An investigation for the Optimal Timing of a Cleft Palate Repair

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Job Spencer
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1 An investigation for the Optimal Timing of a Cleft Palate Repair David Fisher, MD The purpose of this study is to determine the ideal time for a cleft palate repair, by comparing the effectiveness of early cleft palate repair and SickKids routine cleft palate repair. The information from this study will help your child s surgeon and the Cleft Lip and Palate team decide when children with isolated cleft palate should have a cleft palate repair. June 2009 Simone Fischbach, SLP Paula Klaiman, SLP John Daskalogiannakis, DDS Paolo Campisi, MD Maggie Harkness, OT Alison Miller, RN The outcome of this study will be added to the growing knowledge base for cleft palate care. It is anticipated that the study will benefit future patients affected by cleft palate in regards to feeding, speech and language development, as well as orthodontic outcomes. Contact: Alison Miller ext. 4

2 Comparison of Tests of Sensory Outcome After Nerve Injury in Children The purpose of this study is to establish a reliable protocol for evaluating the sensation of the hand after a peripheral nerve injury in children. This study as two aims: 1) To see if tests that measure the feeling in the hand are able to get the same results when the testing is repeated 2) To find out the relationship between feeling in the hand and the use of the hand in children September 2012 September 2014 Howard Clarke, MD PhD Gregory Borschel, MD Yumiko Hao, OT Establishing the reliability of these tools will help the surgeons and therapists to better assess the function of the nerve after injury. This will help families and children with nerve injuries to understand how this type of injury affects the feeling and function of the injured hand. This information is important in helping professionals to provide the best education and treatment to help these children to do the best they can. Contact: Emily Ho,

3 Concurrent Validity of the Brachial Plexus Outcome Measure The purpose of this project is to establish the construct validity of the Brachial Plexus Outcome Measure (BPOM) Self-evaluation Scale. Establishing the construct validity of the BPOM will support the use of this tool in this population to measure functional upper extremity deficits to make decisions regarding non-operative and operative treatment options for children with OBPP. The secondary purpose of this study is to evaluate the parent-child agreement on self-evaluation of upper extremity function and appearance in this population. Howard Clarke, MD, PhD Erin Fraser, OT Chris Curtis, PT Mary Harris, RN July 2013 December 2015 This study will help us understand how parents and children feel about their brachial plexus injury. This information will help us to better support families through decision making regarding elective surgery for their child s arm. This study will also help us to validate the Brachial Plexus Outcome Measure (BPOM) that is an assessment tool that measures how a child perceives their own upper extremity function and appearance. Contact: Emily Ho

4 Sensory Function of Children with Obsterical Brachial Plexus Palsy Howard Clarke, MD PhD To determine the sensory outcome of children with obstetrical brachial plexus palsy (OBPP) who had surgical reconstruction of the brachial plexus in infancy. Children with OBPP between 6 to 18 years will be evaluated for their sensory threshold using the Semmes Weinstein Monofilament WEST assessment. Functional sensation will be evaluated using a test of stereognosis, Faces Pain Scale - Revised edition, and a questionnaire regarding sensory symptoms. July 2012 December 2014 This study will help families and children with obstetrical brachial plexus palsy to understand how this type of injury affects the feeling and function of the injured arm and hand. This information is important in helping professionals provide the best education and treatment to help these children do the best they can. Further, this information will help families who are considering nerve surgery on the brachial plexus of their infant understand what to expect in regards to the feeling in their child s injured arm and hand. Contact: Emily Ho

5 Changes in β-catenin levels in pediatric acute burn wound healing and hypertrophic burn scars Coming soon Joel Fish, MD September 2013 Sheila Wang, PhD Karen Cross, MD, PhD Ben Alman, MD Contact: 5

Peripheral Nerve Problems

UW MEDICINE PATIENT EDUCATION Peripheral Nerve Problems How they develop and ways to treat them This handout explains how nerves work, what happens when they are injured, and how peripheral nerve problems