Best Practice Sharing Session The Colorado Patient Partners in Research network: Reaching Stakeholders through Social Media Kaiser Permanente

Transcription

1 Best Practice Sharing Session The Colorado Patient Partners in Research network: Reaching Stakeholders through Social Media Kaiser Permanente 1. Join the WebEx 2. Select I will call in ; Dial Enter Access Code AND YOUR ATTENDEE ID 4. Everyone is muted on entry. If you would like to participate, use the chat box and send publicly 5. (If needed) Password:

2 Creating a Patient Stakeholder Council and Patient Partner Network: Resources for CO Patients A PARTNERSHIP OF DENVER HEALTH, THE INSTITUTE FOR HEALTH RESEARCH (KPCO), AND THE DENVER HEALTH COMMUNITY ADVISORY PANEL (CAP)

3 Project Basics: Funded by the Patient Centered Outcomes Research Institute (PCORI) 2 year project: 4/1/16 3/31/18 2 sites: Denver Health and Kaiser Permanente Colorado 3 partners: Institute for Health Research Denver Health DH Community Advisory Panel (CAP) 2 initiatives: CoPPiR Network (Colorado Patient Partners in Research) CoPPiR Stakeholder Council (CSC)

4 Project Personnel: Denver Health: Ed Havranek Principal Investigator Susan Moore Lead, Social Media Sarah Leslie Social Media Suzanne Dircksen Project Manager Tammy Bellofatto Community Advisor/CAP member Charlene Barrientos Ortiz CU Community Research Liaison Institute for Health Research (KPCO): Sarah Madrid Site Principal Investigator Heather Tabano Project Manager; Social Media Selena Dunham Community Advisor Leslie Wright Community Research Liaison

5 Project Goals: Long Term Goal: Become a statewide resource for Colorado patients and researchers within THREE YEARS. 1. Establish and train members of the CoPPiR Stakeholder Council 2. Build the CoPPiR Network 3. Create and implement a social media strategy to drive participation in the CoPPiR Network and share research results with stakeholders* * Stakeholder noun: any person who may be affected by the activities, interventions, and/or outcomes of research. E.g., patients, family members/caregivers, clinicians, health system operations staff, etc.

6 CoPPiR Stakeholder Council o CSC will provide: o Guidance for IHR and DH researchers on topic prioritization and agenda setting o Feedback on improving patient centeredness of outreach materials, research questions, etc. o Governance for CoPPiR network o Capacity building for CSC members AND researcher trainings

7 IHR/KPCO C u r r e n t DENVER HEALTH P a r t n e r s h i p DH s CAP S t a r t i n g ~ 7/1/16 Safety Net Clinic Systems C o m p o s I t I o n of the C o P P I R S t a k e h o l d e r C o u n c I l 3 KPCO Members 3 DH System Members 2 CAP Members 2 Community Advisors 3 Safety Net Members C S C

8 Colorado Patient Partners in Research (CoPPiR) Network o Web-based system for matching patient partners with research teams looking for specific partner characteristics, interests, and/or disease burdens o Infrastructure has been developed; launched June 20, 2016 o Varied recruitment efforts for patient partners: Invitation Pilot Project Social media campaign Road shows at community health centers; flyer handouts at metro area cultural events o Researcher recruitment will ramp up simultaneously: IHR and DH research teams; expand to metro area researchers

9 C o P P i R I N F R A S T R U C T U R E Data Collection Circuit Patient partner agrees to join network, provides contact information Researcher registers with network, provides contact info CoPPiR website home page CoPPiR Database CoPPiR s patient partner link to Health Qx Patient partner completes HQx, stored in database

10 C o P P i R I N F R A S T R U C T U R E Research Matching Circuit Researcher completes/ submits partner request form Patient partner(s) joins research team Matched patients contact researcher if interested in joining research team CoPPiR website home page CoPPiR s matched patients CoPPiR s researchers CoPPiR Database Search and matching process

11 Retaining CoPPiR membership: Information Hub for patient partners and researchers: Upcoming web-based or in-person trainings Research best practices; effective patient advocacy; other skill building opportunities Upcoming engagement opportunities Local, state or national events, trainings, or openings Monthly e-newsletter: Current engagement work in the state Suggestions from the Forum (see below) Announcements, updates, and opportunities Forum for members and researchers: Ask questions Suggest research topics or questions Find community

12 Pilot Webinars Informed Consent Addendum Community Outreach Colorado Patients / Stakeholders CoPPiR.org Colorado Researchers Peer-to-Peer Outreach State level conferences Social Media Campaign Organizational Outreach

13 What is social media? o Technology-mediated, online channels for communication ( media ) with groups of people ( social ) o Audience-oriented, community-oriented, network-oriented o Family and friends o Neighborhoods o Created communities with shared interests and causes o Interactive and dynamic o Examples: Facebook, Twitter, Instagram, LinkedIn, Tumblr, Reddit

14 Why use social media? Colorado, USA: 103k mi million people Vast majority is along the Front Range (3.5 million) Denver Metro Statistical Area = 2.8 million people Denver alone = 660k people Colorado Springs = 444k Fort Collins = 155k Boulder = 105k 1.96 million in the rest of CO

15 Why use social media? Colorado, USA: 103k mi 2 Source: Colorado Rural Health Center ( ) 5.46 million people Vast majority is along the Front Range (3.5 million) Denver Metro Statistical Area = 2.8 million people Denver alone = 660k people Colorado Springs = 444k Fort Collins = 155k Boulder = 105k 1.96 million in the rest of CO

16 Why use social media? o Social media is widespread and far-reaching. o 65% of all US adults use at least 1 social media platform. o 64% of urban residents o 58% of rural residents Source: Perrin, Andrew. Social networking usage: ; Pew Research Center, October

17 Why use social media? o Social media supports equitable, diverse outreach. o 68% of women and 62% of men* o 65% of Whites, 65% of Latinos, and 56% of Blacks* o 56% of low-income adults o 54% of those with a high school education or less * No statistically significant difference between groups Source: Duggan, Maeve. Mobile messaging and social media 2015 ; Pew Research Center, August

18 Why use social media? o Social media has a low financial barrier to entry. o Accounts are usually free to create o Advertising costs online can be set to accommodate budget constraints o Still supports metrics for outreach tracking (e.g., likes and shares )

19 Why use social media? o Social media supports dynamic communication. o Two-way (or greater) conversations o Near real-time response potential o Ability for contextual reaction to current events o Content sharing among external partners and parties can spread messages far beyond traditional reach

20 Social media strategy considerations o Our Three Cs of social media o Community o Content o Conversation

21 Social media strategy considerations o Community o Picking the right platform o Our launch choices: Facebook, Twitter o Facebook: 72% of online US adults use; supports longer, more detailed posts o Twitter: microblogging platform (140-character limit); popular among Black and Latino users

22 Social media strategy considerations o Community o Engaging stakeholders (and your intended audience) o CoPPiR Stakeholder Council (CSC) o Engaging partners and collaborators o Denver Health, Kaiser Permanente o Other community groups and organizations as identified by the CSC

23 Social media strategy considerations o Content o Develop in advance o Review with stakeholders (CoPPiR Stakeholder Council) o Fresh vs. stale: ~ 1 month of prepared content o Tailor the post to the platform o Cross-communication is good, unvaried repetition is bad o Provide messaging value

24 Social media strategy considerations o Conversation o Set a schedule for message posting o Regular posting times/dates/frequencies o Intersperse content types o Establish a moderation and response policy o Account monitoring daily by dedicated team o Engage, redirect, disconnect o Be context aware; adapt as needed

25 Questions?

26 Contact Information Sarah Madrid office: mobile: Susan L. Moore, PhD, MSPH office: mobile: Kaiser Permanente Colorado Institute for Health Research E. Harvard Ave., Ste. 300 Denver, CO Denver Health and Hospital Authority Center for Health Systems Research 777 Bannock St., MC 6551 Denver, CO