VASCERN The European Reference Network ERN on rare multisystemic vascular diseases. 1st Annual Seminar
|
|
|
- Horatio Ross
- 5 years ago
- Views:
Transcription
1 Follow and tweet with us using: #VASCERNdays2017 VASCERN The European Reference Network ERN on rare multisystemic vascular diseases 1st Annual Seminar VASCERN 1st Annual Seminar, October, 2017
2 : PLENARY SESSION : Welcome by Prof. Guillaume Jondeau and brief introduction by all participants (30 ) : VASCERN Structure & Organisation: state of play 1 (45 ) Presentation of VASCERN & Functioning since March (20 ) (Guillaume Jondeau, Marine Hurard) Feedback, Q&A and discussion (25 ) : VASCERN Patient Group (epag) (20 ) including Q&A epag involvement within VASCERN, co-presentation by the Patient Group Chair & EURORDIS (Paolo Federici, Matt Bolz-Johnson) Q&A 10.05: coffee break Photo booth :20: VASCERN 1 st year Action Plan: State of play 2 (60 ) Objectives & state of play of Work packages (Marine Hurard) & Feedback from the Council (Guillaume Jondeau and WGs Chairs: Julie de Backer, Claire Shovlin, Leema Robert, Miikka Vikkula, Sahar Mansour, Alessandro Pini, Leo Schultze Kool, Paolo Federici) (40 ) Q&A and discussion (20 ) : Achievements, Challenges & Opportunities for ERNs (55 ) The ERN Policy (Anna Carta, ERN Team, DG SANTE, European Commission) (10 ) The ERN Collaborative platform and the Clinical Patient Management System (Jean-Marie Misztela)(10 ) ERN Board of Member States views (Muriel Eliaszewicz, French representative at the ERN Board of Member States) (10 ) European Joint Programme on Rare Diseases Research: opportunities for ERNs (Daria Julkowska) (10 ) Q&A (15 )
3 March 2017: ERNs Launch in Vilnius
4 What are the aims of an ERN? Priority: care of the patient Research: registry, clinical trials Knowledge generation: guidelines, training Our 3 main objectives To help to realise the potential of European cooperation regarding highly specialised healthcare for patients and for healthcare systems by exploiting innovations in medical science and health technologies To reinforce research, epidemiological surveillance like registries and provide training for health professionals To encourage the development of quality and safety benchmarks and to help develop and spread best practice within and outside the network All info on: What is VASCERN? Vessels: different diseases, different specialities Multidisciplinary
5 : PLENARY SESSION Introduction of Attendees 31 HCPs Members Representatives 12 epag Patient Organisations Representatives VASCERN Coordination team Other stakeholders
6 Brussels, BE Ghent, BE Mechelen, BE Leuven, BE Drachten, NL Amsterdam, NL Nieuwegein, NL Nijmegen, NL Rotterdam, NL Helsinki, FI Stockholm, SE Dublin, IE Derby, UK London, UK (3) Paris, FR (2) Lyon, FR Odense, DK Hamburg, DE Essen, DE Freiburg, DE Budapest, HU Milan, IT Crema, IT Pavia, IT Florence, IT Rome, IT Bari, IT
7 ABSM Association Belge du Syndrome de Marfan VASCAPA, BE HEVAS LGD Alliance Europe (LGD Alliance Nederlands) Dutch Lymphedema & Lipoedema Network (NLNet) Morbus Osler, DE AMRO (HHT France) MARFANS Ehlers-Danlos-Initiative e.v, DE Magica Onlus, HHT Onilde Carini HHT Espana, ES
8 OTHER PATIENT ASSOCIATIONS INVOLVED Patient Group HHT HTAD MSA PPL VASCA HHT Canada CURE HHT (international) Grace Nolan Foundation HHT Ireland Asociación HHT España ASOCIACIÓN NACIONAL DE AFECTADOS POR SINDROMES DE EHLERS DANLOS E HIPERLAXITUD HHT UK Telangiectasia Self Help Group, UK ASSOCIATION FRANÇAISE DES SYNDROMES D'EHLERS-DANLOS Osler.no NORSK FORENING FOR EHLERS-DANLOS SYNDROM HHT Denmark HEVAS, Marfan Nederland LGD Alliance Europe (LGD Alliance Nederland) De Hart&Vaatgroep MAGICA ONLUS Marfan JPETER Onlus Marfan HHT Europe HHT Onlus Associazione Fondazione Italiana HHT 'Onilde Carini AISED, Ehlers-Danlos HHT Sweden Swedish Marfan SVENSKA MARFANFÖRENINGEN Swedish EDS Association (EDS Riksförbund) SWEDEN Aorta Dissektion Föreningen Skandinavien Söderlund Timo Dutch Lymphedema & Lipoedema Network (NLNet) Association Belge du Syndrome De Marfan Morbus Osler, Germany Belgian lymphedema Network VASCAPA Vorsitzender, Deutsche Ehlers- Danlos-Initiative e.v. den i asbl AMRO Syndrome de Marfan GERVAS Czech Association of Marfan MARFANS Karen Topaz Druckman HHT Switzerland MARFAN FOUNDATION SWITZERLAND Syndrome (MARFAN STIFTUNG SCHWEIZ) Fondazione Alessandra Bisceglia W ALE Onlus epag Chair Co-chairs Representatives Members The Israeli HHT Patients' Association
9 VASCERN Coordination Team, based in Paris Prof Guillaume Jondeau VASCERN Coordinator Tel: guillaume.jondeau@aphp.fr 2 new Coordination team members since September 2017! Follow Marine HURARD VASCERN Project Manager Tel: +33 (0) marine.hurard@aphp.fr Natasha BARR VASCERN Project Officer Tel: +33 (0) natasha.barr@aphp.fr Hélène DEPARIS VASCERN Administrative Assistant Tel: +33 (0) helene.deparis@aphp.fr
10 Stakeholders Speakers organisations: - European Commission - EURORDIS - DGOS, French Ministry of Health, Representative in the Board of Member States - European Joint Programme on Rare Diseases - RD-Action - FAIR (Leiden University Medical Centre ) Other stakeholders: - HCP Coordinating - Director representative - APHP Europe Department - French Filière FAVA Multi - ORPHANET - RaDiCO
EPAG UPDATE. Lenja Wiehe. European Patient Advocacy Groups Manager, EURORDIS
EPAG UPDATE Lenja Wiehe European Patient Advocacy Groups Manager, EURORDIS Patient Centre & Empowerment European Reference Networks (ERNs) created on founding principles of patient-centred care, patient
European Marfan Support Network. EMSN 2011 Online Report
European Marfan Support Network (AND RELATED DISORDERS) EMSN 2011 Online Report The European Marfan Support Network (EMSN) has 11 members from 10 different countries. The EMSN organises annual meetings
ERN-EYE. PROGRAM of the Workshop Genetic Testing in Rare Eye Diseases. (October 10 th October 12 th, 2018) WEDNESDAY 10 th OCTOBER 2018
ERN-EYE PROGRAM of the Workshop Genetic Testing in Rare Eye Diseases (October 10 th October 12 th, 2018) MEETING LOCATION: Careggi University Hospital Largo Brambilla 3 50134 Firenze, Italy WEDNESDAY 10
NORDIC CONFERENCE ON RARE DISEASES
www.eurordis.org NORDIC CONFERENCE ON RARE DISEASES 31 May 2012, Reykjavik, Iceland www.eurordis.org RARE DISEASES IN EUROPE Terkel ANDERSEN President of EURORDIS European Organisation for Rare Diseases
Eurordis Membership Meeting 2008 Copenhagen May 2008
Draft Programme Eurordis Membership Meeting 2008 Copenhagen 16-17 May 2008 Quality Hotel Hoje Taastrup Carl Gustavs Gade 1 DK-2630 Taastrup Hosted by Rare Disorders Denmark Acting together for patient-centred
The EU rare diseases policy framework: the context for ERNs
The EU rare diseases policy framework: the context for ERNs Jaroslaw Waligora DG Health and Food Safety, European Commission Unit C.1, Programme Management and Diseases Report from an expert group of the
National Clinical Programme for Rare Diseases Prof. Eileen Treacy April 7 th,
National Clinical Programme for Rare Diseases Prof. Eileen Treacy April 7 th, 2017 1 European Reference Networks http://ec.europa.eu/health/ern/toolkit_en A European Framework for Rare Disease Services:
Building the European Reference Network for Rare Endocrine Conditions (Endo-ERN) Journee Annuelle, FIRENDO, Paris, 14 december 2016
Building the European Reference Network for Rare Endocrine Conditions (Endo-ERN) Journee Annuelle, FIRENDO, Paris, 14 december 2016 Alberto M. Pereira European Reference Networks: Scope and Context Article
E-RARE & THE EUROPEAN JOINT PROGRAMME ON RARE DISEASES. RE(ACT) 2018 Congress 7-10 of March 2018 Bologna, ITALY
E-RARE & THE EUROPEAN JOINT PROGRAMME ON RARE DISEASES RE(ACT) 2018 Congress 7-10 of March 2018 Bologna, ITALY E-RARE THE ERA-NET FOR RESEARCH PROGRAMMES ON RARE DISEASES MAJOR FACTS ABOUT E-RARE ERA-NET
rare diseases research through National Plans and Strategies
Recommendations to support rare diseases research through National Plans and Strategies Dr Domenica Taruscio EUROPLAN Coordinator Director of the Italian Centre for Rare Diseases, Italian National Institute
European Guide on Quality Improvement in Comprehensive Cancer Control
European Guide on Quality Improvement in Comprehensive Cancer Control 13 March 2013, JRC, Ispra Presentation prepared by the National Institute of Public Health of Slovenia OBJECTIVES 1) To identify key
Meeting with EMA: cooperation in the field of ERNs. Enrique Terol DG SANTE European Commission
Meeting with EMA: cooperation in the field of ERNs Enrique Terol DG SANTE European Commission London 16 May 2017 The road to European Reference Networks (ERNs) Imagine if the best specialists from across
The European Reference Network in Rare Hematological Diseases
The European Reference Network in Rare Hematological Diseases Pierre Fenaux ERN-EuroBloodNet coordinator www.eurobloodnet.eu The context of ERNs Share. Care. Cure. Due to the small patient number and the
Table Of Content. Policy Action and Information for Rare Diseases in Europe... 2 Summary... 3 Coordinator, Leader contact and partners...
Table Of Content Policy Action and Information for Rare Diseases in Europe... 2 Summary... 3 Coordinator, Leader contact and partners... 6 Kontaktudvalget for Mindre Sygdoms-og handicapforeninger (KMS)...
Table Of Content. European Rare Kidney Diseases Reference Network... 2 Summary... 3 Work Package... 9
Table Of Content European Rare Kidney Diseases Reference Network... 2 Summary... 3 Work Package... 9 Network Management... 9 Promote cross-border expert healthcare... 9 Harmonize specialized care... 9
European Network of Quitlines
European Commission Grant Agreement n SI2324433 (2001CVG2-008) Coordinator Contact Information Steve Crone QUIT 211 Old Street London EC1V 9NR Tel: + 44 207251 1551 Fax: +44207251 1661 Email: scrone@quitorguk
Introduction. Paolo G. Casali
Introduction Paolo G. Casali paolo.casali@istitutotumori.mi.it rare diseases rare diseases rare cancers cancer rare cancers Rare cancers childhood Rare cancers childhood haematological Rare cancers childhood
European Network of Quitlines. Year 2 September 2001 September 2002 Final Activity and Financial Report
European Network of Quitlines. Year 2 September 2001 September 2002 Final Activity and Financial Report An European Union Funded Initiative EUROPEAN NETWORK FOR SMOKING PRE- VENTION RESEAU EUROPEEN POUR
Palliative nursing care of children and young people across Europe
Palliative nursing care of children and young people across Europe Results of a postal survey in August 2016 Updated in April 2017 (presented at the 29th PNAE-meeting in Naples/Italy on 28th April 2017)
SUMMARY COMPARISON OF NATIONAL PLANS AND PRACTICES. Domenica Taruscio
Presentation to the European Conference Rare Diseases Luxembourg, 21-22 June, 2005 SUMMARY COMPARISON OF NATIONAL PLANS AND PRACTICES Domenica Taruscio taruscio@iss.it http://www.cnmr.iss.it Co-ordinator
Joint Programming in Neurodegenerative Disease Research (JPND)
Joint Programming in Neurodegenerative Disease Research (JPND) Building Alliances and Collaborations Prof. Philippe Amouyel, MD, PhD JPND Chair France Disclosure CEO of Fondation Plan Alzheimer Conference
EUCERD Recommendations on Rare Disease European Reference Networks (RD ERNs)
EUCERD Recommendations on Rare Disease European Reference Networks (RD ERNs) EUROPEAN REFERENCE NETWORKS FOR RARE DISEASES IN EUROPE: THE CONTEXT The need for European Reference Networks (ERNs) for rare
Table Of Content. Outputs... 8
Table Of Content European Network of Reference for Rare Pediatric Neurological Diseases... 2 Summary... 3 Coordinator, Leader contact and partners... 5 University College London... 5 Univerzita Karlova
PHOTO. VHPB/ELPA MEETING Prevention and Control of Viral Hepatitis The role and impact of patients and advocacy groups in and outside Europe
www.eurordis.org VHPB/ELPA MEETING Prevention and Control of Viral Hepatitis The role and impact of patients and advocacy groups in and outside Europe Lucca ( Italy ) March 13-14, 2008 PHOTO www.eurordis.org
Transparency in drug regulatory decision making Why transparency? Birthe Byskov Holm, Rare Diseases Denmark Copenhagen October
Transparency in drug regulatory decision making Why transparency? Birthe Byskov Holm, Rare Diseases Denmark Copenhagen October 2. 2017. Transparency - A tool to drive change and innovasion? Breaking the
NATIONAL REGISTRIES OF RARE DISEASES IN EUROPE: AN OVERVIEW BY THE EPIRARE PROJECT.
D. Taruscio and L. Vittozzi National Centre for Rare Diseases National Institute of Health Rome, Italy NATIONAL REGISTRIES OF RARE DISEASES IN EUROPE: AN OVERVIEW BY THE EPIRARE PROJECT. ICORD 2014, Ede
Final Workshop. Patients Partnering in Clinical Trials. 7 & 8 December 2010 Management Centre Europe Brussels, Belgium
, Final Workshop Patients Partnering in Clinical Trials 7 & 8 December 2010 Management Centre Europe Brussels, Belgium Programme Committee Melissa Hillier Genetic Alliance UK, United Alastair Kent Genetic
State of the Art of Rare Disease Activities in EU Member States and Other European Countries. Hungary Report
State of the Art of Rare Disease Activities in EU Member States and Other European Countries Definition of a Rare Disease Hungary Report Hungary has adopted the European Commission definition of a rare
Clusters in Sports Industry: EU Approach and Support
Enterprise and Industry José Freitas Policy Officer SMEs: Clusters and Emerging Industries unit Clusters in Sports Industry: EU Approach and Support EPSI Conference on Sports and Innovation June 13 th,
Neuromuscular Pathology
Neuromuscular Pathology working group Chair: Bjarne Udd, Tampere, FI Co-chair: Anders Oldfors, Gothenburg, SE Patient representative: Massimo Mara, IT Members: - Norma Romero, Paris, FR - Werner Stenzel,
Preliminary Programme Version 9 September 2010 EFGCP Children s Medicines Working Party 6th Annual Conference & DIA Paediatric SIAC 4th Forum Current & Future Perspectives for Paediatric Medicines: Visions,
Paolo G. Casali Annalisa Trama
Paolo G. Casali Annalisa Trama Objectives With regard to RCs in the EU, to improve: 1. Epidemiological surveillance 2. Quality of care through ERNs 3. Clinical practice guidelines 4. Innovation 5. Medical
Air Pollution & mhealth Prevention and Control of Chronic Respiratory Diseases
Air Pollution & mhealth Prevention and Control of Chronic Respiratory Diseases 23 MARCH 2018 Lithuanian Seimas (Parliament) Gedimino Av. 53, Vilnius, Lithuania Organized by: EU Summit 2018 - Vilnius, Lithuania
Rehabilitation and symptomatic treatment in multiple sclerosis
in collaboration with Rehabilitation and symptomatic treatment in multiple sclerosis TUESDAY, 13 JUNE 2017 08.30 Welcome X. Montalban (Barcelona, ES), J.M. Prieto (Santiago de Compostela, ES) 08.40 Introduction
Pogány Gábor Ph.D. President of HUFERDIS Member of EUCERD and Orphanet International Advisory Board
Start by doing what's necessary then do what's possible and suddenly you are doing the impossible Saint Francis of Assisi Pogány Gábor Ph.D. President of HUFERDIS Member of EUCERD and Orphanet International
European Food Consumption Validation (EFCOVAL) Closing Conference
Arch Public Health 2010, 68 (Supplement 1), S1-S4 European Food Consumption Validation (EFCOVAL) Closing Conference 9-10 September 2009, Utrecht, The Netherlands General information S2 Programme Wednesday
Table Of Content. The European Influenza Surveillance Scheme... 2 Summary... 3 Coordinator, Leader contact and partners Outputs...
Table Of Content The European Influenza Surveillance Scheme... 2 Summary... 3 Coordinator, Leader contact and partners... 6 Institut Pasteur... 6 Health Division... 6 Nphs Communicable Disease Surveillance
State of the Art of Rare Disease - Activities in EU Member States and Other European Countries. Belgium Report
State of the Art of Rare Disease - Activities in EU Member States and Other European Countries Definition of a Rare Disease Belgium Report The definition of rare diseases in the Belgian Plan for Rare Diseases
The Evidence Exists for Screening
LUNG CANCER & EARLY DIAGNOSIS: The Evidence Exists for Screening Sofia, 22-23 April 2018 OVERVIEW The Bulgarian capital of Sofia will host a conference on lung-cancer screening in April, at the same time
MHE Position on the EC Green Paper on Mental Health An EU Strategy on Mental Health and Well Being
MHE Position on the EC Green Paper on Mental Health An EU Strategy on Mental Health and Well Being MENTAL HEALTH EUROPE SANTE MENTALE EUROPE aisbl Boulevard Clovis 7, B-1000 Brussels Tel +32 2 280 04 68
How Italy and France take on rare sarcoma cancers
Page 4 of 12 Road safety road transport Trucks and CO2 1. Home 2. News 3. Health 4. How Italy and France take on rare sarcoma cancers How Italy and France take on rare sarcoma cancers By Hannah Black and
STRATEGIC APPROACH & WORKPLAN 2007
Rare Diseases Europe STRATEGIC APPROACH 2007-2009 & WORKPLAN 2007 Paris, March 2007 www.eurordis.org Contents Our strategic approach 2007 2009 o Eurordis in 2010 o Strategic orientations o Priorities 2007-2009
RD-ACTION DISSEMINATION PLAN TABLE I - STAKEHOLDER ANALYSIS
RD-ACTION DISSEMINATION PLAN TABLE I - STAKEHOLDER ANALYSIS Stakeholder Group Interest in RD-Action Dissemination purpose Channels of Dissemination (WHO) (WHY) (WHY) (HOW) Partners of RD-Action & members
HIV/AIDS Joint Action HA-REACT
HIV/AIDS Joint Action HA-REACT Matthias Schuppe Policy Officer Health Threats Unit DG Health and Food Safety European Commission Policy Framework on HIV/AIDS in EU and neighbouring countries Commission
Table Of Content. Information network on rare cancers... 2 Summary... 3 Coordinator, Leader contact and partners Outputs...
Table Of Content Information network on rare cancers... 2 Summary... 3 Coordinator, Leader contact and partners... 5 National University Specialised Hospital for Active Treatment in Oncology - NOH... 5
ESPACOMP SCIENTIFIC MEETING PROGRAM
Version 29.06.2018 SDG 22th ESPACOMP conference - Dublin, Ireland (European Society for Patient Adherence, COMpliance and Persiste nce) THURSDAY, NOVEMBER 29TH TO SATURDAY, DECEMBER 1ST, 2018 ESPACOMP
Media monitoring: Experience of outbreak monitoring at ECDC to monitor vaccine safety potential crisis- A pilot using MediSYS
Media monitoring: Experience of outbreak monitoring at ECDC to monitor vaccine safety potential crisis- A pilot using MediSYS Building Trust, Managing Risk: Vaccine Confidence and Human Papillomavirus
EUROPLAN National Conferences and Post-NCs activities in support to Member States
EUROPLAN National Conferences and Post-NCs activities in support to Member States Yann Le Cam, Ariane Weinman, Valentina Bottarelli EURORDIS Team Paris, France Brussels, Belgium EUROPLAN B Domenica Taruscio,
PATIENT ADVISORY BOARD The Voice of Patients within EURO-NMD. 30/11/2017 Session One
30/11/2017 Session One Objectives Main objective of EURO-NMD: Ø Build a bridge between EURO-NMD and the rare neuromuscular patient community: Ensure that patient needs are included in the strategic and
3 rd BELGIAN LEFT ATRIAL APPENDAGE OCCLUSION MEETING. Friday Hotel Dolce La Hulpe Brussels
3 rd BELGIAN LEFT ATRIAL APPENDAGE OCCLUSION MEETING Friday 23.11.2018 Hotel Dolce La Hulpe Brussels MEETING OBJECTIVES Dear Colleagues, Oral anticoagulation remains the mainstay of therapy for stroke
High risk non-muscle invasive bladder cancer: From guidelines to future approaches Chairs: A. Lopez Beltran, Lisbon (PT)
Friday, 8 June 2018 EAU Update on Bladder Cancer (BCa18) Challenging your knowledge of the EAU Guidelines 8-9 June 2018, Munich, Germany Steering committee: F. Montorsi, H. Van Poppel and M. Wirth Scientific
Table Of Content. European Organisation for Rare Diseases... 2 Summary... 3 Coordinator, Leader contact and partners... 6 Outputs...
Table Of Content European Organisation for Rare Diseases... 2 Summary... 3 Coordinator, Leader contact and partners... 6 Outputs... 7 D04 - Electronic Newsletter (EN)... 7 D01 - Activity Report EURORDIS
7 th European Conference on Rare Diseases & Orphan Products (ECRD 2014 Berlin) The Rare Disease Puzzle: Bringing the Picture to Life
Save the Date! 8 10 May 2014 Andel s Hotel, Berlin, Germany 2014 Berlin Brussels 23-25 May 2012 7 th European Conference on Rare Diseases & Orphan Products (ECRD 2014 Berlin) The Rare Disease Puzzle: Bringing
EuropaColon Expands into Digestive Cancers Europe. Our objective is to save an additional 250,000 Europeans every year
PRESS RELEASE Monday 22nd October 2018 EuropaColon Expands into Digestive Cancers Europe Our objective is to save an additional 250,000 Europeans every year Munich, 22 October 2018 EuropaColon, the European
This meeting has been made possible by an independent grant from Roche.
This meeting has been made possible by an independent grant from Roche. This event has been created in collaboration between the University of Milan and ecancer. MILAN SUMMIT ON PRECISION MEDICINE AGENDA
SPONSORSHIP OPPORTUNITIES
CONFERENCES SPONSORSHIP OPPORTUNITIES 5 th World Congress on Epigenetics and Chromosome November 15-16, 2018 Istanbul, Turkey our DELEGATE is your CLIENT Our Programme 5+ Keynote Sessions Our programme
ESSO Advanced Course on Primary Liver Tumours
ESSO Advanced Course on Primary Liver Tumours 24-25 April 2014 LIVERPOOL (UK) Endorsed by ESSO Advanced Course on Primary Liver Tumours Chair Hassan Malik, University Hospital Aintree NHS Trust, Liverpool,
Behavioural indicators in men who have sex with men
Behavioural indicators in men who have sex with men Dr. Brenda Spencer, IUMSP, Lausanne 13 th HIV/AIDS Think Tank Meeting First presented by Prof. Jonathan Elford, City University London European Parliament,
The French National Rare Diseases Registries BNDMR-BaMaRa and RaDiCo
The French National Rare Diseases Registries BNDMR-BaMaRa and RaDiCo Pr Paul Landais Montpellier 1 University, EA 2415, Faculty of Medecine Nîmes University Hospital, France National Databank for RaRe
On behalf of E-PILEPSY consortium Philippe Ryvlin (Lyon, France)
A European pilot network of reference centres in refractory epilepsy and epilepsy surgery On behalf of E-PILEPSY consortium Philippe Ryvlin (Lyon, France) Brussels, Written Declaration on Epilepsy! 6.000.000
ECPC ANNUAL CONGRESS ECPC GENERAL ASSEMBLY
ECPC ANNUAL CONGRESS FRIDAY 8 SATURDAY 9 JUNE 2018 & ECPC GENERAL ASSEMBLY SUNDAY 10 JUNE 2018 VENUE: RENAISSANCE BRUSSELS HOTEL, RUE DU PARNASSE 19, 1050 BRUXELLES EVENT ORGANISED UNDER THE HIGH PATRONAGE
Final Programme EFGCP Children s Medicines Working Party 6th Annual Conference & DIA Paediatric SIAC 4th Forum Current & Future Perspectives for Paediatric Medicines: Visions, Daily Challenges, Ways Forward
SPONSORSHIP OPPORTUNITIES
CONFERENCES SPONSORSHIP OPPORTUNITIES 2 nd Global Physicians and HealthCare Congress June 13-14, 2019 Helsinki, Finland our DELEGATE is your CLIENT Our Programme 5+ Keynote Sessions Our programme aims
Striving for Professionalism in IITs
EFGCP Workshop on Striving for Professionalism in IITs 26 & 27 February 2014 Courtyard Hotel, Brussels, Belgium Organised by European Forum for Good Clinical Practice In Collaboration with www.efgcp.eu
Updates from the European Centre for Disease Prevention and Control
Updates from the European Centre for Disease Prevention and Control AIRA 2018 National Meeting, Salt Lake City Global Perspectives Plenary session Tarik Derrough Senior Expert Vaccine Preventable Diseases
Maltese Presidency of the Council of the European Union. Ministry for Health
Maltese Presidency of the Council of the European Union Ministry for Health The Trio programme Guided by the strategic agenda of the European Council adopted in June 2014 One of the common priority areas
ADDRESSING INEQUITIES IN CANCER PREVENTION CALLING FOR HPV VACCINATION FOR BOYS AND GIRLS
ADDRESSING INEQUITIES IN CANCER PREVENTION CALLING FOR HPV VACCINATION FOR BOYS AND GIRLS Co-hosted by Nessa Childers MEP and Karin Kadenbach MEP 25 APRIL 2017 09.00 11.00 AM European Parliament, Room
Seasonal influenza vaccination Recommendations & Reality
Seasonal influenza vaccination Recommendations & Reality World Vaccine Congress, 16-18 October 2012, Lyon, France Caroline Brown Influenza and other Respiratory Pathogens WHO Regional Office for Europe
Childhood Vaccination and Immunisation
DIRECTORATE GENERAL FOR INTERNAL POLICIES POLICY DEPARTMENT A: ECONOMIC AND SCIENTIFIC POLICY WORKSHOP Childhood Vaccination and Immunisation Brussels, 19 June 2013 MEETING DOCUMENT Policy Department A:
the patients perspective and role of epags
Patients Registry in ERNs: the patients perspective and role of epags 5th International Summer School Rare Disease & Orphan Drug Registries VirginieBros-Facer, Research Infrastructure Project Manager 18
European Institute of Womens Health,CLG
European Institute of Womens Health,CLG Members of the Board Hildrun Sundseth President of the EIWH Former Head of EU policy, European Cancer Patient Coalition On retirement from industry in 2003, Hildrun
Rare Cancer Perspective in the EUCERD
EURORDIS' activities on EU and National Policies Rare Cancer Perspective in the EUCERD Jan Geissler Alternate Member, EU Committee of Experts for Rare Diseases (EUCERD) Director, European Patients Academy
WHY PATIENT ASSOCIATIONS SHOULD WORK INSIDE METABERN. MAURIZIO SCARPA, Anne-Sophie Lapointe (PhD) Coordinator MetabERN, epag PO
WHY PATIENT ASSOCIATIONS SHOULD WORK INSIDE METABERN MAURIZIO SCARPA, Anne-Sophie Lapointe (PhD) Coordinator MetabERN, epag PO 2 3 My conflict of interest! 4 VML s Core Values as many, many Pos. PRECISION
EUWAP. Berlin, November 22 23, European Workshop on Health and Disability Surveillance in Ageing Populations
EUWAP European Workshop on Health and Disability Surveillance in Ageing Populations Berlin, November 22 23, 2012 Robert Koch Institute Nordufer 20 13353 Berlin, Germany EUWAP November 22 23, 2012 Expert
Pfizer Support to European and International Patient Organisations in 2008
Pfizer Support to European and International Patient Organisations in 2008 The EFPIA Code on Relationships between the Pharmaceutical Industry and Patient Organisations came into force across Europe on
European Patients Academy on Therapeutic Innovation
European Patients Academy on Therapeutic Innovation http://www.patientsacademy.eu info@patientsacademy.eu The project is receiving support from the Innovative Medicines Initiative Joint Undertaking under
EUROPEAN JOINT PROGRAMME ON RARE DISEASES DARIA JULKOWSKA INSERM, FRANCE
EUROPEAN JOINT PROGRAMME ON RARE DISEASES DARIA JULKOWSKA INSERM, FRANCE RARE DISEASES LANDSCAPE IN EUROPE STRATEGY FUNDING RARE DISEASES RESEARCH INFRA STRUCTURES HEALTH CARE + PATIENTS NEEDS 2 IRDiRC
SNOMED CT EXPO 2017 Bratislava, 19 October 2017
European Reference Networks SNOMED CT EXPO 2017 Bratislava, 19 October 2017 #ERNEU @EU_Health Tapani PIHA Head of Unit Cross-border healthcare and ehealth Directorate-General Health and Food Safety (DG
SPONSORSHIP OPPORTUNITIES
CONFERENCES SPONSORSHIP OPPORTUNITIES 6 th International Conference on Medicinal Practices: Herbal, Holistic and Traditional November 18-19, 2019 Helsinki, Finland our DELEGATE is your CLIENT Our Programme
SPONSORSHIP OPPORTUNITIES
CONFERENCES SPONSORSHIP OPPORTUNITIES International Conference on Vaccines and Immune Response June 16-17, 2019 Dubai, UAE our DELEGATE is your CLIENT Our Programme 5+ Keynote Sessions Our programme aims
EUROPEAN GUIDE ON QUALITY IMPROVEMENT IN COMPREHENSIVE CANCER CONTROL
EUROPEAN GUIDE ON QUALITY IMPROVEMENT IN COMPREHENSIVE CANCER CONTROL Policy Paper on National Cancer Control Programmes (NCCPs)/ Cancer Documents in Europe Marjetka Jelenc, Tit Albreht, Karen Budewig,
Programme - Wednesday, 5 September
Programme - Wednesday, 5 September 15th Meeting of the EAU Robotic Urology Section Room: Auditorium Actual programme might be subject to change due to live surgery Live broadcasts from Institut Paoli-Calmettes
4th ESSO Advanced Course on the Management of Colorectal Liver Metastases
4th ESSO Advanced Course on the Management of Colorectal Liver Metastases 10-11 October 2016 BORDEAUX (FR) 4 th ESSO Advanced Course on the Management of Colorectal Liver Metastases Chairs Serge Evrard,
BDA IMPROVING ONCOLOGY DRUG DEVELOPMENT FOR CHILDREN AND ADOLESCENTS NOVEMBER 2013 WORKSHOP ADVANCE PROGRAMME
BDA WORKSHOP IMPROVING ONCOLOGY DRUG DEVELOPMENT FOR CHILDREN AND ADOLESCENTS 18-19 NOVEMBER 2013 PARIS, FRANCE BIOTHERAPY DEVELOPMENT ASSOCIATION encca European Network for Cancer Research in Children
A European Quality Assurance Scheme for Breast Cancer Services - updates Joint Research Centre
A European Quality Assurance Scheme for Breast Cancer Services - updates Joint Research Centre Institute for Health and Consumer Protection Public Health Policy Support Donata LERDA Disclaimer: The contents
OPEN FORUM ROME 19 & 20 June 2012
Joint Action OPEN FORUM ROME 19 & 20 June 2012 Spotlight on Health Promotion & Prevention and Cancer Data & Information (Work Packages 5 & 9) Hosted by the Italian Ministry of Health, Rome, Italy This
Health and. Consumers
www.openprogram.eu EU action on obesity Obesity Prevention through European Network Closing event Amsterdam 25 November 2016 Attila Balogh Health determinants and inequalities European Commission Directorate-General
SPONSORSHIP OPPORTUNITIES
CONFERENCES SPONSORSHIP OPPORTUNITIES 2 nd World Congress on Nutrition and Obesity Prevention March 21-22, 2019 Dubai, UAE our DELEGATE is your CLIENT Our Programme 5+ Keynote Sessions Nutrition Meet 2019
4th ESSO Advanced Course on the Management of Colorectal Liver Metastases
4th ESSO Advanced Course on the Management of Colorectal Liver Metastases 10-11 October 2016 BORDEAUX (FR) 4 th ESSO Advanced Course on the Management of Colorectal Liver Metastases Chairs Serge Evrard,
Movember Netherlands. Policy Plan
Movember Netherlands Policy Plan 2013 1 Organsiation vision, values & goals 1.1 VISION Movember s vision is to have an everlasting impact on the face of men s health 1.2 VALUES The organsiation s values
Table Of Content. Outputs... 7
Table Of Content Using Multidimensional Prognostic Indices(MPI)to improve costeffectiveness of interventions in multimorbid frail older persons.... 2 Summary... 3 Coordinator, Leader contact and partners...
MEETING PROSPECTUS 3 RD EUROPEAN WORKSHOP ON WORKSHOP ON HEALTHY LIVING WITH HIV.
3 RD EUROPEAN WORKSHOP ON WORKSHOP ON HEALTHY LIVING WITH HIV BARCELONA, SPAIN, TBC SEPTEMBER 2018 TBC MEETING PROSPECTUS www.hivhealthyliving.com www.expertmedicalevents.com ADVANCING HEALTH GLOBALLY
3 rd EACS Standard of care for HIV and co-infections, Bucharest, 2019
3 rd EACS Standard of care for HIV and co-infections, Bucharest, 2019 Cristiana Oprea MD, Ph.D Associate Professor Carol Davila University of Medicine and Pharmacy Victor Babes Clinical Hospital for Infectious
Implementation Report on the patient safety Recommendation 2009/C 151/01. Healthcare Systems Unit DG SANCO
Implementation Report on the patient safety Recommendation 2009/C 151/01 Healthcare Systems Unit DG SANCO Published 15 November 2012 REPORT FROM THE COMMISSION TO THE COUNCIL on the basis of Member States'
SPONSORSHIP OPPORTUNITIES CONFERENCES. Gulf Congress on. Rare Diseases. our DELEGATE is your CLIENT. August 27-29, 2018 Dubai, UAE
CONFERENCES SPONSORSHIP OPPORTUNITIES Gulf Congress on Rare Diseases August 27-29, 2018 Dubai, UAE our DELEGATE is your CLIENT Our Programme 5+ Keynote Sessions Our programme aims to bridge the gap between
EDQM and European Pharmacopoeia: State-of-the-art Science for Tomorrow s Medicines
EDQM and European Pharmacopoeia: State-of-the-art Science for Tomorrow s Medicines International Conference organised by the European Directorate for the Quality of Medicines & HealthCare (EDQM), Council
EMM 2017 Budapest. 19 & 20 May Danubius Hotel HELIA, Budapest, Hungary. Agenda
EMM 2017 Budapest 19 & 20 May 2017 Danubius Hotel HELIA, Budapest, Hungary Agenda Thursday 18 May Satellite Meetings 14.00-18.00 epag representatives meeting & Leadership workshop Helia Room 09.30-18.00
SPONSORSHIP OPPORTUNITIES
CONFERENCES SPONSORSHIP OPPORTUNITIES International Conference on WOMEN S HEALTH, REPRODUCTION AND FERTILITY April 08-09, 2019 Abu Dhabi, UAE our DELEGATE is your CLIENT Our Programme 5+ Keynote Sessions
EU SUMMIT 2018 Air Pollution & mhealth Prevention and Control of Chronic Respiratory Diseases
EU SUMMIT 2018 Air Pollution & mhealth Prevention and Control of Chronic Respiratory Diseases 23 MARCH 2018 Lithuanian Seimas (Parliament) Gedimino Av. 53, Vilnius, Lithuania Organizers: Endorsed by EU
ERN-BOND White Paper on Diagnosis of Osteogenesis Imperfecta: Synopsis
ERN-BOND White Paper on Diagnosis of Osteogenesis Imperfecta: Synopsis ERNs provide key EU-added value for patients living with rare diseases in the EU, breaking down geographical barriers to diagnosis,