ARM (study dates 01/10/15-30/09/16)

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1 ARM (study dates 01/10/15-30/09/16) Reported (76%) Hospital Reporter Cases reported Forms returned Addenbrooke's Hospital, Cambridge Mr Miguel Soares-Oliveira 3 0 Alder Hey Children's Hospital, Livepool Mr William Calvert Birmingham Children's Hospital Ms Joana Lopes Bristol Royal Hospital For Children Miss Eleri Cusick 9 9 Chelsea and Westminster Hospital, London Mr Amulya Saxena 6 0 Edinburgh Royal Hospital for Sick Children Miss Amanda McCabe 2 2 Evelina Childrens' Hospital, London Ms Clare Skerritt Glasgow Royal Hospital for Sick Children Mr Tim Bradnock 4 0 Great Ormond Street Hospital for Sick Children Ms Clare Rees Hull Royal Infirmary Ms Sanja Besarovic 1 1 John Radcliffe Hospital, Oxford Dr Chun-Sui Kwok 8 1 King's College Hospital, London Ms Morven Allan 4 4 Leeds General Infirmary Mr Ian D Sugarman 3 0 Leicester Royal Infirmary Mr Bala Eradi Norfolk & Norwich University Hospital Miss Alexandra Scarlett 0 0 Our Lady's Hospital for Sick Children, Dublin Mr Brendan O'Connor 11 0 Queen's Medical Centre, Nottingham Ms Abigail Jones 6 6 Royal Aberdeen Children's Hospital Mr Yatin Patel 10 7 Royal Alexandra Children's Hospital, Brighton Mr Kevin Cao 2 1 Royal Belfast Hospital for Sick Children Miss Suzanne Lawther 7 7 Royal London Hospital Ashwath Bandi 9 9 Royal Manchester Children's Hospital Mr Ross Craigie 0 0 Royal Victoria Infirmary, Newcastle Mr Anindya Niyogi 6 6 Sheffield Children's Hospital Mr Richard Lindley 8 8 Southampton General Mr Charlie Keys 9 9 St George's Hospital, London Miss Caroline Pardy 3 3 The Children's University Hospital, Dublin Prof Alan Mortell 8 7 University Hospital of Wales, Cardiff Mrs Aruna Abhyankar 3 1 As of 07/07/17 1

2 Duodenal Atresia & Stenosis (study dates 01/03/16-28/02/17) Reported (67%) Hospital Reporter Cases reported Forms Addenbrooke's Hospital, Cambridge Mr Miguel Soares-Oliveira 2 1 Alder Hey Children's Hospital, Livepool Mr William Calvert 6 4 Birmingham Children's Hospital Dr Baqer Sharif 5 1 Bristol Royal Hospital For Children Mr Mohamed Shalaby 7 7 Chelsea and Westminster Hospital, London Ms Diane De Caluwe 5 0 Edinburgh Royal Hospital for Sick Children Miss Amanda McCabe 2 2 Evelina Childrens' Hospital, London Ms Clare Skerritt 6 5 Glasgow Royal Hospital for Sick Children Mr Tim Bradnock 6 0 Great Ormond Street Hospital for Sick Children Ms Clare Rees 6 6 Hull Royal Infirmary Ms Sanja Besarovic 0 0 John Radcliffe Hospital, Oxford Dr Chun-Sui Kwok 3 1 King's College Hospital, London Ms Morven Allan 3 3 Leeds General Infirmary Mr Michael Dawrant Leicester Royal Infirmary Mr Bala Eradi 6 5 Norfolk & Norwich University Hospital Mr Oliver Burdall 2 2 Our Lady's Hospital for Sick Children, Dublin Danielle McLaughlin 0 0 Queen's Medical Centre, Nottingham Ms Abigail Jones 8 8 Royal Aberdeen Children's Hospital Mr Yatin Patel 1 1 Royal Alexandra Children's Hospital, Brighton Mr Kevin Cao 0 0 Royal Belfast Hospital for Sick Children Mr Brian Macormack 2 2 Royal London Hospital Ashwath Bandi 2 2 Royal Manchester Children's Hospital Mr Ross Craigie 6 3 Royal Victoria Infirmary, Newcastle Ms Anne Lawson 4 2 Sheffield Children's Hospital Mr Govind V S Murthi 5 0 Southampton General Mr Nigel Hall 5 5 St George's Hospital, London Miss Caroline Pardy 1 1 The Children's University Hospital, Dublin Ms Dawn Deacy 5 1 University Hospital of Wales, Cardiff Mrs Aruna Abhyankar 4 2 As of 07/07/17 2

3 Exomphalos (study dates 01/03/14-29/02/16) Reported (100%) Hospital Reporter Cases reported Forms returned Addenbrooke's Hospital, Cambridge Dr Atif Saeed 2 2 Alder Hey Children's Hospital, Liverpool Ms Maryam Haneef 5 5 Birmingham Children's Hospital Ms Joana Lopes 4 4 Bristol Royal Hospital For Children Mr Robin Garrett-Cox 8 8 Chelsea and Westminster Hospital, London Mr William Sherwood 6 6 Edinburgh Royal Hospital for Sick Children Miss Amanda McCabe 2 2 Evelina Childrens' Hospital, London Miss Dorothy Kufeji 4 4 Glasgow Royal Hospital for Sick Children Mr Gregor Walker 8 8 Great Ormond Street Hospital for Sick Children Miss Joanna Stanwell Hull Royal Infirmary Ms Sanja Besarovic 0 0 John Radcliffe Hospital, Oxford Ms Ceri Jones King's College Hospital, London Dr Rachel Owusu-Ankomah Leeds General Infirmary Ms Emma Sidebotham Leicester Royal Infirmary Mr Bala Eradi 2 2 Norfolk & Norwich University Hospital Miss Alexandra Scarlett 3 3 Our Lady's Hospital for Sick Children, Dublin Mr Brendan O'Connor Queen's Medical Centre, Nottingham Ms Abigail Jones 9 9 Royal Aberdeen Children's Hospital Mr Chris Driver 2 2 Royal Alexandra Children's Hospital, Brighton Mr Kevin Cao 2 2 Royal Belfast Hospital for Sick Children Miss Suzanne Lawther 2 2 Royal London Hospital Mr Paul Charlesworth Royal Manchester Children's Hospital Mr Ross Craigie Royal Victoria Infirmary, Newcastle Mr Anupam Lall 5 5 Sheffield Children's Hospital Mr Sean S Marven 7 7 Southampton General Ms Melanie Drewett 8 8 St George's Hospital, London Mr Ike Njere 6 6 The Children's University Hospital, Dublin Ms Miriam Doyle 6 6 University Hospital of Wales, Cardiff Mr Dan Aronson 4 4 As of 07/07/17 3

4 PUV (study dates 01/10/14-30/09/15) Reported (82%) Hospital Reporter Cases reported Forms returned Addenbrooke's Hospital, Cambridge Mr Miguel Soares-Oliveira 0 0 Alder Hey Children's Hospital, Livepool Mr William Calvert Birmingham Children's Hospital Mr Liam McCarthy Bristol Royal Hospital For Children Mr Mark Woodward 2 2 Chelsea and Westminster Hospital, London Ms Marie-Klaire Farrugia 2 2 Edinburgh Royal Hospital for Sick Children Ms Lisa Steven 6 6 Evelina Childrens' Hospital, London Mr Massimo Garriboli 9 6 Glasgow Royal Hospital for Sick Children Mr Martyn Flett Great Ormond Street Hospital for Sick Children Mr Anand Upsani 28 0 Hull Royal Infirmary Mr Rejoo Daniel 2 1 John Radcliffe Hospital, Oxford Ms Rosa Romero 4 4 Leeds General Infirmary Mr Alexander Turner 5 4 Leicester Royal Infirmary Mr Ashok Rajimwale 8 8 Norfolk & Norwich University Hospital Mr Milind Kulkarni 1 1 Our Lady's Hospital for Sick Children, Dublin David Coyle 4 4 Queen's Medical Centre, Nottingham Ms Abigail Jones 4 4 Royal Aberdeen Children's Hospital Mr Chris Driver 3 3 Royal Alexandra Children's Hospital, Brighton Mr Varadarajan Kalidasan 0 0 Royal Belfast Hospital for Sick Children Mr Alan Bailie 3 3 Royal London Hospital Ashwath Bandi 1 0 Royal Manchester Children's Hospital Mr Anju Goyal 8 8 Royal Victoria Infirmary, Newcastle Mr Anupam Lall 3 3 Sheffield Children's Hospital Mr Prasad Godbole 1 1 Southampton General Mr Sengamalai Manoharan St George's Hospital, London Miss Caroline Pardy 4 4 The Children's University Hospital, Dublin Prof Alan Mortell 0 0 University Hospital of Wales, Cardiff Mrs Aruna Abhyankar 1 1 As of 07/07/17 4

5 Exomphalos - 1yr FU Total requested to July (58%) PUV - 1yr FU Total requested to July (61%) ARM - 1yr FU Total requested to July (17%) Duodenal Atresia - 1yr FU Total requested to July (0%) As of 07/07/17 5

6 Report Returns for March, April, May 2017 Surgical Short Bowel Hospital No. of reports returned Hospital No. of reports returned Leicester Royal Bristol Royal Hospital for Children 3 Infirmary 2 Great Ormond Street Hospital for Sick Children 3 Hull Royal Infirmary 3 King's College Hospital 3 Norfolk and Norwich University Hospital 3 Queen's Medical Centre 3 Royal Aberdeen Children's Hospital 3 Royal Alexandra Children's Hospital 3 Royal Belfast Hospital for Sick Children 3 Royal Manchester Children's Hospital 3 Sheffield Children's Hospital 3 St George's Hospital 3 Edinburgh Royal Hospital for Sick Children 2 Evelina Children's Hospital 2 Our Lady's Hospital for Sick Children 2 Southampton General 2 The Children's University Hospital 2 University Hospital of Wales 2 Alder Hey Children's Hospital 1 Chelsea and Westminster Hospital 1 Addenbrooke's Hospital 0 Birmingham Children's Hospital 0 Glasgow Royal Hospital for Sick Children 0 John Radcliffe Hospital 0 Leeds General Infirmary 0 Royal London Hospital 0 Royal Victoria Infirmary 0 As of 07/07/17 6

7 Surgical Short Bowel (study dates 01/10/16-30/09/18) Reported Questionnaire Forms (39%) 1 (9%) Hospital Reporter Cases reported Questionnaire Form Requested Form Addenbrooke's Hospital, Cambridge Mr Adil Aslam 0 0 Alder Hey Children's Hospital, Livepool Mr William Calvert 1 0 Birmingham Children's Hospital Shehan Liyanage 0 0 Bristol Royal Hospital For Children Miss Eleri Cusick Chelsea and Westminster Hospital, London Ms Diane Dr Caluwe 1 1 Edinburgh Royal Hospital for Sick Children Miss Amanda McCabe 0 0 Evelina Childrens' Hospital, London Miss Dorothy Kufeji 0 0 Glasgow Royal Hospital for Sick Children Mr Tim Bradnock 0 0 Great Ormond Street Hospital for Sick Children Ms Clare Rees 1 1 Hull Royal Infirmary Ms Sanja Besarovic 0 0 John Radcliffe Hospital, Oxford Mr Chun-Sui Kwok 2 0 King's College Hospital, London Mr Thanos Tyraskis Leeds General Infirmary Mr Ian D Sugarman 0 0 Leicester Royal Infirmary Mr Nitin Patwardhan 0 0 Norfolk & Norwich University Hospital Mr Oliver Burdall Our Lady's Hospital for Sick Children, Dublin Mr Brendan O'Connor 2 0 Queen's Medical Centre, Nottingham Ms Abigail Jones Royal Aberdeen Children's Hospital Mr Chris Driver 0 0 Royal Alexandra Children's Hospital, Brighton Mr Kevin Cao 0 0 Royal Belfast Hospital for Sick Children Miss Suzanne Lawther Royal London Hospital Mr Paul Charlesworth 1 0 Royal Manchester Children's Hospital Mr Ross Craigie 6 0 Royal Victoria Infirmary, Newcastle Ms Anne Lawson 3 0 Sheffield Children's Hospital Mr Richard Lindley Southampton General Mr Charlie Keys 0 0 St George's Hospital, London Miss Caroline Pardy 0 0 The Children's University Hospital, Dublin Ms Melania Matcovici 1 0 University Hospital of Wales, Cardiff Mrs Aruna Abhyankar 2 0 As of 07/07/17 7

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