Prostate Cancer UK s current campaigns
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- Madeline Stevenson
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1 Prostate Cancer UK s current campaigns Tackle Annual Meeting 13 June 2017 Morven Masterton Head of Outreach
2 Strategy Prostate Cancer UK introduced a new strategy in early 2016 to tame prostate cancer and reduce the impact diagnosis and treatment has on an individual. We are focused on four big changes to achieve this ambition: 1. Better Diagnosis 2. Better Treatments 3. Better Prevention 4. Better Support
3 Improving treatment and support for men suffering from Erectile Dysfunction (ED)
4 Our aim is to: Ensure all prostate cancer patients receive: standardised, up-to-date ED care and support, providing an individual with a choice of support services regardless of where they live in the UK.
5 Campaign aims and objectives ED national guidance to be updated so men can access the treatments they need (return to pre-treatment baseline function) All men have access to the following 5 ED services/support PDE5-i (Daily low Cialis) VED ED Clinic Psychosexual services Counselling Men are empowered to campaign to improve services locally HCPs/commissioners recognise and priorities the need for ED services to improve the quality of life of prostate cancer patients HCPs/commissioners supported to improve ED services in their local area
6 Where we are now Of all men who have had treatment for prostate cancer: 76% have experienced erectile dysfunction 30% say their ED treatment met their needs 47% said it had an impact on relationships (Prostate Cancer UK Survey 2012)
7 No-one understands the impact of the side effects I have. Noone asks or helps. My life is destroyed. To a certain extent I have come to accept that my sexual life is over. It seems a calmer and more peaceful option than the frustration of fighting for attention in the NHS.
8 National Commissioning Guidelines The current guidance on impotence prescribing - called the Health Services Circular on Impotence (HSC 1999/148) - was produced in 1999 and fails to provide current best practice for treating men with prostate Piecemeal updates. We think this needs to change
9 Inequality in ED care & support Freedom of Information 237 commissioners (Daily low Cialis, VED, ED Clinic, Psychosex, Counselling) Postcode lottery Compare with results of Cancer Patient Experience Survey Targeted local campaign 23 areas that offer less than 3 ED services Nearly ½ CCGs/Health Boards/Social Care Trusts couldn t confirm or did not offer an ED clinic 92 couldn t confirm/did not offer Vacuum Erection Devices (VEDs)
10 Empowering men Online campaign platform - Better Care Empowering men Local campaigns How does your local commissioner compare Improved recognition of need Up to date picture
11 Men and partners involved (so far) Campaign Action November 16 December 16 January 17 Totals Visitors to website Individuals who searched postcode Completed local action Completed national action 5,882 1, , ,
12 Support Health Care Professionals HP advisory group Campaign platform Bespoke erectile dysfunction masterclasses Primary Care Masterclasses Prostate Cancer UKs Specialist Nurse
13 Improving access to Clinical Nurse Specialists (CNS)
14 Our call to action Every man living with and beyond prostate cancer will have access to the expertise of a specialist nurse who effectively supports them at specific points in their treatment/care pathway
15 Access to a CNS Some of the key advantages of having access to a CNS: Having access to, and being provided with, written and verbal information Having a point of contact for support and answers to questions Signposting to appropriate and essential services Having results explained Being consulted about treatment options and making informed decisions Feeling emotionally supported
16 Commissioned CNS research The specialist nursing workforce caring for men with prostate cancer in UK Report 2014 Caseloads Administrative support requirements Succession / Workforce planning Strategic workforce planning requirements Provision of education / Workforce development - not equitable, and heavily reliant on self-funding or pharma and charitable support to advance knowledge and skills Multi Disciplinary Teams poor MDT functioning (the foundation of good cancer care) Instability constant cycles of workforce reviews Equality of access unequal distribution of specialist prostate cancer care across the geographical regions
17 What we ll be doing Work with Governments, NHS, Cancer Alliances and other key stakeholders across the four nations, calling for decision makers to address gaps in urology Inspire the existing nursing workforce to specialise in prostate cancer and urology through promotion and our education bursaries Develop a urology career pathway with key stakeholders to help student nurses and nurses in adult health understand the opportunities working in urology
18 When? Project activities will run from May until October Evaluate progress and review new data / intel to inform next steps to feed in to bigger picture
19 For further information, please contact: Morven Masterton ED: Steven Rowntree CNS: Jade Fairfax Prostate Cancer UK is a registered charity in England and Wales ( ) and in Scotland (SC039332). Registered company number
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