8:30 AM - 9:30 AM Registration / Breakfast / Exhibits. 9:30 AM Lung Cancer Treatment Updates Edward S. Kim, MD, FACP Levine Cancer Institute

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2 Agenda 8:30 AM - 9:30 AM Registration / Breakfast / Exhibits 9:00 AM Welcome & Introductions Paige Humble, MBA Executive Director Lung Cancer Initiative of NC 9:30 AM Lung Cancer Treatment Updates Edward S. Kim, MD, FACP Levine Cancer Institute 10:15 AM Break / Exhibits 10:30 AM Lung Cancer Screening Overview - Scott Skibo, MD Haywood Regional Medical Center Access Grant Update - Maria K. Long, MS, RD, LDN, Prevention and Early Detection, Manger Novant Health Cancer Care, Presbyterian Medial Center Atrium Health Lung Cancer Mobile Screening - Darcy Doege, RN, Program Coordinator of the Lung B.A.S.E.S. 4 Life Program, Levine Cancer Institute 11:45 AM Lunch / Exhibits / Tour Mobile Screening Unit 2

3 Agenda 12:45 PM Breakout Sessions Survivor Breakout - Cheryl Lecroy, Wind River Cancer Wellness Retreats & Programs The Unsung Hero: The Oncology Caregiver - Tomma Hargraves, Patient Lay Navigator, UNC Cancer Hospital Graham Self, Caregiver Elatt Spiller, Reimbursement Specialist, McKesson 1:30 PM Break / Exhibits 1:45 PM Mind, Body & Spirit Refresh Cheryl Lecroy Wind River Cancer Wellness Retreats & Programs 2:00 PM Translating Your Experience into Action Adam Taliaferro, Esq. State Advocacy & Alliance Development, Bristol-Myers Squibb 2:30 PM How You Can Make a Difference: Ways to Get Involved Jenni Danai, MPH, Director of Programs, Lung Cancer Initiative 3

4 Thank you to our sponsors! 4

5 Lung Cancer Initiative Update Build Hope. Take Action. End Lung Cancer. 5

6 Mission Save lives and provide support to those affected by lung cancer through research, awareness, education and access programs across North Carolina 6

7 Vision Organizational Vision Our vision is to improve life for those affected by lung cancer Three-Year Strategic Vision To reach and impact every county in the state of NC by

8 Who We Are 501(c)(3) State s leading non-profit organization supporting lung cancer research and education Specializing in connecting patients, survivors and loved ones with the medical and research community Dedicated to increasing lung cancer awareness and research funding Responsible stewards: In 2017, 78% spent on research, education, awareness and access 8

9 Our Staff Paige Humble Executive Director Megan Snowdowne Manager of Marketing Michelle McLean Operations Administrator Jenni Danai Director of Programs Courtney Freeman Programs Coordinator Lynne Hicks Director of Finance Sandy Oehler Manager of Development & Special Events 9

10 Our Board of Directors Amy Cipau, MBA, President Advocate Jennifer Garst, MD, Board Chairman Duke Cancer Institute at Duke Raleigh Cancer Center Jeremy Holden, Advocate Chief Strategy Officer, Clean Design Liz Hynson, Advocate Hiren Mehta, MD UNC REX Pulmonary Specialists Justin Brian Nicholson, Survivor Sterling Capital Emily Parks, Advocate Organize for Success, LLC Chris Rallis, JD Pappas Ventures Shirley Sulick, Survivor Jared Weiss, MD UNC Lineberger Comprehensive Cancer Center Chad Pecot, MD UNC Lineberger Comprehensive Cancer Center Edward S. Kim, MD Levine Cancer Institute Carolinas Healthcare System Jim Sheegog, Advocate Rowhill Consulting Group 10

11 Scientific Advisory Committee Jeff Petty, MD, Committee Chair Wake Forest Baptist Comprehensive Cancer Center Jennifer Garst, MD Duke Cancer Institute at Duke Raleigh Cancer Center UNC Lineberger Comprehensive Cancer Center Jared Weiss, MD Kathryn Mileham, MD UNC Lineberger Comprehensive Cancer Center Ed Kim, MD Levine Cancer Institute Paul Walker, MD Brody School of Medicine at East Carolina University Duke Cancer Institute Amy Cipau, MBA Mark Bowling, MD Founder and President, LCI Patti Pozella, PhD Pursuit-Solutions Liling Warren, PhD OmicSoft Corporation and Acclarogen Chad Pecot, MD Levine Cancer Institute Jimmy Ruiz, MD Wake Forest Baptist Comprehensive Cancer Center Neal Ready, MD Brody School of Medicine at East Carolina University 11

12 Our History 2009 Hired first employee and opened office Hired second employee Held first Charlotte 5K. Held first NC Lung Cancer Advocacy Summit Lung Cancer Initiative Disaffiliated from Free to Breathe and gained independent 501(c)(3) status, rebranding as Lung Cancer Initiative Funded $500,000 toward lung cancer research cumulatively. Launched the Access to Care gas card program. 12

13 Our History 2014 Held first Expert Speakers Series Established Research Fellows Program for funding fellows at teaching hospitals throughout the state Funded more than $1 million in lung cancer research in NC, cumulatively. Began research partnership with The V Foundation for Cancer Research. Began to fund local access grants at community hospitals to improve patient access to care Employing 5 full-time employees Launched Development and Marketing Committees. 13

14 Celebrating 10 Years as a 501c3 14

15 Lung Cancer: A Snapshot 100% 80% 99% Five-Year Survival Rates 90% 60% 40% 20% 18% Prostate Cancer Breast Cancer Lung Cancer 0% Prostate Cancer Breast Cancer Lung Cancer American Cancer Society. Cancer Facts and Figures Atlanta: American Cancer Society;

16 US Cancer Deaths vs. Federal Funding Source: 16

17 Not Just For Smokers! 20-25,000 people in the U.S. get lung cancer each year, despite never smoking. Those who have quit smoking remain at risk. 17

18 Faces of Lung Cancer 18

19 What We Do Research Awareness Education Access 19

20 Research: Fueling Medical Discovery $275, The amount secured in lung cancer research for North Carolina in The number of researchers being funded at five leading cancer centers across the state. $1.6 Million The total amount we have raised in lung cancer research since Our support has jump-started the careers of researchers who have gone on to receive further funding from the National Institute of Health, Department of Defense and the American Cancer Society 20

21 Research Fellows 21

22 V Foundation, Co-Funded Research Qingyi Wei, MD, PhD Duke Cancer Institute Edward Kim, MD Levine Cancer Institute Co-funded $400,000 with The V Foundation for Cancer Research Projects that recognize and address the disparities in cancer incidence and death rates in African-Americans, as compared to all other ethnic groups Research presentation in November 22

23 Education & Awareness We are committed to increasing public awareness about lung cancer, through: Events Education & Outreach Initiatives And other grassroots opportunities 23

24 Education: Changing the Conversation 3,000+ 1, The number of providers and oncologists educated around the state The number of free patient education materials given out around the state in The number of people educated at our 2016 Expert Speaker Series with six cancer centers. 24

25 Access: Easing the Burden Thank you for the gas card. I appreciate it more than words can say. I will be traveling 60 miles one way for at least six weeks, five days a week and this will help tremendously gas card recipient 356 $25,000 Number of $50 gas cards given in 2017 to patients in 78 counties. Amount funded in Access Grants in

26 Access Grants 26

27 Education: Changing the Conversation The number of providers and oncologists educated through ASCO Update dinners. The number of online pledges to date for Screen Together. The number of people educated at our 2017 Expert Speaker Series with six cancer centers. 27

28 Education Expert Speaker Series Allows for patients and their families to come together to hear from experts on topics related to lung cancer and research HCP Education Provides educational opportunities for health care providers throughout North Carolina in order to improve diagnosis, referral and treatment Materials Distribution Distributes free print and online materials to patients and physician offices Advocate Speakers Program Free lung cancer educational sessions to businesses and civic groups to increase wellness Health Fairs/ Community Tables Builds lung cancer awareness within local communities and businesses 28

29 Our Goal: More Survivors! Survivors in 2017 & 2018! 29

30 Lung Cancer Hope There is hope! Research has brought about improvements in screening and treatments for other cancers that have led to longer and better lives for patients. We need to do the same for lung cancer! 30

31 We Need You! We have opportunities that allow you to bring your strengths to benefit our organization and those we serve 31

32 How You Can Help Become a sponsor Create a Corporate Team Participate in an event Make an in-kind tax deductible contribution Matching Gift Program Distribute educational materials Host a fundraiser Volunteer at an event Join a planning team Publicity/Media Assistance 32

33 Raleigh LUNGe Forward 5K, Run, Walk & Rally Sunday, September 23, 2018 Midtown at North Hills, Raleigh Raleigh.LUNGeForward.org Greensboro LUNGe Forward 5K, Run, Walk & Rally Saturday, November 10, 2018 Center City Park, Greensboro, NC Triad.LUNGeForward.org Charlotte LUNGe Forward 5K, Run, Walk & Rally Saturday, March 30, 2019 McAlpine Park, Charlotte, NC Charlotte.LUNGeForward.org 33

34 Together, there is always something we can do. 34

35 Who is here? Cities Survivors 61 Participants 4States 35

36 Build a Movement! Why? Too many affected cannot speak for themselves We cannot make progress without research, education and awareness about this disease We need EVERYONE advocating for more research dollars and researchers in the field 36

37 Why are we here? We cannot do it without you! There is strength in numbers! This has worked for other diseases! This is the first step 37

38 Why are we here? If you re waiting for someone else to do something about lung cancer... don t hold your breath! 38

39 Why are we here? If not us, WHO? If not now, WHEN? 39

40 What we expect of you Lung Cancer Initiative Summit: Attend all sessions Listen effectively Contribute your questions, ideas, perspective Respect others who may have different viewpoints from your own 40

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