Ostomy Association of Los Angeles

Transcription

1 Ostomy Association of Los Angeles Hotline # Member Newsletter Volume 17 Number 3 Oct-Dec 2018 OALA UPDATES Page 1-2 SUPPPORT MEETINGS Page 3 PHOENIX MAGAZINE A magazine dedicated to everything ostomy. TRAVEL CARD Page 7 MEMBERSHIP FORM Page 8 BE A MEMBER - UOAA NEWS Page 4- World Ostomy Day A portion of every subscription supports the UOAA! Page 6 SUPPORT OALA!! OALA UPDATES OUR LAST TWO MEETINGS WERE EXCITING AND UPLIFTING. JOE VEGA A THREE TIME CANCER SURVIVOR, DOUBLE OSTOMATE AND UOAA BOARD MEMBER VISITED BOTH THE SAN FERNANDO VALLEY AND WEST LOS ANGELES MEETINGS. JOE S MESSAGE WAS POSITIVE MIND SET AND ITS RELATIONSHIP TO RECOVERY OF PHYSICAL AND MENTAL NORMALCY. HE SPOKE OF HIS STRUGGLES WITH CANCER AND HOW HE WORKED ON BEING POSITIVE AND ACTIVE IN ORDER TO RECOVER AND LIVE HIS LIFE TO THE FULLEST. HE HAS POSTED MANY OF HIS TRAVEL ADVENTURE PHOTOS WITH HIS HUSBAND DAVID MARTINEZ. BY SHARING, HE FEELS HE IS PROVIDEING ENCOURAGEMENT TO OTHERS AND OFFERING A POSITIVE ROLE MODEL. JOE SPOKE ABOUT THE UPCOMING CRUISE FOR OSTOMATES AND CANCER SURVIVORS. THERE ARE MANY ACTIVITIES PLANNED FOR THE ENJOYMENT OF THE CRUISERS. THERE WILL BE GIFT BAGS AND INTRODUCTIONS FOR EVERYONE ON THE FIRST DAY. A MASCARADE PRIVATE PARTY AND MEXICAN FIESTA ARE PLANNED. THERE WILL BE OSTOMY PRODUCT REVIEWS, LUNCH AND OR DINNER AS A GROUP EXPERIENCE AND SEVERAL LECTURES WILL BE PRESENTED. LECTURES WILL INCLUDE DIET AND EXERCISE FOR OSTOMATES BY SPEAKERS DERIK ALEXANDER FNP-BC, CWON AND DR. ERIC MIT GRADUATE AND PROFESSOR AT UNIVERSITY OF COLORADO. JOE IS PLANNING TO PRESENT ON MINDSET MATTERS. THERE WILL BE AN OSTOMY NURSE ON BOARD TO ASSIST AS NEEDED AND ANSWER QUESTIONS ABOUT STOMA CARE AND OSTOMY PRODUCTS. FINALLY A GROUP EXCURSION IN PUERTO VALLARTA IS PLANNED. THE CRUISE SOUNDS LIKE GREAT FUN AS WELL AS AN OPPORTUNITY TO LEARN SOMETHING NEW AND BE WITH PEOPLE THAT HAVE SOMETHING IN COMMON WITH YOU. SEE THE AD ON PAGE 5.

2 S E Q U O I A C L U B DID YOU KNOW ABOUT SOME OF THE GREAT WEBSITES THAT ARE AVAILBLE TO OSTOMATES? MEETANOSTOMATE.ORG MEET AND OSTOMATE IS NOT A TYPICAL OSTOMY WEBSITE, BUT RATHER A VIBRANT MULTI-TOPIC COMMUNITY WHERE PEOPLE HAFE FUN, DISCUSS VARIOUS THINGS, LAUGH TOGETHER, CRY TOGETHER AND GIVE EACH OTHER PLENTY OF LOVE AND SUPPORT. ONE OF THE BEST FEATURES OF MEET AN OSTOMATE IS THE ABILITY TO SEARCH OTHER MEMBERS BY LOCATION, GENDER, AGE, INTERESTS AND OTHER CRITERIA. YOU WILL ALSO LOVE THE FORUM, MEMBER BLOGS, CHAT ROOM, PRIVATE MESSAGING, PHOTO GALLERY, CLASSIFIED, EVENTS SECTION AND MORE. GET SUPPORT FROM OTHER MEMBERS AND ET NURSES. MAKE FRIENDS OR MEET SOMEONE SPECIAL. FREE YOU MIND OF WORRIES AND FEARS. CONVATEC.COM CONVATEC IS AN OSTOMY PRODUCT MANUFACTURER. THEY HAVE AN EDUCATIONAL PROGRAMS IN THEIR ME+ SECTION. THERE IS INFORMATION, ADVICE AND TOOLS FOR EVERYSTEP OF YOUR OSTOMY JOURNEY. HOLLISTER.COM HOLLISER IS ANOTHER OSTOMY PRODUCT MANUFACTURER. THEY ALSO HAVE EDUCATIONAL PROGRAMS IN THEIR OSTOMY CARE LEARNING CENTER. SHIELDHEALTHCARE.COM SHIELD HEALTH CARE IS AN OSTOMY PRODUCT DISTRIBUTER. THEY OFFER GREAT VIDEOS ON OSTOMY LIFESTYLE, OSTOMY CONCERNS, AGEING ISSUES, END OF LIFE, CARE GIVER SUPPORT, ALZHEIMERS, MOBILITY ISSUES AND OTHERS. IF YOU KNOW OF ANY OTHERS SHARE THEM AT THE NEXT MEETING.

3 S U P P O R T G R O U P M E E T I N G S San Fernando Valley Location: NEW!!! Brookdale Assisted Living Burbank Bld. Tarzana, Ca nd Floor 7 pm to 9 pm. Park on the street, in back or in the US Post Office lot across the street Next Meeting: September 26, 2018 World Ostomy Day West Los Angeles Location: Veterans Memorial Complex 4117 Overland Ave. Culver City, CA 1 pm to 3 pm. Room: C Next Meeting: October 6, 2018 World Ostomy Day Upcoming Meetings: San Fernando Valley Tarzana November 28, 2018 Holiday Goodies West Los Angeles Culver City December 1, 2018 Room C Holiday Goodies SHARING IS GIVING!! PAY IT FORWARD. Mark your Calendars! 2019 San Fernando Valley January 23, Stealth Belt March 27, 2019 West Los Angeles February 2, 2019 Stealth Belt April 6, 2019 * Third Wednesday

4 O S T O M Y I N T H E N E W S October 6, 2018 World Ostomy Day WORLD OSTOMY DAY IS CELEBRATED EVERY THREE YEARS. UOAA HAS PLANS FOR MANY WAYS TO MARK THE DAY. VISIT FOR MORE INFORMATION. WE PLAN TO CELEBRATE THIS YEAR AT OUR REGULAR SUPPORT MEETINGS BY SHARING EXPERIENCES AND PLANNING FOR THE FUTURE. S WILL GO OUT ALONG WITH REMINDER PHONE CALLS TO LET THE MEMBERS KNOW HOW EACH GROUP CAN EXPECT AT THE CELEBRATIONS. BELOW IS A LETTER TO THE EDITOR THAT WILL BE SENT TO THE TIMES WITH THE HOPE THAT IT WILL BE PRINTED. PLEASE SEND THIS LETTER TO THE EDITOR TO ANY LOCAL NEWSPAPER IN YOUR AREA. DEAR EDITOR, IT ONLY HAPPENS ONCE EVERY THREE YEARS IT S WORLD OSTOMY DAY! ALL OF US HERE IN (CITY/COUNTY OR STATE) CAN HELP CHANGE LIVES. OSTOMY SURGERY SAVED (MY/LOVED ONE) LIFE AND I PLAN TO SPEAK OUT TO AS MANY PEOPLE AS POSSIBLE ON SATURDAY, OCTOBER 6, MY/THEIR LIFE IS ACTIVE AND FULFILLING AND WE NEED TO WORK TOGETHER TO END STIGMAS AND MISINFORMATION THAT STILL EXISTS. THE AIM OF WORLD OSTOMY DAY IS TO IMPROVE THE REHABILITATION OF OSTOMATES WORLDWIDE BY BRINGING TO THE ATTENTION OF THE GENERAL PUBLIC AND THE GLOBAL COMMUNITY THE NEEDS AND ASPIRATIONS OF OSTOMATES. UNITED OSTOMY ASSOCIATIONS OF AMERICA (UOAA) ESTIMATES THAT 725,000 TO 1 MILLION PEOPLE OF ALL AGES ARE LIVING WITH AN OSTOMY OR CONTINENT DIVERSION IN THE UNITED STATES. AN OSTOMY IS A TYPE OF SURGERY THAT CREATES AN OPENING (STOMA) IN THE ABDOMEN THAT ALLOWS FOR THE REMOVAL OF BODILY WASTE INTO A POUCH OUTSIDE THE BODY. THIS LIFE-SAVING SURGERY MAY OCCUR DUE TO BIRTH DEFECTS, CANCER, CROHN S DISEASE, ULCERATIVE COLITIS, TRAUMA (SUCH AS A MILITARY SERVICE INJURY OR ACCIDENT), AND OTHER MEDICAL CONDITIONS. THIS YEAR S THEME IS SPEAKING OUT CHANGES LIVES. YOU CAN SPEAK OUT BY TAKING PART IN A VIRTUAL DAY ON THE HILL, SUPPORTING A RUN FOR RESILIENCE OSTOMY 5K, AND MANY OTHER WAYS. VISIT FOR MORE INFORMATION. (NAME OF LOCAL SUPPORT GROUP/OSTOMY CLINIC) IS AVAILABLE TO ASSIST PEOPLE LIVING WITH AN OSTOMY AND THEIR CAREGIVERS. THANK YOU FOR YOUR SUPPORT,

5 N E W S F R O M T H E U O A A U P D A T E DECEMBER 1, 2018 OSTOMATES CRUISE Here we go again!! 7 Days Mexican Riviera Ruby Princess December 01, 2018 We host onboard activities only for our group!! Rates start at $549 per person MEXICAN RIVIERA- ROUNDTRIP FROM LOS ANGELES. 7 DAYS AND 3 PORTS OF PURE FUN IN THE SUN! NO WORRIES WE HAVE IT ALL PLANNED! EACH AT SEA DAY DAVID IS PLANNING FUN ONBOARD ACTIVITIES FOR US TO ENJOY! WE WILL HAVE GROUP MIXERS, BINGO AND MORE JUST FOR OUR GROUP! WE WILL DO A GROUP EXCURSION AT ONE OF OUR PORTS-OF-CALL!. MORE DETAILS TO FOLLOW. Double occupancy QUESTIONS CALL: Call Joe (626) Call David(626) CALL CINDY AT FOR BOOKINGS! DATE PORT ARRIV E DEPAR T YOU MUST BOOK THROUGH CRUISE PLANNERS SAT, DEC 1 LOS ANGELES, CALIFORNIA 04:00 PM CINDY MAGNUS Phone SUN, DEC 2 AT SEA cindy@travelwithcindy.com CABO SAN LUCAS, MEXICO Website: MON, DEC 3 (TENDER REQUIRED), (WHEELCHAIR ACCESS LIMITED) 11:00 AM 08:00 PM TUE, DEC 4 MAZATLAN, MEXICO 08:00 AM 06:00 PM WED, DEC 5 PUERTO VALLARTA, MEXICO 07:00 AM 06:00 PM

6 T H E P H O E N I X M A G A Z I N E Providing Answers for Ostomy Questions Topics addressed in each issue of The Phoenix Magazine include: * Advice from medical professionals * New ostomy products * Skin care and treatment * Odor control * Sex and intimacy * Emotional and psychological issues * Diet and exercise * Surgery techniques and advancements * Personal stories of recovery The Phoenix is printed 4 times a year for one year subscription for $ The Premier Online Version of The Phoenix magazine allows instant access to an electronic version at a discounted rate of $19.95 for a one-year subscription. Plus, a back issue is included at no additional charge. Click here for more information. The Phoenix is the official publication of the United Ostomy Associations of America. Subscriptions are a major source of funding for the UOAA to help improve the quality of life of people who have, or will have, an intestinal or urinary diversion.

7 T R A V E L I N G W I T H A N O S T O M Y

8 O A L A M E M B E R S H I P - N E W / R E N E W

9 I N F O R M A T I O N C C O N T A C T U S HAVE OSTOMY SUPPLIES THAT YOU NO LONGER USE?? Contact: Friends of Ostomates World Wide Phone Number: Or Ostogroup Our Hotline is Mailing Address: Ostomy Association of Los Angeles 4000 Magnolia, Suite D Box # 140 Burbank, CA Website: Did you miss a newsletter? Our past newsletters are online, check them out!

10 OALA 4000 Magnolia, Suite D Box # 140 Burbank, CA I N F O R M A T I O N