Leicestershire Learning Disabilities Partnership Board

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1 Leicestershire Learning Disabilities Partnership Board Leicestershire Learning Disabilities Partnership Board Members Handbook Leicestershire Learning Disabilities Partnership Board Dec 2015 Page 1 of 51

2 Index / Contents Page Introduction 4 Terms of Reference (Aims) 5 Accountability and Influence Who do we tell what we are doing? Who needs to know what we are doing? 6 to 7 Priorities (Action Plan) for Membership of the Board How to become a Member of the Board What does a Representative on the Partnership Board do? 9 to to 22 Board meetings and dates 23 to 25 Ground rules for meetings Communication during meetings Communications Contacting the Board Self Advocates Meetings Workshops / Feedback Website Papers Steering Group What does it do? Terms of Reference Membership Meeting Dates 26 to to to 38 Leicestershire Learning Disabilities Partnership Board Dec 2015 Page 2 of 51

3 Locality Groups and Subgroups of the Board 39 to 51 Locality Groups Charnwood Harborough Hinckley and Bosworth Melton North West Leicestershire Wigston, Blaby and Oadby Sub Groups 47 Easy Write Core Group 48 Better Health 49 Family and Carers Leicestershire Learning Disabilities Partnership Board Dec 2015 Page 3 of 51

4 Introduction Welcome to the Leicestershire Learning Disabilities Partnership Board. The Partnership Board and its members are committed to making things better for people with learning disabilities and their carers in Leicestershire. We will work together to offer support and guidance to people who buy services and people who provide services. We will try and make sure that people with learning disabilities have a voice and are able to make a contribution to their communities. As a member of the Board, you have a special contribution to make in raising awareness of the issues faced by people living with a learning disability to help them live a full life and make their contribution. You will have access to a network of experts by experience and professionals who are working together to make things better. Heather Pick Helen Illsley Kylie Jarvis Co Chair Co Chair Vice Chair Leicestershire Learning Disabilities Partnership Board Dec 2015 Page 4 of 51

5 Partnership Board Terms of Reference (Aims) To meet every 3 months To make sure we make a difference to the lives of people with Learning Disabilities and their families To make sure we do the things on our Action Plan To spend the money in the best way we can To report to other groups to tell them what we think about changes or new ideas To tell other groups what we have been talking about and any decisions we have made Leicestershire Learning Disabilities Partnership Board Dec 2015 Page 5 of 51

6 Accountability and Influence Who do we tell what we are doing? Who needs to know what we are doing? This is where the Partnership Board fits into the decision making structure (Governance) of the important people who can decide what happens in Leicestershire Health & Wellbeing Board Adults & Communities Management Group Learning Disabilities Partnership Board Leicestershire Learning Disabilities Partnership Board Dec 2015 Page 6 of 51

7 Health and Wellbeing Board (H&W) The Health and Wellbeing Board is made up of councillors, doctors, managers from Adults and Communities, Children and Young People's Services and Public Health, as well as representatives of patients and the public. Its role is to help improve the health and wellbeing of the population of Leicestershire, by making sure people work together to provide good services. Adults and Communities Management Group The Partnership Board Steering Group reports annually to the Adults and Communities Management Group who are responsible for agreeing the funding for the Board. Leicestershire Learning Disabilities Partnership Board Dec 2015 Page 7 of 51

8 Priorities (Action Plan) for 2018 These are the things or themes we will talk about at our meetings. Housing Employment, Education and Training What places are good places to go to in the community? Health and Wellbeing Leicestershire Learning Disabilities Partnership Board Dec 2015 Page 8 of 51

9 Membership of the Partnership Board Assistant Director, Adults & Communities, Leicestershire County Council Heather Pick Co Chair Self Advocate and Chair of Action in Melton Helen Illsley Co Chair Self Advocate and Chair of Harborough Action Team Kylie Jarvis Vice Chair Business Support, County Hall Maxime Hardy Administrator Leicestershire Learning Disabilities Partnership Board Dec 2015 Page 9 of 51

10 Membership of the Partnership Board Sam Screeton Learning Disability Primary Care Liaison Nurses, Leicester Frith Hospital Chair of Better Health Sub Group Tel: Tracey L Burton Fiona Campbell Head of Service, Working Age Adults East, and Review Services Tracey.burton@leics.gov.uk Direct Line: Service Manager, Oadby and Wigston Fiona.campbell@leics.gov.uk Ian Verity Ian Verity Programme Manager Learning for Independence Leicestershire Adult Learning Service Ian.Verity@leics.gov.uk Leicestershire Learning Disabilities Partnership Board Dec 2015 Page 10 of 51

11 Aaron Deguchi Self Advocate, Homefield College Kelly Dryden On behalf of the Student Council, Dorothy Goodman School Mandy Ewart Lead Practitioner, Disabilities Tel: Mary Flynn Community Support Worker, Transitions Team Alix Glazier Self Advocate and Chair of the Charnwood Action Group Leicestershire Learning Disabilities Partnership Board Dec 2015 Page 11 of 51

12 Sally Collard. Deacon and Hardy Community Support Tel: Jo Aston Administrator, Family and Carers Group Mary Garner Co-Chair, North West Leicestershire Locality Group contact administrator Abigail Gilchrist The Base2Be Ros Jarvis Family Carer, Family Carer s Group address: ros.jarvis@gmx.co.uk Leicestershire Learning Disabilities Partnership Board Dec 2015 Page 12 of 51

13 Kylie Jarvis Self Advocate and Vice Chair of the Partnership Board contact the Administrator Russell Lacey Self Advocate Phil Linggood Family / Carer and Co Chair of Charnwood Action Group charnwoodactiongroup@gmail.com Mike McHugh Consultant, Public Health mike.mchugh@leics.gov.uk Tel: Leicestershire Learning Disabilities Partnership Board Dec 2015 Page 13 of 51

14 Gurjit Samra-Rai Keep Safe Group, Community Safety Team Marie Norman Freedom Support Heather Pick Co Chair of the Partnership Board and Chair of the Steering Group Helen Illsley Self Advocate, Co-Chair of the Partnership Board and Chair of the Action in Melton Locality Group Mick Pullen Self Advocate, Harborough Action Team, Contact through the Administrator Leicestershire Learning Disabilities Partnership Board Dec 2015 Page 14 of 51

15 Dawn Shepherd Self Advocate and Chair of Hinckley Locality Group Jane Southwick Self Advocate contact the Administrator Peter Scott Self Advocate, Charnwood Action Group Gerry Short Principal, Homefield College Leicestershire Learning Disabilities Partnership Board Dec 2015 Page 15 of 51

16 Ditta Stokes Heritage Care Peter Warlow Chief Executive, Glebe House Project Linda Wright Family Carer Jane Robins Lead Commissioner Manager for Working Age Adults Tel: Jorge Witherington Self Advocate, Homefield College Contact Gerry Short Leicestershire Learning Disabilities Partnership Board Dec 2015 Page 16 of 51

17 Arron Keen Elisabeth Clark Anne Collier VALUES Executive Manager Trading, Voluntary Action Leicestershire Tel: Service Manager, Charnwood Kerry Levy Student Nurse for Learning Disabilities at DMU Tom Common Head of Service Special Educational Needs and Disabilities Children and Family Services, Leicestershire County Council Tel: Leicestershire Learning Disabilities Partnership Board Dec 2015 Page 17 of 51

18 Amy Lewis Simon Dalby Mrs Magda Allen Yasmin Sidyot Commissioning and Market Shaping Officer Address: Tel: Local Area Co-ordination Manager Public Health Department Leicestershire County Council Tel: address: Member of the North West Leicestershire Locality Group address: Tel: Head of Strategy and Planning East Leicestershire and Rutland Clinical Commissioning Group ndccg.nhs.uk Leicestershire Learning Disabilities Partnership Board Dec 2015 Page 18 of 51

19 New Members If you know someone who would like to become a Member of the Partnership Board, please ask them to contact the Administrator. The Board will need to know how they or their organisation links in with helping to improve the lives of people with Learning Disabilities. Agendas, Minutes and other relevant information will be ed out to the members of the partnership board. By becoming a member of the board we will ask if you give permission for your address to be shared. If you would not like the partnership board to share your address when ing agendas, minutes and other relevant information please let the administrator know. They can also look at the website link Leicestershire Learning Disabilities Partnership Board Dec 2015 Page 19 of 51

20 What does a Representative on the Partnership Board do? We have written these guidelines to help everyone understand what they need to do to be a good Partnership Board representative. The representatives at the Partnership Board come from lots of different groups and organisations. They all know different things about services for people with learning disabilities and their families in Leicestershire. By working well together, in the Partnership Board. Groups, organisations and Partnership Board representatives can help to make sure Valuing People principles work well in Leicestershire. Leicestershire Learning Disabilities Partnership Board Dec 2015 Page 20 of 51

21 What we need you to do Know about Valuing People Principles and the Valuing People Now paper and help other people to understand what they are about. Share the things you know and your experience with the Board Come to as many meetings as you can. If you know you can t come to a meeting, let the Chair know and find someone else who can come in your place. Make sure you are ready for the meeting by reading the papers, talking about them in your group or service and thinking about what you want to say at the meeting. Join in at the meetings speak up, say what you think and ask questions. Leicestershire Learning Disabilities Partnership Board Dec 2015 Page 21 of 51

22 Be the representative from your group or service at the Board. This means telling the Board what your group or service is doing about the important things in Valuing People principles and Valuing People Now. Be the representative from the Partnership Board in your group or service. This means telling your service about the work of the Partnership Board and making sure the things the Board decides are happening in your group or service. Speak up about the lives of people with learning disabilities and their families, and the work of the Partnership Board in other groups and meetings. Leicestershire Learning Disabilities Partnership Board Dec 2015 Page 22 of 51

23 Board Meetings Meetings Partnership Board meetings are held every 3 months at County Hall from 10:00 am to 1:00 pm. Visitors Visitors with a learning disability and their supporters are very welcome to join us. Presentations There will be presentations at the Board Meetings by people who want to tell us about things that are linked to our themes and priorities. People who want to present to the Board must make their request through the Administrator who will pass on to the Steering Group. Leicestershire Learning Disabilities Partnership Board Dec 2015 Page 23 of 51

24 Board Meeting Dates 2018 Time Date Theme Thursday 11 th January 2018 At County Hall Housing Thursday 22nd March 2018 County Hall Thursday 5th July 2018 County Hall Leicestershire Learning Disabilities Partnership Board Dec 2015 Page 24 of 51

25 Time Date Theme Thursday 1st November 2018 County Hall Leicestershire Learning Disabilities Partnership Board Dec 2015 Page 25 of 51

26 Ground Rules of Meetings We expect you to send your apologies if you are unable to attend and send a representative in your place if you can. Please let the Administrator know. We expect you to arrive on time and sign the attendance sheet At the end of the meeting, please leave the room tidy by taking your papers and any rubbish with you. At the end of the meeting, return your red and yellow card to the box Leicestershire Learning Disabilities Partnership Board Dec 2015 Page 26 of 51

27 Communication - during meetings At the Partnership Board everybody is equal. We are all important and it s important that we all join in and say what we think. We need to make sure we do this by using easy words and no jargon. Please hold up the yellow card if you want to speak or ask a question. Please do not speak until you are asked to do so by the Chair Hold up the red card when there is something you don t understand or if people are talking too fast. Anyone can hold this card up at any time. As soon as you see the red card, please stop talking. Making things easy to understand is a difficult job. At each meeting we will ask someone to help make it easier for everyone to join in. We call this person the Word Police. Please remember the Word Police is there to help us all. Leicestershire Learning Disabilities Partnership Board Dec 2015 Page 27 of 51

28 Everyone should take it in turns to speak Everyone should respect what other people say and give them time to speak Everyone should always have good manners No one should speak in a rude way to anyone When the meeting is in progress, you should only talk about Partnership Board work Please do not have private conversations during the meeting Your mobile phone should be switched off or put on silent at all times No texting on mobile phones, ing or working on laptops during the meeting Leicestershire Learning Disabilities Partnership Board Dec 2015 Page 28 of 51

29 Communications Contacting the Board Contact the Administrator who will be happy to pass on your question or request to the Steering Group for a decision. Anyone wishing to present to the Board must write to the Administrator who will forward to the Chair of the Steering Group. Maxime Hardy Business Support, Room 600 Leicestershire County Council County Hall Glenfield Leicestershire LE3 8RL maxime.hardy@leics.gov.uk Leicestershire Learning Disabilities Partnership Board Dec 2015 Page 29 of 51

30 Workshops Attendees at the Partnership Board meetings will all join a workshop after the presentations to discuss these questions: 1. What did you think about the presentation? 2. How can we help that organisation/group? 3. Is there anything else you want to talk about? The answers from the workshops will be written down. Leicestershire Learning Disabilities Partnership Board Dec 2015 Page 30 of 51

31 Feedback The Steering Group will provide feedback to the organisations and groups who present to the Board by using the comments from the workshops. The feedback will be put on the website. Website The Partnership Board website has lots of information including: The Members Handbook Meeting dates for the Partnership Board, Locality Group and Sub Groups Agendas, presentations and reports for the Board meetings. Workshop feedback Templates, image bank and photos to help with presentations The website is updated regularly. If you would like information adding to the website please contact the administrator. Leicestershire Learning Disabilities Partnership Board Dec 2015 Page 31 of 51

32 Papers Members will be sent an (2 weeks before the meeting) with the papers. If members need hard copies by post, they can ask the Administrator. All agendas, presentations and papers for meetings will be published on the website These can be accessed and printed off by anyone wishing to attend a meeting We will not be recording or sending out minutes of the Partnership Board meetings. This information will be included in the presentations. All this information will be published on the website. Leicestershire Learning Disabilities Partnership Board Dec 2015 Page 32 of 51

33 The Steering Group What does it do? Helps support and give guidance to the Partnership Board and to check that they are doing a good job. Anyone wishing to make a presentation to the Partnership Board must ask the Steering Group who will either agree or pass on to the appropriate person at County Hall. The Steering Group will receive regular updates from the subgroups and locality groups so that they can check that groups are doing what they said they would and how they are getting on. This helps us write any reports needed to tell other people or groups what we are doing and how they can help us make things better. The Steering Group checks that the money that has been given to subgroups and Locality groups is being used to make things better by checking what has been spent and what difference this has made to people s lives. Leicestershire Learning Disabilities Partnership Board Dec 2015 Page 33 of 51

34 Terms of Reference (Aims) To be brilliant To make sure things are done on time Help others to keep to deadlines To join up all of the work of all the sub groups and locality groups to make sure they make a difference Quality Do what we said we would do and stick to priorities To give feedback to the Board To help /support / give guidance to the Partnership Board To help the Partnership Board do a really good job To check the Partnership Board are doing a good job Leicestershire Learning Disabilities Partnership Board Dec 2015 Page 34 of 51

35 Who should be a member of the Steering Group? Leicester Partnership Trust Self Advocates (at least x 2) Family Carers (x 2) Leicestershire County Council Education (Special School) Providers and Voluntary Organisations Leicestershire Learning Disabilities Partnership Board Dec 2015 Page 35 of 51

36 Jobs of the Steering Group Chairing Heather Pick Papers Administrator Facilitator to help things go well How the Steering Group does its job Not too much Doing what we said we would do Set the agenda for the Partnership Board What we talked about at the last meeting Timelines - Checking the work of the Sub groups and Locality groups. The Steering Group will meet on the Thursday afternoon of the week following the Partnership Board Meeting Meetings will normally be at County Hall. Meetings will be 2 hours, normally from 10am to 12pm. Meetings will not be changed without the agreement of Steering Group members. Meetings will be minuted by the Administrator who will circulate copies to all members of the Steering Group Leicestershire Learning Disabilities Partnership Board Dec 2015 Page 36 of 51

37 Steering Group Membership Heather Pick Kylie Jarvis Helen Illsley Gerry Short Fiona Campbell Ros Jarvis Mick Pullen Linda Wright Peter Scott Mandy Ewart Phil Lingood Russell and Jenny Lacey Maxime Hardy Chair Harborough Action Group Melton Action Group Principal, Homefield College Service Manager, Oadby and Wigston Family and Carers Sub Group Harborough Action Group Family and Carers Sub Group Charnwood Action Group Lead Practitioner, Disabilities Family and Carer s Group North West Leicestershire Locality Group Administrator Meeting Dates 18th January 2018 County Hall 29th March 2018 County Hall 12th July 2018 County Hall 8th November County Hall am - 12pm 10am - 12pm 10am 12pm 10am 12pm Leicestershire Learning Disabilities Partnership Board Dec 2015 Page 37 of 51

38 Making decisions There will be at least 4 people at the meeting to make decisions. If there are not 4 people, the decision will be made at the next meeting. If a decision is urgent, the Administrator will contact the Chair and the question to everyone and tell them what the choices are. The will say when everyone has to choose by. Leicestershire Learning Disabilities Partnership Board Dec 2015 Page 38 of 51

39 Locality Groups Locality Groups are sub-groups of the Board. Their main role is to find out the needs and priorities in their local area. They collect information about local services and opportunities and Find out what people with learning disabilities and their families think needs to change Each Locality Group will include a Board member who will make sure that the group knows what is happening in the Board and can feedback issues to the Board on behalf of the Group. Each Locality Group writes a simple Action Plan each year. The plan helps them focus their work, monitor progress and feed back to the Board and other sub groups. Leicestershire Learning Disabilities Partnership Board Dec 2015 Page 39 of 51

40 Locality Groups have a wide range of members and involve local groups who are not represented on the Board. Each Locality Group has an open membership policy. This means that anyone who is committed to improving life opportunities for people with learning disabilities is welcome to come to their meetings They welcome people with learning disabilities as active members and use simple language and avoid jargon and abbreviations in their meetings and papers. Groups need to show that they have spent their money well and that this has made a difference to the lives of people with learning disabilities. If you would like to know more about the group in your local area, contact the chair or the admin person of that group. Leicestershire Learning Disabilities Partnership Board Dec 2015 Page 40 of 51

41 Charnwood Action Group This group looks at things that happen in Charnwood and if there is a problem in Charnwood that affects people with learning disabilities we try and get it sorted. We help or do stuff with people with learning disabilities that they want to know more about. We get speakers in to tell us more about things we are interested in and about government strategies and Leicestershire strategies that affect people s lives such as transport issues. Co Chairs Alix Glazier and Phil Linggood, charnwoodactiongroup@gmail.com Meetings are held on a Friday every 6 to 8 weeks. Check on the Better Lives website for all the dates. Location Support for the chair Meetings are held at various venues in the Charnwood area. Please check where the next meeting will be by contacting the Chair or by looking on the Better Lives website. Graeme Harrington graeme.harrington@leics.gov.uk Leicestershire Learning Disabilities Partnership Board Dec 2015 Page 41 of 51

42 Harborough Action Team (HAT) Harborough Action Team works in Harborough District. This includes Harborough town itself, Lutterworth, Broughton Astley and Great Glen as well as lots of villages. It is one of the biggest of the district council areas. We have members with learning disabilities, families and professionals of all kinds. We welcome anyone with a learning disability and anyone who is interested in helping us make things better for people with learning disabilities. We share information, discuss problems people find and talk about good things too. Many of our members are from Harborough town and we would welcome people from other places in the District. Chairs: Ann-Marie Pryor and Kylie Jarvis Please see the Better Lives Website for details About the Harborough Locality Group Meetings. Support for the Chair: Jackie Goodrick Jackie.Goodrick@leics.gov.uk Leicestershire Learning Disabilities Partnership Board Dec 2015 Page 42 of 51

43 Hinckley a Bosworth Locality Group Hinckley and Bosworth Locality Group has lots of members with learning disabilities. We share information to make sure we know what's happening in the area. We have just started a magazine to help share information about services, health, transport and other things. We ask people to come and speak to the group about new services, changes and to get more information. We would like to get more parents, carers and people that work for community organisations and services to attend our group. Chair: Dawn Shepherd Treasurer: Nigel Black Secretary- Gary Brooks hinckleybosworthlocality@gmail.com Meetings are held on the second Friday of alternate months. Starting from Friday 9th February Check on the Better Lives website for all the dates Location Support for the chair Mencap, 46 Hill Street, Hinckley. LE10 1DT Nixie Haas and Molly Maguire nixie.haas@leics.gov.uk molly.maguire@leics.gov.uk Leicestershire Learning Disabilities Partnership Board Dec 2015 Page 43 of 51

44 Action in Melton Action in Melton meets so that people in Melton with Learning Disabilities can have their say about things that are important to them, in a group where people understand what we need and want in our lives. It is good to meet with other people who can help us to make lives better in lots of different ways for people with Learning Disabilities and their Carers. We talk about things that are not working so well and we share things that are good, between ourselves and other Locality Groups. We share ideas about what Actions we can take to make our voices heard. and we do it! Chairs: Helen Anderson and Heather Yalden Treasurer: Helen Illsley and Darren Hazelwood actioninmelton@gmail.com Meetings are normally held on a Thursday from am to 12 pm. Check the Better Lives website for all the dates and meeting location. Support for the chair Jackie Goodrick Jackie.goodrick@leics.gov.uk Leicestershire Learning Disabilities Partnership Board Dec 2015 Page 44 of 51

45 North West Leicestershire Locality Group The group is made up of people with learning disabilities, parents and carers and people that work for community organisations, teams and services. We share information about things that are happening in the North West Leicestershire locality. We try to make sure that people with learning disabilities are included in all the things that happen in the local area and we help to make information easier to understand for services. Co-Chairs: Mary Garner and Stephen Holland. Meetings held every 2 months from 10:30am to 12:00pm. Location Support for the chair North West Leicestershire Council Offices Tracey Sowerby Tracey.Sowerby@leics.gov.uk Leicestershire Learning Disabilities Partnership Board Dec 2015 Page 45 of 51

46 Oadby, Wigston, and Blaby Locality Group At the meetings we talk about any updates from the Partnership Board and also anything we want to tell them. We have different speakers who come to talk to the Wigston Locality group members about what job they do and see if we can get involved as a Locality group in our area. We also have an action plan which we have to update to make sure we can see the changes that we make. These meetings are very helpful and interesting and we have a news share of anything we want to talk about. We always welcome new members to the group. The Blaby, Oadby Locality Group is currently being set up. If you know anyone who would like to attend the group meetings please contact Karen Davis. Contact Karen Davis for information about the meetings. Support for the chair Karen Davis Karen.davis@leics.gov.uk Leicestershire Learning Disabilities Partnership Board Dec 2015 Page 46 of 51

47 Sub Groups Sub Groups are working groups of the Board and take forward projects and jobs that are needed to make things better. They report to the Steering Group to show what difference their work has made. There are 5 sub groups 1. Communication 2. Better Health 3. Family and Carers Leicestershire Learning Disabilities Partnership Board Dec 2015 Page 47 of 51

48 Easy Write Core Group The Easy Write Core Group promotes the use of easy read information across Health and Social Care services. Chair: Pauline Ndigirwa Phone We meet 4 times a year to share good practice and resources. Please contact Pauline for details of future meetings if you would like to attend. Leicestershire Learning Disabilities Partnership Board Dec 2015 Page 48 of 51

49 Better Health The Leicestershire and Rutland Better Health Group aims to make sure that local health services meet the needs of people with learning disabilities. This will help people with a learning disability to lead healthy lives and get good health services. Chair: Sam Screeton Sam.screeton@leicspart.nhs.uk Phone / Meetings are held every 2 months from 10:30 am to pm. Contact Sam for the meeting dates. Location: Bridge Park, Unit 2 & 3 Bridge Park Plaza Bridge Park Road 674 Melton Road Thurmaston Leicester LE4 8BL Leicestershire Learning Disabilities Partnership Board Dec 2015 Page 49 of 51

50 Family and Carers The family carer group wants to help all families and unpaid carers of people with learning disabilities in any way we can. We also want to help all people who provide services to do it in a family friendly way. We will try to keep up to date with important things which affect families and our relatives. We will use the website to reach some people and look for other ways to reach others. We will talk to the County Council and the Partnership Board about things that affect families, listen to any ideas they have and explain to them how such ideas may affect families. We welcome ideas and inputs from Family Carers of Learning disabled adults. Chair: No current chair at the moment. Administrator, Family and Carers Group Jo.Aston@leics.gov.uk Meetings held first Monday of the month from 10.00am to 12.30pm. Attendance at the meetings at County Hall is encouraged. Shared transport from around the County may be arranged in advance. Talks and presentations are available over a direct web link (just provide an e mail address to receive an invite). Meetings may be attended from Leicestershire Learning Disabilities Partnership Board Dec 2015 Page 50 of 51

51 home via the web link. Check the Better Lives Website for dates. Location County Hall Leicestershire Learning Disabilities Partnership Board Dec 2015 Page 51 of 51

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