PROGRAMME. Brain Injury: From Imaging to Rehabilitation. Headway and BCUHB Neurosciences North Wales 2017 Conference

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1 Headway and BCUHB Neurosciences North Wales 2017 Conference Brain Injury: From Imaging to Rehabilitation OpTIC Technology Centre, St Asaph Business Park, St Asaph, LL17 0JD WEDNESDAY, 1 MARCH am pm PROGRAMME Sponsored by

2 About Headway Headway exists to give help and support to people affected by brain injury. It does this in a number of ways: Nationally Headway provides support to the local Groups and Branches and helps to deliver high quality services through guidance on policies, procedures, standards and training. Additionally: The nurse-led Headway helpline provides information, advises on sources of support, and offers a listening ear to those experiencing problems after brain injury We publish a range of booklets containing information about aspects of brain injury that will be helpful to those directly affected, plus professionals, employers and members of the public We promote understanding of brain injury and its effects We lobby for better support and resources to be made available by statutory health and social care providers We campaign for measures that will reduce the number of brain injuries Locally A network of local Groups and Branches throughout the UK and Channel Islands offers a wide range of services. In Wales we have one Group (Cardiff) that employs paid staff to provide a day service to brain injury survivors five days a week and run social groups in Cardiff, Blackwood, Newport and Pontypridd. Elsewhere we have 11 branches covering Bridgend, Carmarthenshire, Ceredigion, Conwy & Denbighshire, Gwynedd & Ynys Môn, Merthyr Tydfil, Neath Port Talbot, Pembrokeshire, South Powys, Swansea and Wrexham & Flintshire.

3 Agenda 9.15am 9.45am 10.00pm 10.30am 11.10am 11.30am 12.30pm 1.30am 2.10pm 2.50pm 3.05pm 3.45pm 4.00pm Registration Welcome from the Chair Philip Grundy, St Johns Buildings Neurosciences in North Wales - Annette Morris, BCUHB - Neurosciences Neuroimaging and Neurochemistry Research in Brain Injury - Dr Paul Mullins, Bangor University Tea/Coffee Break Against the Odds - Brain Injury Survivor Presentation Megan Jones Lunch Neuropsychiatry of Acquired Brain Injury: Diagnosis and Management - David Linden, Cardiff University Working with Personality Difficulties in Brain Injury Rehabilitation - Pieter du Toit, University of Essex Tea/Coffee Break Emerging from the Fog: Working with Survivors in the Early Days Following Brain Injury - Dr Cathryn Roberts, Jamy Ashton and Nia Wyn Williams, BCUHB - North Wales Brain Injury Service Summary and Reflection of the day Finish 3

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5 Chair Philip M D Grundy Barrister and Head of Catastrophic Injury St Johns Buildings Philip read Law at Cardiff University and was called to The Bar by the Honourable Society of the Middle Temple in He practises in all areas of Catastrophic Injury, Clinical Negligence and Personal Injury and sits as a Recorder in The Crown Court and County Court. Philip is also a qualified mediator. Philip specialises in brain injury, spinal injury and amputation cases. He has been instructed by large specialist firms of solicitors in multiple numbers of cases including those involving acquired brain injury, spinal injuries and amputations together with complex orthopaedic and polytrauma injuries. Philip has been a member of SJB since 1987 and is recognised for his expertise in the handling of complex cases demonstrating both an in-depth legal knowledge and exceptional medical comprehension. He has an ability to communicate with all parties combining within a multifaceted practice evidenced by repeated instructions nationwide and offering direct public access where appropriate. Philip is one of the few civil barristers to understand and implement vulnerable witness protocols, including ground rule hearings, for civil trials. At present it is understood that Philip has acted in the only civil trial which involved a registered intermediary. He is actively involved as a volunteer with Headway, particularly Lancaster and Morecambe Bay, and was instrumental in organising a brain injury conference in the summer of 2016 for the benefit of legal professionals, with all profits being donated to Headway. Philip is presently undertaking two further projects, as yet in their early stages, focusing on the misuse of the Rehabilitation Code, but more significantly on the rehabilitation available for stroke victims, irrespective of whether this relates to a medico-legal claim. 5

6 Biographies Dr Paul Mullins Director of the Bangor NeuroImaging Unit Bangor University Dr Mullins was educated at James Cook University in Australia, where he received a Bachelor of Science (Honours), majoring in Chemistry and Biochemistry. Paul obtained his PhD from the University of Queensland, Australia, while working for SmithKline Beecham Pharmaceuticals using MR methodologies to study stroke. During this PhD Paul further developed his interest in the brain and how brain cells communicate, and respond, to external stimuli, injury and illness. He followed with post-docs at Georgetown University and then the University of New Mexico, using MRI and MRS to study traumatic brain injury and Schizophrenia among other central nervous system disorders. Paul then started work at The MIND Imaging Centre in Albuquerque NM where he managed the 4T MRI facility. Currently Director of the Bangor NeuroImaging Unit, Senior MRI Physicist, and senior lecturer in the department of Psychology, Paul collaborates with researchers from the College of Health and Behavioural Sciences on neuroimaging study design, data acquisition and processing and resources available to help with their research questions. He is also the Course organiser for the Masters in Neuroimaging. Actively involved in research using magnetic resonance spectroscopy to measure neurochemistry in central nervous system function and disorders, Dr Mullins has 52 publications in the area of MRI and MRS. In particular projects are aimed at measuring neurotransmitter (Glutamate, Glutamine and GABA) changes and relationships in response to external and internal stimuli. EU funding for the development of neuroimaging research for dementia studies has recently been secured, involving collaboration with Trinity College Dublin and University College Dublin. Most recently work has focused on the simultaneous acquisition of MRS with other measures of neural activity (EEG, BOLD) to better elucidate the neurochemical correlates of Brain function. 6

7 Biographies Megan Jones Brain Injury Survivor Megan was born and raised in North Wales in a Welsh speaking family and had a happy childhood with her three sisters. She did well in school and like most 17 year olds, was eager to pass her driving test. The 2nd October 2012 was a typical Tuesday; little did Megan know that this day would change her life forever. Following a horrific car accident, she didn t remember anything for 7 weeks and spent over 8 months in hospital. Against all odds, Megan survived and recovered miraculously from a traumatic head injury, as well as several other injuries and complications. Megan is now 22 years old and is in her second year studying nursing at the University of Southampton. Her experience has consolidated her personal faith as a Christian; she feel she has been given a second chance in life and wants to grab it with both hands. In sharing her story she hopes to make a difference for the better and convey that there is always hope, even in the darkest of times. 7

8 Biographies David Linden Professor of Translational Neuroscience Cardiff University David read medicine, classics and philosophy in Germany. He obtained a DPhil from the University of Oxford for his work on medical ethics in antiquity in 2000 and a Dr. med. in neuroscience at the Max Planck Institute for Brain Research in He trained in psychiatry at Frankfurt University and has a special interest in clinical neuropsychiatry and neurodevelopmental genetic syndromes. He worked in North Wales (Bangor University and North Wales Brain Injury Service) from 2004 to Since 2011 he has been Professor of Translational Neuroscience at Cardiff University and Head of the Neuroimaging theme group of the MRC Centre for Neuropsychiatric Genetics and Genomics as well as Consultant Neuropsychiatrist at Cardiff and Vale University Health Board/ Welsh Neuropsychiatry Service. He is also the director for clinical research at the Cardiff University Brain Research Imaging Centre. In his research he applies structural and functional magnetic resonance imaging (MRI), neurophysiological techniques and genetics in order to understand the function of the brain in health and disease. Current research interests include functional imaging of psychopathology, neural substrates of social cognition and decision making, genetic imaging, treatment and training effects on the brain, and neurofeedback. David is the author of The Biology of Psychological Disorders (2012), Brain Control (2014) and Neuroimaging and Neurophysiology in Psychiatry (2016) and over 180 scientific papers in the fields of biological psychiatry, functional brain imaging, visual and social cognitive neuroscience, and neurofeedback. He has coordinated trials of functional MRI-based neurofeedback in depression and Parkinson s disease. He is also the coordinator of the European Consortium BRAINTRAIN ( funded by the European Commission under the 7th Framework Programme, which develops and evaluates imaging-based neurofeedback methods for a range of mental disorders. 8

9 Biographies Pieter du Toit Principal Clinical Consultant University of Essex Pieter joined the Oliver Zangwill Centre staff in June 2015 as Principal Clinical Psychologist. He has previously held positions as Consultant Clinical Psychologist within the NHS and as Deputy Programme Director of the University of Essex Doctorate in Clinical Psychology programme. Pieter s clinical and research interests include adapting psychological therapies to the needs of clients within neuro-rehabilitation settings, neuropsychological assessment and programme design and evaluation. Pieter has a special interest in working with complex clients and contributing to the development of approaches such as schema therapy to this client group. Dr Cathryn Roberts Principal Clinical Psychologist BCUHB - North Wales Brain Injury Service Dr Cathryn Roberts is a Principal Clinical Psychologist at the North Wales Brain Injury Service. She works as part of a specialist team providing community rehabilitation for people with acquired brain injury in Anglesey and Gwynedd. Prior to this role she worked in an acute stroke ward for four years and co-led an early supported discharge team. Cathryn has a special interest in working with families after brain injury and a research background in the neuropsychology of emotion. 9

10 Biographies Jamy Ashton Occupational Therapist - Interim Head of Occupational Therapy BCUHB - North Wales Brain Injury Service Jamy Ashton is the Interim Head of Occupational Therapy for Central Betsi Cadwaladr University Health Board. Prior to taking up this role she worked within stroke services and has over 12 years experience working with neurologically impaired patients. Jamy has a special interest in neurological hand splinting and cognitive rehabilitation. Nia Wyn Williams Senior Clinical Specialist Speech and Language Therapist BCUHB - North Wales Brain Injury Service Nia has over 20 years experience working as a speech and language therapist in a number of different clinical settings. She has worked within the North Wales Brain Injury Service since Her special interests include cognitive communication difficulties after stroke and traumatic brain injury and speech dyspraxia. Nia is currently undertaking a MSc degree in Clinical Neuropsychology at Bangor University. 10

11 Biographies Annette Morris Director of Neurosciences BCUHB - Neurosciences Annette joined the NHS in Wales as Assistant Director of Planning in North East Wales NHS Trust and undertook several additional roles such as Director of the North Wales Health Planning Forum and Director of the Ministerial Review of Neurosciences in North Wales. She also undertook a Board level secondment as Director of Planning and Performance at Wrexham Local Health Board. Prior to joining the NHS in North Wales Annette worked in the NHS in England. Having completed the Department of Health National Graduate Management Leadership Scheme for the NHS based at the University of Warwick, she subsequently held various senior general management positions, including General Manager for a Surgical Division and General Manager for a Medical Division. Annette has a BA Honours Degree and Postgraduate Degree from the University of Wales, Bangor, and also has an MBA (Masters of Business Administration, Health Executive) from the University of Keele Centre for Health Planning and Management, where she has undertaken comparative healthcare studies in Belgium, Holland, France, Spain, Latvia and the West Indies. Annette has extensive experience in operational and strategic planning and in the delivery and performance management of services across primary, community, secondary and tertiary care, together with experience of working extensively with public health, local government and the private sector. She is Vice Chair of the Keele University Centre for Health Planning and Management Health Executive Alumni Association, an Accredited National Assessor on the Department of Health Graduate Leadership Programme in England and on the Advanced Development Programme and NHS Graduate Management Scheme in Wales. She lectures on the Keele Health Executive MBA Programme. 11

12 Thank you for attending Headway UK have for many years advocated for better services for patients with acquired brain injury. Within Wales and North Wales Dave Maggs and Ffion Jones have formed long-term partnerships with key players, including the NHS, to ensure patients receive the best care possible. Betsi Cadwaladr University Health Board formally established the BCUHB Neurosciences Board during 2012 to advise on the strategic clinical direction and operational delivery of neurological services across North Wales. It is chaired by the Executive Medical Director/ Deputy Chief Executive of BCUHB, Dr Evan Moore and is led by the Director of Neurosciences, Annette Morris. The Neurosciences Academic Lead is Professor Oliver Turnbull, Pro-Vice Chancellor of Bangor University, and there is academic input to the Neurosciences Board via the School of Psychology at Bangor University. The Neurosciences Board is working in partnership with local voluntary sector organisations to shape service delivery for a range of neurological conditions, including through the Neurosciences Disease Specific Advisory Groups. Headway North Wales is a key partner in the Head Injury Disease Specific Advisory Group, chaired by Dr Rudi Coetzer, Head of the North Wales Brain Injury Service of Betsi Cadwaladr University Health Board. Sponsored by Headway - the brain injury association is registered with the Charity Commission for England and Wales (Charity no ) and the Office of the Scottish Regulator (Charity no. SC ). Headway is a company limited by guarantee, registered in England no