Parkinson s Disease Clinical Specialist. Information for Patients
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1 Parkinson s Disease Clinical Specialist Information for Patients
2 About the service You have been referred to the Parkinson s Disease Clinical Specialist (PDCS) because you have been diagnosed with Idiopathic Parkinson s Disease. The service is open to anyone with a diagnosis of Idiopathic Parkinson s Disease, who is registered with a Milton Keynes GP. Services are provided in clinic, by telephone or in the person s home for those unable to travel. The PDCS works closely with your Consultant Neuorologist and the Neuro Rehabilitation Service at Bletchley, which has the following specialities: Occupational Therapy, Psychology, Physiotherapy, Speech and Language Therapy and links to Dietetics. Services provided include: Information, education, advice and support about Parkinson s and its management and care, to people with a diagnosis of Idiopathic Parkinson s Disease, their families, carers and professionals. Helping people with Idiopathic Parkinson s Disease to manage their continuing health and care needs, including completing assessments and reviews and making referrals to appropriate services.
3 Useful contacts Parkinson s UK National Office Parkinson s UK 215 Vauxhall Bridge Road London SW1V 1EJ Tel: enquiries@parkinsons.org.uk National Help Line Freephone Local Parkinson s UK Information Support Officer Gill Wills Tel: gwills@parkinsons.org.uk Gill assists with information and social care queries. Milton Keynes Support Groups The local Parkinson s UK branch runs several groups, many are held at Centrecom Meeting Place, 602 North Row, Central Milton Keynes, MK9 3BJ. Wednesday Support Group: Meet at Centrecom at 2pm on the last Wednesday each month (except December). Please contact Doug on or Gaynor Saturday Support Group: Meet at Lovat Fields Retirement Village, one Saturday each month, at 10.30am. Please contact Julie Davies on or julie.davies@ btinternet.com for information. Tai Chi Exercise Class: Meet at Centrecom on the first and third Saturday at 11am for one hour. Please contact Doug on or Margaret on Blue Notes Singing Group: Meet at Centrecom on the first and third Tuesday at 3pm. Please contact Barbara on Walking Group: Please contact Doug on
4 Other useful Contacts Adult Social Care Hub Social care assessments for you and your carer Community Occupational Therapy equipment and home adaptations Milton Keynes Carers Support for people who are carers. The PD carers group meets on the first Wednesday each month Centre For Integrated Living (CIL) Information centre for disability related issues Disability Employment Advisors available through the local Job Centre Plus Specialist Memory Service Blue Badge (Parking) Milton Keynes Council uk Staying Steady Falls prevention service mainly for people over Age UK Various services for people over 55 years, including lunch clubs, home safety checks, benefits checks, handy man service, advocacy, befriending, legal advice, toenail cutting Your GP, Consultant, or the Parkinson s Disease Clinical Specialist can refer you to appropriate therapy and social care services.
5 Contact us The Parkinson s Disease Clinical Specialist Neuro Clinical Specialist Team (NCST) Bletchley Community Hospital Whalley Drive Milton Keynes MK3 6EN Tel: Tess.adams@nhs.net Work Hours: Tuesday to Friday, 8am to 5:30pm Admin Office Monday to Friday, 9am to 5pm cnw-tr.mkneuro@nhs.net You can call or the Parkinson s Disease Clinical Specialist to find out more about the service or to discuss concerns regarding your Parkinson s. If the line is busy, leave a message and the call will be returned as soon as possible, but this may not be on the same day. This is not an emergency service, if you have an urgent medical problem, please contact your GP. Tell us, we re listening We also collect feedback, complaints and compliments online. Tell us what you think at and then we ll share and learn from your feedback.
6 This document is also available in other languages, large print, Braille, and audio format upon request. Please We are now able to communicate with deaf or hard of hearing people via Text Relay. If you are making a call from a text phone dial then enter the full number with the area code. Dokument ten jest na życzenie udostępniany także w innych wersjach językowych, w dużym druku, w alfabecie Braille a lub w formacie audio. Polish Tamil Urdu Farsi Šį dokumentą paprašius taip pat galima gauti kitomis kalbomis, dideliu šriftu, Brailio raštu ir garso juostoje. Prašome kreiptis el. Lithuanian Mediante solicitação, este documento encontra-se também disponível noutras línguas, num formato de impressão maior, em Braille e em áudio. Portuguese Este documento también está disponible y puede solicitarse en otros idiomas, letra grande, braille y formato de audio. Spanish Bengali Dokumentigaan waxaa xitaa lagu heli karaa luqado kale, daabacad far waa-wayn, farta indhoolaha (Braille) iyo hab dhegaysi ah markii la soo codsado. Somali Russian Central and North West London NHS Foundation Trust, Stephenson House, 75 Hampstead Road, London NW1 2PL. Tel: Central and North West London NHS Foundation Trust Ref: 0900_DEC2017 December 2017
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