Functional identity. Beyond the Audio appointment Resources and Support for Children, Families and Professionals. Agenda
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1 Beyond the Audio appointment Resources and Support for Children, Families and Professionals Functional identity Deaf me deaf Hard of Hearing Tina Childress, MA, CCC- A KSHA 2013 Hearing Agenda Gallaudet Research Institute Demographics External Resources Online communiges Social Media Websites/Blogs Webinars Conferences Support Groups/Mentoring Has been collecgng demographic, audiological, and other educagonally relevant informagon on children with impaired hearing since 1968 through its Annual Survey of Deaf and Hard- of- Hearing Children & Youth Looks at stagsgcs nagonwide as well as regionally Annual Survey informagon online goes back to 1999 Apps 1
2 Primary Method of Teaching Instructional Settings Speech (spoken language) only Sign and speech (SimCom) Sign only Cued speech Special school or center Self- contained classroom Resource room Regular educagon se\ng Home 10 Other 10 Other Additional Disabilities Additional disabilities could be Visual impairment Deaf- blindness Developmental delay Specific learning disability orthopedic impairment (includes CP) Speech or language impairment TraumaGc brain injury Mental retardagon EmoGonal disturbance AuGsm 10 ADD/ADHD Other health impairments
3 Did you know Why? Helpful when you don t know the answer can also serve to empower them to find the answer themselves Ask a quesgon once and get a myriad of opinions Can be brand- specific informagon EmoGonal support Share pictures, videos, links, informagon and opinions Parents learn from other parents, professionals learn from other professionals we all learn from each other No concern over billable Gme EducaGonal Audiology list- serve (EAA) hgp:// displaycommon.cfm? an=1&subargclenbr=11 Audiology Community (AAA) hgp://community.audiology.org/aaa/ Home/ ASHA Community (ASHA) hgp://community.asha.org/asha/home Online communities (professional) Hearing Journey (Advanced Bionics) hgp:// Cochlear hgp:// Hear Peers (Med- El) hgp:// Hearing Like Me (Phonak) hgp:// Online communities (families) 3
4 Ear Community hgp://earcommunity.com Online communities (families) AG Bell Online communities (advocacy groups) hgp://listeningandspokenlanguage.org/join/ DeafTeens hgp://deameens.org Raising Deaf Kids hgp://raisingdeanids.org Hearing Loss AssociaGon of America hgp:// Other places to look If there is a pargcular syndrome, egology or symptom of hearing loss, you can omen find a group discussing it! GoogleGroups YahooGroups BigTent 4
5 facebook Pinterest Social media site with over one BILLION users Informal survey (July 2013) indicated this was the most used social media outlet amongst individuals with hearing loss Great place for ideas Usually stagc images ArGcles (mainstream and journal) that pertain to our field are posted by our peers Events happening nagonally and locally are shared Links to other resources and other Pinners Omen the pins are pre- organized for easier perusing (but you can change organizagon to your liking) New products announcements Omen used in giveaways InformaGon to share with families You can even have a Pin this shortcut on your browser bar Check out Likes on various pages to find out about other pages You can share pins on other sites like Facebook and Twiger LinkedIn YouTube Connect with other professionals Join Groups and Follow pages for informagon Job hungng/posgng Get the latest informagon on a variety of topics Video- sharing website where people can upload, view and share videos (not stagc images) Device instrucgons Many manufacturers have their own channel TroubleshooGng guides Guides that other users have created (e.g., how to connect to an ipod) Therapy ideas Curriculum Materials AcGviGes DemonstraGons Karaoke 5
6 YouTube Sharing Opportunity for children to see other children, parents to see other children Hear children talk / see children sign Cochlear implant inigal acgvagons NOTE: prepare parents with realisgc expectagons CAVEAT: Most aren t capgoned Newer videos have CC bugon which uses voice recognigon technology and is only moderately accurate Social Media Revolution 2013 (video by Socialnomics) hgp:// media- video- 2013/ web + log = blog Benefits Blog = dynamic website InformaGon is updated more frequently Newest posts are towards the top Able to easier tag content so it is more searchable Professional blogs products, reviews, research, informagon Personal blogs their journey People omen add links to other social media sites for sharing Access to informagon in longer, more narragve form Can subscribe to blog lists and/or access via RSS (Rich Site Summary/Really Simple SyndicaGon) feeds so you don t have to keep going back to the blog to read new content Find links to other blogs and resources both for the professional and consumer Helpful for families stargng out on their hearing loss journey can be very empowering 6
7 Phonak FM Configurator hgps:// compagbility/fm_configurator.html Set- up and TroubleshooGng Guides that are customizable Guide to Access Planning hgp:// Tool for determining appropriate Hearing Assistance Technologies and planning for transigon Described and Captioned Media Program Free- loan described and capgoned educagonal media is available to students who are deaf, blind, hard of hearing, visually impaired, or deaf- blind Clearinghouse of informagon related to educagon, accessibility, deafness, blindness, and other related topics Social bookmarking site Getting from There to Hear Scores of links related to hearing loss Searchable via tags 7
8 My favorite websites for pediatric info Webinars Illinois School for the Deaf Outreach hgp://bit.ly/isdoutreach AG Bell hgp://listeningandspokenlanguage.org/ NaGonal Center for Hearing Assessment and Management (NCHAM) hgp://ncham.org/ or hgp://infanthearing.org Beginnings hgp:// hgps:// Hands and Voices/Guide By Your Side hgp://ilhandsandvoices.wordpress.com/ hgp://handsandvoices.org Clerc Center at Gallaudet University hgp:// SupporGng Success for Children with Hearing Loss (Karen Anderson s site) hgps://successforkidswithhearingloss.com/ Ida InsGtute hgp://idainsgtute.com/ Linda Thibodeau s EARRING page hgp:// EARRINGFINAL/EARRINGWEB_files/ frame.htm EducaGonal Audiology AssociaGon hgp:// Parent Advocacy Training from AG Bell Online modules on a variety of topics hgp://listeningandspokenlanguage.org/pat/ Hands and Voices Courses for Professionals hgp://handsandvoices.org/services/sp_bureau/_pros.htm Manufacturers Advanced Bionics hgp:// Cochlear Americas hgp://hope.cochlearamericas.com/ Phonak hgp:// Audiology Online hgp:// Conferences Support Groups/Mentoring AG Bell Main convengon happens on even- numbered years Professional symposium happens on odd- numbered years EHDI hgp://ehdiconference.org/ Hands and Voices hgp:// Check to see which states might have a conference near you Regional Events Get- togethers from manufacturers Be sure to sign up for newslegers to get the latest informagon and announcements Guide By Your Side hgp://ilhandsandvoices.wordpress.com/gbys/ AG Bell Chapter near you hgp://listeningandspokenlanguage.org/document.aspx?id=429 Cochlear implant companies have mentoring programs hgp://apps.advancedbionics.com/ctm/us hgp:// more Local hospitals with an audiology/ent departments Local school programs with Deaf/Hard of Hearing departments 8
9 Apps for Kids (and Adults) with Hearing Loss What should I look for? (for d/hh kids) Accessibility Advocacy Audiology Hearing Test Listening Therapy Media Player Personal Amplifier Sign Language Sound Level Meter Speech TelecommunicaGon Resources (e.g., favorite developers, blogs and websites) MulGple voice choices If you can record your voice, even beger! Natural > synthesized Turn on/off text Auditory training/reading Good volume control External speaker Media players with built- in CC Be sure to update your Apps! Record keeping Caveats Benefits to you Just because it s online, doesn t mean it s true know your authors/sources What you post can potengally be seen by ANYONE Consider privacy issues Especially when it comes to pictures! HIPAA / FERPA Being socially connected with parents, students and students you supervise Many schools have strict Firewall restricgons you will probably do a porgon of perusing social media on your own Gme InformaGon 24/7 and omen searchable Finding out about products, news, events Can be very specific quesgons Current If you ve been hoarding informagon, now you can share! ConnecGng with others Leveraging the expergse of others to analyze informagon and summarize Great place to refer kids and families when you don t know the answer 9
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At Clarke, we help children who are deaf and hard of hearing learn to listen and talk. Children served by Clarke use advanced technologies, including cochlear implants and hearing aids, to Established
UNDERSTANDING HEARING LOSS
Helping Babies and Toddlers get a Strong Start UNDERSTANDING HEARING LOSS You have recently been told that your child has a hearing loss. You may feel emotional and overwhelmed as you begin to learn more
UNDERSTANDING HEARING LOSS
Helping Babies and Toddlers get a Strong Start UNDERSTANDING HEARING LOSS You have recently been told that your child has a hearing loss. You may feel emotional and overwhelmed as you begin to learn more
EDUCATIONAL TECHNOLOGY MAKING AUDIO AND VIDEO ACCESSIBLE
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User Guide V: 3.0, August 2017
User Guide V: 3.0, August 2017 a product of FAQ 3 General Information 1.1 System Overview 5 1.2 User Permissions 6 1.3 Points of Contact 7 1.4 Acronyms and Definitions 8 System Summary 2.1 System Configuration
How can the Church accommodate its deaf or hearing impaired members?
Is YOUR church doing enough to accommodate persons who are deaf or hearing impaired? Did you know that according to the World Health Organization approximately 15% of the world s adult population is experiencing
Creating a Program of Family-Focused Web based Resources
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ACCESSIBILITY FOR THE DISABLED
ACCESSIBILITY FOR THE DISABLED Vyve Broadband is committed to making our services accessible for everyone. HEARING/SPEECH SOLUTIONS: Closed Captioning What is Closed Captioning? Closed Captioning is an
Use the following checklist to ensure that video captions are compliant with accessibility guidelines.
Table of Contents Purpose 2 Objective 2 Scope 2 Technical Background 2 Video Compliance Standards 2 Section 508 Standards for Electronic and Information Technology... 2 Web Content Accessibility Guidelines
Support. Equip. Empower. Assessing and Accommodating Vision and Hearing Injuries
Assessing and Accommodating Vision and Hearing Injuries Webinar Series Overview Session 1: CAP and the DoDI 6025.22 Mandates of DoDI Overview of CAP services Session 2: Assistive Technologies and Needs
Classroom Accommodations for Students Who Are Deaf or Hard-of-Hearing
Classroom Accommodations for Students Who Are Deaf or Hard-of-Hearing Marni Johnson Martin, Au.D., CCC-A; Mandy J. Williams, Ph.D., CCC-SLP University of South Dakota & Marci Gassen, Au.D., CCC-A Avera