CEA successes of the past and challenges of the future/ ACE Succès du passé et défis du futur
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1 CEA successes of the past and challenges of the future/ ACE Succès du passé et défis du futur presented by/presenter par Deirdre Floyd President/Présidente Canadian Epilepsy Alliance Alliance Canadienne de l épilepsie October 13, 2017
2 2 Mission/Mission The CEA/ACE is a partnership between grassroots epilepsy organizations Canada-wide dedicated to the promotion of independence, quality of life, and full community participation of persons with and affected by epilepsy, through innovative support services, advocacy, education and public awareness. Le CEA / ACE est un partenariat entre les organisations d épilepsie de base au Canada consacrées à la promotion de l indépendance, à la qualité de vie et à la participation communautaire complète des personnes atteintes et épileptiques, grâce à des services de soutien innovants, à la sensibilisation, à l éducation et à la sensibilisation du public.
3 3 Who We Are/Qui nous sommes 25 Community based agencies across the country that work together nationally Together we provide direct support to individuals and families living with epilepsy. System navigation Advocacy
4 4 Support in your Community/Support dans votre communauté "The impact of epilepsy on quality of life is far greater than that of most other chronic conditions. Social Support Network SOURCE: 2012 Ontario Health Technology Advisory Committee Recommendation: Care for Drug-Refractory Epilepsy in Ontario
5
6 6 Our Successes/ Nos success Providing up to date information CEA Website, Facebook, Twitter Epilepsy toll free number Part time Social Media staff promotes our initiatives Addressing drug shortages Utilizing partnerships with national groups: CLAE, NHCC, IBE, & ILAE
7 7 Our Successes/Nos success Some booklets in the series translated in over 4 languages Purple Day- empowering Canadians living with epilepsy CEA Bursary ILAE course for neuropsychology Local programs lead to national initiatives
8 8 Our Challenges/ Nos défis Closures of Epilepsy Agencies Criteria changes with funders Geographic set up Agencies range in size Lack of national funding Volunteer French translation Addressing questions through:
9 Working together Past, Present & Future/ Travailler ensemble - Passé, Présent et Futur
10 10 Working together in the Future/ Travailler ensemble dans l'avenir Join our 20 th anniversary Media interviews Promote programs the CEA offers in the CLAE newsletter or social media Cannabis updates Provincial guidelines Federal guidelines Coverage Government programs Is Health Canada assigning a DIN number
11 11 CEA turns 20 years old / ACE a 20 ans Promote Awareness - treatments for Epilepsy past, present & future - March Highlight local agency activities Personal stories Purple Day Media Interviews CEA/CLAE Highlight Advocacy Topics
12 12 Questions/Question?
13 CALL US TOLL FREE/APPELEZ-NOUS SANS FRAIS For information on seizures and epilepsy, toll-free throughout Canada/Pour plus d informations sur les convulsions et l épilepsie, sans frais dans tout le Canada: EPILEPSY ( )
14 14 Thank you/ Merci! Ryland, (age) For more information, please contact/ Pour plus d'information veuillez contacter: : Deirdre Floyd President/Présidente, Canadian Epilepsy Alliance Alliance Canadienne de l épilepsie
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