September 23, :00 11:00 a.m. Scottish Rite, 4 Queen Street South, Hamilton Draft Minutes

Transcription

1 Hamilton Niagara Haldimand Norfolk Brant Burlington Dementia Network Réseau de la démence de la région Hamilton Niagara Haldimand Norfolk Brant Burlington September 23, :00 11:00 a.m. Scottish Rite, 4 Queen Street South, Hamilton Draft Minutes Present: Mary Burnett (co-chair), Michelle Gagnon (co-chair), Jane Beamer, Deb Bryson, Marge Dempsey, Margaret Denton, Marg Eisner, Carol Howarth, Carrie McAiney, Barb McCoy, Ainsley Moore, Anne Pizzacalla, Shannon Richardson, Gail Riihimaki, Lynn Sage, Debora Saville, Lori Schiappa, Lesley Smith, Hendrika Spykerman Absent: Julia Baxter, Barbara Busing, Cathy Easterbrook, Marion Emo, May Groves, Joanne Hawkins, Janis Humphrey, Gail MacKenzie, Kathie Savage, Linda Smith, Brenda Tozer, Christine Vernem, Susan Wavell, Carrie Wozny Recorder: Jane Beckett 1. WELCOME AND INTRODUCTIONS Co-chairs, Mary Burnett and Dr. Michelle Gagnon welcomed all present to the inaugural meeting of the LHIN 4 Dementia Network. Introductions were conducted of all present. An attendance list was circulated with the request to provide contact information for the creation of a directory. Eisner noted that she had invited a couple of care partners to attend; they were not available on this date. 2. REVIEW OF TERMS OF REFERENCE The terms of reference were reviewed for errors and omissions. MOTION: Moved by Carol Howarth and seconded by Deb Bryson that the Terms of Reference (Appendix 1) be approved. CARRIED 3. UPDATE ON THE ONTARIO DEMENTIA NETWORK The Terms of Reference and work plan for the Ontario Dementia Network (ODN) were circulated prior to this meeting. Bill Dalziel and Kathy Wright will co-chair the ODN. The ODN

2 will survey and identify gaps and opportunities and undertake advocacy on a provincial level. Every LHIN Dementia Network attended (although not all LHINs have dementia networks). There may be a provincial conference at some point although the network is still in its infancy. 4. RESULTS FROM SURVEY OF MEMBERS RE: AREAS OF PRIORITY FOR 2009/2010 An online survey was conducted and 15 responses were received. Education (of physicians, front line workers and people with dementia) was clearly identified as the most important issue. Need to determine how to provide the education, to whom and when. For example how to educate and support Personal Support Workers? The Personal Support Worker Education fund has $600,000 per year but many people are not aware of its existence. Anne Scott was seconded to oversee the program. McAiney noted that the 3 month geriatric psychiatric rotation is now changing to 6 months in Ontario. Dr. Gagnon added that physicians wishing to call themselves Geriatric Psychiatrists will have to re-write their exams. One way to provide cost-effective training is via the Telehealth Network. Many Long Term Care (LTC) facilities can t spare staff for long periods of time but they could spare staff to participate in a 30 minute webinar right in the unit. Support from management of the LTC facilities to change the philosophy of care is critical if meaningful change is to occur. T.R. Adams LTC facility now requires staff to have formal geriatric training. That meant training superseded seniority was a huge step. Eisner noted that the First Link program is helping to engage family physicians and family health teams. We demonstrate how the program will help them and are receiving more referrals as a result. The need for a common screening process was identified. Should everyone over the age of 75 be screened? They are the group at greatest risk for dementia. The need to reduce hospital admissions for people with dementia was also discussed. How can we support people so they can remain in the community when staffing levels have not increased but the number of people affected by dementia has. This led to a discussion on funding issues as there has been a significant reduction in Geriatric Service Funding. 5. KEY PRIORITIES Capacity - Build capacity within existing structures. Education - Complement education with supportive managers and leaders. Identify how to support staff and implement change. Education in and of itself won t work. Changing Practices - Before training takes place, there must be a plan to implement new practices measure outcomes. Advocacy Provide dementia training to Compliance officers in LTC facilities. LHIN4 Dementia Network Minutes Sept. 23, 09 2

3 Policy Disconnects Example, compliance policies often create barriers for PWD in LTC facilities. Develop policies and protocol for ER staff to provide appropriate support to PWD who go to ERs. Some may suffer from dementia related issues such as self neglect. Eisner noted that the Mississauga Halton LHIN has a Geriatric Nurse Specialist who follows patients who came to emergency and were not admitted. ACTION ITEM: Moore s Family Health Team (FHT) was identified as a model to use where Specialized Geriatric Services have been integrated into clinical care. ACTION ITEM: Conduct a survey of local dementia networks to determine their priorities and also to determine what has worked to bring about change. ACTION ITEM: Eisner to look into interdisciplinary study on aging and health at a provincial level that David Murray was involved in. ACTION ITEM: Consider developing a proposal for Aging at Home Funding aimed at reducing admissions in the LHIN4 catchment area. 6. DISCUSSION OF NETWORK AND SUB-COMMITTEE DEVELOPMENT EXECUTIVE COMMITTEE Members (one from each area) Mary Burnett, Co-chair; Michelle Gagnon, Co-chair; Marge Dempsey, Niagara; Leslie Smith, Haldimand Norfolk; Carol Howarth, Brant To facilitate the work of LHIN4 Dementia Network Goals To plan the LHIN4 Dementia Network meetings To take action on behalf of the LHIN4 Dementia Network as appropriate Membership Chair/Co-chairs of the LHIN4 Dementia Network A representative from each of the communities captured in LHIN4 LHIN (Hamilton, Niagara, Haldimand Norfolk, Brant, Burlington) if not already represented by the Chairs/Co-Chairs Chairs of the LHIN4 Dementia Network standing committees Chair or Co-Chair of LHIN4 Dementia Network will be Chair of the Executive Committee Term of membership Two years, renewable Frequency of meetings At least quarterly LHIN4 Dementia Network Minutes Sept. 23, 09 3

4 Attendance at meetings Where appropriate, proxy representation is acceptable Location of meetings Meetings to be held by conference call Accountability The Executive Committee is accountable to the LHIN4 Dementia Network Other The Executive Committee may create task forces or ad hoc committees from time to time SERVICE DELIVERY COMMITTEE Look at system of services. Members: Marg Eisner, Co-Chair; Jane Beamer, Co-Chair; Ainsley Moore; Anne Pizzacalla; Julia Baxter, Carrie McAiney; Marge Dempsey; Gail Riihimaki NOTE: The core group can invite others. Suggest Linda Creswell at West Lincoln. Facility is keen to become more engaged. Lynn Sage to forward name from LTC. Suggest member with client/family perspective. Suggest someone from MAREP To further develop a more coordinated and efficient system for clinical care and service delivery Goals To develop a more coordinated system of assessment and treatment services To identify and address issues and gaps in service provision To work in collaboration as appropriate with the Physician Education, Education, Research, and Public Policy Committees Membership LHIN4 Representatives (up to two: one of whom will be the Chair) Geriatric Mental Health Outreach Program Discharge Planner from Acute Care A representative for Adult Day Programs A representative for Residential Programs A representative for Long Term Care homes General practitioner A representative from Diagnostic Clinic A representative from the Alzheimer Society A person with early stage dementia A care partner A representative from Hamilton, Niagara, Haldimand Norfolk and Brant if not already represented in above membership Others as appropriate Where members are representing an organization, it is the expectation that they will consult with their respective constituency. LHIN4 Dementia Network Minutes Sept. 23, 09 4

5 Terms of membership Two years renewable Frequency of meetings Quarterly Attendance at meetings Where appropriate, proxy representation is acceptable Location of meetings To be determined by the membership of the committee Accountability The LHIN4 Service Delivery Committee is accountable to the LHIN4 Dementia Network Other The LHIN4 Service Delivery Committee may create task forces or ad hoc committees from time to time PHYSICIAN EDUCATION COMMITTEE Supporting family doctors Members: Michelle Gagnon, Chair; Lynn Sage, Ainsley Moore, Lori Schiappa, Carrie McAiney Marg Eisner (as resource) NOTE: Carrie to enlist member from FHT to join (provide a unique perspective) To improve diagnosis, treatment and management of dementia Goals to develop a more coordinated approach to dementia education to provide innovative education and information services for family physicians in the LHIN4 LHIN region to identify gaps and issues in dementia education to work in collaboration as appropriate with the Physician Education, Education, Research, and Public Policy Committees Membership LHIN4 representatives (up to two; one of whom will be the chair) Specialized Geriatric Services in LHIN4, St. Joes Acute Care, Dr. Malloy s Memory Clinic, PMAC, HOAP, Chedoke Geriatric Assessment Clinic etc Regional Geriatric Program Central Family Physicians Hamilton FHT (or other FHT) Specialists Family Member LHIN4 Dementia Network Minutes Sept. 23, 09 5

6 A representative from Hamilton Halton, Niagara, Haldimand Norfolk, Brant if not already represented in above membership Others as appropriate Ex-officio: First Link Coordinators Alzheimer Societies (provide support to the Chair) Where members are representing an organization, it is the expectation that they will consult with their respective constituency. Coordination of Committee Support to the Chair is provided by an Alzheimer Society Chapter Term of membership Two years, renewable Frequency of meetings Approximately four times per year Attendance at meetings Where appropriate, proxy representation is acceptable Location of meetings To be determined by the membership of the committee Accountability The LHIN4 Physician Education Committee is accountable to the LHIN4 Dementia Network Other The LHIN4 Physician Education Committee may create task forces or ad hoc committees from time to time EDUCATION COMMITTEE Members: Marge Dempsey, PECs? NOTE: CGEC and membership - can it work as a subcommittee? To further develop a more coordinated system for education related to dementia Goals to develop more coordinated educational and information services in the area of dementia for individuals, care partners, and agencies to facilitate delivery of relevant education resources to identify gaps and issues in dementia education to work in collaboration as appropriate with the Physician Education, Service Delivery, Research, and Public Policy Committees LHIN4 Dementia Network Minutes Sept. 23, 09 6

7 Process: Recommendation Whenever possible, the LHIN4 Dementia Network will work with existing committees/networks. The recommendation is that: The existing CGEC which addresses gerontological education for staff provide recommendations as to how CGEC can be expanded to include education needs of individuals with dementia and their care partner RESEARCH COMMITTEE* Members: Hendrika Spykerman, Marg Denton, Carrie McAiney Eisner suggested that Inventory of researchers would be valuable. Marg Denton noted that Mac has an inventory. Primary: To promote and facilitate research directly pertinent to the objectives of the LHIN4 Dementia Network Secondary: To facilitate dementia research in general. Goal To facilitate research within member agencies that supports the mandate of the LHIN4 Dementia Network *to be developed There is at the present time, a joint Research Committee has been established to serve the needs of the Alzheimer Societies of Hamilton Halton, Brant, Haldimand Norfolk. Is there some way to use this present structure and build on it? HNHB PUBLIC POLICY COMMITTEE Members: Mary Burnett, Deb Bryson, Debora Saville The HNHB Public Policy Committee will be formed from the current ad hoc Advocacy Committee of the Alzheimer Society of Hamilton Halton and the HNHB Dementia Network. The purpose of the HNHB Public Policy Committee is to improve the quality of life for those with dementia and their families through a proactive plan to influence various levels of government, planning agencies and service providers. Goals to bring political awareness and support of HNHB Region s dementia priorities and issues to respond to issues raised in the community of importance to those coping with dementia Membership LHIN4 Dementia Network Minutes Sept. 23, 09 7

8 Minimum of 2 members from the LHIN4 Dementia Network Minimum of 2 members from the Alzheimer Society of Hamilton Halton Others as appropriate Term of Membership Two years, renewable indefinite terms will apply when the member is selected by an organization Frequency of meetings At least quarterly Location of Meetings In Hamilton and/or by conference call Accountability The Alzheimer Society of Hamilton Halton Board of Directors, and the LHIN4 Dementia Network 7. RESEARCH ACTIVITIES REQUESTING LETTERS OF SUPPORT Burnett explained that the requests from MAREP and AKE were unclear and this group should develop a process to deal with such requests. Both deadlines have now passed but will have other requests in the future. ACTION ITEM: Requests for letters of support for research projects will now go to the Research Committee for review and recommendation. 8. OTHER BUSINESS The name of the group was discussed. LHIN 4 Dementia Network is the current name but any other suggestions are welcome. 9. NEXT MEETING Meetings will be held quarterly on the second Wednesday of the month. The next meeting will be Wednesday, December 9 th. 9:00 a.m. 11:00. a.m. at the Scottish Rite. The December meeting agenda will focus on feedback from Committees LHIN4 Dementia Network Minutes Sept. 23, 09 8

9 Appendix 1 LHIN4 DEMENTIA NETWORK TERMS OF REFERENCE Purpose: To further develop an integrated system of care which includes service delivery, education, advocacy and research, for persons with dementia and their care partners. Goals: Develop a more coordinated system of assessment and diagnosis focusing on early diagnosis and intervention Develop a clear path through the continuum of care by identifying issues and gaps in service provision and facilitating processes for change Support coordination and development of educational and information services in dementia for clients, care partners, physicians and service agencies. Develop coordinated research efforts into dementia and associated problems Provide a coordinated focus on public policy issues Establish a strong presence within the LHIN as the leader in dementia care Collaborate with the Geriatric Access and Integration Network (GAIN) Link and collaborate with other sectors/networks as appropriate Advocate for regional needs and when relevant, for local needs Accountability: The Dementia Network is accountable to its membership. Membership: Ontario Association of Non-Profit Homes and Services for Seniors Ontario Long Term Care Association HNHB LHIN Senior Manager HNHB LHIN Community Support Services Network HNHB Community Care Access Centre CAMH Complex Continuing Care Acute care Regional Geriatric Program Central OPAAD Family Physician/Specialist (2) Representative from GAIN Geriatric Mental Health Outreach Programs Retirement Homes) Behavioural Assessment Units University; Research focus Community College Dementia Network of Haldimand Norfolk Dementia Network of Niagara Dementia Network of Brant LHIN4 Dementia Network Minutes Sept. 23, 09 9

10 Dementia Network of Hamilton Dementia Network of Mississauga Halton Alzheimer Society: at least 2 PRC Care Partners (2) Others as appropriate (When members are representing an organization, it is the responsibility of the member to consult with their respective constituency) Terms of Membership: Two year, renewable Frequency of Meetings: Quarterly Decision Making: Decisions are the collective responsibility of all the members and the preferred method will be through a consensus process. A decision will be decided by a vote of 50% + 1 of the quorum in attendance Quorum: Representatives from each of the 5 regions must be present before a vote can take place. The regions being: Haldimand Norfolk, Brant, Hamilton, Burlington, Niagara Chair/Co-Chairs: The Term of Office will be for two years. Co-chairs to be leaders in dementia care from the community and a physician champion. Community co-chair will provide the administrative support to the Network. Location of Meetings: The location of meetings will be determined by the membership. Other: The HNHB LHIN Dementia Network may create task forces or ad hoc committees from time to time. LHIN4 Dementia Network Minutes Sept. 23, 09 10