14 January Dear Endometriosis Centre Lead

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1 14 January 2017 Dear Endometriosis Centre Lead Thank you for your continued support of the Endometriosis Centres Project. With this letter is the summary of data from all the centres for 2016 as we have provided previously. The amount of data we are collecting continues to grow with an additional 1377 cases of pararectal space dissection entered by accredited centres, 130 more than last year. In addition a further 100 cases were submitted by provisional centres bringing the total for 2016 to The vast amount of data now held on the database makes this an extremely attractive source of information for researchers in many fields and some have approached us already, to access the data we hold. With this in mind, we have created an application process and form for individuals and organisations to apply for access so that the data remains the property of the BSGE and that academic recognition for the BSGE is maintained. As in previous years, there is a minimum of 12 cases per centre to maintain accreditation but as of 2017, 12 cases will be required per registered surgeon and as lead you should ensure that your centre is in a position to meet this for the forthcoming year and that your fellow surgeons are aware of what is required. As a reminder, you will also be required to submit an exemplar video by the end of April so this can be assessed at the ASM in Hull. In addition we require each centre to submit a current job plan for their CNS so we can ensure that sufficient time is allocated for endometriosis work and, if they attended the ASM in Cornwall last year, a copy of the certificate of attendance. The latter will be a requirement every 3 years. These documents will need to be submitted to Atia by the end of April so that we can fully accredit centres for the forthcoming year by the end of May. This year I have added an additional table showing the number of cases submitted by centres where no pre-operative data is available. You may recall that this was discussed at the endometriosis centres breakout session in Cornwall as collective data showed that many cases of pararectal dissection had no pre-operative data. Clearly this makes analysis of the dataset for these cases difficult, if not impossible as there is no baseline. It is imperative that all cases have valid pre-operative data so from next year this will become a mandatory requirement and the total number of cases for each centre will be those where pre-operative data are available. Looking at last year s data this could mean some centres losing accreditation on account of incomplete data so it will be imperative that you ensure all your submitted cases have complete pre-operative and surgical data before the end of the calendar year. Follow up performance remains variable and whilst I do not expect all centres to achieve 100% for this, I think it is reasonable to expect centres to achieve more than 0%. I think we should agree on an acceptable follow up performance target and will open this to debate at the breakout session we will have in Hull so we can have a consensus opinion. I would ask you to check the data presented below for your individual centre and if there are any figures that are genuinely erroneous please contact the BSGE Secretariat before the end of January otherwise we will assume the data to be correct and publish on the website as usual. For anyone who wishes to appeal, the process for this is on the website and any appeal will be dealt accordingly. Information about the video upload is also available on the website and will be the same process as last year. I would encourage centres to upload their videos to the video library on the BSGE website after the ASM as this will be a valuable educational tool, particularly for provisional and aspiring centres. More information about this can be obtained via Shaheen Khazali who looks after the video library.

2 To recap on your requirements for this year: By end of April Submission of exemplar video Submission of CNS Job plan Submission of CNS Certificate of Attendance for Cornwall ASM 2016 (if available) By end of December Submission of a minimum of 12 cases of pararectal dissection per registered surgeon with complete Pre-operative and surgical data. Lastly, I would encourage as many of you as possible to support the ASM in Hull this year and hope that there will be a number presenting data related to their centres. We are also in the process of arranging an endometriosis study day towards the end of this year, which will be another opportunity for centres to share experiences. More information on this will be available on the BSGE website in the forthcoming weeks. Chris Guyer Endometriosis Centres Portfolio Lead. Table 1- Cases of pararectal space dissection for 2016 Accredited Centres Table 2- Cases of pararectal space dissection for 2016 Provisional Centres Table 3- Cases of pararectal space dissection with no pre-operative data available Table 4- Provisional Centres for 2017 Table 5- Caseload expected for 2017

3 Table 1. Cases of pararectal space dissection for 2016 Accredited Centres Accredited Centres 2016 Type of Bowel Surgery performed Aberdeen Royal Infirmary Endometriosis Centre ACEMIG Tehran Endometriosis Centre Altnagelvin Area Endometriosis Centre Bart s and the Royal London Endometriosis Centre Birmingham Endometriosis Centre Castle Hill Hospital Endometriosis Centre CEMIG Endometriosis Centre Central Lancashire Endometriosis Centre Chelsea and Westminster NHSF Trust Endometriosis Centre Chester Endometriosis Centre Colchester Hospital Endometriosis Centre Cornwall Endometriosis Centre Dorset Endometriosis Centre Elland Hospital Endometriosis Centre Endometriosis care Oxford Endometriosis Centre Exeter Endometriosis Centre Expect Edinburgh Endometriosis Centre Guy s & St Thomas Endometriosis Centre Gynaecology.co Endometriosis Centre Hampshire Endometriosis Centre Homerton Endometriosis Centre Imperial Endometriosis Centre James Cook University Hospital Endometriosis Centre Total None Shave Disc Segmental resection Excision of bladder nodule Excision of ureteric nodule Laparoscopy Target 100% Follow up performance

4 Kings College Hospital Endometriosis Centre Lancashire Women s Endometriosis Centre Liverpool Women s Endometriosis Centre Luton & Dunstable Endometriosis Centre Maidstone and Tunbridge Wells Endometriosis Centre Mid Yorkshire Endometriosis Centre Norfolk & Norwich Endometriosis Centre North Bristol NHS Trust Endometriosis Centre North West London Endometriosis Centre North West Pelvic Pain and Endometriosis Centre Pennine Endometriosis Centre Queens University Hospital Endometriosis Centre Southern Endometriosis Centre Portsmouth St Georges Healthcare NHS Trust Endometriosis Centre St Michael's University Hospital BRISTOL Endometriosis Centre Stockport Endometriosis Centre The Northern Team Endometriosis Centre The Royal Stoke Endometriosis Centre UCLH Endometriosis Centre University Hospital of Wales Endometriosis Centre Whipps Cross University Bart s Health Endometriosis Centre Wirral University Teaching Hospital Endometriosis Centre Worcester Endo Centre and Pelvic Pain Clinic Total

5 Table 2. Cases of pararectal space dissection for 2016 Provisional Centres Provisional Centres 2016 Type of Bowel Surgery performed Total None Shave Disc Segmental resection Excision of bladder nodule Excision of ureteric nodule Croydon Provisional Endometriosis Centre Midland Provisional Endometriosis Centre North Middlesex Provisional Endometriosis Centre North Tees and Hartlepool University Hospitals Provisional Endometriosis Centre Sheffield Provisional Endometriosis Centre Somerset Provisional Endometriosis Centre Total Laparoscopy Target 100% Follow up performance Table 3. Cases of pararectal space dissection with no pre-operative data available Centre Name Cases submitted Cases without pre op data Aberdeen Royal Infirmary Endometriosis Centre 18 2 Birmingham Endometriosis Centre CEMIG Endometriosis Centre 48 5 Central Lancashire Endometriosis Centre 13 3 Chester Endometriosis Centre 25 1 Cornwall Endometriosis Centre 45 1 Croydon Provisional Endometriosis Centre 25 2 Endometriosis CaRe Oxford Exeter Endometriosis Centre 12 2 Expect Edinburgh Endometriosis Centre 25 3 Hampshire Endometriosis Centre 29 3 Imperial Endometriosis Centre 23 2

6 Kings College Hospital Endometriosis Centre 38 1 Liverpool Women s Endometriosis Centre Luton & Dunstable Endometriosis Centre 16 2 Maidstone & Tunbridge Wells Endometriosis Centre 28 5 Mid Yorkshire Endometriosis Centre 25 5 Norfolk & Norwich Endometriosis Centre 30 7 North West London Endometriosis Centre North West Pelvic Pain & Endometriosis Centre 40 3 Queens University Hospital 14 2 Sheffield Provisional Endometriosis Centre 17 5 St Georges Endometriosis Centre 4 3 Stockport Endometriosis Centre 33 2 The Northern Team Endometriosis Centre Royal Stoke Endometriosis Centre UCLH Endometriosis Centre 49 5 University Hospital Wales Endometriosis Centre 28 2 Worcester Endometriosis Centre 60 1 Table 4. Provisional Centres for 2017 Provisional Centres for Frimley Park Hospital Provisional Endometriosis Centre Harley Street Provisional Endometriosis Centre Infertility and Provisional Endometriosis Centre London Bridge Provisional Endometriosis Centre Mitera General Hospital Provisional Endometriosis Centre Peterborough Provisional Endometriosis Centre Saudi General Hospital Provisional Endometriosis Centre St Georges Healthcare NHS Trust Provisional Endometriosis Centre York Teaching Hospital Provisional Endometriosis Centre

7 Table 5. Caseload expected for 2017 BSGE Accredited and Provisional Endometriosis Centres Caseload expected for Aberdeen Royal Infirmary Endometriosis Centre 24 Altnagelvin Area Hospital Endometriosis Centre 24 Avicenna Centre for Endometriosis & Minimally Invasive Gynaecology- TEHRAN (ACEMIG) Endometriosis Centre 12 Bart s and The Royal London Endometriosis Centre 12 Birmingham Endometriosis Centre 12 Castle Hill Hospital Endometriosis Centre 24 CEMIG - Centre for Endometriosis and Minimally Invasive Gynaecology Endometriosis Centre Endometriosis Centre 24 Central Lancashire Endometriosis Centre, Royal Preston Hospital Endometriosis Centre 12 Chelsea and Westminster NHS Trust Endometriosis Centre 12 Chester Endometriosis Centre 24 Colchester Hospital Endometriosis Centre 12 Cornwall Endometriosis Centre 24 Croydon University Hospital Endometriosis Centre 24 Dorset Endometriosis Centre 12 Elland Hospital Endometriosis Centre 12 Endometriosis Care Oxford Endometriosis Centre 36 Exeter Endometriosis Centre 24 EXPPECT Edinburgh Endometriosis Centre 24 Frimley Park Hospital Provisional Endometriosis Centre 12 Guy's & St Thomas' Endometriosis Centre 24 Gynaecology.co at The Edward VII Hospital Endometriosis Centre 12 Hampshire Endometriosis Centre 24 Harley Street Provisional Endometriosis Centre 12 Homerton Endometriosis Centre 24 Imperial Endometriosis Centre 24 James Cook University Hospital Endometriosis Centre 24 Kings College Hospital Endometriosis Centre 36 Lancashire Women's Endometriosis Centre 24 Liverpool Women's Endometriosis Centre 24

8 London Bridge Provisional Endometriosis Centre 12 Luton & Dunstable Endometriosis Centre 12 Maidstone and Tunbridge Wells Endometriosis Centre 24 Mid Yorkshire NHS Endometriosis Centre 12 Midlands Endometriosis Clinic 36 Mitera General Hospital Provisional Endometriosis Centre 12 Norfolk & Norwich Endometriosis Centre 12 North Bristol NHS Trust Endometriosis Centre 12 North Middlesex Endometriosis Centre 24 North Tees and Hartlepool University Hospitals Endometriosis Centre 12 North West London Endometriosis Centre 24 Northwest Pelvic Pain and Endometriosis Centre (NoWPEC). St Mary s Hospital Manchester 36 Pennine Endometriosis Centre, Royal Oldham Hospital 24 Peterborough Provisional Endometriosis Centre 12 Pilgrim Hospital Infertility and Provisional Endometriosis Centre 24 Queens University Hospital Endometriosis Centre 12 Saudi General Hospital Provisional Endometriosis Centre 12 Sheffield Endometriosis Centre 12 Somerset Endometriosis Centre 12 Southern Endometriosis Centre, Portsmouth 24 St Georges Healthcare NHS Trust Provisional Endometriosis Centre 24 St Michaels University Hospital, Bristol Endometriosis Centre 36 Stockport Endometriosis Centre 24 The Northern Endometriosis Team, part of the Northern Centre for Gynaecological Surgery 36 The Royal Stoke University Hospital Endometriosis Centre. 24 UCLH Endometriosis Centre 36 University Hospital of Wales Endometriosis Centre 24 Whipps Cross University Barts Health Endometriosis Centre 24 Wirral University Teaching Hospital Endometriosis Centre 24 Worcestershire Endometriosis Centre 24 York Teaching Hospital Provisional Endometriosis Centre 12