Grants, Donations and Payments PATIENT ORGANISATIONS

Transcription

1 Z Grants, Donations and Payments PATIENT ORGANISATIONS Name of Beneficiary Organization Program/Project Description Support Type Country Currency Amount Arthritis and Musculoskeletal Alliance (ARMA) Arthritis Care Bliss British Pregnancy Advisory Service (bpas) Brook Advisory MSD paid Arthritis and Musculoskeletal Alliance for annual Corporate Membership Funding for reprint of the 'Living with Osteoarthritis' booklet. Corporate membership of Bliss, a charity supporting families with premature babies Funding from an MSD For Mothers Global Giving Grant for a joint project between bpas and NHS London to run the As Soon As You're Pregnant (ASAP) campaign advising mothers in parts of London to visit their GP as soon a they find out they are pregnant - 1st year funding (US contribution) Tickets for four MSD staff to attend the UK Sexual Health Awards ceremony and dinner Individual employee professional membership renewal. Individual employee professional membership renewal. Financial UK GBP 50 Financial US USD 144,576 Financial UK GDP 700 Financial UK GBP 35 Financial UK GBP 35 Exhibition space at 's event, Structured Education for Diabetes, which took place on 15 November 2013 in Derby. (InterCare Health NHS; Derbyshire Community Health Services NHS Trust; First Diabetes named as event partners) Exhibition stand at Solihull PCT PLT event. Financial UK GBP 480 Exhibition stand at the 2nd National Diabetes in Pregnancy Conference 10 May Financial UK GBP 417 Young Diobetologists & Endocrinologists Forum Lipid SpR Training Day - Wednesday 9 October Royal Society of Medicine. Sponsorship amount will be put towards the venue and catering costs. Financial UK GBP 4,166 Exhibition stand at the Professional Conference 2014 Financial UK GBP 21,500 Professional Conference, March, Manchester Central, Exhibition stand, Bronze level Financial UK GBP 40,960 sponsorship Attendance Exhibition Financial UK GBP 48 Registration at 2013 conference Financial UK GBP 126

2 Family Planning Association (FPA) MSD paid FPA for providing their expertise in campaign development and implementation, along with the use of the FPA logo on the consumer and HCP awareness campaign called Love, Life and LARCs (Long-Acting Reversible Contraception). The funds paid for an FPA expert to input into the campaign and its associated materials along with participation in media activities. Financial UK GBP 7,000 Family Planning Association (FPA) MSD provided an honoraria to FPA's Helpline & Information Services Manager to participate in a consumer media advisory board meeting as a patient expert. Gay Men's Health (GMH) Genetic Alliance UK (GAUK) MSD provided a grant to Gay Men's Health towards the costs of running a residential event in autumn 2013, facilitated by Link Scotland, a partnership project of gay Men's Health, Waverley Care and Terrence Higgins Trust Scotland. The residential event aimed to provide support to gay and bisexual men who are HIV positive. Financial UK GBP 2,400 MSD paid GAUK for the period May 2013 April 2014 as part of GAUK s Corporate Membership Scheme. Financial UK GBP 12,500 MSD supported to raise awareness of National Cholesterol Week by providing financial support for and distribution of educational posters. MSD purchased and distributed diet sheets to health care professionals to raise awareness of National Cholesterol Week through sales representatives. MSD and collaborated on the launch of the heart health campaign' Heart Hotspots'. provided a consultancy role during the campaign as well as involvement of a spokesperson during media activities. Financial UK GBP 1,488 Financial UK GBP 4,250 Financial UK GBP 8,094 Expenses for Heart UK speaker at an event in Perthshire on 21 November 2012 entitled: Straight from the HEART. Financial UK GBP 273 Sponsorship of Scottish Lipid Forum/ annual meeting (November 2013) Financial UK GBP 3,750 Sponsorship of Heart Hotspots 2012 event. Financial UK GBP 7,019 28th Annual Conference 2-4 July 2013: University of Warwick, Coventry; Exclusive sponsorship Financial UK GBP 16,000 package MSD pay a corporate membership fee to participate in the Campaigning Committee, including involvement Financial UK GBP 16,000 in group activities. 27th Annual Conference 3-5 July 2013: UWE Bristol. Exculsive sponsorship package. Financial UK GBP 16,000

3 HIV i-base HIV i-base International Glaucoma Association (IGA) International Glaucoma Association (IGA) Myeloma UK Myeloma UK MSD awarded a grant to HIV i-base towards the provision of HIV i-base's three main information services: a treatment information freephone service; an -based question and answer service; and a web-based question and answer service. MSD co-supported the UK Community Advisory Board, managed by HIV i-base, over Each of the cosupporting pharmaceutical companies, including MSD, was invited to attend one of the UKCAB meetings to enable a two way discussion around some of the key issues in the HIV field. IGA membership renewal for two years to April 2014 MSD paid IGA for speaker services at the Moorfields International Glaucoma Symposium. Investigator Initiated Clinical Trial Research Agreement - Phase II trial of Vorinostat in combination with Bortezomib and Dexamethasone in patients with relapsed and relapsed refractory multiple myeloma - first of two payments Investigator Initiated Clinical Trial Research Agreement - Phase II trial of Vorinostat in combination with Bortezomib and Dexamethasone in patients with relapsed and relapsed refractory multiple myeloma - second of two payments Financial UK GBP 3,000 Financial UK GBP 390 Financial UK GBP 417 Financial UK GBP 34,000 Financial UK GBP 34,000 National AIDS Manual (NAM) Funding to support NAM's development of a readiness for treatment online tool for HIV. The aim is to help diagnosed patients decide if the time is right to consider initiating treatment. Financial European regional office EU 20,000 National AIDS Manual (NAM) Subscription to HIV Treatment Update journal Financial UK GBP 36 National Ankylosing Spondylitis Society (NASS) Funding to engage with the rheumatology community in Northern Ireland to raise awareness of Ankylosing Spondylitis and the setting up of a NASS branch network to encourage affordable regular access to physiotherapy. Financial UK GBP 10,000 National Eczema Society (NES) National Eczema Society (NES) MSD invited the National Eczema Society to speak at an MSD Therapeutic Skin Care Meeting at The Red Lion Hotel, Henley on Thames. MSD reimbursed NES in honorarium and travel expenses. Stands at six Healthcare professional training days during 2013 MSD paid NRAS for assisting in the development and running of the patient and healthcare professional surveys on RA care, treatment and outcome expectations. NRAS provided two speakers to participate at an educational awareness event at MSD, Hoddesdon for internal audiences. MSD paid NRAS an honorarium and travel expenses. Financial UK GBP 238 Financial UK GBP 2,025 Financial UK GBP 2,000 Financial UK GBP 275

4 MSD invited NRAS to speak at an educational meeting for rheumatology nurses at the Melia White House Hotel, London. MSD reimbursed NRAS in honorarium plus reasonable travel expenses. The meeting was organised and fully funded (logistical coordination, catering, venue hire and honoraria payments for speakers) by MSD. MSD invited NRAS to speak at an MSD educational meeting for rheumatology nurses at the Melia White House Hotel, London on 27 November MSD reimbursed NRAS an honorarium plus travel expenses. Financial UK GBP 460 MSD invited NRAS to speak at an educational meeting meeting on 22 May 2013 for rheumatology health care professionals at Homerton College, Cambridge. MSD paid NRAS an honorarium plus travel expenses. Financial UK GBP 580 National Voices Ovacome Ovacome Ovarian Cancer Action MSD provided NRAS with a grant as part-funding towards the setting up and launching of five new NRAS patient groups across the UK in Wrexham, Basingstoke, Frimley, Medway and Margate to support those living with rheumatoid arthritis. MSD awarded a grant to National Voices to support the update and re-launch of the web-resource: MSD provided funding towards the project entitled: "Measuring the impact of CNSs (Clinical Nurse Specialists) in gynaecological cancer" MSD provided funding to Ovacome for the development and printing of a leaflet. MSD was not involved in creating the content for the leaflet. MSD provided funding to Ovarian Cancer Action for the development and production of a video. MSD was not involved in creating the content for the video. Financial UK GBP 2,500 Financial UK GDP 500 Financial UK GDP 5,000 Financial UK GBP 10,000 Parkinson's UK Parkinson's UK conduct the research project - "Provision of services for people with Parkinsons" Indirect Support UK GDP 3,750 MSD supported data entry and printing costs for project "Provision of services for people with Parkinson's" Financial UK GDP 500 Patient Experience Network (PEN) Patient Information Forum (PiF) Patient Information Forum (PiF) MSD sponsored the 'Communicating Effectively' category of the Patient Experience Network National Awards (PENNA) MSD sponsored PiFs Annual Patient Information Conference MSD paid PiF an annual membership fee for February 2013 February Financial UK GBP 1,500 Financial UK GBP 2,750

5 Patient Information Forum (PiF) conduct the project "Understanding the health literacy needs for health information producers and providers" on behalf of Patient Information Forum (PiF) Indirect Support UK GDP 3,750 Patients Association (PA) MSD funded data entry and PR costs for the project - "Public awareness of the NHS constitution" Financial UK GBP 4,000 Patients Association (PA) conduct the research project - "Public awareness of NHS Indirect Support UK GDP 3,750 constitution" Patients Association (PA) Corporate membership of Patients Association Financial UK GBP 8,500 conduct the research project -"The impact of peer support on well-being" on behalf of Indirect Support UK GDP 3,750 Psoriasis Scotland Rarer Cancers Foundation (RCF) The Scottish Heart and Arterial Protection Society (SHARP) MSD paid honoraria for a representative of to contribute as an advisor at an MSD Community Advisory Board. MSD sponsored an HIV conference for patients organised by. was responsible for initiating and managing the conference with no input from MSD other than the financial support. Subscription to Positively Women journal MSD paid Psoriasis Scotland Arthritis Link Volunteers (PSALV) for corporate membership MSD provided sponsorship for corporate membership of the Rarer Cancers Foundation to contribute to their work in helping to lobby for services for people living with rarer cancers. Payment to SHARP to cover accommodation and delegate fees for their annual conference at the Dunkeld Hilton, which the SHARP group then paid to the hotel. Financial UK GBP 25 Financial UK GBP 1,000 Financial UK GBP 7,000 Financial UK GBP 175 Scottish Renal Society Silver Star Silver Star Sponsorship for stand space/catering at a Scottish Renal Society meeting which was attended be renal physicians throughout Scotland Financial UK GBP 550 MSD provided a financial contribution to Silver Star to assist with the Silver Star Open Forum, CCG'S & Health and Wellbeing Boards, preparing for Local Leadership Financial UK GBP 8,000 Symposium held on Thursday 14th March, 2013, House of Commons MSD worked with Silver Star to produce an educational campaign for patients around Ramadan and fasting. Financial UK GBP 18,750 Terrence Higgins Trust Subscription to Positive Nation journal Financial UK GBP 84

6 The African Eye Trust (TAET) MSD co-supported TAET's Positive Heart Programme. TAET was responsible for developing and implementing the programme. MSD provided and allowed TAET to use MSD sponsored resource entitled 'Rights, Expectations and Involvement' which was developed by the National AIDS Trust (NAT). TAET's Positive Heart Programme included 20 workshop sessions which aimed to train advocates so that they were able to hold local community sessions to raise awareness of HIV, cardiovascular disease (CVD), and the importance of adherence. Financial UK GBP 6,000 The British Liver Trust MSD paid the British Liver Trust an honorarium to participate as a member of a steering group to advise on the content of the agenda for the MSD conference, ISH (Interactive Summit on Hepatitis) to be held in 2014 Financial UK GBP 200 The Cure Parkinson's Trust The Hepatitis C trust The Cure Parkinson s Trust arranged for a patient to speak at an internal meeting of MSD staff. MSD provided travel expenses for the speaker and paid an honorarium to the Cure Parkinson s Trust. MSD paid the Hepatitis C Trust for their time and expenses to prepare and deliver a presentation on Hepatitis C for an internal MSD event to mark World Hepatitis C Day Financial UK GBP 226 Financial UK GBP 233 The Hepatitis C Trust MSD worked with the Hepatitis C Trust and organised and funded a policy round table discussion meeting with MSPs about hepatitis C in Scotland. MSD paid the Hepatatis C Trust an honorarium for its participation and costs for catering and printing for the meeting. Financial UK GBP 920 The Hepatitis C Trust MSD co-supported The Hepatitis C Trust financially and through the provision of communications agency support for the development and launch of a State of the Nation Report for HCV. Financial UK GBP 13,000

7 The Hepatitis C Trust MSD co-supported and participated in the HCV Action Group which included members from Roche Products Limited, Janssen-Cilag Limited and The Hepatitis C Trust. The Hepatitis C Trust provided secretariat and co-ordination support for the HCV Action Group. Each of the companies contributed an equal amount and The Hepatitis C Trust contributed the equivalent investment in staff costs and management. The Group's principle aim was to engage on a policy level and raise standards of delivery to reduce HCV mortality. MSD and other pharmaceutical members of the Group have an opportunity to review the final form of the outputs of the HCV Action Group for compliance with the ABPI code of practice. The Hepatitis C Trust has ultimate editorial control over the outputs. Financial UK GBP 22,000 The Hepatitis C Trust MSD provided a grant to The Hepatitis C Trust part-funding the costs of a one-day focus group to develop the profile of the undiagnosed HCV patient and gain intelligence which will inform the development of an effective awareness campaign targeted at the undiagnosed. Financial UK GBP 8,900 The National AIDS Trust (NAT) MSD provided financial support to NAT to develop an HIV Standards of Care resource for patients into a website. The resource was proposed by a Community Advisory Board which was funded and attended by MSD. Financial UK GBP 22,923 UK Sepsis Trust Wellbeing of Women (WoW) A group of 9 employees each spent 2.5 hours volunteering for Sepsis Trust during working hours, as part of the 365 Merck Days employee volunteering programme. MSD is a corporate sponsor of Wellbeing of Women. Non-Financial UK GBP 22.5 hours Financial UK GBP 4,000