West Yorkshire & Harrogate Cancer Alliance

Transcription

1 West Yorkshire & Harrogate Cancer Alliance Board Meeting Wednesday 12 th September 2018, 14:00 16:00hrs Sandal Rugby Club, Standbridge Lane, Milnthorpe Green, Wakefield, WF2 7DY Attended: Joanna Bayton-Smith on behalf of Helen Lewis JBS Amanda Bloor, (Chair), CCG Chief Officer, HaRD CCG AB Michele Ezro, Associate Director Acute Commissioning, Wakefield CCG ME Carol Ferguson, Cancer Programme Director, WY&H Cancer Alliance CF Mike Frazer, Board Layperson, Patient Representative MF Jo Halliwell, Director of Operations, Surgery MYHT JHa Robert Harrison, Chief Operating Officer, Harrogate & DFT RH Mike Harvey on behalf of David Berridge MH Jules Hoole, Strategic Partnership Manager (Yorkshire), Macmillan JHo Phil Kelly, Patient Representative PK Akram Khan, Clinical Chair, Bradford City CCG AK Kath Nuttall, Regional Manager, CRUK KN Maureen Overton on behalf of Ashwin Verma MO Amanda Procter, Lead Cancer Nurse, Bradford THT AP Terri Saunderson on behalf of Sandra Shannon TS Nigel Taylor, GP Member of Governing Body, Calderdale CCG NT Paul Vose, Board Layperson, Patient Representative PV In Attendance: Fiona Stephenson, ED Programme Manager, WY&H Cancer Alliance Tracy Holmes, Comms & Engagement Lead, WY&H Cancer Alliance FS TH Apologies: David Berridge, Deputy Chief Medical Officer, Leeds THT DB Jane Hazelgrave, Director of Finance, MYFHT JHz Stacey Hunter, Chief Operating Officer, Airedale HT SHu Matt Kaye, Governing Body Member, Greater Huddersfield CCG MK Visseh Pejhan-Sykes, Chief Finance Officer, Leeds CCG VPS Lyn Sowray, Assistant Director Social Care, Bradford Council LS Clive Kay, Chief Executive Officer, Bradford THT CK Helen Lewis, Head of Planned Care & LTC Commissioning, Leeds CCG HL Sean Duffy, Cancer Programme Clinical Director, WY&H Cancer Alliance SD Anna Hartley, Deputy Director of Public Health, Wakefield Council AH Fiona Hibbits, Senior Delivery Improvement Lead, NHSI FH Sharon Hodgson, Local Service Specialist NHSE Spec Com (Y&H) SHo Ashwin Verma, Consultant Gastroenterology, Calderdale & Huddersfield Trust AV Sandra Shannon, Chief Operating Officer, Bradford THT SS Secretariat: Tracy Short TS (Minutes) 1 The Cancer Alliance is part of West Yorkshire and Harrogate Health and Care Partnership.

2 1.0 Welcome, Introductions & Apologies 1.1 In the absence of CK, AB chaired the meeting. Round the table introductions were made and AB welcomed the new lay members, PV & MF to the meeting. AB also thanked PK for his valuable contribution over the last two years as he steps down from the role as patient representative of the Board. Actions 2.0 Declarations of Interest: 2.1 There were no declarations of interest made. AB urged those who hadn t yet returned their completed forms to do so and advised that reminders would be sent. TS to send out reminders to those members who haven t yet returned the DoI form 3.0 Minutes of meeting held on 4 th July 2018: 3.1 The minutes of the meeting were checked for accuracy and were agreed to be a true record. 4.0 Actions/Matters Arising: 4.1 There were no outstanding actions or matters arising that were not covered on the agenda. 4.2 However CF provided some context to the HEE Cancer Workforce - Draft Action Plan document which was sent out with the meeting papers for information. This item will be discussed further at the October Board meeting. HEE Cancer Workforce, draft action plan to be added to next meeting agenda. 5.0 Revised Terms of Reference (ToR): 5.1 CF advised that the Terms of Reference have now been amended and the suggestions from PK to provide a greater emphasis on listening to patients, carers and others affected by cancer have now been incorporated. 5.2 PK reminded the Board members of the positive steps already taken and the achievements of the Alliance. 5.3 Discussion followed regarding how the key messages from the Board meeting should be shared internally with colleagues and it was agreed that TH would trial the production of a Board Briefing note document following this and future Board meetings. TH to produce Board Briefing document after meeting and following subsequent meetings 5.4 CF advised that the ToR should be reviewed in six months time, however further amendments may become necessary subject to the requirements of the Health Care Partnership (HCP) and particularly the relationship with the System Outcomes and Assurance Group (SOAG). 6.0 Risk Register: 6.1 CF advised that the risk register has been revised and only shows the risks that score in excess of 12 following mitigation. 6.2 CF also advised that the Alliance would refrain from making further 2

3 amendments to layout pending the revised governance framework and clarity of reporting from the Cancer Alliance Board to SOAG. 7.0 Highlight Report: 7.2 CF advised that the highlight reports have been updated. 7.3 Discussion took place at the last meeting and members requested that future versions include a progress heat map and local input from the six places. CF advised that the reports will evolve over time as some localities have been slow in providing the information. 7.4 CF then drew attention to the hyperlink contained within the Tobacco Control highlight report which requests NHS organisations to sign up to the NHS statement of support for Tobacco Control. A link was provided in the document and can be found here: All organisations to sign up to the Tobacco Control smoke free statement 7.5 The Tackling Lung Cancer Programme highlight report proposed that the governance route for this work programme within a programme is through the Early Diagnosis Project Group as opposed to establishing a separate steering group and this was formally agreed by the members although there was some concern about tracking of programme impact on acute services. AB suggested that governance for this programme should be reviewed in 4 months to ensure it remains the best fit. 7.6 FS advised that the membership of the ED Project group has been revised to accommodate the needs of the programme including the Lung Programme. 7.7 FS introduced the excel spreadsheet appended to the ED Programme report advising members that this is still evolving. She explained that it remains difficult to reflect the amount of work being undertaken and commended what had been by the Trusts in such a short time, with significant investment across all projects. 7.8 JBS suggested that the Leeds Integrated Cancer System (LICS) highlight report could also be provided to the Board and MH added that this report could add value in the sharing of learning. 7.9 Discussion ensued regarding the need for more emphasis on the risk sections of the reports e.g. the need to understand why these risks exist and how to mitigate them and whether mutual assistance is required etc It was agreed that the same escalation process should exist for all work streams if the Board is to deliver on its ambition for mutual challenge and accountability, supporting learning and development across localities. FS to further develop the highlight report & risk issues. 3

4 7.11 RH commented that the reports now showed a significant step forward. 8.0 Data Sharing 8.1 CF advised the members that that it is the aspiration of the Cancer Alliance to have a fully populated dashboard which maps the six places as well proving an aggregate position for the Alliance. 8.2 The data sharing agreement shared with members following the last meeting had been based on the WYAAT data sharing agreement. However it has been recognised that this isn t completely fit for purpose and assistance from specialist governance/information governance colleagues is now required. Members were advised to refrain from signing the document until such time as the necessary amendments have been made. 8.3 ME asked that the learning from the data sharing agreement be shared as this will be required across all programmes. AB confirmed that it is the ambition to have one agreement across all programmes and that the Cancer Alliance Board is championing some of this work. 8.4 CF advised that Simon Wilson (senior digital adviser to the cancer programme) has been assigned to assist in resolving these issues. 8.5 CF explained that it is the non-routine metrics, provided by Trusts from local systems and not published data that appears to be the main cause of concern. However as the Alliance is being monitored against this information it is necessary to share this information with the Board. 8.6 CF advised that the Alliance is currently working with informatics colleagues to make the Alliance dashboard more printer friendly. 8.7 CF advised that the only significant change to the information provided on the dashboard since the last meeting is the 62 day CWT performance information that is now below 80%, despite lots of work being undertaken to improve the position. 8.8 MF questioned the variance in the 62 CWT. AB advised that the dashboard only provides a snapshot and more context and background is required to understand the fuller picture. 8.9 MH asked whether detail regarding finance as well as performance would be also reported in the future and AB agreed that this does need to be addressed Discussion followed about how conversations regarding the 62 CWT should be structured and addressed. Currently fortnightly teleconferences take place to discuss the progress and issues etc JHa commented that performance management takes place in other forums and that this meeting should be used to review the impact and priorities of the Alliance. 4

5 8.12 It was agreed that there should be an opportunity to check and challenge and also a need to identify whether the programmes are impacting and delivering within the right places etc. If not then appropriate decisions be collectively made in this forum. 9 WY&H Cancer Transformation Funding Update: 9.1 AB advised that the Alliance had submitted revised plans to NHSE, which reflected the anticipated 50% cut to CTF funding. Copies of the revised plans were issued with the papers of the meeting. AB went on to advise that many other Alliances were in the same position. 9.2 CF advised members that a revised plan had already been submitted due the earlier funding cuts in March. A decision regarding the outcome is expected to be received following the meeting of the NHSE delivery Assurance Group due to take place on 19 th September. A further 25% cut in funding will amount to an overall reduction of almost 2m. 9.3 In summary the Living With & Beyond Cancer programme would continue with most of the original projects though some activity will slip. CF advised that the lead cancer nurses are committed to continuing with what has already been started. 9.4 CF advised that the funding cuts would have the biggest impact on Early Diagnosis programme, though every effort is being made to mitigate this. The main projects to be affected are teledermatology and the expansion of the lung pilots to detect lung cancer earlier will also be affected. 9.5 A discussion followed regarding the impracticality of withholding funds and the inability to plan effectively when funding is cut. 9.6 CF advised that David Fitzgerald, National Programme Director is visiting the Alliance on 18 th October where it is intended to discuss the funding approach and the impact it is having on the sustainability of the Alliances and retention of staff as well as the impact this is having on leadership and clinical engagement. 9.7 PK suggested that as well as providing good news stories to the public, it may be helpful to publicise the news about the funding cuts. AB recommended that guidance from communications colleagues should be sought to assess whether this would be appropriate. 10 Building on the NHS Cancer Programme Self-Assessment 10.1 CF introduced this paper advising that the Alliance requirements of selfassessment was to send it to 10 stakeholders for completion, however it was decided to send to all stakeholders and an excess of 70 were sent Approximately 20 responses were received, all of which were positive and encouraging responses This exercise has provided the Alliance with a learning opportunity and CF talked through the main topics and areas for improvement as she 5

6 wanted to test the views of the members There was an inference within the questions that the Clinical Network meetings should be resurrected, though this puts pressure on front line staff to attend and the Cancer Alliance to resource and the 8 week notice to cancel clinics would also hinder this. The approach of task & finish groups was explored The members acknowledged that there appears to be a real mourning for the groups and CF proposed an outcome focussed session for clinicians to get together perhaps once a year, by tumour site and with primary care colleagues also invited NT commented that though he thinks there is value in having primary care at such events, it is difficult as they get invited to many things and it makes it difficult to prioritise It was agreed that a mix and match approach may be what is required and AB emphasised the need for outcome focus and a safe space AB asked the patient representatives, PK, MF & PV how the Board should engage with the public and when messages should be managed PK advised that private discussions are equally as valuable as the messages that can be shared CF welcomed comments and feedback on the remainder of the document and advised that a follow up report would be made available for the next meeting. MH & JHa agreed to put together some proposals on approach. Comments and feedback from members to CF welcomed. Report to follow at meeting. 11 Creating a Sustainable Alliance in WY&H 11.1 The Board considered a discussion paper on now sustainable cancer improvement could continue to be delivered across West Yorkshire and Harrogate in the long-term JH advised that Macmillan is currently developing a 10 year strategy and there may be opportunity for the Alliance and Macmillan to work in partnership. The emphasis for Macmillan is wrapping services around the patients JH advised that Macmillan recognise that some programmes may take 5 10 years to show a return and will be seeking opportunities which deliver change across the whole system. Though diagnosis is important, LWBC and End of Life are important aspects for Macmillan Discussion followed amongst members about the need for sustainability and the need to transform the way we work rather than the securing of short term funding AB added that working with Macmillan seemed a sensible approach and CF commented that in the past, resources have been used in different places at different times, but the Alliance is all of us and this should be used as a basis to put together a collective proposal for resources from Macmillan. 6

7 11.6 JH confirmed that Macmillan work on calendar years, thus funding is made available from January and December and therefore any proposals must be received by Macmillan before November It was suggested by AB that the proposal should be shared at the next Board meeting on 30 th October for discussion and sign off. CA to draft proposal for Macmillan which can be shared at the next Board meeting on Any Other Business 12.1 CF advised that the digital workstream of the Health Care Partnership are currently developing the cancer pathway interoperability e.g. systems talking to one another. She advised that the work has been ongoing for 2/3 months and a report is currently been written. Digital Workstream report to be added to next meeting agenda The report will be available at the 30 th October 2018 meeting. 13 Date & Time of Next Meeting Tuesday 30 th October 2018, 15:00hrs 17:00hrs, Sandal Rugby Club, Wakefield. Post Meeting Note: The Cancer Alliance has been notified informally that the Cancer Transformation Fund allocation to WY&H for Q3 and Q4 is being held at 75% despite our disappointing aggregate cancer waiting times performance, enabling us to reinstate some of our original plans. The national Cancer Performance and Delivery Group have taken into account the recent growth in demand, particularly on prostate cancer pathways resulting in an upward adjustment in allocations for some Alliances. Although this is positive news we remain committed to working together across the Alliance to improve access times for patients. All to note 7