Welcome to Philadelphia!!!!

Size: px

Start display at page:

Download "Welcome to Philadelphia!!!!"

Deborah Parks
5 years ago
Views:

1 Equipping Communities to Support People with Alzheimer s Disease and Related Dementias Working with Diverse Aging Populations Welcome to Philadelphia!!!!

2 Presenters: Rick Spector, Community Relations Director, Philadelphia Corporation for Aging, Philadelphia, PA Fredericka E. Waugh, Afri Outreach Coordinator, Alzheimer's Association Delaware Valley Chapter, Philadelphia, PA Dawn Simonson, Executive Director, Metropolitan Area Agency on Aging, North St. Paul, MN Lori Vrolson, Executive Director, Central Minnesota Council on Aging, St. Cloud, MN

3 Elderly Philadelphia Home to 282,000 age 60 plus elderly 62% women, 52% minority 123,400 below 200% of poverty

4 Elderly Philadelphia 282,000 Elders 13,700 needed medical care, but no $ to see a doctor 28,000 report skipping meals due to a lack of $ 113,000 have difficulty paying housing costs 32,000 report some level of difficulty speaking English 54% have less than a high school education

5 Touches the lives of more than 100,000 annually: 1.5 million home delivered meals 496,000 congregate meals 22,500 long term care assessments 21, 400 receive home care 105,400 information and referral contacts

6 Philadelphia Corporation for Aging s Community Relations Department: Reaching Out to the Hard to Reach since We get a lot of mileage from a Small Staff! To get it done we know how to network and leverage Resources!

Coordinate Consumer and Community Leader Conferences Coordinate Agriculture Department Food Voucher

7 Major Duties of Outreach Coordinators: Advocacy for Consumers Technical Assistance for Community Leaders Represent PCA at Community Meetings Coordinate Advisory Committee Meetings for Community Leaders Coordinate Consumer and Community Leader Conferences Coordinate Agriculture Department Food Voucher Distribution to isolated communities To contact Kim R. Lawrence, Supervisor for Event Logistics:

8 Annual Conference for SW s Who Serve the Latino Community: May 21, 2015 For more information about PCA Latino outreach contact Lissette Ramos : lramos@pcaphl.org

9 Conference for Chinese Elders: April 11, 2015: For more information: contact Sung Young Yun:

10 Interfaith Advisory Committee Meeting For more information, contact: Sandy Lawrence:

Advisory Committee Evaluation Advisory Committee Members appreciate: Learning about services offered by PCA and other organizations Networking oppty s: Gaining perspectives of organizations with same

11 Advisory Committee Evaluation Advisory Committee Members appreciate: Learning about services offered by PCA and other organizations Networking oppty s: Gaining perspectives of organizations with same or similar missions Information sharing oppty s : learning about city s diverse elders, training & grants, becoming aware of services might not otherwise know, share ideas on fundraising, find speakers for home agency, increase referral capacity Teaching PCA about community expertise, helping PCA to identify areas needed for outreach

12 Community Outreach Program Utilizing compensated PCA employees as after hours volunteers, in FY 2013 information was provided to more than 22,000 people at neighborhood events, Health fairs and festivals

Community Outreach Grants For eight years, PCA has offered Community Outreach Grants to small community based organization to enhance the outreach capability of its Community Relations Department.

13 Community Outreach Grants For eight years, PCA has offered Community Outreach Grants to small community based organization to enhance the outreach capability of its Community Relations Department. We will begin our ninth cycle July 1, PCA expects to issue five (5) more grants of $15,000 per agency for FY2016. The proposed projects should be designed to link older adults from isolated and underserved populations to activities, services, and benefits. For more information, contact Bethea Eichwald.

15 A Tool to Better Reach Language Isolated Elders For more information contact Helpline Director Chris Gallagher:

Basics of PCA and Aging System Asian, Latino,

16 PCA Community Relations Training Topics for Aging System Workers PA Lottery Benefits for Seniors Basics of PCA and Aging System Asian, Latino, African/Caribbean Cultural Competence Winter Resources

17 Among our greatest challenges for the future: Access!...Increase the system s capacity to respond in linguistically and culturally appropriate ways. Thank you!... rspector@pcaphl.org

18 Delaware Valley Chapter

19 Picture of Alzheimer s As many as 5 million people in the United States are living with Alzheimer s and that number is expected to increase nearly 16 million by the year The direct and indirect costs of Alzheimer's and other dementias to Medicare, Medicaid and businesses amount to more than $200 billion each year. 10 million baby boomers will develop Alzheimer's in their lifetime.

Picture of Alzheimer s The Alzheimer s Association estimates there are between 220,000 and 640,000 Americans age 55 to 64 with younger onset Alzheimer s and other dementias.

20 Picture of Alzheimer s The Alzheimer s Association estimates there are between 220,000 and 640,000 Americans age 55 to 64 with younger onset Alzheimer s and other dementias. The emotional and physical costs to individuals with the disease and their families is tremendous. In addition to the 5 million people living with Alzheimer's, there are nearly 10 million caregivers directly affected every day.

Serving our Community Counties we serve Estimated population with dementia *Does not include individuals under age 65, which adds an estimated 10% to overall total Atlantic (NJ) 11,477 Berks (PA)

21 Serving our Community Counties we serve Estimated population with dementia *Does not include individuals under age 65, which adds an estimated 10% to overall total Atlantic (NJ) 11,477 Berks (PA) 15,231 Bucks (PA) 19,210 Burlington (NJ) 17,160 Camden (NJ) 25,600 Cape May (NJ) 8,670 Chester (PA) 13,213 Cumberland (NJ) 8,016 Delaware (PA) 23,106 Gloucester (NJ) 9,981 Kent (DE) 4,172 Lehigh (PA) 13,602 Montgomery (PA) 30,526 New Castle (DE) 16,471 Northampton (PA) 11,237 Philadelphia (PA) 57,108 Salem (NJ) 4,117 Sussex (DE) 5,189

22 Our Mission: To eliminate Alzheimer s disease through the advancement of research; To provide and enhance care and support for all affected; To reduce the risk of dementia through the promotion of brain health 24/7 Helpline ( ) Learning Academy Consumer Education Professional Education Annual Dementia Conferences Support Groups Early Stage Initiatives Outreach in Diverse Communities Safety Services Care Consultation Fundraisers Advocacy Resources Newsletter E-newsletter Website

23 24/7 Helpline The Alzheimer's Association Helpline operates 24 hours a day, seven days a week. Our staff is highly trained and knowledgeable about all aspects of Alzheimer s disease. Call us if you have questions about: Alzheimer s disease, related disorders and cognitive loss Medications, treatments and care options Accessing Chapter programs & services Caregiving tips and respite care options Community resources Translation services in 160+ languages

Julie H.C. Bailey Learning Academy The Alzheimer s Association provides free consumer education programs throughout the 18 counties in our territory.

24 Julie H.C. Bailey Learning Academy The Alzheimer s Association provides free consumer education programs throughout the 18 counties in our territory. Memory Loss, Dementia and Alzheimer s Disease: The Basics Early Detection Matters: Know the 10 Signs Living with Alzheimer s for Caregivers Early Stage Middle Stage Late Stage Living with Alzheimer s for Persons with Dementia Legal, Financial and Ethical Care Planning Effective Communication Strategies Understanding and Responding to Dementia Related Behaviors Knowledge is power Engage with community members and provide valuable information to interested constituents

Support Groups The Alzheimer s Association partners with trained volunteers to offer support groups for caregivers of individuals affected by Alzheimer s disease and related disorders Over 175

25 Support Groups The Alzheimer s Association partners with trained volunteers to offer support groups for caregivers of individuals affected by Alzheimer s disease and related disorders Over 175 support groups meet monthly throughout the Delaware Valley Learn about coping skills and strategies Encourage members to share information, give and receive mutual support and exchange coping skills Trained facilitators Support Group Facilitators are trained volunteers who are equipped to help caregivers in need

26 Early Stage Initiatives Support Groups Educational programs Living with Alzheimer s for persons with dementia REC Center Weekly sessions in Philadelphia and Marlton Peer-2-Peer Art and cultural opportunities for social engagement

affected by Alzheimer s disease, their caregivers, and the

27 Diversity The Alzheimer s Association Delaware Valley Chapter seeks to be inclusive of the millions of people currently affected by Alzheimer s disease, their caregivers, and the communities in which they live. Diversity is imperative and integral to our mission.

and to make Chapter services and programs more accessible to Afri (persons of African

28 Inclusivity Established in 1992, the Diversity Outreach Program cultivates relationships in diverse communities to educate families about Alzheimer s disease and related dementia, and to make Chapter services and programs more accessible to Afri (persons of African descent), Latino/Hispanic, Asian and LGBT (Lesbian, Gay, Bisexual, and Transgender) communities.

29 Safety Services MedicAlert + Safe Return is a 24-hour nationwide emergency response service for individuals with Alzheimer's or a related dementia who wander or have a medical emergency. 24/7 assistance, no matter when or where the person is reported missing Training for law enforcement, emergency responders and others who provide assistance in an emergency Handling issues such as: Wandering Driving, Firearms and Shoplifting Abuse and Neglect Disaster Response

Care Consultation Our professional staff is dedicated to helping people navigate through the difficult decisions and uncertainties people with Alzheimer s and their families face at every stage of

30 Care Consultation Our professional staff is dedicated to helping people navigate through the difficult decisions and uncertainties people with Alzheimer s and their families face at every stage of the disease. We can provide care consultation services to you by telephone, or in person. These include: Assessment of needs Assistance with planning and problem solving Supportive listening

31 Outreach Opportunities Community Education Support Groups Special Events Multicultural and Faith Based Outreach Walk to End Alzheimer s Forums in our cultural communities

32 Finding the right opportunity There are many ways to collaborate. Our constituents can be served through the broad scope of our Programs and Services for with other organizations in the aging spectrum

33 Questions I Struggle With What information does this community want/need? How will this community learn about the program? Which organization is best to collaborate with for this outreach effort?

34 Getting people to register for a free event

35 Dementia-Friendly Communities: What, How and Why Dawn Simonson, Executive Director Metropolitan Area Agency on Aging Lori Vrolson, Executive Director Central MN Council on Aging 2015

36 Today s Presentation Overview of ACT on Alzheimer s What does dementia-friendly mean? Introduce ACT on Alzheimer s Toolkit and process Update on MN s dementia-friendly communities

37 What is ACT on Alzheimer s? statewide 60+ O R G A N I Z A T I O N S 500+ I N D I V I D U A L S volunteer driven collaborative I M P A C T S O F A L Z H E I M E R S BUDGETARY SOCIAL PERSONAL

38 Collaborative Goals/Common Agenda 5 shared goals with a Health Equity perspective

39 Dementia-Friendly Community

Dementia- Friendly Community-Based Supports Supports that help people maintain independence and quality of life Actions: Service providers who use best

40 Dementia- Friendly Community-Based Supports Supports that help people maintain independence and quality of life Actions: Service providers who use best practices in serving people with dementia Dementia specific education, counseling and support Meaningful engagement activities: memory café, art, music, dance

Dementia- Friendly Financial/Legal Services Legal and financial advisors may be the first to identify cognitive decline Actions: Education on recognizing

41 Dementia- Friendly Financial/Legal Services Legal and financial advisors may be the first to identify cognitive decline Actions: Education on recognizing dementia Webinars on assessing client capacity, elder abuse, neglect and exploitation Know the local services to help people with dementia and their caregivers

Dementia- Friendly Faith Community Safe, supportive and welcoming environment for people with dementia Actions: Offer dementia training to clergy or staff Support the person with dementia: offer

42 Dementia- Friendly Faith Community Safe, supportive and welcoming environment for people with dementia Actions: Offer dementia training to clergy or staff Support the person with dementia: offer short devotions, encourage participation in services as appropriate Support the caregiver: recognize signs of caregiver stress and refer to appropriate resources Create a dementia friendly environment

Dementia- Friendly Residential/Memory Loss Services Residential settings that serve and support people with dementia Actions: Identify champions for

43 Dementia- Friendly Residential/Memory Loss Services Residential settings that serve and support people with dementia Actions: Identify champions for maintaining dementia readiness across the organization Educate and train all staff about dementia Manage dementia across the continuum using best care practices

Dementia- Friendly Businesses Businesses that are meeting the needs of customers and employees Actions: Educate staff on dementia and effective

44 Dementia- Friendly Businesses Businesses that are meeting the needs of customers and employees Actions: Educate staff on dementia and effective communication skills Become aware of local services to help people with dementia Ensure the environment is dementia friendly Offer support to caregiver employees

45 Dementia- Friendly Local Government Dementia awareness in community planning and emergency response Actions: Provide dementia training to city/county staff who work with the public, emergency responders and law enforcement

46 33 Dementia-Friendly Communities

Four-Phase Toolkit Process 1. Convene key community leaders and members to form an Action Team. 2. Assess current strengths and gaps within the community. 3.

47 Four-Phase Toolkit Process 1. Convene key community leaders and members to form an Action Team. 2. Assess current strengths and gaps within the community. 3. Analyze findings to understand your community s needs and develop a plan to take action. 4. ACT Together to pursue priority goals that foster community readiness for dementia.

48 St. Louis Park Placed Alzheimer srelated books in free little libraries Hosted free screening of Still Alice Created book club kits includes 10 books, bookmarks and study group questions Web presence on city website

Dementia Friends sessions in 2014, many more will become Friends in 2015

49 St. Paul Neighborhoods 9 Dementia Champions trainings held, 87 Dementia Champions 65+ Friends Sessions have been held 650+ individuals attended Dementia Friends sessions in 2014, many more will become Friends in ,500+ SPN ACT Brochures, bookmarks, and 350+ resource packet materials handed out

50 Roseville Education sessions for the general community and family caregivers Sponsor 4 movies with facilitated discussions Community events are mechanism to recruit volunteers Web presence on city website

51 Cambridge Private screening of l ll be Me Dementia education for physicians Guest editorials in local paper Project lifesaver in partnership with Isanti County Sheriff department

52 Edina Offer 8 Dementia Friends sessions each hosted by a separate Edina organization Use session as opportunity to recruit volunteers to enhance existing caregiver support programs

53 Walker Focus on dementiafriendly businesses Brief overview of 10 signs, brochure and ACT DF resources Workshops on AD, impacts on the workplace and sector specific small group discussions

54 Twin Cities Jewish Community Rabbi trainings Film series with facilitated small group discussion Dementia Friends Will pilot teen training 3/2015 Caregiver conference scheduled for 5/2015 h.net w w w.a d at h j esh u r u n.o r g / d emen t i a

55 Paynesville Education for medical personnel, first responders/police, faith community Dementia friends AD books for public library and elementary school Targeted outreach weekly at local grocery store

56 Challenges Some communities have struggled with membership, supportive components (fiscal agents) and leadership Some communities wanted to focus on a pre-existing program and don t consider the possibility that the surveys will be identifying something else Some communities had difficulty getting representation on their committee from all sectors

57 Observations Communities surprised by their community knowledge Communities thinking they knew what the survey process would reveal and the end result was not that Communities unaware of resources, programs and services already available

58 Thank you! Learn more at Sign up for the ACT e-news at: View latest happenings by visiting the ACT website, including In the News, Facebook page, and Twitter feed.

University of Hawaii Center on Aging

University of Hawaii Center on Aging The series is supported in part by a cooperative agreement No. 90AL0011-01-00 from the Administration on Aging, Administration for Community Living, U.S. Department