ACT on Alzheimer s: A Model for Transforming Dementia Awareness and Support in Communities

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1 ACT on Alzheimer s: A Model for Transforming Dementia Awareness and Support in Communities

2 Genesis of ACT on Alzheimer s 2009: Legislative mandate for Alzheimer s Disease Working Group 2011: Legislative report filed, becomes MN State Plan on Alzheimer s Implementation plan? Review of other state plan implementation strategies 2

3 Construct: Collective Impact The commitment of a group of important actors from different sectors to a common agenda for solving a specific social problem. Channeling Change: Making Collective Impact Work: SSIR, 1/26/2012, John Kania and Mark Kramer 3

4 Five Conditions for Collective Impact 4

5 Case Study: ACT on Alzheimer s 5 5

6 ACT on Alzheimer s Precursors Complex Issue Urgency/Need for Change Prevalence and Economics Influential Champion Alzheimer s Association MN/ND and MBA Adequate Financial Resources Alz Assoc. Channeling Change: Making Collective Impact Work: SSIR, 1/26/2012, John Kania and Mark Kramer 9/21/2015 6

7 What is ACT on Alzheimer s? statewide 60+ O R G A N I Z A T I O N S 500+ I N D I V I D U A L S volunteer driven collaborative I M P A C T S O F A L Z H E I M E R S BUDGETARY SOCIAL PERSONAL 7

8 Collaborative Goals/Common Agenda 5 shared goals with a Health Equity perspective 8

9 ACT Tools 9 9

10 Resources to Support Adoption EMR Decision Support Tool In-person clinical training sessions Multi-disciplinary speaker s bureau to deliver trainings Video tutorials Inter-professional university curriculum with tools embedded LTC Training Grid 10

11 EMR Decision Support Tools Outlines benefits of using EMR tool Provides step-by-step guide for integrating ACT provider practice tools into EMR 7 easy implementation steps Two case studies 11

12 Testimonial "As a dementia champion within the Health Partners system, the CPP tool is a great handout when I am talking with primary care clinicians about treating individuals with dementia. The tool eliminates variability among clinicians and allows patients to receive the highest standard of care for memory loss. Dr. Michael Rosenbloom, Clinical Director of the Health Partners Center for Memory and Aging 12

13 Clinical Practice Training Focus on integrating ACT tools into daily practice 2 Target Audiences: Physicians, nurse practitioners, physician s assistants, nurses Care coordinators, care managers 13

14 Video Tutorials Videos on administration & scoring of MiniCog, SLUMS & MoCA Care Coordination video & case studies 14

15 Mini-Cog: Sam 15

16 Case Example: Medications 16

17 Case Example: Colleen Discussion Observations? What did you notice? What was done well? What could have been done differently, better? What might you incorporate into your practice? What recommendations / referrals would you make to Colleen? What might you do differently if Colleen was not a native English speaker or was from a diverse cultural community? 17

Effective interactions 5. Cognitive assessment, early detection 6. Screening 7.

18 Dementia Curriculum 10 module, interdisciplinary curriculum Educators, practicing professionals and students 1. Disease description 2. Demographics 3. Society impact 4. Effective interactions 5. Cognitive assessment, early detection 6. Screening 7. Disease diagnosis 8. Quality interventions 9. Dementia: Organizing principle of care 10.Caregiver support 18

19 Dementia Curriculum Slide Decks 19

20 Testimonial "With third-year medical students, the Dementia Curriculum is a wonderful tool for introducing students to basic approaches in caring for an older adult with cognitive impairment. The curriculum is also useful for faculty working with residents in the subacute or long-term care setting." Dr. Erika Tung, Assistant Professor of Medicine, Mayo Clinic Medical School 20

21 Dementia Trainings for Direct Care Staff 21

22 ACT on Alzheimer s Dementia-Friendly Communities

23 Dementia-Friendly Community 23

Assuring Community Readiness and Capacity Goal 1: Develop a Community Toolkit to assist communities in becoming dementia capable so they can create a

24 Assuring Community Readiness and Capacity Goal 1: Develop a Community Toolkit to assist communities in becoming dementia capable so they can create a supportive environment for residents who are touched by Alzheimer s disease Goal 2: Support community engagement and implementation of the toolkit 24

Four-Phase Toolkit Process 1. Convene key community leaders and members to form an Action Team. 2. Assess current strengths and gaps within the community. 3.

25 Four-Phase Toolkit Process 1. Convene key community leaders and members to form an Action Team. 2. Assess current strengths and gaps within the community. 3. Analyze findings to understand your community s needs and develop a plan to take action. 4. ACT Together to pursue priority goals that will assist your community in becoming dementia-friendly. 25

26 Convene: Engaging the Community 26

27 Assess: Gauge Current Understanding Do members of your community: Recognize the impact, nature and signs of dementia? Know how to effectively interact with and serve people with dementia? Have basic information about local supports and resources? 27

28 Analyze Phase: Planning for Action Look for High Priority, Low Activity areas of need 28 28

29 Phase-Specific Technical Assistance PHASE Convene Assess Analyze ACT Together ACT on Alzheimer s Technical Assistance Broad coalition building Communications templates and support Local coordinator support and structure development 14-multi-sector assessment tool for dementia capability Participant orientation, engagement and facilitation Synthesis tool and community needs identification Goal prioritization Collection of best practice intervention strategies Seed funding to implement priority goal strategies Implementation planning and support Progress tracking 29

30 Community Stats 31 communities grant funded ($18,000) Communities range in size from ,000+ Nearly 2,000 community members surveyed Typical priority goals: Increase awareness and education Family caregiver support Provider education Meaningful engagement activities Funders: Blue Plus (HMO affiliate of Blue Cross Blue Shield of Minnesota); Medica Foundation; Greater Twin Cities United Way 30

31 Communities Under Way in MN 31

32 ACT Together Implementation Train emergency responders Certify or designate dementia friendly businesses Develop information campaign specific to supporting spiritual needs of people with dementia 32

trainings for legal and financial planners Offer trainings

33 ACT Together Implementation Provide model policies and trainings for employers Provide model policies and trainings for legal and financial planners Offer trainings for clinical providers Engage city planners in strategic planning 33

volunteers Team role: Survey, analyze, and create/implement plan One-on-one survey

34 Twin Cities Jewish Community Team startup in 2007; joined ACT on ALZ in 2013 Instrumental in development of ACT toolkit Team makeup: Staff co-chairs, community volunteers Team role: Survey, analyze, and create/implement plan One-on-one survey process Volunteers with caregiving experience had great rapport with interviewees 34 34

Twin Cities Jewish Community: Actions and Impact Clergy training Caregiver panel Presentation on dementiarelated behaviors Communication

35 Twin Cities Jewish Community: Actions and Impact Clergy training Caregiver panel Presentation on dementiarelated behaviors Communication tips Keeping the Spirit Alive community gathering Film series: Love, Loss, Dementia and Family Relationships Teen training Dementia Friends 35

projects Best interviewers are caregivers!

36 Twin Cities Jewish Community: Learnings, Next Steps Choose projects team has passion for Consider team s capacity Leverage funds to complete projects Best interviewers are caregivers! ACTion plan completed Meet and discuss next steps, recruit new members, develop new ACTion plan 36 36

37 ACT: Evaluations Toolkit implementation by four pilot communities ACT initiative learnings to date Activities and progress of geographic and diverse cultural communities Available at: 37

38 Dementia-Friendly Health Care Dementia Care Best Practice tools widely disseminated EMR Decision Support Tool adopted by 2 large MN health systems Provider & Care Coordinator training > 1,300 trained to date Speaker s bureau Online training videos & webinars Dementia curriculum adopted at Mayo, U of M 38

39 What is the MOST valuable aspect of ACT on Alzheimer s in your opinion? The development of the ACT guidelines, EMR tool and the work to embed these guidelines in health systems. Tools that provide a clear, structured framework that use best practices. Developing resources and materials that have buy-in from a range of stakeholders, and using the group as a launching point for disseminating those resources. 39

40 ACT s on Alzheimer s: National Impact n4a Aging Innovations Award Rosalinde Gilbert Innovations in Alzheimer's Disease Caregiving Legacy Award Economic Model on care consultation in Health Affairs White House Conference on Aging 2015: Dementia Friendly America initiative 40

Dementia Friendly America: A Snapshot www.dfamerica.

41 Dementia Friendly America: A Snapshot Foster dementia-friendly communities across the US Develop community and system capacity that enhances quality of life for people living with dementia and their care partners Supportive resources (available in October) Web-based resource portal Four phase Community Toolkit Technical assistance at community level 41

Sampling of DFA Participants AARP ACT on Alzheimer s Administration on Community Living (Federal liaison) Alzheimer s Association Blue Cross Blue Shield of Minnesota BrightFocus Foundation Centers

42 Sampling of DFA Participants AARP ACT on Alzheimer s Administration on Community Living (Federal liaison) Alzheimer s Association Blue Cross Blue Shield of Minnesota BrightFocus Foundation Centers for Disease Control (Federal liaison) CVS Caremark Dementia Action Alliance Eli Lilly Global CEO initiative Health Resources and Services Administration (Federal Liaison) Individuals living with dementia and care partners International Association of Chiefs of Police (IACP) Leaders Engaged on Alzheimer s Disease (LEAD) LeadingAge Otsuka Pharmaceutical Companies National Alliance for Caregiving National Association of Areas Agencies on Aging (n4a) National Community Reinvestment Coalition National League of Cities National Association of Counties Volunteers of America US Against Alzheimer s, including Women s, Clergy, African American, and Latino Networks 42

43 DFA Pilot Communities West Virginia Prince Georges County, MD Santa Clara County, CA Denver, CO Tempe, AZ 43

Pilot and Potential Communities Seattle WA San Francisco, CA Las Vegas, NV Duluth, MN Chicago, IL Pittsburgh, PA Indianapolis, IN New York Philadelphia, PA West Virginia Boston, MA Baltimore, MD

44 Pilot and Potential Communities Seattle WA San Francisco, CA Las Vegas, NV Duluth, MN Chicago, IL Pittsburgh, PA Indianapolis, IN New York Philadelphia, PA West Virginia Boston, MA Baltimore, MD Prince Georges County, MD Montgomery County, MD Santa Clara County, CA Denver, CO St. Louis, MO Knoxville, TN North Carolina Nashville, TN Phoenix, AZ Tempe, AZ Atlanta, GA Tallahassee FL 44

45 Special Thanks ACT TEAM: - Olivia Mastry - Emily Farah-Miller - Mary Ek - ACT community leaders & volunteers 45

For More Information & Resources Learn more at www.

46 For More Information & Resources Learn more at Sign up for the ACT e-news at: 46

9/21/2015. ACT on Alzheimer s: A Model for Transforming Dementia Awareness and Support in Communities. Genesis of ACT on Alzheimer s

9/21/2015. ACT on Alzheimer s: A Model for Transforming Dementia Awareness and Support in Communities. Genesis of ACT on Alzheimer s ACT on Alzheimer s: A Model for Transforming Dementia Awareness and Support in Communities www.actonalz.org 2015 Genesis of ACT on Alzheimer s 2009: Legislative mandate for Alzheimer s Disease Working