Project tracker report: 19 th April 2013

Transcription

1 Project tracker report: 19 th April 2013 Title of work stream: Dementia Membership of Advisory Group: note one of the measure of the capacity of a network is the inclusiveness and engagement of its stakeholders Name Designation Locality Neil Ashford Consultant Old Age NSFT Psychiatrist Maureen McGeorge Pilot Manager N/A Geraldine Murphy Pilot Senior Project Worker N/A Emma Tiffin CCG Clinical Lead Cambridge Irene Lewsey Commissioner SW Essex Stephen McCormack Commissioner Norfolk Karen Wood Commissioner Suffolk Helen Hardy Commissioner Beds Marek Zamborsky Commissioning Officer Beds April Lawlor Commissioner Essex Claire Hodgson Commissioner Cambridge Christine Timms CNS Dementia Cambridge Rosemary Elliot Clinical Nurse Specialist, North Essex Dementia Clive Gibson Lead for Elderly & safeguarding Sara Jones Addenbrookes Cambridge Wendy Brophy West Herts Angela Porter Southend Louise Notley North Essex Roy Crane Dementia Lead Norfolk Katherine Chapman Southend Suzie Southey Norfolk Rebecca Ballard Norfolk

2 Traci Maton General Manager Southend Mary Kennedy Nurse Consultant Dementia North Essex Care Michele Allot Deputy Dir of Nursing & Norfolk & Suffolk Patient Safety Helen Blee Clinical Programme Lead for Norfolk & Suffolk ICT Gary Blatch SEPT Dr Fasey Consultant psychiatrist SEPT Toni Tuthill Disability Advisor Peterborough Val Newton Deputy Dir Patient Experience Norfolk & Suffolk Lesley Peacock Operational Service Manager, Southend Medical Specialties Natalie Crane Southend Sara Jones Lead Trust - Research (HIEC) Cambridge Alison Webb Norfolk Anika Giannasi Practice Development Nurse Cambridge Donna Mizell Lead Nurse for the Elderly Peterborough Julia Hunt Deputy Dir of Nursing Norfolk & Suffolk Julie Fountain Project Lead, Dementia West Suffolk Strategy Julie Sadler Senior Nurse, Dementia Care Ipswich & Adult Safeguarding Willie Cruikshank Dementia Alliance/HIEC Norfolk & Suffolk Paul Dunnery Alzheimer's Society Louise Larfortune CLAHRC N/A Jane Fleming CLAHRC Marina Buswell CLAHRC Andrew Tarbuck DeNDRoN Ann Luck DeNDRoN Gloria Caldron DeNDRoN Current gaps in membership and how you plan to address these: Coordination of the work of the dementia work streams of the MCN and AHSN, and using the MCN s Dementia Advisory Group (DAG) as the Clinical Study Group (CSG) for the dementia work stream of the AHSN has further highlighted the need for better representation within the group from commissioners, other care providers - especially social care - and ensuring

3 effective representation from or links to sevice users and carers. Current members are using their local knowledge to recruit in these areas. Willie Cruikshank is contacting Paul Dunnery (Alzheimer society) to explore links with their carer forums. Dates of future meetings: 11.00am 1.30pm, Wednesday 19 th June, 2013, Cambridge 10am 12 noon, Wednesday 18 September, 2013, Papworth 10am 12 noon, Wednesday 4 December, 2013, Papworth Work programme Priority topic Description of planned intervention Improving care within general hospitals Planned regular meetings with dementia clinical and nursing leads to (1) share good practice/learning outcomes/ problem solving/peer support, and (2) deliver CPD activities with expertise from within the group or externally provided Creation of EoE dementia database/register Creation of dementia database/register that can: 1. Facilitate information sharing leading to better care for people with dementia 2. Help health and social care commissioners make commissioning decisions and plan services 3. Increase diagnosis rates through 2 and as a result of benchmarking services and identifying effective practice 4. Facilitate research into treatment and care of people with dementia Improving dementia awareness and knowledge amongst both the general population and people whose work regularly involves people with dementia For the dementia work stream to publicise and support initiatives already happening within the region to raise awareness and knowledge including: Online flexible training tool developed by the Norfolk & Suffolk Dementia Alliance (due to be available by March 2013) The Alzheimer Society Dementia Friends program To explore the inclusion of such awareness raising and training resources into the mandatory training programs of health and

4 Update for MCN Board 19/4/13 Appointed leads: Suzie Southey supported by Rebecca Ballard and Julie Fountain Acute hospital peer support group: bi-monthly planned Creation of the database will require a strategic approach involving collaboration with CLAHRC, EAHSN, DeNDRoN, Norfolk and Suffolk HIEC/Dementia Alliance, commissioners and others. A phased approach is recommended: Phase 1 (approx 2-3 months): Collation of the work already done within the region to date. Seek support and recognition from the DH to proceed further. Identify funding sources for phase 2. Would need to agree lead organisation (?EAHSN, CLAHRC2 or MCN) to take forward Phases 2 and 3. Phase 2 (approx 6 months): Commission project to identify and work with stakeholders to develop a range of options and costed proposals, including evaluation methodology. Phase 3 (approx 8 months): Selection, commissioning, implementation, and evaluation of a proposal. Appointed Lead: Neil Ashford To work with Carol Brayne and others to convene the required project group to take forward the Phase 1 scoping exercise. social care staff. Appointed leads: Willie Cruickshank and Paul Dunnery Audit of GP attitudes towards dementia diagnosis Preparation and sending of

5 meetings that include two components: - short CPD activities with expertise from within the group or externally provided; - peer support discussions. Possible outcomes/impact measures: anonymised survey of attendees. Information sharing: closed pages on the RCPsych s web pages where members can share resources e.g. copies of job descriptions, local policies, etc. Possible outcomes/impact measures: numbers of entries added each week; number of hits per week. discussion group: access to a moderated group. Possible outcomes/impact measures: number of posts per week; number of individual members using pages per week. challenging awareness communications to audited GPs Promotion of Dementia Friends Training (starting with this group!) Fund making of talking head video of local lady with dementia and her daughter Publicising other local initiatives: cultural diversity work (Steve) 2012 Suffolk Study (Willie) Outcome Measures Dementia diagnosis rates using DH dementia prevalence calculator Numbers of staff receiving Dementia Friends training per month in each trust Number of hits on sites Future interventions National Audit: hosting an East of England event to coincide with the launch of the national findings from the National Audit of Dementia (care in general hospitals) in July of this year. Possible outcomes/impact

6 measures: evaluation at event. Estimated timescale for delivery Supporting teams to implement the carers CQUIN: surveying hospital trusts about their feedback from and supports to carers e.g. what is being done; how is feedback being obtained; what are response rates; what feedback have they received. Share good practice. Re-audit. Outcome measure: improved ratings in re-audit. Bi-monthly meetings planned NAD Event late summer Carer CQUIN: May onwards. Nursing dementia leads & Clinical dementia leads Other staff within the acute trust who manage an aspect of dementia care CPD activities are expected to be reasonable for example the EoL CPD activity planned will cost 150+ travel expenses As above Publicising these initiatives on the MCN website can begin in the immediate future. Who is involved? Estimated cost Room costs will probably be minimal as each lead will have access to local rooms within their acute trust that could be used to facilitate the meeting. The team is currently exploring the cost of a venue for the NAD Event. As collaboration between several stakeholder groups, it will be driven forward by a project team composed of key stakeholders and invited experts. Phase 1 minimal beyond costs of time and meeting venues. Phase 2 is a larger piece of work likely to incur some dedicated project management costs. The collaborative approach of the MCN would hopefully allow access and pool funding from a variety of sources, e.g. EAHSN. Phase 3 costs are determined by the work of Phase 2 Dementia Advisory Group Norfolk and Suffolk Dementia Alliance Alzheimer Society Minimal unless there is a decision to undertake large scale audits (most likely targeted at particular health and social care staff groups)

7 How you will evaluate impact / success 1 The group have discussed a shared KPI baselines and monitoring to give proxy indications of the standard of dementia care within their trust. Indicators discussed include: - LOS for PWD - Complaints - Interventions for challenging behaviour - Training uptake - Referrals of carer assessments A further softer impact would be a reduction in the variation of approaches to initiatives. Although it appears impossible to have a database up and running within the currently funded MCN timescale, other stakeholders will be in a position to complete it if new MCN funding is not forthcoming. Once up and running, the measurable impacts and successes are listed under description of planned intervention above. Take-up of publicised training initiatives by health and social care staff and organisations. (The online training tool may be able to tell exactly how many hits it has had and how many people have completed what training. Secondary outcome measures (the important outcomes) include: Rising referral rates to services for cognitive assessment and diagnosis Rapid recruitment of Dementia Friends Expansion of the number of dementia friendly community initiatives Rising awareness and knowledge in key health and social care staff as evidenced by audits 1 Examples of impact include: Evidence of client-level effectiveness/outcomes for patients: outcome data; evidence of policy implementation; improved patient experiences; Evidence of overall community-level effectiveness: increased distribution of (a service); more equitable provision; improved access; enhanced involvement in decision-making Evidence of shared learning e.g. joint problem solving across organisational boundaries. Evidence of innovation and change e.g. improvement activity

8 What are the risks? Requires dementia clinical leads to have capacity to attend which will partly be decided by how appropriate and helpful they find the group to be Requires meeting organiser and potentially facilitator. Currently the dementia work stream has not made arrangements for administrative support That the DH offers no approval, let alone demonstrator site status, on the basis that it has decided to support another region in the development of dementia databases. That funding is not forthcoming for Phases 2 and 3 That the MCN does not add added benefit to the work that s already occurring in EoE to meet this target and that the MCN potentially has no lever to push this work through at the faster pace that is being proposed None as such. Although zero impact would be seen as failure, the expense would be minimal and there is negligible risk of harmful impact. Works stream budget Total Expenditure to date e.g. venue hire, trainer fee, print costs 0.00 Backfill allocated for Neil Ashford 700/month approx All room booking costs to date met by SHA 0.00 Support for MCN provided by Sarah Robinson (no cost to MCN) but will finish March Communication strategy please describe progress to date Website Outline website briefly populated still requires reviewing and further population from region Newsletter None from MCN Production of the Dementia bulleting is produced by Sarah Robinson but in the SHA role as dementia lead rather than as a result of the MCN given that this role finishes in March 2013 then it could be helpful (and evidence suggests people do find the bulleting helpful) for the MCN to take over this. However this would require some consideration to be taken into resource

9 investment into the MCN. Update for MCN Board Geraldine Murphy, recently appointed MCN Senior Project Worker, has produced an April /4/13 Dementia Bulletin. The Alzheimer s Society is soon to launch a new network called Dementia Connect and the MCN will speak with Paul Dunnery about how best the MCN should link in to this initiative. discussion group Pending (see above) Other (please specify) Other (please specify)