Goal for Tonight. Reacquaint you with the CCA s mission. Introduce Patient Support, Program & Event Staff. Introduce New 2011 Programs

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2 Goal for Tonight Reacquaint you with the CCA s mission Introduce Patient Support, Program & Event Staff Introduce New 2011 Programs Review the CCA Signature Programs Q & A

3 About the Colon Cancer Alliance The CCA is the oldest and largest national patient advocacy organization dedicated to ending the suffering caused by colorectal cancer (CRC) The CCA helps 500,000 people each year through its programs and services

4 The CCA s Mission In order to increase rates of screening and survivorship, the CCA provides : Patient support services Public and patient education CRC-related advocacy Research support

5 Introduction of Key Staff Donna Quinlan Program Director

6 Introduction of Key Staff Jeannie Moore Patient Support Manager

7 Introduction of Key Staff Nancy Butterfield Patient Support Advocate org

8 Introduction of Key Staff Todd Setter Undy 5000 Event Director

9 Introduction of Key Staff Jasmine Greenamyer Vice President org For all other staff pictures & contact info go to act.html#staff

10 NEW 2011 CAMPAIGNS Spanish Outreach Clinical Trials Matching Program Blue Note Fund Family History Campaign National Conference

11 Spanish Outreach Provide Spanish language services to help Spanish-speaking CRC patients. Now live: CancerDelColon.org: CRC information in Spanish Much-needed educational materials, as well as interactive workshops and seminars Helpline support in Spanish

12 Clinical Trials Matching Website Goal To have website that patients can easily navigate to find clinical trials Match by state of trial, stage of diagnosis & geography Website is complimented with a live patient navigator Powered by Emerging Med & in partnership with C-3. Launch date Late spring/early summer 2011

13 Cause Related Marketing for 2011 Dulcolax Campaign Retail supporters: Walgreens Walmart CVS Rite Aid Kroger Safeway Publix Costco

14 Family History Campaign Last year s PSA: top 10 market office elevators, Nasdaq tower, baseball stadiums, partner websites New Stickman PSA Goal: Screen early if you have a family history of colon cancer Debut March 1, 2011 Will compliment National Colorectal Cancer Family PLZ campaign

15 National Conference Family Matters: What you & your family need to know about colon cancer SAVE THE DATE June 23-25, 2011 Denver, Colorado

16 Conference Agenda Topics When family members should be screened or receive genetic testing How to design a treatment plan (for the newly diagnosed) Options for those with advanced disease Tips for living with colon cancer: legal and employment, financial, parenting, sex and body image, fertility and pregnancy, living with an ostomy, and more Track for young adults

17 Blue Note Fund Sometimes the most important thing a cancer patient needs is a little hope. Provides financial support for colon cancer patients Helping patients take care of their bills so they can take care of themselves Inspired by Grammynominated musician and producer Charlie Kelley

18 SIGNATURE CCA PROGRAMS Toll-Free Helpline Buddy Program My CRC Connections Website Dress in Blue Day Undy K Run/Walk Cities Go Blue Voices Volunteer Program

19 Toll-Free Helpline The CCA s helpline is one of its oldest and most valuable programs 600 calls are answered live each month Callers are mostly newly diagnosed patients seeking info about CRC and screening Other issues: Insurance coverage Clinical trials Side effect management Other support

20 Buddy Program Who better to guide you than one who has gone through the same experience? Peer-to-peer support More than 200 participating Buddies Program averages 30 requests a month Matched by: Stage of diagnosis Age Gender Concerns

21 The CCA s Websites The CCA s websites are the mostvisited CRC-related sites on the Internet CCAlliance.org has nearly 60,000 pageviews each month Undy5000.org has nearly 96,000 pageviews each month Most users are the newly diagnosed and those seeking information on screening

22 My CRC Connections Web-based colorectal cancer community Seek and share information and support Participate in live chats and message boards Create personal pages with photos, videos and blogs

23 Chats & Webinars My CRC Connections Web Chats Weekly informal web-based chats My CRC Connections Tele-A-Chats Monthly topic-driven telephone and webbased chats Conversations about Colorectal Cancer Webinars Internet and telephone-based interactive educational webinars

24 The purpose of Dress in Blue Day: promote awareness about colon cancer & encourage people to get screened. Get involved! Encourage friends, family members & co-workers to wear blue.

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26 What is the Undy 5000? Event to raise awareness about colorectal cancer 5 kilometer (3.1 mile) walk/run Participants draw attention to their bottoms by wearing boxer shorts A place for those affected by colon cancer to unite and know they are not alone

27 2010 Undy 5000 Locations 14 cities across America dates being determined

28 Undy 5000: Who Participates Women comprise 67% of our total audience 49% of our participants are years old 22% of our participants are 50 or older Healthcare professionals, media, and companies partner with the CCA

29 Undy 5000: Who Participates

30 Why Support the Undy 5000? Funding for national and local CRC initiatives Local screening and chapters initiatives National CCA patient support services & awareness programs Exposure to over hundreds of thousands of people interested in fighting colon cancer We partner with comprehensive cancer centers and other high-quality hospitals

31 Get Involved! Participate - Volunteer - Sponsor Todd Setter tsetter@ccalliance.org

32 What is Cities Go Blue? Designed to raise awareness about CRC Local chapters and ambassadors ask local businesses, governmental agencies, and religious institutions to help turn their city blue Emphasis is on raising awareness and driving screening for underserved and underscreened

33 DC Goes Blue September 26 October 3, educational and fundraising events Partnered with prestigious local hospitals CRC awareness night at MLB game Free screenings to over 500 uninsured Targeted African American and Hispanic communities Undy K walk/run

34 Philly Goes Blue

35 Voices Volunteers 5 Chapters & 200 Ambassadors Bring the mission to the local level Dress in Blue Day & Undy K Run/Walk Many are also Buddies providing Peer to Peer Support

36 Join the CCA Family! We have the power with this cancer to make an unprecedented difference in the lives of millions of Americans and their families

37 Q & A

38 THANK YOU We are making a difference because of people like you

39 Toll Free Helpline (877)