Real People Sharing Their Hepatitis B Stories
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1 Real People Sharing Their Hepatitis B Stories Webinar May 17, 2018
2 Phone Option Call-In #: +1 (914) Attendee Access Code: All attendees are muted.
3 Questions? Questions? Feel free to submit questions in the chat box at anytime throughout the webinar.
4 Welcome / Introductions Hep B United is a national coalition, co-founded and co-chaired by the Hepatitis B Foundation and AAPCHO, that is dedicated to reducing the health disparities associated with hepatitis B by increasing awareness, screening, vaccination, and linkage to care for high-risk communities across the United States. The Hepatitis B Foundation is a national nonprofit organization dedicated to finding a cure and improving the lives of those affected by hepatitis B worldwide. StoryCenter is a nonprofit organization that supports individuals and organizations in using storytelling and participatory media for reflection, education, and social change.
5 Today s Agenda #justb Campaign Overview and Updates Rhea Racho Hepatitis B Foundation StoryCenter and Digital Storytelling Overview Amy Hill StoryCenter Story Screening / Storyteller Introductions Nancy, Bright, and Alice #justb Storytellers Q & A
6 #justb Campaign Overview and Updates Rhea Racho Hepatitis B Foundation
7 Background More than 2 million Americans are chronically infected with hepatitis B, a disease that is largely undiagnosed, but preventable and treatable. Hepatitis B has been a forgotten and under-prioritized disease. Hepatitis B is a highly stigmatized illness. Most infected individuals aren t diagnosed, and don t receive the care and support they need to live long, healthy lives.
8 Overview and Goals Overview Shares true, personal stories of people from across the U.S. who have been directly affected by hepatitis B Launched in May 2017 in partnership with StoryCenter and AAPCHO Educational grants provided by Arbutus Biopharma, Dynavax Technologies, and Gilead Sciences Goals Increase awareness and advocacy around hepatitis B; Decrease stigma and discrimination associated with the disease; and Promote testing, vaccination, and linkage to care and treatment to help save lives.
9 Activities and Story Distribution Activities Coordinated 3 workshops Produced 22 digital stories 13 available in two languages Launched website for #justb stories and accompanying resources Provide storyteller engagement and speaking opportunities and ongoing training/support Program and impact evaluation Story Distribution Monthly featured story websites, newsletters, social media, ads Media outreach press releases, interviews, guest blogs, local news, ethnic media Advocacy events issue briefings, Congressional meetings Community events/forums Conference presentations/exhibits Film festivals Printed materials postcards, posters
10 Storytellers in Action
11 StoryCenter and Digital Storytelling Overview Amy Hill StoryCenter
12 About StoryCenter Nonprofit Organization Focused on Storytelling: digital storytelling workshops story writing webinars and trainings consultation on story distribution Specialists in Community-Based Participatory Media: first-person stories ( I voice) group processes, not individual production hands-on digital media creation
13 About Digital Storytelling Unique blend of oral history, popular education, and participatory media approaches StoryCenter methodology is widely used for community-based public health practice and research Process of creating stories is as important as final media product: healing and leadership development Stories can be shared widely as tools for individual behavior, community, and policy change
14 About the Workshops Collaborative participant outreach and recruitment process Workshops in Berkeley (three days) and Philadelphia (two days) Agenda: Story Circle; script writing and recording; image gathering; hands-on video editing Follow-up consultation on story distribution
15 Story Screening / Storyteller Introductions Nancy, Bright, and Alice #justb Storytellers
16 Nancy s Story #justb Tested
17 Bright s Story #justb Resilient
18 Alice s Story #justb Grateful
19 Q & A Please submit questions in the chat box!
20 Thank You! Hep B United Hepatitis B Foundation StoryCenter
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