Young Onset Dementia (YOD) Worcestershire Consultation and Review Event 23 rd March 2017

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1 Young Onset Dementia (YOD) Worcestershire Consultation and Review Event 23 rd March 2017

2 Plan for the afternoon: - Young Onset Dementia in Worcestershire Where are we now? (Jo Scarle YOD Development Officer Worcestershire) - Talks from people living with YOD and family members (Marji Plowright, Ashley Little, Jane Twigg) - The Young Dementia UK Network (Sarah Plummer) - Group Work - Feedback

3 Young Onset Dementia in Worcestershire Where are we now? Jo Scarle (Young Onset Dementia Development Officer)

4 Awareness Raising/Education/Training St Richards Hospice Dementia Care Trainer (WHCT) Dementia Studies Foundation Degree Dementia Awareness Week Psychiatrists Teaching Session (WHCT) Lunchtime Training GP s Upton Surgery Care Navigators Training South GP s

5 Local MH Teams/ AHP s Training Package Learning Disability and dementia Occupational Therapy Students Supporting with the review of Alzheimer s Society Publication Trust Youth Board Young-Onset Dementia Conference

6 Special Interest Group - Young-Onset Dementia Supporting children when a family member is living with YOD Supporting people experiencing communication difficulties Driving What s it like to live with dementia at a younger age a review of the literature Behavioural variant frontotemporal dementia Learning disability and dementia

7 A Website: Information for people living with young onset dementia and their families

8 Connection Point Services and Support

9 Dementia Voice - A group for younger people living with dementia which meets once a month. We have just secured a free venue (Community Room, Waitrose, Worcester) and are using Sharelink Transport. Family Voice - A group for family members/ friends of someone who is living with YOD. Meets 6 times a year during Connection Point Meetings.

10 Al s Café s Worcestershire Alzheimer s Society run 3 evening café s for people living with YOD and their families/ friends Worcester, Redditch and Kidderminster. These groups provide advice, information and an opportunity to build peer support networks. Rare Dementia Support Although not specifically for people living with YOD; it is recognised that rarer types of dementia occur more commonly at a younger age. Alzheimer s Society have built on the success of groups they ran last year to establish 4 meetings which will run during 2017 to support people living with types of Frontotemporal dementia, Logopenic Aphasia and Posterior Cortical Atrophy. Meeting Dem (Droitwich) Which is open 3 Days a week is currently providing support to a number of younger people living with dementia and their families/ supporters.

11 Dementia Advice Service The Dementia Advice Service offers information and advice to people who are living with dementia, as well as their family and friends. This service is also currently piloting a scheme in some GP surgeries in the south of the county where a Memory Loss Advisor is linked with some surgeries to support people who may be living with dementia. ConnectED Service Offers 1-1 support to people living with YOD helping people to maintain or find new interests and activities to be involved in.

12 Worcestershire Health and Care NHS Trust Young-Onset Dementia Champions Early Intervention Dementia Service Older Adult Mental Health Services Adult Mental Health Services Admiral Nursing Service Learning Disability Services Speech and Language Therapy Links with Worcestershire Acute NHS Trust

13 Employment Benefits Advice Network Worcestershire Disability Employment Advisor Service

14 Other local services currently supporting or keen to look at options for supporting people living with YOD Adult Social Care (WCC) Care Farms Care Home Providers Fire Service Headway Health Walks Home Care Providers Link Nurseries Shared Lives (WCC) Worcs Association of Carers

15 Sharing Information Database Newsletter Website

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17 What are the Benefits of Delivering Support in this way? Although we have no dedicated clinical team working with people who are living with young-onset dementia in Worcestershire, the role of Young-Onset Dementia Development Officer does provide a local voice and supports in raising awareness about young-onset dementia. Having the opportunity to provide training and to work alongside other colleagues in health, social care and the voluntary sector to look at how we can all come together to better meet the needs of younger people living with dementia and their families is key to this role.

18 A final thought My personal feeling about what helps things to work in Worcestershire is team work (in the widest sense). People living with young-onset dementia, their families, health and social care staff and colleagues in the voluntary sector all need to work together to review what is needed, what is working and what needs to change, being realistic of financial constraints and making the best of the resources that we have available to us.

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20 Marji

21 Ashley

22 Jane

23 Film Young Onset Dementia Simply Life Giving

24 Group Work

25 Next Steps A draft report about today s meeting will be sent out to you all by 7 th April A final report will be issued by the end of April this will be shared with The Young Onset Dementia Steering Group, Worcs Health and Care Trust Dementia Steering Group and the group currently looking at the redesign of Older Adult Mental Health Services in Worcestershire Outcomes will be used to inform the work going forward If anyone hasn t been involved to date, but is interested in supporting the work in some way please let us know! We welcome the support

26 Contact Jo Scarle Young Onset Dementia Development Officer Early Intervention Dementia Service Worcestershire Health and Care NHS Trust F Block Kidderminster General Hospital Bewdley Road Kidderminster DY11 6RJ Tel : Mobile: joanne.scarle@nhs.net