PFF Support Group Leader Network Training Webinar:

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1 SESSION III FEBRUARY 22, 2016 PFF Support Group Leader Network Training Webinar: Maintaining and Growing the Group Susan Jacobs, Carol Bair, Cindi Brannum

2 OVERVIEW OF WEBINAR SERIES Session I: Identifying Resources for Success Session II: Getting Your Support Group Started Session III: Maintaining and Growing the Group

1. Regularly reassess the group s goals Evaluate the group s needs on a regular basis: they may change over time Assess the balance of support and education as well of open discussion vs

3 1. Regularly reassess the group s goals Evaluate the group s needs on a regular basis: they may change over time Assess the balance of support and education as well of open discussion vs structured lectures- What does your group prefer? Assess caregiver needs because, as the group grows, the regular attendance of caregivers/family members may add the need for them to meet separately

1. Regularly reassess the goals/needs of group Consider doing a formal needs assessment such as an annual survey of the group for topics/feedback Identify

4 1. Regularly reassess the goals/needs of group Consider doing a formal needs assessment such as an annual survey of the group for topics/feedback Identify topics that participants would like (use list from Support Group Leader Guide) Utilize your assistant to keep an ongoing list of topics and speakers previously used

2. Use key participant(s) to assist you with group Tech

on an ongoing basis Set up slides Skype Link to online

support--identify a social media expert!

5 2. Use key participant(s) to assist you with group Tech support--identify member who has tech expertise and can help on an ongoing basis Set up slides Skype Link to online presentations to stream to meeting Social Media support--identify a social media expert! Utilize resources from PFF to help with taking advantage of Twitter, Facebook, etc. to help get the word out

6 2. Use key participants to assist you with group oversight, motivation Helper for the start of meeting It gets busy for the leader who is often greeting new members, answering questions Helper can oversee sign in, handouts, logistics helping with wheelchair, oxygen, etc. Assistant to get group announcements out, add new members, reach out, etc. Check PFF SG Leader Guide!

7 3. Continue ongoing marketing of group PFF website Calendar of Events Website, social media Highlight any group special events

8 3. Continue ongoing marketing of group Places of Worship Pharmacies Independent Living Center Medical Library YMCA Hospital Clinic Waiting Rooms Local coffee shop Post Office Lobby Senior Centers Golf/Country Club Pulmonary Rehabilitation Programs Library Parks and Recreation Centers Bulletin Boards Chamber of Commerce Emergency Room Waiting Room

4. Plan Special Events: Really cements the group s existence and validity Global PF Awareness Month in September Outings: baseball games, cruises Information tables at health

9 4. Plan Special Events: Really cements the group s existence and validity Global PF Awareness Month in September Outings: baseball games, cruises Information tables at health fairs and hospitals Fundraisers: Golf Tournament, Poker Tournament, Trivia Night, Trail Day, Rock N Roll Marathon Support Group Free Clinic Patient & Caregiver Educational Day

10 4. Plan Special Events : Blue It Up in September

11 4. Plan Special Events : Information Tables

12 4. Plan Special Events : Special Events

13 4. Plan Special Events: Education Days

14 5. Get Help to Deal with Problems/Challenges Lack of speakers Network with other SGLs Review the Guide! Loss of meeting location Universal issue Needs extra effort to keep continuity at least keep same day and time if possible; send out communications

other leaders Poor attendance Carry on as usual- support those who

15 5. Get Help to Deal with Problems/Challenges Difficult people/group dynamics Great references in SGL Guide Reach out to other leaders Poor attendance Carry on as usual- support those who attend Ramp up outreach efforts Teleconference, newsletter, as RESOURCE!

16 Summary Regularly reassess the needs of the group Constantly market the group in new ways Plan special events, even small traditions Reach out to other leaders if you are encountering problems/challenges Goal is for the group to take ownership for its success!

17 Thank you! Sponsored with the generous support of

PFF Support Group Leader Network Training Webinar:

SESSION II DECEMBER 14, 2015 PFF Support Group Leader Network Training Webinar: Getting Your Support Group Started Susan Jacobs, Carol Bair, Cindi Brannum OVERVIEW OF WEBINAR SERIES Session I: Available