Alzheimer Europe Conference in Brussels May 2009 Programme Overview

Transcription

1 Alzheimer Europe Conference in Brussels May 2009 Programme Overview Thursday, 28 May Opening Ceremony and Keynote lecture Welcome Reception Friday, 29 May Symposium: Improving the quality of life of and their carers Coffee break Parallel Session Education and training Parallel Session Outreach programmes Parallel Session Dementia policies Informal workshop for Parallel Session in Dutch Lunch Company sponsored Symposium (Pfizer) Oral presentations Oral presentations Parallel Session Carers of people with dementia Parallel Session Scales and care measures Parallel Session Involving Symposium: Legal and ethical issues in dementia Gala Dinner Saturday, 30 May Symposium: The European Collaboration on Dementia Coffee break Parallel Session Assistance and support (Institutional care) Parallel Session National experiences Parallel Session Ethical and legal issues Lunch Parallel Session Assistance and support (Home and respite care) Parallel Session New technologies Parallel Session End-oflife, palliative care and advance directives Round-table: Prioritising dementia in Europe Closing Ceremony Parallel Session Dementia diagnosis and treatment Parallel Session in German Parallel Session Young Parallel Session in French Parallel Session in Dutch Parallel Session in French

2 Detailed Programme Thursday, 28 May (Plenary Room): Opening Ceremony Welcome by Henry Sabine and Jan Hertecant, Chairperson and Vice-Chairperson of Ligue Nationale Alzheimer Liga (Belgium) Maurice O Connell, Chairperson of Alzheimer Europe (Ireland) (Plenary Room): Keynote lecture Androulla Vassiliou: EU Commissioner for Health (Cyprus): The commitment of the European Union to the fight against Alzheimer s disease Welcome reception Friday, 29 May (Plenary Room) Symposium: Improving the quality of life of people with dementia and their carers Persons with dementia (Belgium): The experience of and their views on quality of life Sigurd Sparr (Norway): Alzheimer Europe recommendations for quality care at the end-of-life Michel Ylieff (Belgium): Quality of life from the view of medical professionals Coffee break (Plenary Room) Parallel Session: Education and training Mary Aldridge (United Kingdom): Caring for people living away from home : collaborative working between NHS mental health services and social care Vigdis Drivdal Berentsen (Norway): A method for improving professional knowledge in the community health services Paul Fenton (United Kingdom): CARERS: Education and training for informal carers Kevin Charras (France): Impact of environmental changes and training on professional caregiver practices Judith Farmer (United Kingdom): Role play, experiential learning and dementia care practice: a preliminary study using a grounded theory approach (Room A) Parallel Session: Outreach Programmes Christian Gilles (Belgium): ARDEM: towards multidisciplinary integrated care to patients with dementia in south-belgium rural area Martin Sewell (United Kingdom): Dementia care in the highlands of Scotland Nienke van Wezel (Netherlands): Weten over Vergeten: dementia education for Turkish, Moroccan and Surinamese people Alison Bowes (United Kingdom): Information provision for and their carers: lessons of some Scottish research Thilo Kroll (United Kingdom): Homelessness and dementia: Addressing complex service needs and trajectories (Room B) Parallel Session: Dementia policies Ursula Naue (Austria): Dementia, disabling conditions, society and political priorities. Lessons learned from disability movement Maija Juva (Norway): From National Dementia Plan to local reality Marc Wortmann (United Kingdom): The role of Alzheimer associations in campaigning for change Katalin Ersek (Hungary): Disease burden of dementia in Hungary

3 Paul Ariel Kenigsberg (France): The changing economic environment of Alzheimer s disease in France (Room C) Parallel Session: Informal workshop for (Room D) Parallel Session in Dutch Lunch (Plenary Room) Company Sponsored Symposium (Room C) Oral poster presentations (Room D) Oral poster presentations (Plenary Room) Parallel Session: Carers of Loretto Lacey (Ireland): Increasing patient dependence on others is associated with increased caregiver subjective burden Sandra van Beek (Netherlands): Informal caregivers of patients with dementia experienced problems and needs for professional help Bente Nordtug (Norway): Social support of cohabitants having partners suffering from dementia or chronic pulmonary disease Christopher Kofahl (Germany): Differences between family caregivers of dependent old people with dementia and old people without cognitive impairment in six European countries Paraskevi Sakka (Greece): Alzheimer patients caregivers survey in Greece (Room A) Parallel Session: Scales and care measures Laurent Lefebvre (Belgium): Improving quality of life for Alzheimer s patients by using their preserved language abilities Martin Dichter (Germany): Measuring psycho-social aspects of people suffering from dementia in nursing homes with quality of life (QoL) instruments Pierre Missotten (Belgium): Influence of place of residence on relationship between cognitive decline and quality of life in dementia Ramona Lucas-Carrasco (Spain): Psychometric properties of the WHOQOL-BREF in patients with dementia Roland Wetzels (Netherlands): Validity of the severe impairment battery short version Julien Ochs (France): Pilot study of the functional behaviour profile (FBO): An assessment tool for identifying productive behaviour in daily life (Room B) Parallel Session: Involving Elizabeth Byrne McCullough (United Kingdom): Listening Well : Ensuring effective involvement of in the development of government strategy Angela van Baalen (Netherlands): Client-centred care for Federico Palermiti (France): Participation of in social and psychosocial research (MADERE Study) Anders Westius (Sweden): View of life in persons with Alzheimer s disease Claire Louise Craig (United Kingdom): Journeying through dementia: developing a selfmanagement programme for : A UK study Barbara Romero (Germany): Self-maintenance therapy in family rehabilitation programme (Room C) Parallel Session: Dementia diagnosis and treatment Jan de Lepeleire (Belgium): Care diagnosis: Improving the quality of primary care for people with dementia Hendrik van den Bussche (Germany): Improving the collaboration between family physicians and community nurses in dementia care Pasquale Calabrese (Switzerland): The 4 W of cognitive evaluation in dementia why, whom, when and how

4 Devdutta Joardar (United Kingdom): The three treatment trial (3T s) A feasability study in patients with Alzheimer s dementia Louise Lakey (United Kingdom): The prescription of anti-psychotic drugs to people with dementia in care homes Gilles Squelard (Belgium): Persistence of behavioural and psychological disorders in elderly Barbara Cramer (Germany): Cognitive-behavioural, resource-sensitive treatment for early dementia in Alzheimer s disease (CORDIAL) (Room D) Parallel session in French (Plenary Room) Symposium: Legal and ethical issues in dementia Philip Bentley (Belgium): Legal problems as experiences by and carers in Belgium Blankman Kees (Netherlands): The Council of Europe recommendations on proxy decision making and advanced planning Katona Cornelius (United Kingdom): The World Psychiatric Association recommendations on ethics and consent Gala Dinner Saturday, 30 May (Plenary Room) Symposium: The European Collaboration on Dementia Chairperson: Antoni Montserrat (European Commission) Reynish Emma (United Kingdom): The prevalence of dementia in Europe Frölich Lutz (Germany): Is Alzheimer s disease preventable? McShane Rupert (United Kingdom): The diagnosis and treatment of dementia Vernooij-Dassen Myrra (Netherlands): Psycho-social interventions in dementia Wimo Anders (Sweden): The cost of dementia in Europe Gove Dianne (Luxembourg): Social support for and their carers Coffee break (Plenary Room) Parallel Session: Assistance and support (Institutional care) Clive Baldwin (United Kingdom): A pluralist evaluation of memory services: Perspectives from people with memory problems, their families and memory service staff Maria McManus (United Kingdom): Making meaningful activities happen in care settings Hein van Hout (Netherlands): Needs of persons with and without dementia in nursing homes Sabine Jansen (Germany): People with dementia in hospitals Margarete Halek (Germany): Interdisciplinary implementation of quality instruments for the care for in nursing homes Jean Szilagyi (USA): Explaining American standards of care in geriatric settings (Room A) Parallel Session: National experiences Satu Kalliomaa (Finland): The image of dementia work in Finland Peter Koson (Slovakia): Centre Memory Complex assistance and care for Alzheimer s disease patients and their relatives in Slovakia Anthea Innes (United Kingdom): Experiences of and their carers in Malta Bénédicte Gombault (Belgium): Dealing with Alzheimer s disease and related diseases: a transdisciplinary initiative of the King Baudouin Foundation

5 Brittany Ellis (United Kingdom): A Strategic Plan for dementia care in Fife, Scotland Florence Pasquier (France): Project of a national reference centre for patient with early onset Alzheimer s disease (Room B) Parallel Session: Ethical and legal issues James Pearson (United Kingdom): The legal rights of in health and social care Jan Killeen (United Kingdom): Dementia: autonomy and decision making principles into practice David Findlay (United Kingdom): Welfare Guardianship and hospital discharge in Scotland Alistair Niemeijer (Netherlands): Disabling or enabling technology? Ethical and practical concerns of assistive and surveillance technologies in formal dementia care Hannele Laaksonen (Finland): Patient violent behaviour as ethical problem Michael Schmieder (Switzerland): Sexual questions for (Room C) Parallel Session in German (Room B) Parallel Session in Dutch Lunch (Plenary Room) Parallel Session: Assistance and support (Home and respite care) Julie Bourgeois (France): Assessing situations of risk and safety of community-dwelling people with dementia: a pilot study Magda Tsolaki (Greece): Team of care at home in severe dementia Marion Villez (France): Evolution of the concept of respite and respite care services: an international perspective Laëtitia Ngatcha-Ribert (France): Respite care services for people with Alzheimer s disease and their carers: a socio-political review Bérengère Davin (France): Economic valuation of formal and informal care in French disabled elderly living at home (Room A) Parallel Session: New technologies Colm Cunningham (United Kingdom): Developing a dementia design audit Franka Meiland (Netherlands): Electronic assistance for community dwelling people with dementia: user-driven development of a cognitive prosthetic device Deborah Randall (USA): Telehealth and Telecare for the Alzheimer patient Inger Hagen (Norway): Can technology support the quality of life of? Signe Baksaas Gjelstad (Norway): Web-based tertiary education for health care professionals working within the dementia care and geriatric psychiatry fields (Room B) Parallel Session: End-of-life, palliative care and advance directives Karen Harrison Dening (United Kingdom): Assessment of the palliative care needs of patients with advanced dementia in Haringey Jennifer Henderson (United Kingdom): The Beyond Barriers project Kay de Vries (United Kingdom): Development of a hospice based education programme for health care professionals focusing on end-of-life care for Marike de Boer (Netherlands): Advanced euthanasia directives in dementia: why are they not effective? Kees Blankman (Netherlands): Planning for future incapacity by continuing powers of attorney (Room C) Parallel Session: Young

6 Louise McCabe (United Kingdom): Alcohol, ageing and dementia: a Scottish perspective Elisabeth Philipp-Metzen (Germany): Familial solidarity and the willingness to care in future: The point of view of grandchildren of Kjersti Wogn-Henriksen (Norway): Selfunderstanding and dementia Yolande Pijnenburg (Netherlands): Frontotemporal dementia in the Netherlands Deliane van Vliet (Netherlands): The NeedYD study: How do caregivers of patients with young onset dementia perceive the period prior to diagnosis? (Room D) Parallel Session in French (Plenary Room) Round-table: Prioritising dementia Moderator: Magda Aelvoet (Belgium) Jacques Brotchi (Belgium) Teresa di Fiandra (Italy) Nick Fahy (European Commission) Neil Hunt (United Kingdom) Joël Ménard (France) Mike Splaine (USA) Closing Ceremony Sabine Henry & Jan Hertecant (Belgium) Welcome to the 20th AE Conference in Luxembourg O Connell Maurice (Ireland)