Macular Degeneration New Zealand Annual Report

Transcription

1 Macular Degeneration New Zealand Annual Report Annual Report

2 Contents Our Vision & Mission 3 Chairperson s Report 4 Events & Activities 6 Awareness Week 8 Ryman Supports MDNZ 9 Facts & Figures 10 Financials 12 Goals, Actions & Outcomes 13 Sponsors & Supporters 15 2 Macular Degeneration New Zealand

3 Our Vision To reduce the incidence and impact of Macular Degeneration in New Zealand. Our Mission In collaboration with others, we will: Generate measurable improvements in the awareness of Macular Degeneration. Contribute to the education of the wider community of the importance of nutrition and healthy lifestyle choices. Maintain current knowledge and support the latest investigative research into eye health. Ensure the wider Macular Degeneration community have access to relevant support and low vision services. Advocate for the best interests of the Macular Degeneration community. Our Values Respect Respect for the dignity of every person. Compassion Concern, support and understanding. Integrity Trustworthiness, honesty, loyalty, reliability and the highest standard of ethical behaviour in an environment of quality care. Collaboration Partner and collaborate with others as appropriate. Competency Effective, appropriate, high-quality care in the advocacy for, and administration of, services for people with Macular Degeneration, their family and careers. Our Objectives Awareness Education To increase awareness of Macular Degeneration in New Zealand. To provide accurate, specific, current and ongoing information about Macular Degeneration. Support To facilitate access to relevant support services. Research To support and pursue evidence based research. Representation To advocate for the accessibility and affordability of treatment and rehabilitation. Annual Report

4 Chairperson s Report April 2012 March 2013 MDNZ continues its vision to reduce the incidence and impact of Macular Degeneration (MD) in NZ. In a Galaxy poll in April 2012 only 41% of New Zealander s aged 50+ knew that MD affects the eyes. Without awareness of risk factors and early symptoms of MD, many New Zealander s are missing the opportunity for effective treatments. MDNZ has committed to education through community and public seminars as well as distribution of printed material. The selection by Ryman Healthcare of MDNZ as their charity, created opportunity for events to be held at their 25 villages. These well attended meetings involved presentations from ophthalmologists and optometrists with assistance from RNZFB, Humanware, and MDNZ trustees. Public interest in information about MD was evident at 16 Research and Treatment public seminars, led by ophthalmologists with national representation from Whangarei to Invercargill. RANZCO have continued to be supportive to MDNZ and a Medical Advisory Group reviewed MDNZ materials and issues regarding MD in NZ. MDNZ Trustees have shared their talents and passion for the MDNZ vision while donating considerable time and energy. Professor Philip Polkinghorne and Naomi Meltzer retired as trustees after valuable contributions over three years. Ophthalmologists Andrew Thompson and David Squirrell along with optometrist and low vision specialist, Mike Frith, were welcomed as new Trustees. MDNZ s inaugural trustees, Sandra Budd, Viv and Allan Jones continue their significant contributions. Our high profile MDNZ Ambassadors, in their own unique way, have contributed talents and expertise to bring awareness of MD to a wider audience within the community. It is with real sadness that we acknowledge the passing of Sir Wilson Whineray who brought wisdom and expertise from his business and sporting experience. In September we farewelled our General Manager, Jeanine Gribbin and thank her for her contribution and enthusiasm over the previous year. She is replaced by Phillippa Pitcher who brings experience and expert business management along with a passion for MDNZ. Phillippa is looking forward to leading the MDNZ operation to the next phase of its development. We are grateful for on-going support, advice and experience from the Macular Disease Foundation Australia who have offered guidance to achieve good governance and advice towards meeting the needs and expectations of our MD community. 4 Macular Degeneration New Zealand

5 People who live with MD have shared their private journey in public seminars, through the media and on the website, offering inspiration and hope to others. These are powerful stories and have made a special contribution. MDNZ has already made a significant impact in New Zealand. An increasing number of ophthalmologists, optometrists, GPs, eye clinics, healthcare and community workers have requested MDNZ information to distribute to members of the MD community. GP and optometry associations have requested web-based educational modules and community groups have requested future talks. MD community, patients, families, friends and carers continue to use the 0800 phone support. I wish to acknowledge the dedication of the MDNZ Trustees, the energy and assistance of associate trustees, our GM, staff and volunteers. MDNZ continues to be challenged to meet its objectives and this collective expertise is making a difference. Dr Dianne Sharp Annual Report

6 Events & Activities Key activities for MDNZ during the year ranged from increasing awareness through Awareness Week (page 8), Ryman seminars (page 9), exhibition stands at medical conferences, a fundraising dinner, development of a Low Vision Information DVD and a Christmas party to acknowledge supporters. Conferences The attention of hundreds of medical and health care professionals was attracted when MDNZ displayed materials and talked to attendees at conferences during the year. In October 2012 at the NZAO conference in Auckland, Dr Dianne Sharp made a presentation which was well received by optometrists and dispensing opticians, many of whom visited the stand during their breaks. In March a wide range of health care professionals showed interest in the MDNZ stand. This was the first conference in which MDNZ involved student optometrists through the Optometry Student Association. This provided excellent support for MDNZ while giving the students a chance to mix with the attendees of the conference. 6 Macular Degeneration New Zealand

7 Christmas Party The 2012 Christmas party was held in the board room at Auckland Eye and was attended by over 50 people. This was an opportunity for MDNZ to say thank you to supporters and friends of MDNZ for their contribution during the year. MDNZ Ambassador John Adshead addressed the audience thanking people for their support and acknowledging the work of MDNZ. Dr Dianne Sharp also thanked those attending and those who were unable to attend, acknowledging that the support given provides significant encouragement for MDNZ to continue its work. Clear Vision Dinner Sponsored by and in conjunction with Sky City Hamilton the Clear Vision fundraising dinner was held at Sky City in Hamilton in April Featuring two Knights and a Dame; Sir Colin Meads and Sir Peter Leitch together with Dame Susan Devoy and NZ s silver medal Olympian BMX rider, Sarah Walker. These celebrities attracted an enthusiastic crowd locally from Hamilton and many travelling from Auckland. Local radio host, Ronnie Philips as MC and local Harcourts auctioneer, Brian King both contributed greatly to the evening taking their part in rousing the attendees to bid generously for the auction and to fill the donation envelopes leading to $46,000 raised at this event. Low Vision Information DVD Thanks to funding from Guardian Trust (James Russell Lewis Trust), RNZFB, plus support from Naomi Meltzer (Sight Loss Services), Maurice Sloane (Humanware), Viv Jones, Linda Ewing and the team at Logan Brooke, MDNZ produced a DVD titled Low Vision Services. The DVD has been well-received by members of the MD community who have received inspiration and ideas from the DVD of what they can do in their daily living to make life easier and to understand access to magnification and lighting aids and equipment to improve their quality of life, living with MD. Annual Report

8 Awareness Week 28 May 3 June 2012 The objectives of Awareness Week 2012 were to: Raise awareness and educate to increase the understanding of MD Promote that early detection is critical to save sight Ensure knowledge of the risk factors Promote risk education through health and nutrition Promote conversations about MD amongst peers, friends and families The theme message was: How much of your family will you see in the future? Printed materials printed for distribution in Awareness Week 2012 and beyond: 2,500 A4 Treatment and Research flyers 5,000 A4 What to ask your eye care professional flyers 10,000 A4 Key Facts flyers 10,000 DL How much of your family will you see in the future? brochures 2,000 DL Ambassador brochures 500 A2 posters 5,000 A4 posters 5,000 bookmark cards 1,000 counter stands Launched and promoted a series of 11 national education seminars for Successful media attention with 27 appearances in national and regional publications, newspapers and websites, plus radio coverage with key results including: PR Shop reported coverage to the value of $71,655 for a cost of $4,300 Article in nationwide Grey Power magazine indicated 1,489 visits to the MD promotion 2,286 visits to 26 May to 30 June (average of 381 per week with an average of 75 per week the following 7 weeks) 8 Macular Degeneration New Zealand

9 Ryman Supports MDNZ Annually Ryman Healthcare Ltd chooses one charity as their Charity of Choice for the financial year. In 2013 they chose MDNZ. This was excellent news for MDNZ and provided an opportunity to spread our awareness message and to provide education to a target audience. During July 2012 to May 2013 MDNZ utilised the voluntary contribution of local expertise to lead seminars in 25 Ryman Villages around New Zealand. Event number one involved ophthalmologists who made presentations to village residents between July and October, giving the attendees a good understanding of what MD is, the difference between wet and dry MD and provided general awareness of the severity of the disease. From October 2012 to May 2013 event number two was scheduled across all villages again. This time local optometrists led two sessions in each village an afternoon session for the residents and an evening session for residents to also invite family. At these seminars the attendees were made aware of the prevalence and impact of the disease with DVDs and slide shows. In addition RNZFB had a local person bring along aids they have available and they talked about their local services available. Maurice Sloane of Humanware was the key constant person who attended each of these seminars around New Zealand where he spoke to and demonstrated the Humanware range of lighting and magnification equipment and aids. In Auckland he was joined by low vision optometrist, Naomi Meltzer of Sight Loss Services. Head Office, resulting in a generous cheque of $230,000 being presented at the Hilda Ross Village in Hamilton in May MDNZ Ambassador Sir Colin Meads, assisted Chairperson, Dr Dianne Sharp and General Manager, Phillippa Pitcher to receive the cheque on behalf of MDNZ. Dr Sharp, in her thank you to Ryman advised the residents in the audience that we needed a big man to help us collect such a big cheque. The residents enjoyed mingling and chatting with Sir Colin over afternoon tea at the village. The residents and staff of the Ryman Villages contribute to the charity of choice by raising funds to meet targets with activities such as market days with all sorts of goods donated, baked or crafted to sell. The residents and staff raised $115,000 which was then matched by Annual Report

10 Facts & Figures The reach of MDNZ across New Zealand is captured in statistics of 0800 phone calls, website visits and seminar attendance. The detail illustrated here for the April 2012 to March 2013 year speaks for itself calls in the 2012/2013 year The word cluster below shows the 0800 calls received by local area. Methven Te Puke Auckland Sanson Bulls Hawera Belfast Te Aroha Papakura Te Awamutu Havelock Marton Cambridge KatiKati Sumner Matamata Omarau Richmond Dunedin Nelson Alexandra Te Kuiti Hibiscus Coast Kaitaia Invercargill Waitara Rangiora Pukekohe Tauranga Blenheim Waikouati Whanganui Whangarei Queenstown Whitianga Levin Port Chalmers Christchurch Pukerua Bay Masterton Millers Flat Thames Napier Mt Manganui Heriot Gisborne Gore Motueka Carterton New Plymouth Manurewa Taupo Turangi Paraparaumu Hamilton Huntly Temuka Helensville Rotorua Wellington Paeora Hastings Otorohanga Putaruru Palmerston North Greytown Timaru Waihi St Arnaud Macular Degeneration New Zealand

11 6 214 A map of New Zealand showing the number of 0800 calls received per region. 7 Website Statistics for Financial Year 2012/2013 3,386 visits ,525 page views 2,732 visitors spent up to 3 minutes on the site visitors spent more than 3 minutes on the site Northland Auckland 42 Seminar Attendance by Region In 2012, 65 seminars were held across New Zealand in 33 locations. Here is a breakdown of attendance numbers per region. = 100 people 86% of attendees rated the seminars good or excellent. Bay of Plenty Waikato East Coast Hawkes Bay Taranaki Manawatu Wellington Nelson Canterbury Otago Southland Annual Report

12 Financial Report Year end 31 March 2013 Fundraising, contestable grants and sponsorship continue to be the sole source of income for MDNZ. Funds are carefully managed and wisely expensed to achieve the maximum outcomes in the efforts to achieve the mission of MDNZ. Where did our funds come from? 57% Fundraising 34% Grants 6% Sponsorship 3% Other What did we deliver? 66% Awareness/Education 18% Fundraising 16% Admin/Office Independent audit report The information in this report has been summarised from the annual financial statements of Macular Degeneration New Zealand for the year ending 31 March The full audited accounts are available from Macular Degeneration New Zealand. Web Phone 0800 MACULAR ( ) 12 Macular Degeneration New Zealand

13 Goals, Actions & Outcomes Julie Heraghty, CEO of Macular Disease Foundation in Australia generously contributed her time to lead the board in a strategic planning day in January 2013 in which MDNZ defined the immediate and future priorities. Strategic priorities were set in place with an annual activity action plan to implement as an immediate priority. Goals Actions Outcomes Building healthy communities Strong positioning in the development of public policy Building a sound knowledge base Building strong relationships and partnerships Target and deliver programmes and promotion to increase the awareness of Macular Degeneration. Advocate for: - The provision of access to evidence based treatments. - Equitable access to low vision rehabilitation services. Provide key decision makers with knowledge of the potential impact of MDNZ in the next 5-20 years. Increase the knowledge base of the workforce in the areas of eye health, aged care, mental health, disabilities and community services, by providing relevant knowledge and education plus web-based Continuing Professional Development (CPD) programmes. Engage effectively with the MD community and disciplines allied to MD, establish strong networks and strengthen the support for MDNZ through new and strengthened partnerships and alliances. Build an Ambassadorial programme and Friends of MDNZ. Survey results provide evidence of increases in awareness of Macular Degeneration in NZ: - Over 50 s to 75% age group to 50% Government policies in health, aged care and disability agendas identify a marked improvement in understanding and in support provided to the MD community. Allied health care professionals indicate advanced levels of knowledge through surveys and utilisation of CPD programmes. Strong communication networks are established and support for MDNZ is evidenced by increased partnerships and alliances, plus effective ambassadorial and friends programmes are in place. Annual Report

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15 Sponsors & Supporters As a Charitable Trust we are dependent on the generosity of sponsor and supporters and we are very grateful for the contribution they have made, for the partnerships we have established and the voluntary contribution of time and expertise and professional advice many have given. c o m m u n i c a t i o n s Annual Report

16 0800 MACULA ( ) PO Box , Parnell, Auckland Macular Degeneration New Zealand