Fundraising & Services working together. A joined up approach in the Community. Stroke Helpline stroke.org.uk

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2 Fundraising & Services working together A joined up approach in the Community

3 We are the Stroke Association. Our vision is for a world where there are fewer strokes and all those who experience stroke get the support they need. Raise awareness of stroke and stroke prevention Our Helpline and Stroke Information Service offer expert advice and support Invest 2m+ a year in research Campaign to push stroke higher up the government and public agenda Support over 150 voluntary groups and 800 affiliated stroke clubs Run 358 Life After Stroke Services across the UK helping 40,000+ people

4 Finances Total income 34m Fundraised income 22m Contract income for Services 11m

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6 Coming together is a beginning. Keeping together is progress. together is success. Henry Ford Working The way a team plays as a whole determines its success. You may have the greatest bunch of individual stars in the world, but if they don't play together, the club won't be worth a dime. Babe Ruth

7 Life After Stroke Services

8 Stroke Association services 358 commissioned services 258 contracts 11.2m contract income 600 staff, 1/3 full time, some professionally qualified in health or social care Just under 3,000 volunteers, of whom 13% are stroke survivors

9 Types of service accessed Table 7:Service Users Count of Primary Service Type (CS Service) Primary Service Type (CS Service) Total Back to Life 95 Child Stroke Project 59 Communication Plus 595 Communication Support 3070 Community Integration 181 Community Stroke Coordinator 396 Conversation Group 43 IAS & Peer Support 856 IAS/Family & Carer Support Keep in Touch (KIT) 72 Life After Stroke (IAS &CS) 2318 Long Term Support 274 Other 1 Partnership for Older People's Project 71 Personal Budgets Support 387 Reablement 118 Return to Work 62 Stroke Day Service 20 Stroke Health Improvement Programmes 85 Stroke Health Promotion/Prevention 648 Stroke Navigator 527 Stroke Review Coordinator 818 Stroke Support (IAS &B2L) 114 Stroke Welfare Navigation 135 Grand Total 41588

10 Services recent history Communication Support & Family & Carer Support (remain core services, most common) Postcode lotteries Funding crises pressure on contract funding. Popular myth that our services are not funded by donations reality is only direct cost is funded by contract income. Limited range of services

11 New model Life After Stroke Services Review & re-positioning of our services How we add value locally and nationally Staff working to develop the model Co-production essential Community engagement and role of volunteers Staff working to develop the model

12 Stroke Recovery Service Integrated Service Solution Contracted Services Hospital to Community Support Services Hospital to Community- Stroke Recovery & Support Workers, My Stroke Guide Review service Intensive Early Integration Support Rehabilitation Communication support service- Aphasia, Dysphasia etc. Emotional needs support-anxiety, depression, etc. Supported Self management and Confidence Building Secondary Prevention Programme Carer Support Advocacy Specialist Childhood Stroke Service Person Centred Added Value Sustaining Independence Building Social Capital Advice & Information One to one support Online community Telephone Helpline Voluntary Groups and Clubs: Peer support, Sign-posting, Carer network and support, Befriending, Exercise programmes, emotional support, Aphasia Cafés Grants cialist

13 Community & Events Fundraising

14 What does the Community and Events team do? The Community and Events Fundraising team is responsible for developing fundraising in the regions and countries We do this by: Planning and organising our own fundraising events Promoting and supporting third party events Working with our existing Stroke Clubs and Operations groups to develop income for the charity Developing opportunities for community groups to fundraise for us Facilitate Reactive fundraising where supporters come to us to take part in their own events/activities to raise for us However it hasn t always been like this

15 History Old approach - Community Fundraising main focus on In Memoriam donations Team worked in isolation from Services in regions and countries In Memoriam donations the prime income source in the regions No C&E fundraising teams in Scotland, Northern Ireland or Jersey

16 Something had to change We developed portfolio of Planned Fundraising Events to attract live supporters We needed to ensure that our C&E fundraisers were active in their communities developing awareness and fundraising opportunities for our supporters We needed to ensure that we could work together with our Services colleagues on the co-creation of regional plans We needed to ensure that the network of Stroke Clubs could work with us to generate income both for themselves and the Association We needed to generate opportunities for volunteers We needed to become UK wide We needed to be able to generate more income from Community and Reactive sources ie volunteer led

17 What we did Introduced fundraising teams in Scotland, Northern Ireland and Jersey to complement our existing teams in England and Wales We developed several planned events activities which we delivered across the UK including our Resolution Runs series We developed a specific Step out for Stroke event for our service users to help them with their Life After Stroke - delivered across the UK with Services colleagues engaged with their fundraisers on the co-creation of plans. We developed our Partnership in Fundraising activity with Stroke Clubs so that we could share resource and generate income for both

18 What we did 2 Developed a UK wide Telemarketing team who we use to promote specific challenge events across the UK attracting significant numbers of supporters who we can build relationships with Created a new Stroke Ambassador role for our volunteers who would help our fundraising teams Increasinngly built our relationships and planning activity between the C&E fundraising and Services teams

19 Current C&E structure The Community and Events Fundraising teams consist of the following staff members in each region/country Community and Events Fundraising Manager Regional Fundraiser Fundraising Assistant The Regions are structured so that we have a team in 9 regions across England and teams in Wales, Scotland, Northern Ireland and Jersey The fundraising team structure matches the structure of the Services team we are co-terminus in Regions and Countries Fundraising staff now work collaboratively with their Service colleagues on the development of fundraising plans

20 Building Communities Survey Top Line Results

21 1. Do you understand what is meant by community development or engagement (CDE) activity? Key themes to emerge: Making stroke & the Stroke Association more visible on the ground Working together to meet the needs of stroke survivors Building capacity/relationships Support fundraising

22 2. How do we engage with our communities currently? Key themes to emerge: Raising awareness Prevention Clubs and Groups Partnership working User involvement Training and capacity building Service delivery Communication/Campaigns Influence Fundraising

23 3. Currently what are the key areas of CDE activity that are working well in your area? Prevention/KYBP Learn and share LASA award SAVG growth Stroke forum/consultation group Clubs and Groups Volunteer training Communication/Campaigns Working with students Multi agency work Volunteer conferences Static box collections

24 4. What is not working well and why do you think that is? Key themes Workforce/capacity Volunteers Infrastructure Health commissioners Partnerships and networks Low charity profile Missed opportunities Providing what people want

25 5. What are the challenges for building CDE in your area of work? Key themes Workforce/capacity Access Volunteers Communities Resources Clarity Perception of Stroke Association (as a charity )

26 7. What tools, resources, support do you feel you need for your role or area of working? Resources Strategic vision work Good practice guides Training Support Other comments - NESTA

27 10. What do you see as the benefit of CDE in your area of work? Increased capacity Skills and experience Raise profile/awareness of stroke Better service delivery Shared ownership Raising more money

28 North West Region Fundraising and Services model of collaboration

29 North West FR and Services Working Together Meetings and Communication about SAVGs Fundraising and Voluntary Groups working together Step Out Communication and Involvement Stroke Ambassadors 49 recruited in 2 years

30 Meetings formalised Built into objectives RIO attends FR/Events meetings FR attends Regional and ARM Meetings information cascaded Consistent message passed on about joint working and events by all staff including FR, RIO, ARMs etc.

31 SA RIO provided list of all North West SAVGs to FR colleagues which includes when, where, who the main contacts and local primary staff contacts are. FR divided up SAVGs between the team so each are responsible for a number of groups to make contact and build a relationship.

32 SA RIO and FR discuss and feedback if anyone has had a visit, a new group is set up or if any opportunities or issues arise. We created a leaflet to hand out to SAVGs that explains what activities they could do together to raise funds for their group and the Stroke Association.

33 SAVG FR Leaflet Both your group and the Stroke Association need to raise money to help support people affected by stroke. Here are some ideas of how we can work together to help raise funds Sip for Stroke and other sponsored events You can organise your own sponsored event using the event templates, support literature and materials available from your local fundraising team. Organised events For example, Step out, Resolution Run and other running events, cycle rides, and abseils Your local fundraising team organises a number of events every year. If someone in your group would like to take part in a Stroke Association organised event then a percentage of the money they raise can go to the group. But don t forget to tell us before they do the event that they are one of your members / supporters!

34 SAVG FR Leaflet Supermarkets Community chip schemes, bag packing, general collections and awareness days Lots of supermarket chains have a scheme where they support local charities but they do vary from store to store. For example, You could approach supermarkets in your area with an applications for a community grant. Sometimes these are decided by a board of supermarket employees, sometimes by the shoppers themselves. Another idea is to request for a bag packing day where your members covers as many tills as possible with collection buckets, or you could just hold a general collection. But the more collectors you can muster, the more successful this is. In some cases, over 1,000 has been raised in one day at one supermarket. It s always a good idea to let your local fundraising team know if you are planning to approach any supermarkets so they don t accidentally approach them at the same time!

35 SAVG FR Leaflet Local Charity of the Year For example, Mayoral Appeals, Golf Captains (or Lady Captains) Charity, Round Table, Lions, Masons, Buffalos, or Rotary Clubs Being chosen as Charity of the Year can generate a lot of support but it is also a big undertaking and is better done in partnership with your local fundraising team. You need to let your fundraising team know before you approach any of these organisations, or if you have been approached by them. Your fundraiser will then work with you to help you plan an approach, support the Charity of the Year activities you ll be asked to do, and discuss with you how the money is to be shared.

36 SAVG FR Leaflet How your local fundraising team can help you Ideas! Our Big Get Together pack has lots of ideas on how you can raise money Collecting tins and buckets T-shirts to help draw attention to stroke Due to the cost of these please note that we may only be able to provide you with a couple depending on the type and size of your fundraising activity. Justgiving and other online sponsorship sites If someone in your group is doing a sponsored event then they can set up a Justgiving page linked to the Stroke Association. There is a cost involved in this so either we can agree to share the income, or the group can simply keep the money raised and the Stroke Association will use the money it claims back from the government (GiftAid) to pay the admin fees.

37 Golf Charity of the Year FR created database of all North West Golf Clubs Every 12 months there is a mailshot sent to clubs including a letter and new branded leaflet This highlights and encourages golf clubs to support not only the national charity but the opportunity to support a local Stroke Association Voluntary group The new SAVG leaflet outlines to them that Golf Charity of the year partnerships are a way to gain income, awareness of their group as well as volunteers.

38 Step Out FR attend regional staff/management meetings to cascade information, Stroke Association groups staff primary contacts encourage the SAVGs to get involved. RIO set up teleconference for all North West staff to ask any questions or raise concerns including a prompt to invite SAVGs and Stroke Clubs to be involved. Region created shared spreadsheet which all staff could access which acted as a project plan Added into the project plan is an out to all SAVGs direct from the regional FR team to inform them of all Step Outs in the region that they could be involved in.

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40 Stroke Ambassador Role What is the purpose of the role? Stroke Ambassadors help us raise awareness of stroke and the Stroke Association with the general public. What tasks can this role include? Delivering presentations about stroke and the Stroke Association at conferences, events and to local community groups. Attending conferences, events and exhibitions to represent the Stroke Association and stroke. Taking blood pressures at events to raise awareness of the link between high blood pressure and stroke.

41 Stroke Ambassador Role What tasks can this role include? Signposting people to Stroke Association services and support by distributing information to professionals, individuals, GPs, health centres, gyms and other locations in your area. Attending cheque presentations. Supporting campaigns locally. Feeding back any potential opportunities for further fundraising, volunteer support, campaigning or other support that Stroke Association staff can follow up on.

42 NW Stroke Ambassadors Training Where we are now What to think about before doing a presentation Example of presentation Practise session Lets have a go Materials Promise KYBP NW FR and Services team have a pool of 49 Stroke Ambassadors to support us by attending cheque collections, FR or awareness events, deliver awareness talks and be a voice for Stroke in their community

43 Impact on Community Fundraising Gross income from Community and Events Fundraising has risen by 1M (36%) in last 3 years. 309 Stroke Ambassadors support our work ROI improved year on year Community and Reactive income risen significantly soon to be 50% of income In NW Region income has risen by 134k (54%) in last 3 years. None of this progress would have happened if the Regional Fundraising teams worked in isolation from Services colleagues We have also started to co-create a cross organisation Building Communities initiative

44 The Future Increase in C&E income Increased % of income from Reactive Fundraising = 50% of C&E income Stronger presence for Stroke Association locally Greater Community Development and Engagement Creation of stroke communities with stronger supporter loyalty More SAVGs/Stroke Clubs/Stroke Ambassadors Stronger Community footprint

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