Illinois. State of the State Presentation Act Early Summit Region V
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1 Illinois State of the State Presentation Act Early Summit Region V
2 Number of Cases of Autism in Illinois
3 Illinois State System Overview Birth to Three Services There are 25 Child and Family Connections (CFCs) located around the state CFCs employ early intervention service coordinators who assist families with obtaining evaluations for eligibility, recommended services and medical diagnostic evaluations Medical Diagnostic Sites Currently 13 sites in Illinois
4 Head Start There are 47 head start grantees 549 head start sites Funded Enrollment: Early Head Start 4,737 Head Start Migrant Head Start 470 State totals for Autism 0-5 yr Year Autism; Received Services Migrant Program for the State year child with autism Autismg/map.html
5 Illinois State System Overview Source: Illinois State Board of Education IDEA Child Count Data December 1, 2009 Graph provided by the Illinois Autism Training and Technical Assistance Project IATTAP
6 Illinois Resources Autism agencies: TAP: The Autism Program Education: ASI: Autism Society of Illinois, Autism Task Force HOPE Institute of Springfield Illinois Diagnostic Network ISBE: Illinois State Board of Education IATTAP: Illinois Autism Training and Technical Assistance Project Illinois Early Intervention Training Program
7 Illinois Resources Families: Autism Speaks The Arc of Illinois Lifespan Program Family Support Network Family to Family Health Information and Education Center Resource Center for Autism and Developmental Delays Grupo Salto IATTAP
8 Illinois Resources Clinicians: ICAAP IAFP Child psychiatrists, psychologists, and neurologists Board Certified Behavior Analyst Currently 184 BCBAs in Illinois 2 university training programs State: DSCC: Division of Specialized Care for Children LEND/UCEDD Department of Human Services (DHS), Division of Developmental Disabilities Services Home based Waiver 1200 children currently receiving waiver Significant waiting list
9 Early identification Challenges and Gaps Utilization of evidence-based training and strategies by providers Need for coordination for medical, developmental, and educational services Transition after Early Intervention Reimbursement for many autism-related services Funding!
10 Challenges and Gaps Disparities EI and school-based services Social services Mental health services Families with multiple challenges Poor and middle-income families Racial and ethnic disparities Geographic disparities Providing evidenced-based services for children with autism Difficulty keeping trained providers in the area
11 Legislation and Policy SB101 - Habilitative Services Coverage Law SB Autism Insurance Coverage Law SB3461 -Will designate a member of the Department of Human Services staff as an ASD Project Coordinator HB Establishes project coordinator duties including working in conjunction with the Illinois Autism Task Force SB Establishes SNAP database to ensure persons with disabilities/special needs have access to public safety services Medicaid/Human Services Policies - Focus on care coordination with medical home; linkage to mental/behavioral health services
12 Ideal Services for Children with ASD Children with ASD identified at a young age and referred for EI Teachers, therapists and EI providers trained to implement evidence-based practices Services available to all families Improved link between community, medical and educational services Improved transition between early intervention and early childhood program
13 Opportunities for the Future Develop and implement a database Develop a uniform diagnostic protocol for providers in the Medical Diagnostic Network Improve reimbursements for providers Link medical, educational, and community resources for children with ASD and their families Use technology to disseminate training materials
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