GIN2015_Handout Parkinson_Keus European Physiotherapy Guidelines for Parkinson s Disease. Development & Implementation
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1 European Physiotherapy Guidelines for Parkinson s Disease Development & Implementation Dr. Samyra Keus ParkinsonNet, Radboudumc university medical center (NL) G-I-N 2015 Pre-conference course Amsterdam, 7 Oct 2015 Understanding Parkinson s disease Neurologic 65+, but also early- onset Progressive Variable: person, day,. Physical, mental,. Slow & small Complex! Copyright ParkinsdonNet Radboudumc
2 Understanding Parkinson s treatment Medical & nursing: - Drugs: 5 yr marriage - Deep brain shmulahon Allied health treatments 19 professionals!! Educate Exercise Prac;ce Compensatory strategies Physiotherapy: - upon diagnosis - achvity limitahons - hospital/nursing home admission Unique collaborahon From.. to Copyright ParkinsdonNet Radboudumc
3 People & associahons GDG: representahves physiotherapy associahons = WriHng Group, Reading Group, Review Panel* Steering CommiRee* Expert & PaHent Review* MDS- ES review panel: Referral criteria *pa;ents included Development 19 countries Agenda Time ER- WCPT, APPDe, EPDA KNGF & ParkinsonNet MoHvaHon! Invite & selec;on Unmet needs & barriers Key ques;ons Syst. lit. search Cri;cal appraisal GRADE Other conside ra;ons Recommen da;ons Public feedback Aug Feb 2011 June 2011 Expert opinion Oct 2013 & Apr 2014 Copyright ParkinsdonNet Radboudumc
4 European Guideline For free! Quick Reference Cards Evidence- based PaHent- centered Decision- supporhng Copyright ParkinsdonNet Radboudumc
5 Facilitators Selec;on measurement tools - Parkinson s - Domain physiotherapy - ICF level funchon / ac;vity - Clinimetric properhes Knowledge Parkinson s Knowledge clinimetrics Clinical experhse Feedback peers - InformaHon / evaluahon - Feasible in clinical prachce Facilitators 1. Systema;c literature search - Cochrane filters, CCTs 2. Appraisal using GRADE: meta- analyses Knowledge epidemiology Parkinson s disease & Physical therapy or exercise Guidelines 9 With evidence- based recommendahons: 1 (KNGF 2004) SystemaHc reviews 47 With meta- analyses: 4 Limita&ons!! Availability CCTs 618 Abstracts reviewed: 122 Included: 70 Copyright ParkinsdonNet Radboudumc
6 Facilitators 1. Systema;c literature search 2. Appraisal using GRADE: meta- analyses Ø CategorisaHon of intervenhons Ø Importance of outcomes Clinical experhse Feedback peers Able to read scien/fic literature NL implementahon: ParkinsonNet Check out the 2 min video at: Copyright ParkinsdonNet Radboudumc
7 ü Guidelines ü 3- day Entry- level course ü 2-4/yr regional seminars ü Annual congress ü Website: search engine ü PaHent magazine ü ParkinsonTV ü ParkinsonConnect ü Feedback delivered care ü. ParkinsonNet ophmal ParkinsonNet infrastructure circle Implementa/on PaHent care Ques/ons Hypothesis EducaHon Research Guideline development Copyright ParkinsdonNet Radboudumc
8 > 66 networks 1 > 92 hospitals 15 > over 2,500 AHP 1 ParkinsonNet support team British Medical Journal Copyright ParkinsdonNet Radboudumc
9 Copy & paste? InternaHonal pilots: Germany Germany: ParkinsonNet Duisburg Copyright ParkinsdonNet Radboudumc
10 British Medical Journal InternaHonal pilots: U.S.A. Facilitators. Enthousiasm Time & Analyses Collabora;on Start small Copyright ParkinsdonNet Radboudumc
11 From passive distribuhon > 3,500 downloads! to achve implementahon? ER- WCPT? GIN AHwg? - promohon (i.c.w. ParkinsonNet) to member ass. - connect interested parhes -. Na;onal physiotherapy associa;ons? - promohon to members - connect to nahonal pahent & doctors associahons - provide / search for funding - organise translahon i.c.w repr. & ParkinsonNet - (co) develop & provide educahon - collaborate ParkinsonNet, APPDe, Copyright ParkinsdonNet Radboudumc
12 Contact ParkinsonNet: - Guideline translahon request form & process - ParkinsonNet strategy: analyses, implementahon - EducaHon APPDE: info@appde.eu - EducaHon - Meet other physiotherapists interested in Parkinson s Samyra Keus: info@skeus.nl - EducaHon - Advice Copyright ParkinsdonNet Radboudumc
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