ESSEX AND EAST SUFFOLK GYNAECOLOGICAL CANCER NETWORK SITE SPECIFIC GROUP

Transcription

1 ESSEX AND EAST SUFFOLK GYNAECOLOGICAL CANCER NETWORK SITE SPECIFIC GROUP Friday, 7 th September 2012 at 1.30pm-4.30pm Swift House, Board & Middle, CM2 5PF Present: MINUTES Mr Khalil Razvi (Chair) KR Consultant Gynae Oncologist, SUHFT Michael Scanes MS User Involvement Facilitator Mr Jonathan Evans-Jones JEJ Consultant Gynaecologist,CHUFT Marilyn Lewis ML CNS Gynaeoncology, Basildon Kate Patience KP AHP & Survivorship Lead Alison Miller AM CNS, Southend Mr Anders Linder AL Consultant Gynae Oncologist, Ipswich Dr Jamey Morgan JM Consultant Oncologist Ipswich Emma Azeem EA CNS Gynaeoncology, Southend Jane Torble JT CNS, MEHT Amanda Green AGr CNS,CHUFT Julie Gormer JG MDT, Co-Ordinator, CHUFT Kerry Boxall KB CNS, Ipswich Rachel Keenan RK CNS, SUHFT Hazel Adam HA CNS Ipswich Dr Fani Toneva FT Consultant Gynae Oncologist, SUHFT Dr Hafiz Algurafi HA Consultant Oncologist, SUHFT Naveed Sarwar NS Consultant Oncologist, SUHFT Wendy Ella WE Consultant Oncologist, SUHFT Dr Mythili Nalam MN Registrar, Ipswich Sue Maughn SM Network Director, ECN Tom Jenkins TJ ECRN 1. Welcome and Introductions 2. Apologies Rachael West, Alison Garnham, Mr Bartlett, Ashley Solieri, Dr K Madhavan, Deborah Woods, Jackie Gibson, Faye Munson, Linda Underwood, Julia De Silva, Dr Venumbaka, Alan Lamont, Barnaby Rufford, Mark Angus, Colin Partington, Helen McClay. Page 1 of 5

2 3. Previous Minutes 9 th March 2012 The minutes accepted as a true record. 4. Patient and Carer Issues MS explained that it had been agreed at a Network meeting that this agenda item should be placed at the beginning of the meeting to ensure that any issues were able to be discussed at length. JM said that he was finding that ambulance provision for patients was becoming more difficult. JT agreed that patients have to wait longer for return journeys. HA said that the system was due to change which might makes matters even worse. SM agreed to take this up with the Commissioners. SM 5. Matters Arising 5.1 Commissioning SM reported that in Essex there would be 7 Clinical Commissioning Groups (CCG), who would be supported by a Commissioning Support Unit (CSU). The National Commissioning Board (NCB) will be responsible for commissioning such things as Radiotherapy, Chemotherapy, PET CT Imaging etc. The NCB will be represented by a Local Area Team (LAT). There will be a LAT for Essex based in Chelmsford. Suffolk will be covered by the East Anglia LAT based in Cambridge. SM added that it was still unclear as to the form and function of the Cancer Networks. 5.2 Enhanced Recovery KR said that the group needs to design a pro-forma for the service, and then it could audit what is happening. He added that each Trust should appoint someone to complete the pro-forma. These would be circulated by KR within the next month and the audit period would be from October to February Nobody at the meeting reported any issues around the ER programmes. 5.3 UKGOSOC AL said that the Ipswich Data was available but he was still waiting for the information from the rest of the Network. He will do a presentation at the next Audit meeting Page 2 of 5

3 5.4 Peer Review KR is writing the Self-Assessment Report. One issue which was causing problems was the requirement for Level 2 Psychological Support. It was a requirement that the CNSs should have attended the Advancer Communication Skills Training and a Network agreed Training Programme on Psychological Support. The programme was running in Basildon and was due to start in Southend and Broomfield in October and it was hoped that CNSs from Colchester would attend one of these sessions. There is Level 3 support available at Southend, Basildon and Broomfield but not at Colchester. JT said that the deadline for uploading information onto cquins in June was too soon as Annual data was only available in June. MS said that the actual deadline was 30 th September each year. However, if the team was to be visited then this would take place in June and the evidence would have to be uploaded by April. MS promised that the Network would write to all MDT and NSSG Lead Clinicians and CNSs early in 2013 to advise what will be required for Peer Review for Use of CA125 (for follow up after Chemotherapy) Alan Lamont is to write a protocol on the topic. Alan Lamont 5.6 Workforce Strategy JEJ felt there was not a strategy at CHUFT. He was concerned that there needed to be transition plans as the services were moved from Essex County Hospital to Colchester General Hospital. 5.7 Network Research TJ presented a document designed to aid the recruitment to Clinical Trials. There was one document for each Trust which needed to be completed by the MDT Chair. It also listed trials which are available and how many patients have been recruited by each Trust. WE commented that PORTEC3 was closed at Southend. She added that there are so few trials for a limited number of patients. JM said that enthusiasm for trials drops when one realises what it involves. Recruitment now seems to be taking longer and longer with the result that clinicians ask themselves why bother? KR said that as a Network we should concentrate on trials that we can all recruit large numbers to. WE suggested ICON3 and thought that PORTEC4 would be interesting. KR asked about ICBP Module 4; TJ will investigate and report to the group. TJ Page 3 of 5

4 WE agreed to investigate suitable Trials and report back to the next meeting. WE JM commented that realistically we should expect to recruit only 3/4 patients per annum, per trial. TJ pointed out that when comparing Network recruitment rates, Essex were the third from the bottom of the table with no recruits, while Lancashire and South Cumbria were recruiting 35 per million of population. LSCCN was a similar Network to Essex with 4 DGHs. MS said he would speak to his colleague in this Network to find out why they are so good. (Following the meeting, MS spoke with his colleague and the response was that LSCCN is only good in recruiting to Gynae Trials and it is down to the Consultant in Lancashire Teaching Hospital in Preston. He is Nick Wood and his is nick.wood@lthtr.nhs.uk ) 5.8 CNS Report The CNSs had not met recently, but did plan a meeting prior to the NSSG meeting in December. 5.9 Audit 2013 Audit Chemotherapy Pathways for Endometrial Cancer and then revisit the Guidelines. Streamlining Radiology: MRI Practices - (SM) AL suggested auditing pre-assessment and the decision whether to operate or not. A pro forma has been produced for this purpose and the exercise should be carried out in Ipswich and Southend. EA said that the CNSs plan to revisit the Late Effects Survey across the Network. 6. Any Other Business 6.1 Peer Review 2012 SM reported that as part of the NAEDI project there would be a National Campaign to raise awareness of Ovarian Cancer. The Essex Cancer Network would be part of this campaign. There is an expert group currently developing the campaign. JEJ said that the problem is that there is a National shortfall of Ultrasound and relied on the Private Sector to fill the gap. 6.2 Survivorship KP and KR have agreed to meet to discuss the possibility of reviewing the follow up pathway for some gynae cancers in line with risk stratified pathways that have been produced for other tumour groups. JM has been involved in some of the pilot survivorship projects at Ipswich and reports that they were not necessarily as cost neutral as anticipated due to the extra support services required. Page 4 of 5

5 7. Confirmed Dates for 2012/13 Friday 14 th December 2012 NSSG 2pm-4pm Kestrel House Board Room Dates for 2013 all 2.00pm 4.00pm Swift House Board and Middle (except where marked) Friday 15 th February Friday 21 st June Audit and NSSG venue tbc Friday 18 th October Page 5 of 5