart disease (CHD) in Sweden during 2010/2011 and 2011/2012 seasons. Estelle Naumburg, Östersund, Sweden Monitoring of coagulation during paediatric cardiac surgery. Birgitta Romlin, Gothenburg, Sweden Treatment with flecainide in catecholaminergic polymorphic ventricular tachycardia. Hans Henrik Odland, Oslo, Norway
7 Models of ischemia-reperfusion injury and tachycardia induced heart failure in the fetal and neonatal heart. Michael Rahbek Schmidt, Aarhus, Denmark Stem cell treatment in dilated cardiomyopathy. Sian Pincott, London, UK Born with a congenital heart defect-what about the future? Malin Berghammer, Gothenburg, Sweden Business meeting Lunch
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