State of the State Autism Early Identification and Intervention in Maryland ACT EARLY REGIONAL SUMMIT MARCH 25 TH & 26 TH 2010 PHILADELPHIA, PA

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1 State of the State Autism Early Identification and Intervention in Maryland ACT EARLY REGIONAL SUMMIT MARCH 25 TH & 26 TH 2010 PHILADELPHIA, PA

2 Maryland Statistics MSDE data as cited on The number of children with autism in Maryland is currently increasing by 18 % per year (MSDE) As of October 2008, there were 841,671 students in Maryland schools Actual number of children with IEPs AND with a Code 14 (autism ) designation is 8185 (about 1:102). The caveats are as follows: data does not include any children from birth to three who are receiving services under the Maryland Infants and Toddlers Program data does not include children 3 5 who are currently coded developmentally delayed data does not include kids with IEPs who have another special education classification data does not include kids who are homeschooled or are in private school at parent expense data does not include kids who may have autism or asperger s but have 504 plans rather then IEPs In Baltimore County 1 in 98 students has autism. In Baltimore City 1 in 187 students has autism.

3 Maryland Statistics (MSDE) Total Students Autistic Students % Autistic Ratio % Increase State 841,671 7, : Baltimore Co 105,914 1, : Baltimore City 106, : Anne Arundel 74, : Howard 41, : Montgomery 127,933 1, : Prince George's 130,259 1, :

4 Sample of Autism Numbers by County (number in parentheses are estimated 2008 actual number of children diagnosed with autism in public school) (1,076) (571) (593) (1,308) (767) (1,122)

5 Children with Disabilities vs. Children with Autism (Easter Seals Data from MSDE/OSEP) Children with Disabilities in Maryland for and (Child Count by Age Group) Child Count in Child Count in % Change Age ,003 11,752 17% Age ,922 41,664-15% Age ,969 46,502-5% Age ,183 4,667 12% Age ,074 92,833-9% Age , ,585-7% Children with Autism in Maryland for and (Child Count by Age Group) Child Count in Child Count in % Change Age % Age ,245 3, % Age , % Age % Age ,933 5, % Age ,304 6, %

6 Maryland Resources Currently Strong central Maryland resources for: Training and technical assistance (professional and parent) Higher education Assessment (medical and other) Early childhood interventions State agency collaborations and planning MD Commission on Autism Research and evaluation Advocacy (professional and parent)/legal protections Several local Autism Society chapters and other support groups for parents/families and professionals Medicaid Autism waiver

7 Maryland Resources Needed Developed, implemented, and sustained Political will Broader geographic access Technology infrastructure Training and technical assistance Increased access to validated assessment/interventions Systems for evaluating outcomes and continuous improvement Funding Engaged private and philanthropic communities

8 Desired State System Outcomes Individual/Family Children are identified as early as possible Validated interventions (including technology) are supported and financed Insurance coverage is available for all Parents, communities, and providers are aware of systems of care (assessment, identification, referral, services)

9 Desired State System Outcomes Systems Comprehensive, integrated, coordinated system of care is defined and developed Technology is integrated fully into system of care to improve access to services, research, sharing of information Sustainable funding is identified and implemented Monitoring and surveillance systems are created and sustained Outcomes evaluation and continuous improvement processes are developed and maintained Systems of care are culturally competent (language, race, geographic location, ethnicity, etc.) Sustainable partnerships are created