Cancer Resource Network Services

Transcription

1 Cancer Resource Network Services

2 South Atlantic Division Quick Facts Established in December 2003 with the merger of the former Southeast and Mid-Atlantic Divisions. Serves a population of more than 37 million in Delaware, Georgia, Maryland, North Carolina, South Carolina, Virginia, West Virginia and Washington, D.C. Twenty percent of the Division s population lives in rural areas.

3 South Atlantic Division Quick Facts There are more than 170,000 new cancer cases diagnosed annually within the Division and more than 70,000 deaths. The Division is home to an estimated 663,000 cancer survivors.

4 South Atlantic Division Quick Facts There are 214 American College of Surgeons approved hospitals in the Division and seven comprehensive cancer centers. The Division is home to a number of major institutions in the fight against cancer, including the National Cancer Institute, Centers for Disease Control and Prevention, Society National Home Office and Government Relations Office and 107 Fortune 1,000 companies.

5 Our 2015 Goals 50% reduction in age-adjusted cancer Mortality rates 25% Reduction in age-adjusted cancer Incidence rates Measurable improvement in the Quality of Life from the time of diagnosis and for the balance of life of all cancer survivors

6 South Atlantic Division Cancer Burden

7 On Any Given Day in the South Atlantic Division 210 women receive mammograms 64 patients receive support through one of the Division s Quality of Life programs 70 patients, on average, are welcomed into one of our four Hope Lodge facilities 3 survivors register on the Cancer Survivors Network

8 On Any Given Day in the South Atlantic Division 144 people contact the call centers requesting information 2 patients are referred to the Dietitian on Call $100,000 is invested in critical cancer research 25 patients meet with a Navigator 111 are assisted by Cancer Information Specialists Hundreds of people visit

9 SERVING OUR PATIENTS AND CAREGIVERS Key Staff Patricia Hoge, Chief Mission Officer Gail Amalia Katz, VP Navigation Diana Dew, Quality Assurance and Operations Director-SAD Terry Young, Executive Director, CRN

10 Cancer Resource Network IV-Strategic Outreach In Hospital; In Person III-Service Seekers Local Engagement CRN II Information Seekers NCIC I Online, Constituent Guided, Self-service information

11 South Atlantic Notables in Patient Services Dietitian-on-Call Patient Advocate Level 4 Navigation MedBank Financial Assistance Host Homes Programs College Scholarships Camps Hope Lodge and Hope Lodge Connections Wigs

12 How Do We Do All This?

13 Level I Navigation Level IV Hospital Based On Line Level III -- CRN Level II -- NCIC Level I -- Online

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15 Level II Navigation Level IV Hospital Based NCIC Level III -- CRN Level II -- NCIC Level I -- Online

16 NHO Partnerships National Cancer Information Center (NCIC) is located in Austin, TX. It supports our toll-free number Open 24/7, NCIC is the front door to the ACS and answer questions about cancer as well as programs, services, and activities of the American Cancer Society.

17 HIPAA Requirements Hospital and ACS records protected by Information Technology interface Former Secretary of HHS, Tommy Thompson opinion: ACS is part of health care continuum Great sensitivity to patient privacy

18 Community Resource Database Information Delivery CRD Information & Referral- The backbone of all we do

19 Community Resource Database Support Groups Lawson Patient Care Givers Shared Services External Systems Family Web Transportation Constituent Correspondence Call Call Center Center Churches Community Service Service Link Link Organizations Hospitals Fulfillment Community Centers Financial Program Management Assistance Program Program Tracking Tracking Organizations Community Assessment // Knowledge Knowledge Mgt Mgt Medication Assistance Sales Sales Force State Force Automation Cultivation Government Management Profile Federal Profile Management Constituent Database CRD Services Fund Raising Volunteer Free Management Event Reduced Event Management Cost Medical Equipment Sales Sales Force Force Automation Screenings Resources

20 Level III Navigation Cancer Resource Network Division Service Center Level IV Hospital Based Level III -- CRNC Level II -- CRN Level I -- Online

21 Health Care System Social Service System Both are often not systematic, frequently change, and are generally very complex. Expert guidance is often a necessity!

22 Cancer Resource Network Division Service Center Mission: To service patients, care givers, health care providers, volunteers and staff in the South Atlantic Division

23 CRN Service to the Field Intake & coordination of Society programs Support your local healthcare facilities Support your local healthcare providers Maintain records of patients Register regional walk-ins Maintain records of volunteers Track services to your local communities Help field in planning program of work

24 Cancer Resource Network ACS-NEED

25 Cancer Resource Network Located in Atlanta, GA and Baltimore, MD trained Cancer Information Specialists work hard to meet the needs of each caller. CIS s will provide in-take and coordination to our ACS patient service programs. They also use our Community Resources Database to provide Information and Referral to health and social services agencies in local communities.

26 Dietitian-on-Call A Registered Dietitian provides free nutrition counseling, via telephone, to anyone touched by cancer. Nutritional problems are addressed, questions are answered and follow-up is provided. Verbal suggestions, written materials and community resources are provided.

27 Patient Advocate Clinical Social Workers with experience in healthcare settings have been employed to assist cancer patients in navigating the complex medical and social systems associated with cancer and its treatment.

28 College Scholarships Childhood Cancer Survivors: total of $2,500 for up to 4 years For those diagnosed with cancer before age 19. Must be between 19 and 25 at time of application College or vocational education 2006 applications available after Jan. 2006; deadline April 15, 2006 Legal residents of our SA Division

29 Camps for Childhood Survivors WINACA West Virginia 7-16 ages One week residential No cost; transportation to camp provided by ACS Camp Sunrise and Fun Sibs Located in Maryland Two programs: 6-18 residential and 4-5 day camp Fun sibs: weekend experience for siblings of childhood ca survivors No cost No more camp scholarships

30 MedBank Began in Mid-August MedBank is non-profit organization in MD Completes all paperwork for patients to access pharmaceutical s pt. assistance programs Access drugs across all medical conditions Average annual value is $2,000 per patient Brings healthier client to tx National pilot

31 MedBank of Maryland: A Collaborative Partnership MedBank/ACS work collaboratively to quality needy CA patients for free medications through the drug manufacturer s patient assistance programs CA patients will be introduced to ACS programs and services and will be followed up with the Call Back Initiative CA patients will be assisted with all their drugs, not just cancer related ones

32 MedBank of Maryland ACS staff member works at MedBank, uses their software as well as Siebel Program is Division-wide & a NCO pilot.

33 MedBank of Maryland Benefits include: Bringing a healthier patient to cancer treatment for better health outcomes Decreasing ER visits and hospitalizations while increasing primary care visits Freeing financial resources for other needs such as utilities, rent, food, etc. Reaching new patients and wrapping services around them

34 Financial Assistance Programs Stop Gaps funds for transportation and pain / nausea drugs available for all states as of 9/1/05 Means tested; 250% of poverty level Transportation: Gasoline Debit Cards Pain: Prescription Debit Cards Other restricted transportation funds: isolated to a few units

35 Patient Services Caller Call Back PRNC Resources

36 Patient Services Road to Recovery: Volunteer drivers help patients get to and from cancer treatment Man to Man: An education and support group for prostate cancer patients I Can Cope: Educational modes on cancer topics geared to helping patients and their families understand and cope with cancer

37 Patient Services Reach to Recovery: A peer visitation by breast cancer survivor who offers support, information, and a kit Look Good Feel Better: A twohour skin care and make-up session with a trained cosmetologist Wigs and turbans: free for those who request them

38 CRN Request for ACS Service Coordinate Volunteers Service Provided Call Back for Satisfaction Inquire for need of other services

39 Call Back Initiative Uses new model developed by NHO Uses satisfaction surveys based on reason for call. Surveys are attached to SR s Provides quantitative evaluation of service level Provides opportunity to probe for new needs; develops on-going relationship Uses staff and volunteer model

40 Increase the visibility of our patient navigation services in all major media markets using mass media outlets; Develop stable funding sources for continued growth; Develop partnerships with a minimum of 30 major cancer centers to have an ACS Community Cancer Resources Specialist in person, on site, providing proactive services to cancer patients;

41 The Challenge 95% of US population knows the ACS brand 95% of them think ACS raises money & funds research

42 They Are Correct! But we do more: Patient Services Advocacy Prevention & Detection

43 Level IV Navigation The Next Evolution Level IV Hospital Based Level III -- PRNC Level II -- NCIC Level I -- Online

44 Why Does the Society Need to Do More? Cancer burden is carried disproportionately by diverse populations who often do not call American Cancer Society; Vulnerable populations are often cared for in large cancer centers with limited resources for non-clinical support; ACS needs to go to the underserved patients! Proactive strategy will develop awareness of the American Cancer Society for both patients and the clinical community.

45 ACS Navigator A full partnership between ACS & selected hospitals to bring ACS awareness and services to all of their patients through a full-time ACS staff person as part of the hospitals team.

46 Role of the ACS Navigator Is the face of the ACS within the institution Provides I&R for immediate needs Connects patients/caregivers to ACS programs and services (CRN) Builds relationships; helps bring ACS programs to the hospital Tracks patients served

47 Why it is a win/win for both? Hospital American Cancer Society Cancer patients often require additional support; American Cancer Society is a credible ally; Access to resources through American Cancer Society; Asset in certification/ accreditation. The Society becomes an integrated part of the hospital s oncology program; Opportunities to place the Society programming; Touch to patients normally not aware of the American Cancer Society.

48 Hospital Selection Criteria ACoS certified; A minimum of 1,000 new cancer cases per year; Significant percentage of vulnerable population (uninsured, under-insured, Medical Assistance, rural residents, specific demographic groups)

49 Selection Criteria Strong support for the program from a hospital champion. Willingness to share 50% of funding for three years. Can develop a functional hospital role for the Navigator to support the cancer program s needs.

50 Message to Patients 1. Be aware of ACS services. 2. Probe for immediate needs & concerns. 3. Link them to ACS through data base. 4. Impress on patient & family that ACS will be there for them throughout their survivorship.

51 Status Targeted hospitals identified Gauging level of interest Secure funding Implemented in 7 sites Goal : 30 navigators within 2 years

52 First Success: Univ of MD Greenebaum Cancer Center Began August 1, 2005

53 More Success: St. Agnes, Baltimore Chesapeake General Hospital, Chesapeake, VA Christiana, Wilmington, DE Howard University, DC WMHS, Cumberland, MD Atlanta Medical Center

54 Thank You