Identification of heart patients everyday need based on user driven innovation

Transcription

1 Identification of heart patients everyday need based on user driven innovation Lisa K. E. Hæsum 1 ; Gitte Nielsen 2 ; Stine V. Hangaard 1 ; Ole K. Hejlesen 1 ; Birthe Dinesen 1. 1 Aalborg University, Department of Health Science and Technology, Aalborg, Denmark 2 Vendsyssel Hospital, Hjørring, Denmark Med e Tel 2012

2 Agenda 1. Background and aim with the project 2. Methods 3. Preliminary findings 4. Conclusion

3 Background The evidence base for the use of telemonitoring HF patients remains inadequate (Dang et al 2009) The effectiveness of telemedicine in HF has not been established, and the profile of patients who can benefit from telemedicine is unknown and should be explored further (Anker et al. 2011) In Denmark, only 3%, of more the 86,000 Danes hospitalised each year with heart and circulation problems are offered full course of rehabilitation ( Danish Heart Association 2009) It is documented that a coherent education based rehabilitation programme of heart patients reduces mortality by 35% and the risk of getting a blood clot by 29% ( Hemmingway 1999)

4 Overall aims To identify known and unknown needs of heart patients and relatives for rehabilitation during everyday life. To develop new ways of rehabilitating heart patients by employing telerehabilitation technologies. To develop and test new telerehabilitation technologies and concepts/ scenarios seeking to create a more coherent course of rehabilitation for heart patients by introducing new means of patient education and organisation.

5 Patients diagnosed: Target group Heart failure Arrhythmia Bypass operated patients Acute myocardial infarct

6 Aim of the presentation To identify the known and unknown needs of heart patients and their relatives for rehabilitation technologies in everyday life

7 Methods

8 User driven innovation ( von Hippel 2005)

9

10 Data collection techniques Ethnographic studies (O Reilly 2009) Participant observations and visets in patients homes (n=10) Cultural probes (digital photos; postcards; letters to relatives) Qualitative interviews (n=10) Interdiciplinary workshops (3 of 4 hour) Data are transcribes and analysed in Nvivo 8.0

11 Preliminary results (1) Needs related to technology Technology for rehabiltation must be: Resposive to individual needs Flexible according to the patients level of health literacy and technological skills Be motivating Mobile I want to perfom rehabilitation activities any where any time Interactive ability for the patients to conduct self monitoring and manage their own disease

12

13 Preliminary results (2) Needs related to informations in the rehabilitations proces Recieve general information about their disease in a more easy manageable way I have received many little books and brochures I would like to have them one place More individual guidance on rehabilitation issues I need a place where I can have all the informations regarding myself Possiblitity to contact and consulation with healthcare professionals regarding specific questions and issues during the rehabilitation proces

14 The free and active heart patient

15 Conclusion Based upon the userdriven innovation proces we have developed new technologies and a new scenario for telerehabilitation of heart patients that is going to be tested in a randomised control trial fall 2012.

16 Acknowledgement The research project is part of the UNIK partnership financed by the Danish Agency for Science Technology and Innovation ( Heart patients and their relatives Industrial partners ( Clinical partners Vendsyssel Hospital, Denmark The municipality of Hjoerring, Denmark The municipality of Frederikshavn, Denmark.

17 References Anker S, Koehler F, Abraham W, Telemedicine and remote management of patients with heart failure. The Lancet, 378, pp Danish Heart Association, Heart patients use and experience of Rehabilitation. Dang S et al. Evaluating the Evidence Base for The Use of Home Telehealth Remote Monitoring in Elderly with Heart Failure, Telemedicine and e health 15(8), pp Hemmingway H, Marmot M., Evidence based cardiology. Psychosocial factors in the etiology and prognosis of coronary heart disease: Systematic review of prospective cohort studies. British Medical Journal, 318: O Reilly K, Key Concepts in Ethnography, London.