FREEDOM OF INFORMATION ACT

Transcription

1 FOI REF: 19/ March 2019 FREEDOM OF INFORMATION ACT I am responding to your request for information under the Freedom of Information Act. The answers to your specific questions are as follows: Please could you provide, in its original format, any response your Trust has made since 1st January 2018 to FOI requests that relate to either rheumatoid arthritis or severe asthma. Please see the attached. If I can be of any further assistance, please do not hesitate to contact me. Should you be dissatisfied with the Trust s response to your request, please write to Lynette Wells, Director of Corporate Affairs, East Sussex Healthcare NHS Trust (lynette.wells2@nhs.net) quoting the above reference. Yours sincerely Linda Thornhill (Mrs) Corporate Governance Manager esh-tr.foi@nhs.net

2 FOI REF: 18/079 6 th March 2018 FREEDOM OF INFORMATION ACT I am responding to your request for information under the Freedom of Information Act. The answers to your specific questions are as follows: 1. In your trust, in the past 3 months [latest 3 months available], how many asthma patients aged 18 and over have been treated? 87 asthma patients, aged 18 and over, have been admitted to East Sussex Healthcare NHS Trust s hospitals in the past 3 months. Please note that the Trust s diagnostic codes do not drill down to outpatient level therefore we can only provide inpatient information. To obtain the outpatient information requested would require a manual review of patient records. Section 12(1) of the Act allows a public authority to refuse to comply with a request for information if the authority estimates that the cost of compliance would exceed the appropriate limit, as defined by the Freedom of Information and Data Protection (Appropriate Limit and Fees) Regulations 2004 (the Regulations). These state that this cost limit is 450 for public authorities which are not part of central government or the armed forces. The costs are calculated at 25 per hour per person regardless of the rate of pay, which means that the limit will be exceeded if the work involved would exceed 18 hours. The Trust estimates that the cost of complying with this request would significantly exceed the above limit. 2. How many paediatric asthma treated patients [aged 6-17] have been treated? 54 asthma patients, aged 6-17, have been admitted to East Sussex Healthcare NHS Trust s hospitals in the past 3 months. Please note that the Trust s diagnostic codes do not drill down to outpatient level therefore we can only provide inpatient information. To obtain the outpatient

3 information requested would require a manual review of patient records. Please see Question 1 in respect of the Section 12(1) exemption applied. 3. How many severe asthmatic patients [BTS guidelines, step 4 or 5] have been treated? Please note that the Trust s diagnostic codes do not drill down to outpatient level therefore we do not centrally hold the information requested above. To obtain the outpatient information requested would require a manual review of patient records. Please see Question 1 in respect of the Section 12(1) exemption applied. 4. How many severe allergic asthma patients [severe persistent confirmed allergic IgE-mediated asthma OR severe persistent confirmed allergic eosinophilic asthma] have been treated with: - Omalizumab [Xolair] 4 - Mepolizumab [Nucala] 0 - Reslizumab [Cinqaero] 0 - Benralizumab [Fasenra] 0 - Other [Please state] 0 Please note that the Trust does not accept any new patients in respect of the above. These patients are referred to a tertiary asthma clinic for treatment. The figures above relate to pre-approved legacy patients that still receive treatment at the Trust. 5. How many paediatric severe asthma patients treated with Xolair/omalizumab? None. 6. How many asthma clinics are run per month? Specific Asthma Clinics are run for paediatric patients only. During the last three months there were four paediatric asthma clinics run by the Trust. The Trust does not run specialised asthma clinics for adult patients. The Trust s eleven respiratory consultants see adult asthma patients in the general consultant led respiratory outpatient department clinics. 7. What is the average number of severe asthma patients per clinic? During the last three months there were four paediatric asthma clinics with a total of 29 attenders. This is an average of 7.25 patients per clinic. Please note that the Trust does not run specialised asthma clinics for adult patients and therefore we do not hold this information for adults. 8. Do you treat non asthma patients with Omalizumab [Xolair]? If yes, how many of for what condition? Two patients have been treated with Omalizumab for Chronic Spontaneous Urticaria. This treatment is used infrequently and only with prior approval from the Clinical Commissioning Group. If I can be of any further assistance, please do not hesitate to contact me.

4 Should you be dissatisfied with the Trust s response to your request, please write to Lynette Wells, Director of Corporate Affairs, East Sussex Healthcare NHS Trust (lynette.wells2@nhs.net) quoting the above reference. Yours sincerely Jo Shoesmith Freedom of Information Manager

5 FOI REF: 18/ Sept-2018 FREEDOM OF INFORMATION ACT I am responding to your request for information under the Freedom of Information Act. The answers to your specific questions are as follows: 1. How many asthma patients aged 18 and over have been treated in the past 3 months [latest 3 months available], The number of inpatients aged 18+ who had a diagnosis of asthma for May July 2018 is 1,578, who may or may not have been treated for asthma. The number of 18+ admissions with a diagnosis of asthma for May - July 2018 is 2,004, who may or may not have been treated for asthma. Please note that we have included the numbers of patients who have been admitted and diagnosed with asthma, but this does not mean they have been treated for asthma. To enable East Sussex Healthcare NHS Trust to provide the number of asthma patients aged 18 and over that have been treated in the past 3 months would require a manual review of the patients notes. Section 12(1) of the Act allows a public authority to refuse to comply with a request for information if the authority estimates that the cost of compliance would exceed the appropriate limit, as defined by the Freedom of Information and Data Protection (Appropriate Limit and Fees) Regulations 2004 (the Regulations). These state that this cost limit is 450 for public authorities which are not part of central government or the armed forces. The costs are calculated at 25 per hour per person regardless of the rate of pay, which means that the limit will be exceeded if the work involved would exceed 18 hours. The Trust estimates that the cost of complying with this request would significantly exceed the above limit. Please note that East Sussex Healthcare NHS Trust does not have a specific asthma outpatient clinic and therefore are unable to identify outpatients with asthma.

6 2. How many paediatric asthma treated patients [aged 6-17] have been treated? The number of inpatients aged 6-17 who had a diagnosis of asthma for May-July 2018 is 80, who may or may not have been treated for asthma, please see question 1. The number of 6-17 admissions with a diagnosis of asthma for May-July 2018 is 93, who may or may not have been treated for asthma, please see question 1. The number of outpatient asthma appointments for 6-17 year olds for May-July 2018 is 9, who may or may not have been treated for asthma, please see question 1. The number of patients aged 6-17 seen as outpatient in an asthma clinic for May-July 2018 is 9 who may or may not have been treated for asthma, please see question How many severe asthmatic patients [BTS guidelines, step 4 or 5] have been treated? The number of inpatients who had a diagnosis of severe asthma for May-July 2018 is 9, who may or may not have been treated for asthma, please see question1. The number admissions with a diagnosis of severe asthma for May-July 2018 is 10, who may or may not have been treated for asthma, please see question How many severe allergic asthma patients [severe persistent confirmed allergic IgE-mediated asthma OR severe persistent confirmed allergic eosinophilic asthma Severe asthma patients treated with: - Omalizumab [Xolair] 5 - Mepolizumab [Nucala] 0 - Reslizumab [Cinqaero] 0 - Benralizumab [Fasenra] 0 - Other [Please state] 0 Generally patients requiring these treatments are referred to a tertiary centre in London, either Guy s Hospital or Royal Brompton Hospital. 5. How many paediatric severe asthma patients have been treated with Xolair/omalizumab in the past 3 months? None. 6. How many chronic spontaneous urticaria (CSU) patients have been treated with Xolair/omalizumab in the past 3 months? Trade Name Prescription Reason Grand Total XOLAIR CCG - Chronic Spontaneous Urticaria 5 NHSE - Severe Persistent Allergic Asthma Adults 5 Grand Total 10 If I can be of any further assistance, please do not hesitate to contact me.

7 Should you be dissatisfied with the Trust s response to your request, please write to Lynette Wells, Director of Corporate Affairs, East Sussex Healthcare NHS Trust (lynette.wells2@nhs.net) quoting the above reference. Yours sincerely Linda Thornhill (Mrs) Corporate Governance Manager esh-tr.foi@nhs.net

8 FOI REF: 18/ December 2018 FREEDOM OF INFORMATION ACT I am responding to your request for information under the Freedom of Information Act. The answers to your specific questions are as follows: 1. Within your trust how many patients do you have diagnosed with Rheumatoid Arthritis? The number of inpatients seen who have had one or more diagnoses of Rheumatoid Arthritis in the last year (November 17 October 2018) within East Sussex Healthcare NHS Trust is The number of inpatients seen who have had one or more diagnoses of Rheumatoid Arthritis in total (no date restrictions) within the Trust is Please note the above figures are inpatients only as outpatients are not recorded at diagnosis level on our system. We have only included unique patients as a patient could have been admitted and diagnosis more than once. 2. How many Rheumatoid Arthritis patients have had an IFR [Individual Funding Request] put in for them to have an advanced treatment (i.e. biologic or JAK inhibitor) in the past 12 months? The Trust does not centrally record the number of Rheumatoid Arthritis patients that have had an IFR put in for them to have advanced treatment. To enable the Trust to provide this information would require a manual review of patients notes. Section 12(1) of the Act allows a public authority to refuse to comply with a request for information if the authority estimates that the cost of compliance would exceed the appropriate limit, as defined by the Freedom of Information and Data Protection (Appropriate Limit and Fees) Regulations 2004 (the Regulations). These state that this cost limit is 450 for public authorities which are not part of central government or the armed forces. The costs are calculated at 25 per hour per person regardless of the rate of pay, which means that the limit will be exceeded if the work involved would

9 exceed 18 hours. The Trust estimates that the cost of complying with this request would significantly exceed the above limit. However, this information may be recorded by the CCG s, contact details as follows: NHS Eastbourne, Hailsham and Seaford CCG Governance Team (FOI) NHS Hastings and Rother CCG Governance Team (FOI) NHS High Weald Lewes Havens CCG 3. How many patients do you have diagnosed with moderate Rheumatoid Arthritis? [moderate is defined within the guidelines as patients with a DAS score of between 3.2 and 5.1] The Trust does not centrally record whether patients have been diagnosed with moderate Rheumatoid Arthritis. This data is held in clinic letters and to enable the Trust to provide this information would require a manual review of all patient letters to find the letters with the DAS score. Section 12(1) of the Act allows a public authority to refuse to comply with a request for information if the authority estimates that the cost of compliance would exceed the appropriate limit, as defined by the Freedom of Information and Data Protection (Appropriate Limit and Fees) Regulations 2004 (the Regulations). These state that this cost limit is 450 for public authorities which are not part of central government or the armed forces. The costs are calculated at 25 per hour per person regardless of the rate of pay, which means that the limit will be exceeded if the work involved would exceed 18 hours. The Trust estimates that the cost of complying with this request would significantly exceed the above limit. 4. How many moderate Rheumatoid Arthritis patients have had an IFR [Individual Funding Request] put in for them to have an advanced treatment (i.e. biologic or JAK inhibitor) in the past 12 months? Please see question 2 above. 5. How many moderate Rheumatoid Arthritis patients have been granted an IFR request for an advanced treatment (i.e. biologic or JAK inhibitor) in the past 12 months? Please see question 2 above. 6. If possible, please state the number of patients and the name of an advanced treatment (i.e. biologic or JAK inhibitor) provided Treatment Number of Patients Abatacept 13 Adalimumab 17 Baricitinib 41

10 Certolizumab 1 Etanercept 59 Golimumab 3 Infliximab 6 Rituximab 50 Sarilumab 1 Tocilizumab 18 Grand Total 209 If I can be of any further assistance, please do not hesitate to contact me. Should you be dissatisfied with the Trust s response to your request, please write to Lynette Wells, Director of Corporate Affairs, East Sussex Healthcare NHS Trust (lynette.wells2@nhs.net) quoting the above reference. Yours sincerely Linda Thornhill (Mrs) Corporate Governance Manager esh-tr.foi@nhs.net

11 FOI REF: 19/ January 2019 FREEDOM OF INFORMATION ACT I am responding to your request for information under the Freedom of Information Act. The answers to your specific questions are as follows: 1. In your trust, in the past 3 months [latest 3 months available], how many asthma patients aged 18 and over have been treated [with a drug]? The number of inpatients aged 18+ who had a diagnosis of asthma for the period October - December 2018 is 1905, who may or may not have been treated for asthma. The number of 18+ admissions with a diagnosis of asthma for the period October - December 2018 is 2493, who may or may not have been treated for asthma. Please note that we have included the numbers of patients who have been admitted and diagnosed with asthma, but this does not mean they have been treated for asthma. To enable East Sussex Healthcare NHS Trust to provide the number of asthma patients aged 18 and over that have been treated in the past 3 months would require a manual review of the patients notes. Section 12(1) of the Act allows a public authority to refuse to comply with a request for information if the authority estimates that the cost of compliance would exceed the appropriate limit, as defined by the Freedom of Information and Data Protection (Appropriate Limit and Fees) Regulations 2004 (the Regulations). These state that this cost limit is 450 for public authorities which are not part of central government or the armed forces. The costs are calculated at 25 per hour per person regardless of the rate of pay, which means that the limit will be exceeded if the work involved would exceed 18 hours. The Trust estimates that the cost of complying with this request would significantly exceed the above limit. Please note that East Sussex Healthcare NHS Trust does not have a specific asthma outpatient clinic and therefore are unable to identify outpatients with asthma.

12 2. How many paediatric asthma treated patients [aged 6-17] have been treated in the last 3 months? The number of inpatients aged 6-7 who had a diagnosis of asthma for the period October - December 2018 is 101, who may or may not have been treated for asthma. The number of 6-17 admissions with a diagnosis of asthma for the period October - December 2018 is 112, who may or may not have been treated for asthma. Please see the note in question How many severe asthmatic patients [BTS guidelines, step 4 or 5] have been treated in the last 3 months? Clarification was sought with regard to if you want all the information to relate to over 18s, 6-17s or both and confirmation was received that you require both. The number of inpatients who had a diagnosis of severe asthma for the period October - December 2018 is 11, who may or may not have been treated for asthma. The number admissions with a diagnosis of severe asthma for the period October - December 2018 is 11, who may or may not have been treated for asthma. Please see the note in question How many patients have been treated in the last 3 months with: Omalizumab [Xolair] 4 Mepolizumab [Nucala] 0 Reslizumab [Cinqaero] 0 Benralizumab [Fasenra] 0 Other [Please state] 0 5. How many paediatric patients have treated in the last 3 months with Xolair/omalizumab? Zero. 6. Could you please provide me with the following numbers of patients treated in the last 12 months [latest 12 months possible] with the following drugs ; Ocreotide 17 Lanreotide 1 Pasireotide 0 Pegvisomant 0 Please note that the numbers of patients treated with the drugs above are for all patients regardless of indication. If I can be of any further assistance, please do not hesitate to contact me.

13 Should you be dissatisfied with the Trust s response to your request, please write to Lynette Wells, Director of Corporate Affairs, East Sussex Healthcare NHS Trust (lynette.wells2@nhs.net) quoting the above reference. Yours sincerely Linda Thornhill (Mrs) Corporate Governance Manager esh-tr.foi@nhs.net

14 FOI REF: 19/083 5 March 2019 FREEDOM OF INFORMATION ACT I am responding to your request for information under the Freedom of Information Act. The answers to your specific questions are as follows: How many i) specialist Adult respiratory specialists (i.e. on the specialist register) and 10. ii) how many paediatric respiratory specialist (i.e. on the specialist register) does your trust employ? None. How many i) specialist Adult respiratory specialist nurses and 12.5 WTE. ii) how many paediatric respiratory specialist nurses does your trust employ? None. Does your trust provide a specialist asthma service? for i) Adults and No. ii) Children? If yes, are these Yes.

15 i) run by Respiratory specialist paediatricians / and The service is run by a Paediatrician with interest in Respiratory Paediatrics. Children with difficult asthma referred by the GP`s or other Paediatric colleagues are seen in this clinic. Facilities for spirometry and Skin prick testing is available. Nurses who can teach inhaler technique are available. ii) adult physicians (i.e. on the specialist respiratory register?) The physicians do not run specific asthma service clinics. If yes, please provide the annual cost associated with running these services. The Trust does not run specialist clinics, therefore we are unable to quantify PAS or spend specifically on asthma. Please provide a figure for the total adult and Paediatric (Children and Young People 0-18) (CYP) population served by the trust East Sussex Healthcare NHS Trust serves a population of 525,000 people across East Sussex. Please provide the number of emergency department and urgent care centre attendances (Child and CYP) related to asthma in each of the last 5 full financial years (up to 2017/18), broken down by financial year Please see the table below which shows the number of A&E attendances related to asthma, based on presented complain and diagnosis, split by CYP (Children and Young people years, 18 not inclusive ) and Adult (>=18 years old), in each of the last 5 full financial years (up to 2017/18): Financial Year 0-18 CYP >=18 Adults Total Attendances 2013/ / / / / Please see the table below which is the same as above including 18 years old in CYP: Financial Year 0-18 CYP >18 Adults Total Attendances 2013/ / / / /

16 Please provide the number of admissions related to asthma for the same time periods. Please see the table below which shows the number of admissions with a diagnosis of asthma in their admitting Episode, split by CYP (Children and Young people years, 18 not inclusive ) and Adult (>=18 years old) in each of the last 5 full financial years (up to 2017/18): Financial Year 0-18 CYP >=18 Adults Total Admissions 2013/ / / / / Please see the table below which is the same as above including 18 years old in CYP: Financiall Year 0-18 CYP >18 Adults Total Admissions 2013/ / / / / What is the trust s annual spend on Salbutamol inhalers and preventer asthma inhalers? Most recent figure is fine. The Trust s spend on inhalers for Asthma is 53, If I can be of any further assistance, please do not hesitate to contact me. Should you be dissatisfied with the Trust s response to your request, please write to Lynette Wells, Director of Corporate Affairs, East Sussex Healthcare NHS Trust (lynette.wells2@nhs.net) quoting the above reference. Yours sincerely Linda Thornhill (Mrs) Corporate Governance Manager esh-tr.foi@nhs.net