Minutes were approved

Transcription

1 Community Action Board (CAB), Meeting Canyon Ranch Center for Prevention and Health Promotion, UA Mel and Enid Zuckerman College of Public Health January 16, :30 3:00 pm Present: Susan Kunz (Chair), Flor Redondo (Co-Chair), Jill Bullock, Mary Contreras, Jill de Zapien, Darcy Dixon, Robin Falconer, Robert Guerrero, Hannah Hafter, Trish Herrmann, Carol Huddleston, Maia Ingram, Leonarda Jaramillo, Patty Molina, Kerstin Reinschmidt, Cecilia Rosales, Ken Schachter, Lisa Staten, Rosie Stewart, Cynthia Thomas, Evelyn Whitmer Welcome & Introductions Draft Letter to Elect President Announcements Susan Kunz ~ Co-Chair Flor Redondo ~ Co-Chair Reviewed minutes from last meeting Minutes were approved changes made ~ correct Cochise County to Cochise College - Rich Polheber drafted the first letter o Letter was sent out the first week in December o No response yet from letter o This is a good thing for this group to have taken on an advocacy activity Arizona Diabetes Coalition (Trish Herrmann) o Diabetes Awareness Day o Tuesday, March 31, 2009 ~ 10:30-3:00 o Arizona State Capitol House Lawn o 1700 W. Washington, Phoenix, AZ Health Policy Forum o February 2, 2009 o Arizona State Capitol, 1700 W. Washington, Phoenix, AZ o Registration only open to 80 participants o Contact Rebecca Ruiz; ; raruiz@ .arizona.edu HAGS ~ Health Advocacy Group in Santa Cruz County o Outgrowth of the school health advisory committee o Defining ourselves and our advocacy goals o We want to be an advocacy group o Get more people enrolled in AHCCCS who are eligible Cynthia Thomas Vice President for AzCHOW o AzCHOW provides trainings for Promotoras o Also working on advocacy goals and common efforts with the CAB Minutes were approved Trish Herrmann will send out the information. If you would like to attend this event or if your organization is interested in displaying information, please contact Sara Sparman by phone at or at ssparman@jdrf.org Next meeting we will have Yuma present 1

2 Pan American Health Organization (PAHO) ~ Workshop o Working meeting on Social Determinants will be in El Paso, Feb 2-3, 2009 o Hannah Heffner will be attending o Will be strategizing how to integrate social determinants into public health programs and policy in border communities both in U.S. and Mexico No More Deaths report on custody standards (Hannah Heffner) o There are no regulations for treatment of immigrants caught in the desert o Over 350 cases of Border Patrol agents abusing or neglecting migrants in report released by No More Deaths o Top issues include lack of sufficient water, food, and medical care, and physical and verbal abuse o Report, entitled Crossing the Line is available online at: ( o Anyone interested please contact Hannah Grant submissions (Evelyn Whitmer) o Working with hospital in Cochise County Health Department o Using the SCC Family Advocacy Projects as a model for a grant we will be putting in shortly o Will include Farmers Market and WIC Ila Tittlebaugh has a new job in Pima County and may not be able to represent NCC PRC Director s Meeting (Lisa Staten) o This year we will not be presenting at this meeting but it is a good conference that is aimed at practitioners so we will focus on this for next year. o We will probably know by then if we have been funded o As a rep for NCC Susan volunteered the PRC to be on a panel. She and Lisa will be presenting on our collaborative process. o NCC is more organized and more balanced than in the past o NCC representatives & PRC directors attend this meeting o Very helpful for us that we have Susan K. promoting our group National Wear Red Day for Women on February 6, 2009 Hannah Hefter hehafter@ .arizona.edu 2

3 CBPR Defining CBPR The Pros and Cons Ethics Community Based Participatory Research & Ethics (Maia Ingram, Flor Redondo & Carol Huddleston) PROS o Shared decision making moves you forward - collaborative o Trust building o Natural progression to action o Power sharing o Capacity building for both sides o Relationships make projects easier to launch CONS o Takes a long time o Changes in community slows projects down o Messy o Frustration of not having resources to move forward o Many agendas o Not highly valued in scientific circles o Funder pressures don t match up TRUST o Issue from community & committed to it o Connections & relationships o Shared power o Volunteers Community-Based Participatory Research Training (Carol Huddleston & Cecilia Rosales) o Douglas Community Health Survey Better records are being kept we believe that it s due to our study When is a Community Involved in Research? (Ken Schachter) o When community members are involved in the research o How does one protect a community involved in research from harm? o Five Requirements: Consultation with the community Disclosure to (and consent of) the community Involvement of the community in the conduct of the research Community access to data Maia, Ken, Jill, Carol, Patty, Evelyn will help to organize the training CBPR TRAINING.ppt Douglas_case_study 01_16_09.ppt Attached presentation Ethics Slides.ppt 3

4 Publication of research results Discussion Discussion (Evelyn Whitmer) - Ethical Issues ~ How does this affect you? o Bringing attention to people o Crossing lines of ethnical legal o Whole issue of trust with the farm workers - o How do you give farm workers a voice - When should you take ownership? o Before you start o Every step of the way o Keep good relationships ~ relationships already established - Problems or experiences you foresee o Different agendas - Why do we want to do this? o So that we can be effective o Important to talk about fairness o CBPR if you are saying you do it ~ then you have to do it well o We need to be clear on what we are talking about Case Story: The Primary Health Care Review Case Story ~ (Jill de Zapien) o Looking back at the Nogales Primary Health Care Review o Whey this research can make a difference o With action you can do everything! o People who are passionate about an issue do something NogalesPrimaryHlthC rrrvw_jan1609.ppt Closing Discussion Closing Discussion (Patty Molina) - Why are we doing CBPR? o Make sure that we trust each other o Collaborations with community o The real work, social change o Opportunity to engage more members of the CAB o Advocacy important but hard to understand o Opportunity to have relationships along the Border ~ keep ourselves connected o This is an opportunity to do this again Good conversation for next meeting Salud en Accion 4

5 o Timing of what we came up with advocacy was great o Makes us stronger gives you more energy with other people around you o We have the strength - How will we remain flexible as a group? o Communication o Listen to community members o Community knowing what s going on o Community context will be very important o Political timing o Visibility to be flexible with funding Next Meeting May 8, :00 1:00 Possible Agenda for next meeting Future CAB Meetings o Some partners what to see ACTION o Good to bring new people into this group invite new people around the community (issue for membership committee) o More people from hospitals Swede Johnson Bldg. Room 205 o Presentation from Yuma County o Deaths on the Border *Please mark your calendars for the next CAB Meetings July 24, 2009 October 23, 2009 Great discussion ~ please join a committee 5