Delaware Valley Chapter Resources

Transcription

1 Delaware Valley Chapter Resources UMDF Chapter & Support Group UMDF Delaware Valley Chapter & Support Group Therese Garvin- Chapter President DELAWARE CONTACT CONTACT Delaware in Wilmington Help line: Kent & Sussex Counties: DEAF CONTACT: Protection and Advocacy Agency Brian Hartman, Program Director Disabilities Law Program Community Service Building 100 West 10th Street, Suite 801 Wilmington, DE (302) ; (302) (TTY) (800) (in DE) Web: Programs for Children with Special Health Care Needs Dennis L. Rubino, MSW, MPH, Director CSHCN Division of Public Health P.O. Box 637, Jesse Cooper Building Dover, DE (302) Web: State CHIP Program (health care for low-income uninsured children) Delaware Healthy Children Program P.O. Box 950 New Castle, DE (800) Web: Web:

2 PENNSYLVANIA UMDF Ambassadors Kim Olenderski Central PA 209 Audrey Drive Lititz, PA Kimberly Gesler Erie 809 Tyndall Avenue Erie, PA The Caring Place 620 Stanwix St Pittsburgh, PA A Center for Grieving Children, Adolescents and their Families The Children s Institute Northumberland St. web site: Pittsburgh, PA A pediatric rehabilitation hospital offering a variety of services including a functional feeding program Children s Hospital of Pittsburgh (CHOP) CHIP One Children s Way General & Patient Info 3705 Fifth Ave Bruce Molyneaux (SW, Neuro.) Pittsburgh, PA Brent Furlong (SW, M-W 2 nd shift) PA s Program for kids without health care Web: Contact USA National Office Alan Kemery, National Executive Director 4 North Circle Dr Harrisburg, PA Fax: \ contactusa@ezonline.com Web Site: CONTACT-USA.org

3 CONTACT CONTACT Altoona Helpline: Deaf CONTACT: Phone-a-friend: Reassurance CONTACT: CONTACT Beaver Valley Helpline: and Reassurance CONTACT CONTACT Helpline in Harrisburg Helpline: Cumberland County: Carlisle: Reassurance CONTACT CONTACT Community Telephone Helpline in Johnstown Helpline: and CONTACT Lancaster Helpline: Deaf CONTACT: Kids Line: 717- Teen Line: 717- Reassurance CONTACT: SE Lancaster County: 717- CONTACT E.A.R.S. of Lawrence County in New Castle Helpline: Teen Line: TALK Reassurance CONTACT: CONTACT Carelines for Greater Philadelphia in Bala Cynwyd Helpline: Deaf CONTACT: CONTACT Pittsburgh, Inc. Helpline: Pittsburgh EAST: Pittsburgh SOUTH: Pittsburgh NORWIN: Kids Line: CONTACT Bucks County in Richboro Helpline: Upper Bucks County: Lower Bucks County: Central Bucks County: CONTACT York Helpline: DEAF CONTACT: Teen Line: MARCH OF DIMES, Birth Defects Foundation, Western PA Chapter Phone: or Fax: Saving Children 650 Smithfield St. Suite#1180, Centre City Tower

4 Pittsburgh, PA Hours: 9am - 5 PM Michael J. Kerr, MS Director of Program Services (He sent SW PA. information on collaborative resources/medical guide) International Relations at National Office Dr. Christopher Howsen Resource Center 888-MODIMES Science Communications and Research Ellen Fiore Pittsburgh Genetic Counseling & Birth Defect Referrals list as of 3/98 PAIR EASTER SEAL SOCIETY OF WESTERN PA. 632 Fort Duquesne Blvd Pittsburgh, PA Fax: Hours: 9am 3pm PA. DEPARTMENT OF HEALTH Division of Special Health Care Programs 514 State Office Bldg Liberty Ave. ADM: Pittsburgh, PA Hours: 7:30 AM 5:00 PM (weekdays) Offers a variety of services & publications such as Pennsylvania Department of Health Community Resource Guide Web: PARENT to PARENT Main Office: Bingham St Pittsburgh, PA Fax: Hours: 9Am 5PM, weekdays Ptparc@hotmail.com 5320 N. Pioneer Rd

5 Gibsonia, PA Fax: ADMIN: Hours: Vary Web: UNITED WAY of Southwest Pennsylvania One Smithfield St P. O. Box 735 Fax: Pittsburgh, PA Web: The Variety Club Assists families obtain mobility equipment 300 Penn Center Blvd. Pittsburgh, PA Web: Protection and Advocacy Agency Eilene Shane, Executive Director Pennsylvania Protection and Advocacy Inc N. Cameron Street, Suite C Harrisburg, PA (717) ; (800) (in PA) (717) ; (877) (TTY) ppa@ppainc.org Web: Programs for Children with Special Health Care Needs Carolyn Cass, Director Division of Child and Adult Health Services Department of Health, 7th Floor, East Wing P.O. Box 90 Harrisburg, PA (717) (800) Special Kids Networks ccass@state.pa.us Web: State CHIP Program (health care for low-income uninsured children) Pennsylvania's Children's Health Insurance Program 333 Market Street Harrisburg, PA (800) Web:

6 Variety Club of the Delaware Valley 1520 Locust St. Suite 900 Philadelphia, PA Philadelphia: Elsewhere: Fax: Web: Pennsylvania Physicians Familiar with Mito Gerard T. Berry, MD 1025 Walnut Street Suite 102 Jefferson Medical College Philadelphia, PA Phone: Specialty: Metabolism & genetics Types of Patients: pediatric (sees some adults) Paige Kaplan, M.D. Children s Hospital of Philadelphia 34 th Street & Civic Center Blvd. Philadelphia, PA Office Phone: Fax: Specialty: Metabolism Type of Patients Seen: Pediatric Neil A. Busis, M.D. 532 South Aiken, Suite 507 Pittsburgh, PA Fax: Office Phone: Type of Patients: Adult Specialty: Neurology Amy C. Goldstein, MD Department of Neurology, Suite 2500 Children's Hospital of Pittsburgh 3705 Fifth Avenue Pittsburgh, PA Phone: Fax:

7 Type of Patients: pediatric Specialty: Pediatric Neurology Rajiv R. Varma, M.D. Dept. of Neurology Children s Hospital of Pittsburgh 3705 Fifth Avenue, Suite 2406 DeSoto Pittsburgh, PA Fax: Office Phone: Type of Patients: Pediatric Specialty: Pediatric Neurology Gerard Vockley, MD, PhD Children s Hospital of Pittsburgh th Avenue Pittsburgh, PA Phone: Fax: Specialty: Medical Genetics Types of Patients Seen: pediatric & adult UMDF Ambassador Sarah Byrne Southern New Jersey 219 Grant Avenue Mount Ephraim, NJ rtssmb822@comcast.net NEW JERSEY Choice Health Care Referral Phone: A New Road-Box 222 Highland, NJ Fax: CONTACT CONTACT Community Services in Cherry Hill Helpline: , Reassurance Helpline: , Ala-Call/Substance Abuse: CONTACT of Mercer County in Ewing Helpline: & Reassurance CONTACT Teen Line CONTACT-We Care in Fanwood Helpline: TTY/TTD

8 CONTACT Burlington County in Moorestown Helpline: Mt. Holly , Willingboro , CONTACT-a-friend CONTACT Hotline in Pequannock Helpline: CONTACT Glouchester County in Richwood Helpline: Salem Cty , Glouchester Cty. & Reassurance CONTACT CONTACT Cape Atlantic in Somers Point Atlantic County Cape May County Reassurance CONTACT CONTACT of Ocean County in Toms River Helpline: Information & Referral Protection and Advocacy Agency Sarah W. Mitchell, Executive Director New Jersey Protection and Advocacy, Inc. 210 S. Broad Street, 3rd Floor Trenton, NJ (609) ; (609) (TTY) (800) (in NJ) Web: Programs for Children with Special Health Care Needs Gloria M. Rodriguez, Ph.D., Director Special Child, Adult and Early Intervention Services New Jersey Department of Health and Senior Services 50 E. State Street P.O. Box 364 Trenton, NJ (609) Web: State CHIP Program (health care for low-income uninsured children) New Jersey Family Care PO Box 4818 Trenton, NJ (800) Web: