Team Jack Foundation. Community Health Charities of Nebraska Member Charity Programs & Services Guide. United Cerebral Palsy of Nebraska 764,000

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1 Team Jack Foundation The Team Jack Foundation s mission is to raise money and awareness for pediatric brain cancer research. Childhood brain cancer affects nearly 4,600 children each year, making it the leading cancer cause of death in children. Each year, less than 4% of U.S. federal funding is solely dedicated to childhood cancer research, and even less than this is spent on childhood brain cancer research. 70% Overall survival rate after diagnosis. After expenses, 100% of funds raised go to research. In 2016, the Foundation committed to two new national research clinical trials that will focus on new treatments for kids. In addition, the Team Jack Foundation is still currently funding the UNMC brain tumor program. In total, the Team Jack Foundation has committed nearly $3 million to pediatric brain cancer research. These projects are committed and paid out annually. The Team Jack Foundation has raised more than $4.6 million for pediatric brain cancer research. The funding is currently fueling six research projects nationwide. The Team Jack Foundation is working with world renowned researchers directly to develop relevant and impactful research initiatives E. HWY 20, Suite 2, Atkinson, NE Community Health Charities of Nebraska Member Charity Programs & Services Guide offering support for those with chronic health conditions across Nebraska United Cerebral Palsy of Nebraska Cerebral palsy is a nonprogressive disorder of the motor control areas of the developing brain. It is caused by damage to one or more specific areas of the brain. There is no cure for cerebral palsy; however, treatments that reduce the symptoms can improve quality of life. UCP of Nebraska provides education, advocacy, grants and social programs to individuals and their families with cerebral palsy and similar disorders. 764,000 children and adults currently have cerebral palsy. Tech Tools A Developmental Technology Library: Libraries are located throughout the state offering a wide variety of adapted toys, equipment and devices. Referral network and advocacy. Family Focus events are designed for the entire family to enjoy peer connections. Client Assistance Grants provide limited financial assistance to qualified individuals with a disability. Toy Adapting Workshops: Hands-on workshops located throughout Nebraska on how to modify everyday toys for all ages and abilities. Caregiver retreat: UCP of Nebraska collaborates with other organizations to plan and host a day for anyone providing care, support or advocacy for another to reflect, re-energize and relax S. 107th Avenue, Suite 302, Omaha, NE Offices: State Office: 212 S. 74th Street, Suite 205 Omaha, NE Lincoln Office: 215 Centennial Mall South, Suite 509 Lincoln, NE West Central Office: 915 Baumann Drive, Suite 100 Grand Island, NE Online: In 2019, look for us as:

2 The ALS Association Mid-America Chapter Nebraska Kidney Association The ALS Association is leading the fight to treat and cure ALS through global research and nationwide advocacy while also empowering people with ALS/Lou Gehrig s Disease and their families to live fuller lives by providing them with compassionate care and support. 87 Every 90 minutes, someone passes away from or is diagnosed with ALS. people in Nebraska have been diagnosed with ALS. Education for people with ALS, caregivers and families through materials and programs. Equipment & Adaptation Program. Advocacy & Public Policy Program. The Care Services Team provides education and awareness of ALS and provides programs and services to the healthcare community via new client kits, physician kits, professional education and presentations. The Care Services Team also provides support to family members and caregivers through a variety of programs and services including support groups. ALS Treatment Center of Excellence. Respite Program S. 74th Plaza, Ste 106, Omaha, NE The Nebraska Kidney Association has been helping Nebraska kidney and transplant patients for more than 45 years, working to provide education, programs and services, screening opportunities and advocacy for those affected by kidney disease or organ donation. 16% of Nebraskans are affected by kidney disease. 22 people will die today waiting for a lifesaving organ transplant. Emergency financial aid for kidney and transplant patients. Patient advocacy for Nebraska kidney, urologic and transplant recipients. Professional education programs, including a Joint Council Workshop, where relevant topics are discussed with nurses, techs, social workers and dietitians who then in turn implement these with the patients served. Organ and tissue donation information. Kidney Early Detection Screening (KEDS) offers free kidney disease screenings at locations around the state. Kidney Health and Education Program (KHEP) teaches about kidney function, disease and transplantation. Patient information, including resource guide and general education, and Nebraska toll-free hotline. Nebraska toll free hotline providing information and referral to callers Arbor Street, Suite 230, Omaha, NE Alzheimer s Association Nebraska Chapter The Alzheimer s Association works to eliminate Alzheimer s disease through the advancement of research; provide and enhance care and support for all affected; and reduce the risk of dementia through the promotion of brain health. #6 Alzheimer s disease is the 6th leading cause of death in the Alzheimer s costs the nation $259 billion in unpaid care. 24/7 Helpline ( ) and online support. Free educational workshops. Dementia Care Conference. Care Consultations. Caregiver support groups. Respite Reimbursement grants Alzheimer s Association TrialMatch online clinical trial locator service lets individuals create an online profile to be directed to clinical trials in their area. MedicAlert +Alzheimer s Association Safe Return identification program. United States. Omaha: Arbor Street, Suite 110 Lincoln: S. 70th Street, Suite 201 Kearney: th Ave., Suite 11 Susan G. Komen Great Plains provides breast health information and resources to empower individuals to make informed breast care decisions and funds free or low-cost breast cancer screenings for uninsured, underinsured and low-income men and women unable to access care. About 1 in 8 U.S. women will develop breast cancer over the course of their lifetime. Susan G. Komen Great Plains Information and referral to services for breast health or breast cancer. Low- or no-cost breast cancer screenings and shortterm financial assistance. Educational outreach programs and activities to promote breast health awareness. Short-term financial assistance and other support. The Komen Breast Care Helpline (1-877 GO KOMEN) offers breast cancer support and counseling to anyone with questions or concerns Monday through Friday, from 8 a.m. to 9 p.m. CT komengreatplains.org/ 8707 West Center Road, Suite 101, Omaha, NE 68124

3 Nebraska Community Blood Bank American Diabetes Association of Nebraska Nebraska Community Blood Bank, a Division of Innovative Blood Resources, has been saving lives in our communities since 1968 as an independent nonprofit. Driven by our mission, we are dedicated to connecting people who need life-saving blood with generous volunteers who give. Approximately 1 in 3 people will need a blood transfusion in their lifetime. Through effective outreach to donors; continual development of biomedical expertise; and brandbuilding partnerships with the community, blood drive sponsors and healthcare facilities, Nebraska Community Blood Bank connects those who need blood with those generous volunteers who give. Blood typing and education programs. PACE-approved courses through NCBB s learning management system. Workshop for high school students who coordinate blood drives at their schools. Schools are eligible for secondary education scholarships. Informal speaker s bureau N. 84th St., Lincoln, NE The American Diabetes Association is working to prevent and cure diabetes and to improve the lives of all people affected by diabetes. It funds research to prevent, cure and manage diabetes; delivers programs and services; provides credible information; and gives a voice to those denied their rights because of diabetes. 9% of the U.S. population has diabetes. Programs include: Diabetes Prevention Program, Wellness Lives Here, Health Champion Designations, National Healthy Lunch Day, Diabetes Alert Day, Living with Type 2 Diabetes and Safe at School. Get Fit Don t Sit downloadable toolkit. Everyday Wisdom Kit is a tool designed to help families of children with Type 1 Diabetes. Nationally committed more than $34.5 million to research projects. Advocacy efforts include supporting government funding for diabetes research and programs, ensuring access to health care, promoting the prevention of type 2 diabetes, combating discrimination and much more Nebraska Hospice and Palliative Care Association American Lung Association in Nebraska The Nebraska Hospice and Palliative Care Association is a statewide partnership that exists to improve the quality of life for all Nebraskans who have chronic conditions or are near the end of life and to support the various communities who care for them. Hospice provides care for all ages and utilizes a team of professionals to provide support: a doctor, nurse, social worker, chaplain (if desired), other specialists as needed and volunteers. 8,000 The number of Nebraskans who receive hospice services each year. Find a Hospice tool to search for hospice members. Education and advocacy Annual Living a Good Life at the End of Life Conference provides hospice and palliative care professionals with networking opportunities, continuing education and recognition for their important work. NHPCA awards six scholarships annually for hospice professionals to attend. Professional workshops and webinars. Nebraska End-of-Life Survey report. Hospice lets me be outreach campaign. In partnership with the Department of Veteran Affairs, NHPCA leads the Nebraska Hospice- Veteran Partnership to ensure Nebraska s veterans near the end of life receive the best care possible Libra Drive, Suite 100, Lincoln, NE The American Lung Association in Nebraska is the leading organization working to save lives by improving lung health and preventing lung disease, through research, education and advocacy. The American Lung Association is focused on four strategic imperatives: to defeat lung cancer; to improve the air we breathe; to reduce the burden of lung disease on individuals and their families; and to eliminate tobacco use and tobacco-related diseases. 126,292 Nebraskans suffer from lung disease, including lung cancer, chronic lung disease or asthma. State of the Air Report. Saved By The Scan screening is used to detect lung cancer early, when it is more likely to be curable. LUNG FORCE Expos. Midwest Asthma Summit program. Camp Superkids. Lung Helpline is a toll-free nationwide service. Better Breathers Clubs Lung Cancer support groups. Freedom from Smoking smoking cessation programs. Inspire.com: The Lung Association is proud to support several free online communities on Inspire.com for people facing lung disease. Research funding to find cures and new medical treatments for lung disease, including lung cancer West Dodge Street, Suite 226 Omaha, NE 68114

4 Arthritis Foundation Nebraska Nebraska AIDS Project Leading the fight for the arthritis community, the Arthritis Foundation helps conquer everyday battles through life-changing information and resources, access to optimal care, advancements in science and community connections. 1,800 children in Nebraska suffer from arthritis. 345,000 adults and children in Nebraska are suffering from arthritis. Referrals and toll-free Helpline: State- and federal-level advocacy to help keep medications accessible and affordable. National JA Conference and local Family Days provides tools and information to JA families. Camp Spirit for children with juvenile arthritis and their siblings. Online support group. Better Living Toolkits are a free resource for adults with arthritis. JA Power Packs are a free resource for families that have a child with arthritis West Center Rd., #348, Omaha, NE The Nebraska AIDS Project leads the community in the fight to overcome HIV/ AIDS and its stigma through education, support services and advocacy. 2,500 More than 2,500 cases of HIV/AIDS have been identified in Nebraska. Nationwide, this number is more than 1.2 million. Facilitating community outreach programs that result in getting new populations in for testing. Free HIV testing, STI testing with bilingual capability. Education and support groups. HIV and STD risk-reduction programs. Mental health services for individuals and family members or partners. Advocacy. Case management provides direct client services and outreach programs to assist those living with HIV/AIDS. Omaha Office: S. 77th St., Suite. A Lincoln Office: K St., Suite 100 Kearney Office: Prairie View Pl. Norfolk Office: W. Phillip Ave. Scottsbluff Office: Broadway Autism Action Partnership Nebraska Chapter of the National Hemophilia Foundation Autism Action Partnership works to improve the quality of life of persons on the autism spectrum and their families through education, advocacy and support, thereby enabling them to be an integral part of the community. $ Every 20 minutes a child is diagnosed with autism. On average, autism costs a family $60,000 a year. Referral for services over the phone and online. Circle of Friends program allows students with autism to learn and practice social skills in school setting along with peer mentors. This is provided in more than 224 Nebraska schools. Annual Autism Summit: National and local speakers present diverse perspectives on autismrelated topics. PACE program provides supported employment services for adults with autism. Making Memories: We partner with local venues to provide free, sensory friendly events for families affected by autism. Summer art and drama camps Nicholas, Suite 202, Omaha, NE The Nebraska Chapter of the National Hemophilia Foundation is dedicated to finding better treatments and cures for inheritable bleeding disorders and to preventing the complications of these disorders through education, advocacy and research. 1,000 Nearly 1,000 Nebraskans have a bleeding disorder. Nationally, this number is 20,000. Annual Family Education Weekend and Kearney Education Day. Certified Hemophilia Treatment Center at UNMC and Children s Hospital. Nebraska Chapter Financial Assistance Program. Parent Information & Networking Group for families of newly diagnosed children ages Family camp for those with bleeding disorders. Social and networking opportunities. State Advocacy Day. The day offers people with bleeding disorders and their advocates training on how to speak with legislators, and an opportunity for individual visits with members of the state legislature W. Center Road, Suite 304 Omaha, NE 68124

5 Muscular Dystrophy Association of Nebraska Brain Injury Alliance of Nebraska Muscular Dystrophy is often used to refer to a group of progressive muscle wasting and neuromuscular diseases that can include: Duchenne MD, Limb-Girdle MD, ALS, Friedreich s Ataxia and Spinal Muscular Atrophy. Muscular Dystrophy can affect people of all ages. Although some forms become apparent in infancy or childhood, others may not appear until middle age or later. 1,070 people in Nebraska and Iowa receive services from MDA. Special patient care clinics give individuals access to a nationwide network of some 200 hospital-affiliated clinics and 40 MDA/ALS research and clinical care centers. Free equipment loan program and assistance in repairing equipment for MDA-registered clients. Education and advocacy. MDA Summer Camp available at no charge for all children ages 8-17 with a neuromuscular disease. MDA is the leader in research for ALS and other neuromuscular related diseases. MDA spent $17 million last year. Reimbursement for annual flu shots for individuals living with a neuromuscular disease Y St #100, Omaha, NE National MS Society, Mid America Chapter The Brain Injury Alliance of Nebraska is the only statewide nonprofit exclusively dedicated to brain injury in our state. As such, we strive to enhance the quality of life for the more than 36,000 individuals living with disabilities caused by brain injury, as well as their families. Every day in Nebraska at least one person dies from a traumatic brain injury. 36,000 Statewide, an estimated 36,000 live with a disability due to brain injury. Training creates awareness for coaches, schools, parents and youth participating in sports. Resource Facilitators provide brain injury referral, resources and training. Advocacy to raise awareness for brain injury. Lincoln and Omaha domestic shelter staff have learned to provide screenings for residents. The Corrections Screening Project provides training on how to screen for brain injury to Douglas County Corrections case managers and mental health staff. Brain Injury Annual Conference provides educational opportunities for providers and individuals with brain injury and their families. 14 support groups serve the need to connect with others in the same circumstances across Nebraska The National MS Society helps each person affected by MS in our area address the challenges of living with MS. We help by raising funds for cuttingedge research, driving change through advocacy, facilitating professional education and providing programs and services that empower people with MS and their families to move their lives forward. 3,200 More than 3,200 people in Nebraska who are living with MS. Advocacy Ambassadors. Educational and wellness programs. Partners in MS Care is a National MS Society program that recognizes and supports quality MS care by encouraging strong partnerships between MS clinicians and the Society. Camp Can Do. Support Groups and one-on-one peer connections. MS Navigators program provides one-on-one support to provide a comprehensive approach as well as equipment loans. Financial assistance program available. Health Care Professional Education. Annual scholarships S. 114th St., Omaha, NE Crohn s & Colitis Foundation, Nebraska/Iowa Chapter The Crohn s & Colitis Foundation is a nonprofit, volunteerdriven organization dedicated to finding the cures for Crohn s Disease and ulcerative colitis, and to improving the quality of life of children and adults affected by these diseases. 18 The fastest growing patient population is children under the age of ,000 Statewide, there are 10,000 individuals with Crohn s disease or ulcerative colitis. Advocacy Network uses patients collective voice to raise awareness and create action to better lives. Crohn s & Colitis Congress provides professional education for medical professionals. My IBD Family Event provides pediatric patient and caregiver education. Camp Oasis is an experience of a lifetime for kids living with IBD. Power of Two matches newly diagnosed patients with a patient mentor chapters/iowanebraska/ 7701 Pacific St, Suite 305, Omaha, NE 68114

6 Cystic Fibrosis Foundation - Nebraska Chapter Leukemia & Lymphoma Society Nebraska Chapter The Cystic Fibrosis Foundation works to cure cystic fibrosis (CF) and provide all people with CF the opportunity to lead full, productive lives by funding research and drug development, promoting individualized treatment and ensuring access to high-quality, specialized care. 1,000 Approximately 1,000 new cases of CF are diagnosed each year. More than half of the CF population is age 18 or older. Supports a wide range of innovative research programs. Compass program helps CF patients find the answers they need on any CF-related questions State-of-the-art diagnosis and treatment services are available at the accredited CF Care Center at Nebraska Medicine. Community engagement, volunteer and advocacy opportunities available. Referrals to CF family support groups. The Cystic Fibrosis Foundation offers a number of resources for learning about clinical trials and treatments that are being developed to improve the treatment of cystic fibrosis S. 88th St., Omaha, NE The mission of The Leukemia & Lymphoma Society (LLS) is to cure leukemia, lymphoma, Hodgkin s disease and myeloma and improve the quality of life of patients and their families. LLS exists to find cures and ensure access to treatments for blood cancer patients. We are the voice for all blood cancer patients. Every three minutes someone in the U.S. is diagnosed with a blood cancer. Patient advocacy for blood patients and their families and medical research. Co-pay, transportation and emergency financial assistance programs are offered statewide. Information Resource Center (IRC) (M-F, 9am to 9pm ET): Speak one-on-one with an Information Specialist who can assist you through cancer treatment, financial and social challenges and give accurate, up-to-date disease, treatment and support information. Support groups and telephone support. First Connection peer-to-peer support program helps newly diagnosed patients W. Center Road, Building 1, Omaha, NE JDRF International - Heartland Chapter March of Dimes, Nebraska & Western Iowa Market Type 1 diabetes is an autoimmune disease that strikes both children and adults suddenly. It has nothing to do with diet or lifestyle. There is nothing you can do to prevent it. And, at present, there is no cure. JDRF is the leading global organization funding type 1 diabetes (T1D) research. Our strength lies in our exclusive focus and singular influence on the worldwide effort to end T1D. 9% Nationwide, diabetes affects 9% of the U.S. population Leading source of funds and advocacy for type 1 diabetes (T1D) research worldwide. JDRF Bag of Hope delivered to newly diagnosed children and their families. JDRF Adult T1D Care Kit delivered to adults and teenagers newly diagnosed. Mentor Family program and family events. JDRF TypeOneNation Summit. Free toolkits for parents, teens, adults and educators that equip them with the knowledge, resources and confidence to navigate life with T1D. Support Groups. Referral to physicians and diabetes educators. Speakers Bureau. Omaha: West Dodge Road, Suite 304 Lincoln & Greater Nebraska: S. 70th Street, Suite 201 March of Dimes fights for the health of all moms and babies. We re advocating for policies to protect them. We re working to radically improve the health care they receive. We re pioneering research to find solutions. We re empowering families with programs, knowledge and tools to have healthier pregnancies. By uniting communities, we re building a brighter future for us all. More than 2,500 premature births happen in Nebraska each year. Outreach programs and prenatal education materials and information; other information and referrals. NICU Family Support Specialist program provides emotional and educational support to families whose babies are in the NICU and to moms on bed rest at two hospitals in Omaha. Professional education opportunities for medical professionals who specialize in obstetrics and premature birth. Patient advocacy and medical research. Parent dinners and discussion groups at Bergan Mercy hospital and The Nebraska Medical Center. Prematurity Summit as well as education to nurses in the NICUs at Nebraska Medicine and Bergan Mercy. Omaha Office: Arbor St., Suite 102