Workshop: Session 2a. Hidden effects of stroke
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1 Workshop: Session 2a Hidden effects of stroke Dr Samantha Fisher-Hicks - Abertawe Bro Morgannwg University Health Board #strokeassembly Wedi i drefnu gan Hosted by
2 The hidden effects of stroke Dr Sam Fisher-Hicks, Ken Nazareth & Christine Maddocks #strokeassembly Wedi i drefnu gan Hosted by
3 People expect you to have visible disabilities, but I looked well. That s what I found hard. People thought that I was making it up and I wasn t. I thought I was going crazy. I went to my local supermarket and then suddenly it was too much for me there were too many people. I couldn t work out what I wanted and it was a panic attack. You feel better when you know it s not just you.stroke survivor.
4 5 min video A brief introduction..
5 Outline of Session Introduction to psychological effects of stroke (20 mins) Ken & Chris (10 mins) Moving forwards (10 mins) What I found helpful Ken & Chris (10 mins) Questions (5 mins)
6 Invisible symptoms
7 Stroke Needs Survey
8 Difficult Feelings Psychological problems are the most frequently reported issues after stroke in survivors and carers.
9 Common reactions after Stroke Sleep problems Agitation Irritability Frustration Loss / grief Worrying about the future/ another stroke
10 Anxiety and depression
11 This is important because Depression and anxiety:- Cause significant distress Are associated with poorer recovery after stroke Cause people to become more socially isolated Lead to lower levels of activity Create greater dependency Make it harder to manage physical health problems
12 Depression is not an inevitable consequence of stroke and much can be done to help those who have a depressive episode (Kneebone and Dunmore, 2000)
13 Emotionalism Uncontrolled crying or laughing out of proportion to an event Caused by stroke (frontal lobes, brain stem and thalamus) Mood disorder or loss/grief can contribute Can be distressing, embarrassing and lead to social avoidance, anxiety and depression
14 Irritability and Anger Very common after stroke There may be a number of causes e.g. Frustration, difficulties with speech and communication, emotional difficulties and/or because the brain ins no longer as good at managing emotions Can be very difficult for loved ones to cope with
15 Impact of stroke on self & others Physical Sensory Communication Cognitive Behavioural Emotional They affect many levels -: Personal Sense of self Identity Family Role change Work Responsibilities Finance Society Stigma Social networks Health services
16 Cognitive Problems Refers to mental abilities - speed of thought, memory, understanding, concentration, solving problems, language. Around a 75% of people who survive a stroke present with persistent cognitive impairment
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21 (ROWE, 2009)
22 Ken & Chris (10 mins) Experience of emotional and cognitive problems
23 Simple happiness recipe The essentials of Happiness are: Something to do Something to love Something to look forward to
24 A formula for happiness
25 Character Strengths 1 Once you follow the link it will take you to a page with a whole list of questionaires. 2 Scroll down to the one that says "VIA Survey of Character Strengths" and select "Take Test" 3 You will have to register to take the test. So select "register" and follow the instructions to creat your account. 4 At this point the link may take you back to the whole list of questionaires, if so simply scroll down again until you see "VIA Survey of Character Strengths" and select "Take Test"
26 Positive Emotion w Neil Frude, 2016
27 Positive Emotion w Resilience The Wellbeing Daisy
28 Positive Emotion Optimism w Resilience The Wellbeing Daisy
29 Integrated model of identity change. Y- shaped model (Gracey, Evan, Malley, 2009) and Seligman (2011)
30 PERMA Model of Well-Being (Seligman, 2011) Positive emotion joy, awe, compassion, delight, happiness, elation Engagement/flow truly engaged in activity/ time seems to stop Relationships positive relationships e.g. family, friends, neighbours Meaning feeling connected to a bigger cause than ourselves e.g. religion, group Accomplishment meeting our personal goals e.g. mastering a skill Stroke can affect all aspects of PERMA
31 Ken & Chris (10 mins) Things that helped in moving forwards
32 Questions
33 What next? Refreshments 3.05pm - Plenary 3: Can the brain rewire itself? Castell Suite
This section will help you to identify and manage some of the more difficult emotional responses you may feel after diagnosis.
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