Dementia and Imagination

Transcription

1 Dementia and Imagination The IMPACT lifecycle of our research study Dr Catrin Hedd Jones Dr On behalf of the Dementia and Imagination #dementiaimagination All images Dementia and Imagination. Please ask permission before use.

2 Dementia and imagination: -connecting communities and developing well-being through socially engaged visual arts practice All those living with dementia willing to help with our research, to try out the art activity and help us understand what works best; their family, friends and carers for their honesty and support; artists, partners & funders. Gill Windle, B Woods, R.T. Edwards, A. Newman, C. Parkinson, V. Burholt, M. Baber & D. O Brien.

3 What is impact? Dissemination: a means to (potential) impact. Impact: an effect on, change or benefit to the economy, society, culture, public policy or services, health, the environment or quality of life, beyond academia. (REF, 2014). Reach the spread or breadth of influence or effect on the relevant constituencies Significance the intensity or the influence or effect (HEFCE 2015). REF (2014). Assessment Criteria and Level Definitions. < (last accessed 01/10/2015). HEFCE (2015). The nature, scale and beneficiaries of research impact: An initial analysis of Research Excellence Framework (REF) 2014 impact case studies. < (last accessed 8/11/2015).

4 Research aims 1. Improve[ing] the quality of life and community connectedness of people living with dementia 2. Challenge and change the public perception of dementia (Newman et al., 2016). Newman, A., Baber, M., O Brien, D., Goulding, A., Hedd Jones, C., Howson, T., Jones, P., Parkinson, P., Taylor, K., Tischler, V. and Windle, G. (2016). Carrying out research across the arts and humanities and social sciences: developing the methodology for Dementia and Imagination. Cultural Trends, 25, 04, Doi: <

5 Challenging stigma

6 Challenging stigma Dementia is the most feared health condition in the UK, perhaps explaining also why almost two-thirds of people surveyed (62%) felt a diagnosis would mean their life was over (Alzheimer s Society, 2016). A third (33%) of people with dementia said they lost friends following a diagnosis. In 2012, 40% of people with dementia said they lost friends. While this is a reduction, there has been an increase in people not telling their friends about their diagnosis. (Alzheimer s Society, 2013). Alzheimer s Society Over half of people fear dementia diagnosis. < nk_it_means_life_is_over > [accessed 28/06/2017]. Alzheimer s Society Dementia 2013: the hidden voice of loneliness. < pdf> [Accessed 28/06/2017].

7 Pathways to potential impact Exhibitions of art work National Festivals e.g. Llangollen, Green Man, Wychwood, Comic Art Age UK / Cymru shops Public spaces Creation of workshops and events

8 Online content Multi-platform: - Website launched June 2014, users - Mailing list growth to over 560 over course of research - 11 newsletters sent between July 2014 and Dec Social media platforms: Twitter: 1698 Facebook: 286 Sharing activities as they happen: process of research, not just outcomes Creating a presence, the face of the research

9 Case study one: Imagining dementia friendly communities Exploring creative possibilities for Imagining Dementia Friendly Futures. Local workshops in April and May in North Wales, Derbyshire and the North East.

10 Case study one: Imagining dementia friendly communities Stand at the Utopia Fair in Somerset House, London.

11 Case study one: Imagining dementia friendly communities Interactive installation at the Green Man festival.

12 Evidencing engagement Helped me to better understand how people with dementia respond to the workshops and understand artist's practice.

13 Changing conversation about research Workshops and Network

14 Case study 2: Dementia Network 6 meetings 70 Summer (11 PLWD) 70 Autumn (29 PLWD) Support evident in the room North Wales Conference 27/1/17 Alzheimer s Disease International Japan Facebook group (157) Twitter (328)

15 Signage as conversation and art Signage as theme through talks and art-making Artist facilitated the members to share experiences and best practice within the network Artworks provided a point of discussion about people s encounters and difficulties with signage as well as exploring metaphors of diagnosis.

16 Teithio ac anfon Credyn post/ Mail Art Sgiliau gwrando heb bwysau. Dewis darn a rhoi sylw. Lliw cyd greu Celf Listen Select Involve children/ students

17 Art and intergenerational messages

18 Conference Sharing of ideas, experience and knowledge with wider audience 110 delegates, presentations recorded Art continuing to fuel dialogue and exchange Fostering relationships <

19 Uchafbwyntia/ Highlights Ymateb a rhannu Rhwydweithio lleol (MyW)a rhyngwladol Cefnogfaeth Cyfoedion The response Local and international sharing of knowledge and support Peer support

20 #handouthope Developing research that matters to people living with dementia: Examples from North Wales INTERDEM Masterclass Alzheimer s Europe 2016 Dr Catrin Hedd Jones, Dr Kat Algar, Prof Bob Woods, Chris Roberts, Jayne Goodrick

21 Impact lifecycle Public engagement provides a place for (potential) impact Impact can lead to other unexpected outcomes - never ending lifecycle/ flourishing model Growth of networks and relationships take time, having a number of organisations at beginning helps to grow connections McAra-McWilliam and Broadley (2014) Flourish Process [drawing].

22 Thank you, any questions? Dementiaandimagination.org. #dementiaimagination Facebook.com/dementiaandimaginationresearch All images Dementia and Imagination. Please ask permission before use.