FINPEDMED & ICEPEDMED
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1 FINPEDMED & ICEPEDMED 13 June.2017, Helsinki Pirkko Lepola Executive Secretary of FINPEDMED General Secretary of NORDICPEDMED Helsinki University Hospital, Department of Children and Adolescents, Digital and Innovation Services Helsinki, Finland
2 Pediatric population in Nordic area 5,3 mil. Children represent 20% of the European population PL 2
3 Development line PL 3
4 FINPEDMED & ICEPEDMED status
5 FinPedMed since 2007 by pediatric subspecialties: 1. Pediatric Hematology - Oncology 2. Pediatric Neurology 3. Pediatric Endocrinology 4. Pediatric Rheumatology 5. Pediatric Infectious Diseases 6. Neonatology / Neonatologia 7. Pediatric Gastroenterology 8. Pediatric Allergology 9. Pediatric Nephrology 10. Pediatric Cardiology 11. Pediatric Anesthesia - Intensive Care & Pain Management 12. Pediatric Surgery 13. Pediatric Clinical Pharmacology 14. Child and Adolescent Psychiatry Rare Diseases NEW! Board will be established soon. 5 University Hospital Districts 20 Hospital Districts - Clinical Trial Units: - University Hospitals - Central Hospitals - Private Hospitals and Clinics - Other Hospitals (psychiatry etc.) PL 5
6 FINPEDMED - New legal entity HUS LaNu (2017) Legal entity transferred from CRI HUCH Ltd. to Helsinki University Hospital (HUS) in February 2017 Operations under new host started on 1st April 2017 New location is the Department of Children and Adolescents, Digital and Innovation Services New Steering Committee and Executive Committee will be composed during 2017 The legal host change does not effect directly to the FinPedMed operations, which will remain as national level infrastructure services for all stakeholders using our services PL 6
7 Investigators Registry FINPEDMED Members Helsinki 53 Tampere 30 Turku 27 Oulu 20 Kuopio 20 Muut 12 Total 162* *Some of the Expert Board members without registration Statistics: Doctors in Finland 2016 The Finnish Medical Association Paediatrics 645 Child Psychiatry 260 Adolescent Psychiatry 179 Paediatric Neurology 108 Paediatric Surgery 64 Paediatric 33 Anaesthesiology Total PL 7
8 PL 8
9 Finpedmed e-services (2014) Service Request Operational model Service Request fee 350,00 / request / trial Consultations based by separate annual Fees (2016) 153 Ka. 15 / v asiantuntijapoolia / PL
10 FINPEDMED Category I member Since 2010 Enpr-EMA European Network of Paediatric Research at the European Medicines Agency An agency of the European Union
11 Finpedmed guidelines, model templates for ICs, picture cards, etc Model templates (ICs for all age groups, parental notifications), guidelines for investigators, picture cards for clinical use Professional supplementary training for investigators and other stakeholders (GCP, LLHP2014, LLHP2016) research nurse training program National public consultations and collaboration with Competent Authorities; Research Law /Acts, Biobanks, Fimea new: CT Reg. implementation PL 11
12 Icepedmed since 2015 IcePedmed consept introduced to Icelandic Health Director, hospital directors, paediatric society of Iceland, and health authorities with positive feedback IcePedMed investigators will join the investigators registry and be part of the FinPedMed without own national network organization PL 12
13 Children s Hospital Reykjavik BARNASPÍTALI HRINGSINS s Reykjavík Hringbraut 35 paediatricians in Children s Hospital trained abroad + private doctors (approx. 50) Great interest to do trials and be involved in research infrastructure PL 13
14 / PL
15 (2017) PL 15
16 Press Release Mediuutiset (Finland) PL 16
17 NORDICPEDMED Governance PL 17
18 NORDICPEDMED Board Prof. Ásgeir Haraldsson, University of Iceland Chief and Faculty, Chairman, Children's Hospital Iceland Landspitali - University Hospital PL 18
19 Contact details Pirkko Lepola Executive Secretary FinPedMed Finnish Investigators Network for Pediatric Medicines General Secretary NordicPedMed Nordic Investigators Network for Pediatric Medicines Helsinki University Hospital, Department of Children and Adolescents, Digital and Innovation Services Lastenlinnantie 2, Helsinki P.O.Box 280, FI HUS, Finland Office: University of Tampere, School of Medicine Tampere Center for Child Health Research ARVO building, Lääkärinkatu 1, Room D519 FI University of Tampere, Finland P: PL 19
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