Influencing Manifestos the Welsh Way

Transcription

1 Influencing Manifestos the Welsh Way The Role of the Third Sector in Wales in Influencing Policy, Legislation, and Public Opinion Why Do (and why should) Charities Influence Manifestos? Often the voice of the vulnerable / hard to reach Collective view of those affected by the subject how else could co-production work without the voice of the service user being clearly heard? Can change the world human rights movement United States tend to refer to organisations such as Age Cymru, Hafal and Macmillan as patient advocacy organisations Strict legal governance Charity Commission guidance and new Lobbying Act 1

2 Who do we need to Influence? Westminster Government non-devolved matters e.g. welfare benefits, criminal justice MPs, researchers, Civil Service Welsh Government health, social care, education etc. Committees Consultations Legislative / Policy development groups National Assembly AMs, Special Advisors, researchers, constituency teams, Civil Servants Wales Office arm of UK Gov but important to ensuring Wales gets a fair share Who do we need to Influence? Press affects perception of the public and raises awareness The Public they vote in both the UK and Welsh Government Regulatory and other bodies e.g. Care Council for Wales, Health Inspectorate Wales, Community Health Councils Delivery Agencies NHS Wales / Local Authorities / LHBs Other interest groups Welsh NHS Confederation / RCGP / RCPsych / RCN / ADSS 2

3 Public Approaches Celebrity endorsement - Stephen Fry Time to Change Ice bucket challenge not just money but awareness of the ALS as a condition Red ribbon for AIDS and HIV Some examples of Welsh Approaches: Hafal Influencing legislation Macmillan Influencing policy Age Cymru Working collaboratively for change 3

4 Influencing Legislation the Welsh Way: The Mental Health (Wales) Measure 2010 Alun Thomas 4

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9 What does it mean for patients (and carers)? Part 1 Primary Care Schemes: more chance of being heard; avoid gap between primary and secondary care; improved rights for those not under a GP Part 2 Care and Treatment plans Part 3 Right to review Part 4 Advocacy 9

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12 The Guiding Principles (1) Patients and their carers should be involved in the planning, development and delivery of the patient s care and treatment to the fullest extent possible Clear communication in terms of language and culture is essential to ensure patients and their carers are truly involved, and receive the best possible care and treatment. In Wales, this means bilingual (Welsh and English) services should, where possible be available 24 12

13 The Guiding Principles (2) Care and treatment should be comprehensive, holistic and person focused Care and treatment planning should be proportionate to need and risk Care and treatment should be integrated and coordinated 25 13

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15 International comparative study into cancer strategies across a number of countries. Extensive research into cancer services by Macmillan. 15

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18 Inquiry into the progress made in Implementing Welsh Government s Cancer Delivery Plan published October 2014 David Rees AM Chair of the Health and Social Care Committee 18

19 Influencing Manifestos the Welsh way Graeme Francis NHS Confederation Conference January

20 2011 National Assembly election Manifesto Engagement with political parties Involve the public Press and media Partnerships and campaigning coalitions Develop relationships with champions Party conferences 2011 Manifesto 20

21 Older people s video Types of issues Developed from existing policy lines Case studies and personal testimonies Well researched As much detail as possible e.g. costs Considerations for Age Cymru: Wide range of issues to choose from Balance aspiration with incremental action Keeping everyone happy! 21

22 Success? 1. Social care reform: Yes, though nothing concrete on funding 2. Advocacy: Yes new legal duties 3. Transport: No 4. Public toilets: Partial success 5. Dignity in healthcare: No 6. Age equality: Partial success Other things can come from left-field: 50+ health checks. Partnerships & coalitions Potentially very powerful Popular with politicians Strength in numbers and division of labour (though often 1 or 2 key leads) Tend to be general by their nature E.g. Coalition on Charging Cymru; Equality Coalition; Fuel Poverty Coalition. But, beware Lobbying Act.. 22

23 Thank you for listening Slide Text